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Looking for Stage II Ovarian Cancer Survivors

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Hello,
I was DX on May 2009 with a Stage 2B ovarian cancer. I am looking for anyone else who was a stage 2. I want to see how they are doing and if they have had any re-occurances. Thank-You for any information you can provide me. Paula

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Hey Nancy,
Thank-You for the reply. I just do not know if I am any better off at a Stage 2. I could only find 1 other person and she has been clean for 9 years and had no re-occurances. The reason we caught it at a Stage 2, was because I was already being watched by an oncologist every 6 monthes because of my breasts and I was already having those symptoms that ovarian cancer produces, but not really paying them much attention, but the real kicker was I woke up in the middle of the night with a horrible stomach ache and I called the oncologist the next morning and he sent me immediatly for a CT scan. My re-occurance rate is still 25% or 35%, according to all the data. I just worry alot. By the way, I have been reading alot of these disscussions and you guys are like warriors. I admire you so much. This site is just what a person needs to get through these tough times. I love all of you and don't even know you that well. Thank-You for your time. Paula

zippy
Posts: 3
Joined: Sep 2009

I know a lady who was dx with stage 2C ovarian cancer, and happy to say she is doing fine after 14 years. Linda

Betsyboo
Posts: 1
Joined: Oct 2009

I am not feeling like much of a warrior, I am trying hard to find someone that only did 4 rounds of the chemo instead of the 6. Know any?

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Good Morning,
I do not know if you will get this reply, but I will try anyway. The only people I know that did only 4 rounds of chemo are Early Stage I people and I only saw that on the discussion board. Were you a stage II? Did you only do 4 rounds of chemo and why? I would be interested in knowing how you are doing. The standard treatment is 6 rounds of chemo. I have 1 treatment left. Hope you see this posting. Paula

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Good Morning,
I do not know if you will get this reply, but I will try anyway. The only people I know that did only 4 rounds of chemo are Early Stage I people and I only saw that on the discussion board. Were you a stage II? Did you only do 4 rounds of chemo and why? I would be interested in knowing how you are doing. The standard treatment is 6 rounds of chemo. I have 1 treatment left. Hope you see this posting. Paula

Arlene M.'s picture
Arlene M.
Posts: 1
Joined: Oct 2009

Hi,
I am a 10 year very lucky survivor of ovarian cancer, stage IIc, diagnosed Sept. 1999. I was wondering about other survivors of ovca of over 5 years and googled that, came across this group. I used to be quite active on the ACOR.org website for ovarian cancer but have not been last few years. I will post some info about myself - create a profile. I haven't read all the posts on here but saw some were wondering about ovarian cancer survivors. IT IS POSSIBLE!!! Oh, 6 rounds of carbo/taxol. No reoccurences but 2nd look surgery. Clean. Very hard on me as I lost my mother to ovarian cancer in 1990. I wish all with ovarian cancer strength. I know it's so hard sometimes. I'm also a breast cancer survivor and lost my oldest son, 28 years old last Jan so as my friends say, a survivor in every sense of the word.
AM

fern6942
Posts: 1
Joined: Dec 2009

Don't give up hope. I was stage 3...9 years ago and no reoccurrences as yet.

Linda222
Posts: 2
Joined: Jan 2010

Dear Nancy

I was diagnosed with stage 2b ovarian cancer on feb 7, 2008. my ca125 was 246 before surgery. I did 6 rounds of chemo paxtol and cisplatan. I feel great. my grade of cancer was 3. I do carry the brca 1 gene and I am going to have the profilatic breast surgery to prevent the on set of Breast Cancer. I also had the robotic surgery. Did you have the robotic surgery? My grandma had breast cancer at 35 and died. My mother had ovarian cancer at 35 they got it no chemo year 1964 then in 1972 got cancer of the peritoneal and died at 43. My older sister died of breast cancer 10 years ago she was a 2 b and age 45. My other sister was diagnose with ovarian 8 months after me stage 3 for her she is find today.

