Just trying to touch base with anyone else battling or caring for someone who is battling GBM IV and who is in their first or second year since diagnosis. Wondering how everyone is going and what's working and what's not. My husband was diagnosed in Feb 09, had his op in Mar 09 and had a recurrence in July 09. We now have 8 week scans to monitor the recurrence. He is on Temodar 5/23. He is also on Dilantin and Tegretol for seizures. He was well enough to go back to work in Sept and is currently doing 3 days a week. This week however he is beginning to doubt his ability to perform his job and seems to believe his employer may give him a redundancy. He was put on dexamethsone 3 weeks ago and has been having chest pains and seems a little depressed. He has finally agreed to more regular checks by the GP (he also has diabetes and heart issues). Life almost seems normal between scans. Next one in next Friday.
How is everyone else going?