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Fibrosarcoma

sandysarcoma's picture
sandysarcoma
Posts: 5
Joined: Oct 2008

Is there anyone out there with my cancer...fibrosarcoma? I have never met another person with fibrosarcoma..if you are out there, what is your story, and how are you?

Chez
Posts: 24
Joined: Nov 2009

Hi everyone. It was Sept 2009 that I was diagnosed. It is now Easter 2012. My last full tests were done last January. I had to have endoscopies due to having has a precancerous polyps removed several years ago as well as the scans for the myxofibrosarcoma that I was diagnosed with a couple of year ago. I am happy to report that all is still okay. The can's report showed that there was no progression or recurrence of the cancer...Next scan due in July. God bless and best wishes. I also had a MRI of my head for another concern I had not in relation to my cancer but to put my mind at rest as I was getting some pain in my eye and nasal problems. Again all clear.

Chez
Posts: 24
Joined: Nov 2009

Hi guys just clocking on the say my last CT scan done July 2012 shows no evidence of spread. I'm still here. Next scan due January. I have been watching my diet and trying to get my weight down. We know obesity is a problem. I am now 75kgs and want to go to 70kgs eventually but I am in no rush. I first noticed my lump having been on a meal replacement diet which I will never do again. I am eating a sensible diet full of antioxidants and omega 3s. I avoid processed foods and buy fresh food products every few days. I have increases green vegetables and salads and have included legumes nuts and seeds into my diet. I read a book called "Cancer to Wellness" which made a lot of sense. It was written by a cancer survivor and you can get it online. I have joined a free website program called "Weigh It Up". They have diet challenges frequently and provide healthy recipes to follow. Comments in the forums have been that some people have noticed since starting this program that their immunity seems to have improved as they haven't had a cold this season. I do take supplements of Krill oil, CoQ10 and Vit D. I was found to be deficient in Vit D which is linked to cancer too. The other supplements increase my antioxidants and omega 3. I go to the gym 3 times a week. I have to push myself there as I would be lazy with exercise otherwise, but my husband and I make it a social gathering with other retirees.We do need to take care of ourselves mentally physically, emotionally and spiritually so I have a healthy diet, exercise, try to make everyday a happy one so not to alert that hormone cortisol also linked to obesity and cancer, I outreach to others as when you care for others you care for yourself too and not focus on your own sadness and I go to church. I look after today and let tomorrow worry about itself.

jun
Posts: 1
Joined: Oct 2012

my husband is undergoing treatment with fibrosarcoma
advance grade.

what did you do for pain management.

thanks

jun

erlindajq3658
Posts: 5
Joined: Sep 2013

hello sandy i also have one .how are doing with it?can you tell me more

erlindajq3658
Posts: 5
Joined: Sep 2013

hello sandy i also have one .how are doing with it?can you tell me more

chrisryan2580
Posts: 1
Joined: Aug 2013

I just got diagnosed with fibrosarcoma about a week ago...I went to a cancer specialist and he was very optimistic..He said I don't have to do chemo or radiation but I will have to have surgery to remove the rest of the cancer. He said its unlikely to spread and it hasn't spread to my lymph nodes.. I am going to for a chest x-ray and ultrasound tomorrow...

Chez
Posts: 24
Joined: Nov 2009

Hi chrisryan. I had surgery for fibrosarcoma on my forearm. They didn't get a good margin the first time and pathology results showed it to be high grade. After operation 2's healing, I was followed up with 32 sessions of radiation...no chemo..thought not necessary. Lymph glands were not a problem either. I thought I read somewhere that this form of cancer doesn't seem to go the the lymph glands first. My lump had turned bluish and had a blood flow of its own. See what the path results say and check again about radiation.

 

ccham929
Posts: 2
Joined: Oct 2014

hello, I have a younger sister who was diagnosed with fibrosarcoma 3 years ago. It has recurred 4 times. She has endured three surgeries  and awaiting a forth. She has received three separate rounds of chemo and will most likely do it again.  I am trying to ask people who have dealt with this type of cancer what/where they received treatment. Just trying to find more info on where to go. If you have any suggestions it would be sincerely appreciated. It has been difficult searhing online for doctors who have the MOST experience with this type. Thank you!

stormybestfriend's picture
stormybestfriend
Posts: 1
Joined: Nov 2014

hey everyone, just diagnosed in august with fibrosarcoma in the pelvic region, having a ct scan tomorrow then we go from there to surgery schedule, anyone else have it in the pelvic area, im not finding others with it in that area. just wanting to know what experiences you have had.

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