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Dear Linda,
Thank-You for your post. I did not have robotic surgery. I had the conventional de-bulking surgery. Stage 2B. Did six rounds of Carbo/Taxol. I also carry the Brca 1 gene. I have had Stage 1 breast cancer 3 times, but I am okay so far. That started happening 20 years ago. My grandmother has had Stage 1 breast cancer about 5 or 6 times, I lost count, she is 87 and doing fine. My mother died of ovarian cancer 12 1/2 years ago. She was 53 years old. I am 46 years old. My mom refused to have surgery, which we all know you can not do. Right now I am fine, with a clean scan and a CA-125 holding at 6. I will have breast surgery, but I have to wait a year from the last surgery. Right now I have an MRI done on my breasts every 6 monthes. Please keep us posted on how you are doing. Thank-You, Paula

P.S. I have no sisters or brothers. I have no daughters, but I do have 3 sons.

SarahWiles
Posts: 3
Joined: Sep 2011

Nancy I to was diagnosed with stage 2b in Nov 2009 and have the BRCA1 mutation. They caught mine early due to my pregnancy with my daughter. My NED was 6 weeks ago but now have an elevation of CA 125. Getting a scan on monday to see. Don't know much about the mutation.
Any 411?

kathryn1's picture
kathryn1
Posts: 88
Joined: Jul 2009

Hi,
I am stage 2. I talk with a lady who survived stage 2 for 14 years now. No re-occurances!!
So, we can do this too. She says there are survivors, might as well be us!
Kathryn

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Hello,
I am so glad to find another stage 2. You are only the 3rd person I have found. How long ago where you dx and have you had any problems or re-occurences. I have found a 9 year survivor and a 14 year survivor and neither one of them have had any re-occurences. I would be grateful for any information. Thank-You, Paula
And also, what kind of treatment did you take?

kathryn1's picture
kathryn1
Posts: 88
Joined: Jul 2009

Hi,
I was dx in May 2009 too. I had surgery and now am on chemo, carbo/taxel. I have two more to go. I'm doing pretty good over all.
What treatment are you on? And how are you doing?
Kathryn

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Good Morning,
I am on the same treatment as you and I also have 2 more to do. I was dx in June 2009. I had a full debulking surgery at John Hopkins in Baltimore. I had a tumor on each ovary. My nodes, ascites, and washing were clean. Did not spread anywhere else, but the doctors can not say if there is a cell floating around in there. My ca-125 post surgery, before chemo was a 10. It is now an 8. What was your ca-125 before chemo and what is it now. I am doing okay, except I do not like the port in my chest. It rubes against my bone. Do you have any hair left? Can we talk on the phone? My number is 304-279-7746. My name is Paula. Thank-you.

Metalblond
Posts: 1
Joined: Oct 2009

Hi,

I was diagnosed September 2008 with stage 2C ovarian cancer at age 44... I have been looking for stage 2 people as well--with no luck really, until I just found this website and post! After surgery I did 6 rounds of taxol/carbo (I finished in January) and my hair has grown back, my CA 125 is nice and low and I'm doing well! Wow, I never thought I'd see the day I'd write that, but it is true :-)

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Hello,
wow, I found 2, Stage 2 people in 1 day. I was dx in June 2009. I was a 2B. I have 1 more chemo treatment left. Stage 2 people are so hard to find. I found 2 ladies, 1 is 9 years out with no re-occurances and the other lady is 14 years out with no re-occurances. I also am talking to another lady currently, who was a stage 2 and she has 2 treatments left and she is doing fine. This cancer is so hard to find early on. If you want to talk e-mail me at vintagehouse@comcast.net. We can exchange phone numbers. Thank-You, Paula

therevslittlegirl's picture
therevslittlegirl
Posts: 29
Joined: Mar 2009

I was diagnosed with Stage 2C Ovarian and Uterine Cancer on December 22, 2008. I am happy to report that after 6 rounds of Carbo Taxol and 3 rounds of Brachytherapy (internal radiation) I am Cancer Free. The chemo went well, radiation was nothing (internal radiation doesn't leave you with burns)and my hair is growing back beautifully. I was diagnosed when I went to the hospital with back pain. Come to find out I had a tumor (14x13x10cm - yes cm) pressing on my pelvic bone and growing up into/around my stomach. I had a complete hysterectomy (during surgery they found the Uterine Cancer) then started my chemo in January, finished in May had radiation in June and I have never felt better. I still get tired and I still have some other minor problems but other than that I am healthy, happy and alive. Hope to hear from you soon.

