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Looking for Stage II Ovarian Cancer Survivors

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Hello,
I was DX on May 2009 with a Stage 2B ovarian cancer. I am looking for anyone else who was a stage 2. I want to see how they are doing and if they have had any re-occurances. Thank-You for any information you can provide me. Paula

Tina Brown's picture
Tina Brown
Posts: 1054
Joined: Nov 2009

Welcome to the boards. I am sorry to hear of your illnesses - you have had your fair share :( This is a good place to come and off load when you are feeling down. You will get such a lot of support and kind words.

Keep us all up dated on your treatment and I wish you all the good luck.

Much Love Tina xx

lazurda56
Posts: 3
Joined: Jun 2010

wow, you are lucky. I was diagnosed Stage 1C, grade 3 - - God Bless us, really. I am having 6 treatments with one to go. My doctor said I could do it with three, but I opted for the "recommended" dose. The "cancer" was found in my abdominal washings and I don't want to take any chances. I to fear for recurrence, but with lots of faith and courage, so many of us get through this.

Look at our other "sisters" in their more advanced stages, they rock! I've read survivial stories up to 20 years! Let's fight like girls and LIVE!

brca-brat
Posts: 1
Joined: Mar 2011

Glad I found this thread. It helps to see others are doing well.

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

I wonder if all the ladies that responded to this thread almost 2 years ago, are still doing okay??????? Would love to hear from you. Thank-You, Paula

childofthestars's picture
childofthestars
Posts: 246
Joined: Jan 2011

Hi Paula
I joined the board a few months ago, I was dx with Stage 11C in June '10, am doing well now (apart from bloody joint pains!!)
How are you doing?
Michelle x

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Hi Michelle,
I guess I am doing okay. I passed my CT scan, breast MRI, Dr.exam, and I will have my CA-125 results back tomorrow or the next day. This is all so exhausting. I am so tired of being scared. I almost fainted when I had my blood draw today, just out of fear. Sometimes I am so past this and sometimes I am not. I had about 15 to 20 responses to my post and I have no idea how any of the ladies are doing or if they are okay. I only talk to 1 girl on a regular bases and she is fine. Since it has been almost 2 years, my family does not seem to want to talk about it anymore. It is over for them, but I am still very scared. I feel like I am the only person in the world that is scared. I try very hard to stay positive, but somehow I always revert back to negative thoughts. Anyway, I know you did not ask for any of this information, so to answer your question, I am fine. Thank-You, Paula

curlyq1971's picture
curlyq1971
Posts: 57
Joined: Jan 2008

Paula and the rest of the Ladies,

I didn't respond to the original post, but I wanted to post to let you know that I was dx Stage 2C August 26, 2005, I passed the 5 year mark with out recurrance, and went and saw my onc in Feburary and I was released to 1 year check ups and the real kicker is, I don't have to see him anymore I can just follow up with my gyne. I feel truly blessed that I was dx early and have done so well! At first I was scared but now it seems it is a distant thought and I live my life to the fullest. If there is one thing that I have learned on this cancer journey that I was to take, is you can't let the "What If's" take over and don't let that nasty word cancer own you! Your mind has a way of playing dirty tricks on you if you let it!

Serentity Prayer:

God grant me the Serentity to accept the things I cannot change, Courage to change the things I can, and Wisdom to know the difference...

If you or anyone else need someone to talk to, I am available and here for all of you.
Take Care,
Leslie

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Leslie,
Thank-You for responding. I wish the other 15 or 20 ladies would respond. I do let all of those dirty little words get into my head. The only thing I can do, is try and stay busy. I will be 2 years out in June. I just had a CA-125 done. I am waiting for the results. Drives my absolutly crazy. I do need to talk to other people about this and so does my other friend. She was also a 2C and I was a 2b. e-mail: vintagehouse@comcast.net Thank-You, Paula

childofthestars's picture
childofthestars
Posts: 246
Joined: Jan 2011

Hi Paula
How did the CA125 test go, do you have the results???
I have regular check ups every 3 months, 1st one was last month, next is 31 May. I don't get my CA125 done my onc gives his patients the choice. He is a firm believer that if there is a recurrence chemo shouldn't be started until the patient is symptomatic so if there are no symptoms there's no need to do a CA125!!! I admit this is a bit scarey but so far it's working for me.
Michelle x

Rookerbird's picture
Rookerbird
Posts: 100
Joined: Feb 2011

There was a point in my treatment where I became very stressed, and called the nurse in tears. My oncologist called me back right away, and said something that has stuck with me ever since: "Let it go and try to relax, because nothing is worse for you than stress. The cancer will feed off stress." Here are some ideas for not going absolutely crazy worrying about the CA-125 and other things...

