Oct 24, 2009 - 4:01 pm
Hi, my 17 year old daughter just had open radical surgery to remove a 13 cm tumor & right kidney, well what was left of the kidney last thursday. She came home this past monday. We were told yesterday by the pathologist at Ceder Sanai in Los Angeles that she has an unclassified renal cell carcinoma that is very rare, they have only seen it 5 times, all in women and she is by far the youngest to have it. He will be writing it up. Our surgeon was very highly recommended and believes the cancer was contained and entirely removed. Especially because she is so young, I am worried about reoccurence. Most of the info I am seeing is about older men. (Sorry guys). We are set to see an oncologist soon. Are there any statistics out there, or sites for teenagers or women? I would appreciate any recommendations on where to go from here. Thank you all so much. I am feeling overwhelmed and somewhat in a state of disbelief. Why couldn't it be me???