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Hello,
I answered your e-mail. Hope to hear from you soon. I am doing fine. If you do not get my e-mail let me know. Thanks, Paula

MMK
Posts: 2
Joined: Dec 2009

Had abdominal surgery - there were two tumors outside the ovaries and on the tubes - one had flopped over and stuck to my pelvic wall and my appendix =-so............total hysterectomy,oophorectomy, appendectomy, also removed my omentum and 45 lymph nodes and part of my pelvic wall. The wash was clean and so were the nodes - so no spread. I went through 6 cycles of carbo/platinum every 21 days in addition to 5 cycles of Avastin as part of trial. My ca-125 before surgery was 65 - just tested at 5 - have been told I'm in complete remission. I would like to believe I have beat this thing.................good luck to all of us with this disease!

mtntopmom
Posts: 1
Joined: Jan 2010

I didn't really have any of the classic symptoms, went to a GYN urologist for urinary incontinence and THANK GOD he didn't think my symptoms sounded typical!!! U/S showed ovarian mass. Went in for laparoscopy thinking (hoping) it was endometriosis related, with an Onc/Gyn on call (again THANK GOD)just in case since my ca-125 was 67, ended up having the whole debulking, etc. Nodes/washings were clean, so I am very grateful! Went thru the 6 cycles of Carbo/Taxol, did pretty well, finished in July. My hair is growing back with curls! I love menopause! (it's the small things that make me happy :-)!) I just had my second CT scan, which was essentially OK and my ca-125 was down to 9. I really am feeling great! I tend to forget it all sometimes, but it all comes back with the 3 month checkups. It's great to hear from other folks with Stage 2 ovarian. There just wasn't much information available regarding Stage 2. I'm really just trying to focus on exercising, eating right, keeping a positive mind-set and living each day as well as I can! Each day is a gift!

tngirl
Posts: 29
Joined: Sep 2009

I was dx with Stage IIC ovarian cancer in August. I have had two rounds of chemo and four to go. It's wonderful to talk with others who are Stage II, usually all 3's and 4's. I do consider myself very lucky. This past summer I felt a lump in my lower right abdomen and sure enough it was a cancerous mass. I would have liked it better if it stayed in my ovary, but I don't look back. Congrats to all of the survivors!!!!

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Hello,
Wow, I can't believe I found 2 more stage 2 people in 1 day. I was beginning to think there were no very many of us. I know 2 other ladies. 1 is 9 years out with no re-occurances and the other lady is 14 years out with no re-occurances. I was dx in June 2009. I was a Stage 2B. I have 1 chemo treatment left. I am currently talking to another lady who was a Stage 2 and she has 2 treatments left and she is doing fine. If you want to talk e-mail me at vintagehouse@comcast.net. We can exchange phone numbers. Thank-You, Paula

lamke
Posts: 1
Joined: Nov 2009

My wife was recently Dx with stage B ovarian cancer and had surgery Oct 2009. Dr put in 2 ports for the chemo but we have not decided yet on whether to use both of them. We are looking for feedback and trying to research as much as possible about the carbo/taxol treatments.

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Dear Lamke,
I will tell what I have been through so far. I was DX stage 2B ovarian cancer in June of 2009. I had a total debulking surgery. I had a chest port put in and had 6 cycles of Carbo/Taxol treatments. I did fine with all the treatments, except the last treatment, It made me sick for some reason. My ca-125 after surgery and before chemo was a 10. My ca-125 is now a 7. I just had a CT scan and it was clear and I just had a check-up with the surgeon and everything is okay, for now. I will have my port flushed once a month and have a ca-125 drawn at the same time. I will get my port out in 6 to 12 weeks as long as everything stays okay. This is a very tricky cancer. I have seen ladies never have a re-occurance and some re-occur right away. I don't think any stage is 100% safe. We all have a chance of it coming back. I know things seem tough right now, but they do get better. If you have anymore questions just let me know. I will be happy to help you. Paula

pullingforlou
Posts: 7
Joined: Nov 2009

My mother had stage 3 in 1997 and was in remission until 2002 and beat it again. Now it seems it came back in 2009. So it is VERY possible to beat it.

MistressEmily
Posts: 2
Joined: Dec 2009

I was stage two b with Uterian and cervical as well. My CA 125 never went above a 5 from day one I never showed signs of any cancer until they went in for fibroids and found all 3. I had the Taxol in 2007 and not a problem so far. Still always praying. It's a very sneaky thing and don't ever let your guard down. but you can get through it with God's help. Your never going to do it alone. I am so Glad I had a great Doctor. In Jacksonville Florida Doctor Robertson. He said do you want to kill it than that's what the Taxol will do.