As you mentioned, talking with others is great! Vent, then let it go. Exercise. Fresh air. As you mentioned, stay busy. A glass of wine. Anti-depressants if stress/depression lingers. I got a dog a year ago, and she has provided countless hours of comfort and amusement.

I was IIc ovarian + Ic endometrial (uterine), and my surgery and staging were in September 2009. I'm platinum-resistant and have been in nearly continuous treatment. But, I've had recent success with Doxil.

Each day is a gift. I try to remind myself that if I'm stressed about the cancer, then that's a day that the cancer won. Hoping your CA-125 was in the range you want, and that you have joy-filled days ahead!

Lisak
Posts: 59
Joined: Mar 2009

Leslie,

Thank you so much for posting and letting us know what you went through.. I had stage 2b and stage 3a Uterian. I had surgery 10/2008 and now I just got advanced to 6 months. it's a nice feeling and I pray someday I can have great news like you with the 1 year. :))

Thanks for the prayer I love that one.

Lisa

Nancy48
Posts: 5
Joined: Dec 2009

Paula, I replied to your post in 2009. I had surgery for stage II ovca in April of 2008. I am now 3.5 post surgery and still doing well. I still see my Oncologist every 6 months and my CA125's have been 1 and 2. I hope this finds you well and happy.
Nancy

amshelley
Posts: 1
Joined: Apr 2011

I was just diagnosed March 2 with stage 2b ovarian cancer. I went to my family dr. with bronchitis and mentioned bad back pain. He sent me in for an ultra sound, which prompted a CA-125 test, a meeting with my gyno. and 5 days later, complete hysterectomy. One ovary had spread to the pelvic wall and bowel. The wash and lymph nodes were clean. I have a consult with my oncologist today. I've been looking for others with this stage of cancer and agree, it's hard to find people out there. I'm trying to prepare myself by being educated about what to expect. Thank you for your post. It's been helpful to read the positives about recovery! I hope all goes well with you.

tngirl
Posts: 29
Joined: Sep 2009

I was dx with Stage 2C in Aug. of 2009. My ovary also spread and attached itself to the pelvic wall, with wash and lymph nodes clean. My last chemo (which I consider my 2nd birthday - so I get two birthday dinners from my husband!) date was Jan. 11, 2010. So I have been NED for over a year. It has taken a while for my body to get back into shape and get my strength back, but it is coming. One thing I did during chemo was I continued to work. I have a terrific boss and I did what I could and went to the office when I felt OK. Working kept my mind off of the effects of chemo - it challenged me, especially with chemo brain. I still suffer some long term effects, like some numbness on the bottom of my feet and tinnitus. And I still get very nervous right before my oncologist visit. But I am glad to be where I am and I thank God everyday for another day! God Bless!

shazgould
Posts: 3
Joined: Nov 2011

I had terrible pains in stomach from about june this year and when checking myself i felt a mass in my abdominal area , went to docs to get it checked who then sent me straight away for ultrasound scan .. got results back and was instantly referred to hospital ... on seeing the gynecologist she recommended a full hysterectomy , biopsy etc , also recommended to have a ct scan just to get a better idea of how big mass was , as they couldn't see where it started and ended in the ultrasound one . went through op on 11 Oct and got results 2nd nov .. i have stage 2c clear cell cancer .. is there anyone else out there had this type apparently its rare . I had first of my chemo sessions on 22nd Nov and have been feeling ok no nausea or tiredness as yet but have got aching bones , ie feet , legs , hips ... when u first hear that u have this the outlook isn't great when u look on the net for information , but just so glad to hear that we have people on here that can reassure that it might not be all bleak .. so thanks for being here .. it has really made me appreciate every day i have and to fight for the rest to come .. x

JW1958
Posts: 1
Joined: Jun 2011

Hi,
I was DX in July 08 with Stage 2C Ovarian Cancer. Had surgery and 6 rounds of chemo.
I have been fine until last week. Went for my 4 month check up and the Dr. told me all
my liver numbers are elevated. I now have to go for a CT scan on Friday and additional blood work and see him June 22nd. I'm hoping it's just fatty liver disease which can make your numbers elevated.

kathryn1's picture
kathryn1
Posts: 88
Joined: Jul 2009

Hi,
I'm a 2C as well. Hopefully your tests will show no cancer! I think there are several things that can elevate those numbers. I'm glad to hear you have been doing well! Let us know what you find out.
Kathryn

childofthestars's picture
childofthestars
Posts: 246
Joined: Jan 2011

Hi
Please let us know how you get on at the docs next week, i'm hoping all be fine.
Michelle x

Medinalove5's picture
Medinalove5
Posts: 1
Joined: Jul 2011

Hello Everyone!
I was diagnosed with Stage IIC Ovarian Cancer after a complete Hysterectomy Surgery Jan 2011. Finished my last chemo Treat (carbo/Taxol) May 25, 2011.

