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Alternative treatment for Chordoma



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zasna

				          
            Posts: 1

          
          
            Joined: Oct 2009

          
        					
				
		
									

        			    October 27, 2009 - 1:32am			  			

			
			
Hello Everyone, 


My husband has recently been diagnosed with Chordoma (sacrum area). Has anyone treated this type of cancer through alternative treatment such as Dr. Burzynski or others.


Thank you for your help.


‹ Worried Hello from another board...but needing some help please ›

						
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jjhnyc

				      
	        Posts: 4

	      
	      
	        Joined: Nov 2009

	      
	    				
		
			
November 26, 2009 - 12:54am

			
chordoma cancer survive
			
I am cancer survive chordoma I find out I had about 5 months ago I got this doctor in nyc and he is the best and got nominated the top 5 doctor from north America in spine tumors and still one off 5 doctors cant still operate this type cancer chordoma, it really safe my life today after 4 weeks after my operation I am  cancer free patient chordoma and I will be clad to help you with my experience and doctors name ,address and  I went to see most off this doctors include 2 doctor from Memorial Sloan-Kettering Cancer Center saying his the best on the field but is not. If you want I will be clad to help you and your husband include a alternative treatment for this type of cancer with out the surgery depends off the age.best regards john



			
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Viviana

				      
	        Posts: 1

	      
	      
	        Joined: Jan 2011

	      
	    				
		
			
January 28, 2011 - 11:59am

			
Best hope
			
   Dear jjhnyc,


I was diagnosed with chordoma in the sacrum.

Surgery is probably most viable option.

I am happy to hear you underwent a successful surgery and you're cured.

I'd appreciate a lot if you could share with me the name of the neurosurgeon who was so successful in treating you.


Many thanks and best of wishes,


   Viviana



			
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JimSmitts

				      
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September 15, 2011 - 8:52am

			
I don't have the names of
			
I don't have the names of any specific neurosurgeons, but I can offer one other idea, as you go about the journey of determining your best treatment for your chordoma. If radiation is on the table, consider proton therapy as well... it can often have fewer harmful side effects than traditional radiation. Worth checking out!



			
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Anncan

				      
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	        Joined: Oct 2004

	      
	    				
		
			
May 23, 2010 - 6:37am

			
Chordoma treatment
			
Stay away from Burzynski, it's a scam.


The most effective treatment is agreed to be to remove as much of the chordoma tumor as possible and follow up with radiation. The most effective radiation seems to be proton beam.


http://staidansoakville.org/chordoma2.htm



			
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