He was right.

SissyKay
Posts: 1
Joined: Dec 2009

Hello,

I was dx in Dec. 08 with Stage 2 as a result of a prophylatic oophorectomy. I am BRCA1 positive (47 years old) so I decided to have my ovaries removed to be safe, and surprise, surprise there was a tumor in one of my ovaries and on one of my fallopian tubes. One month later I had a "second look" surgery and my oncologist found a small tumor in my abdomen. I did the standard 6 rounds of carbo/taxotere (was allergic to taxol) Mar-June of this year. I had a CA125 level of 17 with my first surgery, and now it is at 10. I am finally feeling much better after the chemo physically, but of course mentally I am really struggling with the anxiety. My next check-up is in February. I want to be positive but also realistic. This is a sneaky disease, and I know that I am so fortunate compared to many other women to have found it a little earlier, but still I do not trust it for one second!!! I am new to this site so look forward to hearing from others with Stage 2. Also because I am BRCA1 positive I recently had a prophylatic double mastectomy. I dreaded doing this but the thought of tackling breast cancer on top of ovarian made the decision easier.

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Hello,
Glad to hear from you. Our Stage 2 group is very small so we welcome you. I am doing fine. I am finished with my chemo, I had a clear CT scan and my CA-125 is a 6. I am 46 and also BRCA1 positive. It is a good thing you had your breasts removed, because prior to getting ovarian cancer, I had Stage I breast cancer 3 times. I have had partial mastectomy. I know it is hard not to worry, but Stage 2's do very well. I am feeling great and try not to worry about it to much. After being sick for 6 monthes, it sure feels good to feel well. I thank god everyday. Here is my e-mail address vintagehouse@comcast.net. Thank-You, Paula

saritab
Posts: 1
Joined: Dec 2009

Hi Everyone,

I was just diagnosed with stage 2 cancer and i am starting Taxol/carbo on Wednesday.
Of course I am extremely scared and nervous. But I guess that is to be expected.I had a hyst on Oct 30, 2009. Good luck everyone on your treatments, I will let you know how Wednesday treatment goes

Hugs to all,

Sarita

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Good Morning and welcome to our ovarian cancer sight. Please keep us up to date on your treatments and how you are doing. If you have any questions or just need to vent, we are here for you. We will all help you get through this process. This sight has been a life saver for me. I was a Stage IIB. I am out of treatment and doing well. Thank-You, Paula

MistressEmily
Posts: 2
Joined: Dec 2009

Sept 17 2007 was my last chemo Taxol as well. 6 Treatments 7 hours each. Drove myself. 6 weeks of Radiation external and internal that's for the cervical cancer. I am doing great. I was stage two B Ovarian which is still fairly early.
I am still going strong and sometimes forget I had it. I had Uterian, Ovarian, and cervical cancer. Pretty much wiped out that part of me. I'm still alive and doing well. Finished two years of college while taking chemo and radation. You'll be fine. Never believe everything they tell you. Ask for second opinions and stick with a great Doctor. But never stop asking questions. Remember don't freak. Your going to want to have total control of your cancer keep up with your white blood cells and watch everything. I found the best thing was to ask God to take care of it because I wasn't able to do it myself. I just let go for the first time in my life... and it was great.

God Bless
Mistress Emily
Don't panic it only waste hair.

ildragonfly
Posts: 2
Joined: Dec 2009

Hi, I just had my 3rd surgery for reoccurrence of ovarian cancer which was originally diagnosed stage2 in March 2002. Two weeks shy of the 5 year mark it reappeared in March 2007. Again 3 weeks ago (short of 3 years), the cancer returned. Each time it has appeared as a removabe tumor and I followed with chemo treatments. The first time I was part of a clinical trial so had 22 treatments of taxol and carboplatin. The second time I had 6 treatments of gymzar and carboplatin...I find out next Monday what the plan of treatment is.
I have been very discouraged by the continued reocurrences but have a great dea of trust and faith in my oncologist. A CT scan did not detect either of the second and third tumors but he ordered PET scans which did find them. My CA-125 only went up to 70 with the second recorrence and to 10 for the third.
I have not been a part of any support group throughtout this ordeal but I feel that finding others like myself is an important part of my coping....there are so many amazing women who have endured and conquered...I am in awe.
ildragonfly

saundra's picture
saundra
Posts: 1390
Joined: Mar 2007

Actually, you are an inspiration that one can beat this for 5 and 3 years to some of us. Thanks for your post. Keep up the good work. Saundra

Nancy48
Posts: 5
Joined: Dec 2009

Hi Paula, I was diagnosed April of 2008. I had a hysterectomy, 6 sessions of chemo and 28 radiation treatments. I am feeling well, doing all my regular visits and tests and so far no reoccurance.