I am experiences so much joint and bone pain. Is anyone else experiencing this or had experienced this after finishing Chemo Treatment?

Any advice? I feel like maybe the cancer came back and it is in my bones....I am scared.

Please help!

Thank you so much...Mary Ann

marann246
Posts: 1
Joined: Jul 2011

I was diagnosed last March 2010 with this disease. I wanted to be a part of a group that are survivors. I want you to know that I experienced much joint and bone pain after chemo was over. It is something we have to go through. It has been almost a year since my last chemo treatment (Sept. '10) and it is going away slowly but surely.

Has anyone here experienced back pain. I recently started experiencing lower back pain of which I have never experienced. Going to get a CT-Scan on Monday to see what is going on. Also, my CA-125 levels are going up. It started with five now it is 20. I asked my doctor about it and she said levels fluctuate depending on what is going on in the body. Any type of inflammation can cause your levels to go up. I am praying because I don't want this back in my life.

Please respond.

dreamer007's picture
dreamer007
Posts: 61
Joined: Jul 2011

i am an ovc stage 2c person, diagnosed feb. 2010, currently "in remission", but
going for a CT on july 13th to see if i have any masses...ca 125 keeps rising
last count 119... i was hovering around 50 for a few months, post chemo,
then it went to 67, 93, and 116

marann, i have back pain, but i have scoliosis, which has lead to arthritis, so my
back usually hurts, and i take pain meds every day... this time of year for me is
bad because i am terribly allergic to molds, and living in texas "aint helping things"
so, i get a lot of swelling from the allergies, and not sure if some of the swelling is
more cancer... i will soon find out, once i go for the CT

was prescribed Arimidex, post chemo, which can cause some bone pain... if i take
arimidex every day, it causes some serious pain in the digestive area, and i cant
even sleep, so i have to skip it every couple of days...
if my CT does not show any masses, i am going to get on Tamoxifan...hope that
works a little better than the arimidex....i think its all crap, but not much else to do
than take it

my onco doc's RN told me that with ovc, its pretty standard to have recurrences,
then more chemo, and that my doctor likes to try to give a break from chemo, cuz
it basically sux...
my sister died in 1998 from ovc, but she was diagnosed stage 4... stupid doctors
ignored her symptoms, which is not all that unusual... a lot of the symptoms are
of the digestive kind, and if you are menopausal, there is the abdomenal swelling
from that...

i had no idea i had ovc... must have been in denial... even in the ER, i was not thinking
cancer... when the ER doctor pulled his chair up close, and had a very serious look on
his face, is when it hit me... i cant recall if i said "i have cancer, dont i?" , but i think that
is the way it went

my family has had a lot of experience with cancer, but they do not give me much support
now... they are the kind of people who do the bare minimum, and then go back to their
lives... its futile to expect anything extraordinary or even better than the bare minimum,
so i have decided to distance myself from them again... dont need the heartache and
anger!

ok, i need to try to get some sleep

dreamer

LaundryQueen's picture
LaundryQueen
Posts: 682
Joined: Mar 2011

Dreamer: I'm on the same roller coaster with you. My ca-125 jumped up so I'll be going for imaging scans soon. Unless there is a discrete tumor that warrants surgery, I'm gonna wait as long as I can to stay off chemo. There's no survival benefit in getting on chemo sooner rather than later.

I was reading in the book "Defeat Cancer" that someone visualized talking to their cancer & said: "If I die, you die, too!" So I'm doing the same thing.

I'm gonna start on the bindweed & pancreatic enzymes to add to the 50Gm ascorbic acid IVs that I've been on. The ascorbic acid seems to be keeping the ascites away so far (thank God for small favors!).

LQ

LaundryQueen's picture
LaundryQueen
Posts: 682
Joined: Mar 2011

So the MRI scan looks slightly improved while the CA-125 is 5x the upper limit of normal. Brain MRI was fine. I just gotta wait around and see what happens next I guess. I feel better now than I did when the CA-125 was < 10.

LQ

Lisak
Posts: 59
Joined: Mar 2009

Hi Mary Ann,

Yes, it's normal.. I had the worst bone and joint pain, it was so bad I had to take oxycodin and it was a pretty high dose. I felt like this until about 8 month.. it would come and go but I would take the pain meds and it was managable.

