Oct 17, 2009 - 10:25 pm
I have searched this entire site and have not found anyone with this type of cancer in this location. The bracial plexes nerves, veins and artery are all involved. We were told it was very rare but I am hoping to hear from someone else with the same dx or perhaps their caregiver.
Update: 2/20/10- He has finished radiation, zolodia, tarceva and now will begin taxel beginning next week. The cancer continues to spread and grow. It is now in his lungs.
Update 3/12/10 - He has completed first round of three weekly infusions of taxol. Has experienced thinning of hair but has not lost all yet. Very anemic and receiving Aranesp injections to help build up red blood cells and also received two units of blood this week. Cancer still advancing, now possibly in abdomen. Next scan in a few weeks, hope it is not as bad as it seems right now. This is so hard!