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Hi Nancy,
Thank-You for replying to my post. I see that you are almost 2 years out, in April, no problems. That is fantastic. My friend Kathryn and I were both Stage II and we are 8 monthes out, with no problems so far. We are keeping our fingers crossed. Her CA-125 is holding at 5 and my CA-125 is holding at 6 with clear scans. We are happy, happy, and more happy. Thank-You and keep in touch. Paula

Nancy48
Posts: 5
Joined: Dec 2009

Hi again Paula, It is now June and I am still doing well. My doctor just told me I can probably go to 6 month visits after July. I have gone every 3 months for 2 years. I hope you and your friend are still doing well. Nancy

tngirl
Posts: 29
Joined: Sep 2009

Hi,

I have been reading your comments and I have to say that you all have been so supportive and have given me strength to keep a positive attitude and to enjoy everything that life has to offer. I have to say a lot of faith in God and his healing has been a blessing. And I can't forget my oncologist, Dr. Kramer and his wonderful and caring staff, they are the best! I just wanted you all to know that I had my last chemo (my 6th) today and am so excited and ready to feel better and to get on with my life. I was diagnosed with stage IIC in August of 2009 and had six rounds of taxol/carbo. Pre-surgery my CA-125 was 85 and is now 12. I go for a six week checkup in February. I know that I will always have some anxiety with the thought of the cancer reoccurring, but I am going to keep on reading your comments and pray for continued blessings. Thank you ladies for being there for me!

zinaida's picture
zinaida
Posts: 220
Joined: Oct 2007

I was diagnost with 2C ovarian cancer and stage 1 HER2 positive breast cancer february 14 2007. i am BRCA1 positive.My mom died july 2006 - ovarian cancer, she was 75.My aunt had 20 years ego breast cancer, and now had recurrency, at age 73. She live in Russua, St.Petersburg. I had 6 carboplatin/taxoter plus one eyar Herceptin every 3 weeks.Last July my dad (85 years). My ovarian cancer back. CA125 did go up from sept. to dec.-16,19,29,630. Januery 12 I start carboplatin and gemzar. PET scan light up 5 spots in pelvic. Doctor not recomended surgery, too many spots,:(! I hope it is will go in remission again. Sorry about my spelling. did not go scool for english. My russian better.I love to read how you help each other. God bless you all. With best wishes, Zina.:)
P.S. Tomorow my second chimo:(.

Tglover
Posts: 4
Joined: Jun 2010

Hi Ladies! I'm so happy to find this thread. I was diagnosed w/ stage 2a ovarian cancer in 8/08, had a total hysterectomy and then 6 rounds of tax/carbo. My CA 125 was 7 for the first couple of check-ups after chemo, then 9 and now it's risen to 10. I am so grateful for the early diagnosis and how well I'm feeling now. However, the CA 125 is slowly creeping and I'm wondering if it becomes exponential. I'm only 43 and I have a 7-yr old son so I'd love to find some other survivors who have had similar experiences.

Thanks for sharing - you are an amazing group of women who inspire me!

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Hello Tglover,
I was diagnosed a 2B in June 2009. I am 1 year cancer free. I get my CA-125 done every 30 days. After surgery it was a 10. After 6 chemo treatments it was a 5. It has bounced around between 5 and 7 the whole time. My oncologist says they are looking for "doubling of numbers or tripling of numbers". How often do you get your CA-125 done? I do not think you need to worry about a 1 or 2 or even 3 point jump over the course of a couple of monthes. It might go down the next time. Even with a CA-125 of 10, I do not think a CT scan is going to pick anything up. Frankly, I am tired of getting blood draws. Everyone else has it done every 3 monthes. Why do I have to get mine done every 1 month? Don't start worrying yet. I know it is hard to do, but I am just trying to live my life to the fullest and have a good time, just in case I have a re-occurance soon. Thank-You, Paula

Tglover
Posts: 4
Joined: Jun 2010

Thanks for the quick reply, Paula! I get my CA 125 done every 3 mos and I'm not panicked. I just see the trending upward and I'd feel more comfortable if the variations went up and down over time, instead of simply creeping upward. I correlate survivability with how long that CA 125 can stay low and the time between re-occurances. Thanks for sharing!