I would say after about almost a full year I felt like me again.. I started having enegry and my body aches and pains were almost completely gone. Today I am med-free. however, on occasions I do still have the bottom of my feet hurt when I get out of bed.. it feels like I'm walking on my bones so I have to wear these well paded shoes i got for when they feel like that.

Are you taking any pain meds right now?

Hope you're feeling better soon!
Lisa

Nancy48
Posts: 5
Joined: Dec 2009

Mary Ann, I had the carbo/taxol treatment in the summer of 08. I had terrible bone pain which followed the chemo as well. I felt exactly the same regarding a recurrence in the bones. The pain finally went away and I have been doing well for 3.5 years. I was also stage IIc. Good Luck.
Nancy

CarmeB
Posts: 4
Joined: Jul 2011

I am a recent, 9 months, stage 2 Endometriosis Survivor!!

lindachris's picture
lindachris
Posts: 175
Joined: Aug 2007

My wife is a Stage IIc patient who was DX in 2005 and has had 3 recurrences; 2007, 2010 and again this year. She's in treatment Cisplatin/Taxotere right now. Otherwise she's healthy. Just can't seem to knock this thing out for good. Doctor admits that may not be possible. So, we move along.

Chris

Lisak
Posts: 59
Joined: Mar 2009

You and your wife are in my prayers...

Lisa

Berlyw
Posts: 1
Joined: Aug 2011

I was diagnosed March of 2010 and had the 6 cycles of Taxol,Cisplatin which was finished in Sept of 2010. I feel great now, working full time and enjoying life! I had pretty intense joint pain for awhile, but it has subsided. I keep getting good 3mo checkups and my MD is very uplifting and makes me feel great about the way things have gone.

Do you ever get to a day that you dont think about it coming back?

lovesanimals's picture
lovesanimals
Posts: 1236
Joined: Sep 2011

Hello Ladies,
I'm new to the discussion boards but have been lurking for a while and know that you share good information and provide wonderful support to each other. I was diagnosted almost one year ago, September 16, 2010, with Stage 2b ovarian cancer. I had surgery in October and my gyn/oncology surgeon removed my ovaries, uterus, tubes, cervix, omentum and about a foot of colon because my tumor had attached itself there. I had six rounds of chemo (carbo/taxol) between December 2010 and the end of March 2011. Prior to surgery, my CA 125 was at 2800+. After surgery and before the start of chemo, my CA 125 dropped all the way to 7. During chemo, the number was as low as 5. Since my completion of chemo in March, I've had two follow-up visits with my oncologist and my CA 125 was at 7 with my last blood test in August. I had a six-month follow-up check-up with my surgeon at the end of May with a pelvic exam and everything looked good. I've not had any re-occurances (knock on wood!) and am enjoying and appreciating every day.
Kelly

Hissy_Fitz's picture
Hissy_Fitz
Posts: 1869
Joined: Sep 2009

Shaz....this is a really old thread. Not many of the people who initially responded are still on the board. Paula and a couple of the others are still around, but I don't think any of them have clear cell.

There is a woman in my real life support group who was diagnosed with clear cell OVCA years and years ago. She was stage II and has never had a recurrence.

Carlene

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Thanks, Carlene, that is very encouraging, since I will be approaching the 3 year mark soon. Some of these girls did have clear cell, including me. As you know, I am in nursing school, I am making it, but it is killing me. Luv Ya, Paula

devina
Posts: 1
Joined: Dec 2011

Hi, everyone. I just read about cryotherapy in google. Have you ever know this methode ? What do you think about that ?
It applies nitrogen or argon gas at extremely cold temperatures to destroy diseased tissue. Cryoablation causes cell structure damage and cell membrane obstruction; it also causes imbalance of electrolysis in and out of the cells and osmosis pressure as well as protein denaturation, in this way Cancerous cells are destroyed.

mahiserodt
Posts: 1
Joined: Feb 2013

Paula,

Hope you are doing well.  I was diagnosed on June 1, 2010 with Stage 2A, grade 3 ovarian cancer, and I carry a BRCA1 gene mutation.  I don't know why it took me so long to find this discussion board, but I'm glad I did.  I haven't had a recurrence, but constantly worry about it.  It's comforting to hear the stories of other stage II survivors.  My doctor told me that it is rare to catch OC at stage II, so not as much data on stage II survivors.  I had preventive bi-lateral mastectomy in Sept. 2012 so that I would have one less cancer to worry about.  Better to focus my energy on staying healthy.  Thanks for your post.  Seeing all the responses from stage II survivors proves that there is hope.

 

Mary Ann

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