Roxanna
Posts: 5
Joined: Aug 2010

Hi,

I was diagnosed with a 2c in May 2010 and underwent surgery. I have now had 4 rounds of chemo and have at least 2 more scheduled depending on my CA 125 levels which dropped from 353 presurgery to 17 now. I am very worried because although the levels initially dropped quickly, they have now slowed. Additionally, my white blood and platelet counts are very low. Overall, I am feeling very discouraged.--Roxanna

nancy591's picture
nancy591
Posts: 1059
Joined: Sep 2009

I am 43yrs old too with 3 kids, my younger ones are 6 and 4yrs. We were diagnosed around the same time too. I was dx'd Sept. 08. Easy for me to say but I wouldn't be concerned about a rise from 7 to 10. You are doing great! How often do you test?

Tglover
Posts: 4
Joined: Jun 2010

Dear Nancy,

This is super helpful - thanks for posting. I get my CA 125 tested every 3 mos. and I love my oncologist. I feel like I'm in good hands. I also think that part of what had me feeling spooked was going in for my annual pap and having my regular gyno seem so surprised to see me and a little too amazed that I hadn't had a reoccurrence. I know it sounds weird, but she rattled me.

nancy591's picture
nancy591
Posts: 1059
Joined: Sep 2009

I would love to be in your position! I had a recurrence about 8months after completing treatment. I so worried about a recurrence. Now I wish I could go back and enjoy those days! I am now on carbo/gemzar and completed one round. Hopefully this will knock the cancer back. With summer approaching the kids will be out of school soon. I hope my energy level holds up being home with the kids all summer. I do have activities planned but I will have to do it around chemo.

Tglover
Posts: 4
Joined: Jun 2010

Oh, Nancy - I'm so sorry that you've had a reocurrence and you're back on chemo. I will be thinking of you and please keep me posted about how you're doing.

Leah17
Posts: 2
Joined: Jun 2010

Hi, I just joined this discussion board. I was diagnosed with Ovarian cancer in Oct 2007 and had 6 rounds of chemo. I now go to the oncologist every 6 months. I am concerned about your CA 125. Have you asked your oncologist at what level he/she thinks would be cause for concern? My CA 125 is currently at 6 and my oncologist said that if it got to 10 or over, she would want to do some tests. She also told me that I no longer need to have pap smears. I would ask the oncologist this also. I do have a gyn/oncologist and she was doing the pap smear. I am sure that your regular gyno did rattle you. It would bother me too if a doctor said that they were amazed that you hadn't had a reocurrence. How insenitive. You might consider another gyn after that.

enjoyn
Posts: 2
Joined: Jun 2010

I was dx stage 2b, and 6 six session of chemo.

SleeplessNights's picture
SleeplessNights
Posts: 1
Joined: Jun 2010

I was dx stage 2B ovarian and 1A uterian in 2007 when I was 49. What brought me to this site was I was looking for answers to my rising CA125. I was being tested every 4 mo and it was going up by 2 points every 4 months, then it went up 7. The last test was 32. I just finished a test on Thursday and it went down to 26! One has to have nerves of steel to play this game. My mother died in Sept of '09 from Ovarian cancer and she survived for 8 years of almost non-stop chemo and I'm not sure I can go through all that. My medical history is a page long as it is. I had a blood clot that was in the Inferior Veina Cava (almost in the lung) so they couldn't put a filter in at the 6 month mark of my chemo. I inherited a blood clotting gene from my mother so now I am on coumadin for the rest of my life. I wasn't even in pre-menapause when everything came out and after the surgery my bones are falling apart. I don't have any cartlidge between my wrists, I've had a thumb joint replaced and my spine is osteopenia. Also, I had thyroid cancer in 2001.

You all keep up the kind words to each other, as it makes others like me feel that there are people out there that have feelings and care even for strangers. I wish you all the best.

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