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Blood Clots

willjulia
Posts: 19
Joined: Aug 2009

Hi All,
Last week a CT scan showed that my wife (diagnosed Stage IV colon cancer in August) had multiple blood clots in both lungs. She's now injecting herself twice daily with Lovenox. Two questions: Does anyone have experience with Lovenox and has it been effective? Also, I'm concerned that our teams of docs has not yet scheduled a follow-up scan or blood work. That doesn't seem right to me.
I've only posted here a couple times but I've "lurked" dozens of times and I am so impressed by this loving, caring, intelligent community. We all know that information is power and this is the place to get some solid information.
Thanks,
Dan

butterfly23's picture
butterfly23
Posts: 257
Joined: Mar 2008

Hi, I have had a blood clot at the catheter of my port, which fom what the dr. said it was a very unusual place to have one. Dangerous. The immediately put me in the hospital and I was on heperin IV and cumadin for about 3 months. We did a CT scan and it was gone. A few months later, I had tremendous pressure in my neck and face, my face was extremely red. Off the the ER and just spent 8 days in hosp. I had a complete blockage in my vein and had to have an angioplasty surgery! I am now still taking cumadin and have my blood checked twice a week. I am not familiar with the drug you are talking about. Just thought I would share my experience with you. I hope things work out for you.
Karyn

dmdwins
Posts: 451
Joined: Aug 2008

I too had a blood clot in my lung. I started off with Lovenox injections-I think (chemo brain) for about a week or two then I went on coumadin for 3months. Had blood work to check my Pro-time(clotting time)about twice a week and they adjusted the dosage from there. No bloodwork was done when on Lovenox.

They believed the Avastin was the culprit for me. Fortunately I had finished my 6 months treatments. I was supposed to continue for 6 months on Avastin alone but only got one in before the clot and had to discontnue it's use.

I had a significant amount of pain with my because it resulted in a large infarct in my lung. Once I was on the meds it got better rather quickly and scan 6 months( no other scans before that) later it had almost completely resolved. No trouble since.

Hope your wife starts feeling better soon.

Dawn

afretiredky's picture
afretiredky
Posts: 28
Joined: Jul 2009

Hi Dan...I'm mostly a lurker too. Currently I am in the hospital after suffering a pulmonary embolism in both lungs. One lung was 100% blocked from blood flow and the other was at 50%. The radiologist told me that he was amazed I made it to the ER alive. They proceeded to do a procedure that I can't begin to spell, but it broke up the clots, gave me TPA to help dissolve the clots and left a filter in my vena cava to prevent any further clots.

They started me on Lovenox injections that night. The goal is to have a large quantity of blood thinner on board. I've gotten two shots per day since Monday and they also started me on Coumadin, which I will have to be on for 6 months. Lovenox is used mostly when you are on chemo because Coumadin creates a bad reaction with the Folfox. If I was going to continue Chemo, they wouldn't have started me on Coumadin.

I know for me they aren't going to do any more scans for at least 3 months because, along with my colon cancer, I also had kidney cancer and the dye they use is hard on kidneys. So they are using the INR to monitor things.

Has the Lovenox worked, I believe so, if the bruising is any indication. Hopefully some where in my rambling I've provided you with some information. Talk with the oncologist about your concerns.

Bless you both,
~~Terry

grammadebbie's picture
grammadebbie
Posts: 424
Joined: Jun 2009

Dear Dan,
Seems like communication stopped after our mysterious poster entered in. I just wanted to check and see how you are both doing. I don't have any experience with this but wanted you to know that you're both in my prayers. Please let us know how you're doing.

God Bless You,

Debbie (gramma)

cyndi2324's picture
cyndi2324
Posts: 72
Joined: Oct 2009

Hello,
Sorry to here of your problems. I also have colon cancer that had spread to my abdomen. I was on the reg 4fu and exloda(sp?) and had surgery all last year. I suggest that EVERYONE with colon cancer get tested for the mutated kras gene (this is a new find about colon cancer). If you have any of the 3 versions of this gene it WILL affect what chemo will work on you. I have the worst(mutated kras) and the whole 1st year that I got chemo was a waste. I have had to have more cancer removed and now have a colostomy and am on CPT11 pray that works. I also had 2 embolisms in my lungs while in the hosp. for my surgery. Some chemo treatments cause blood clots. I am now on wafrin and have a filter in my abdomen for clots.
God bless you and yours,
Cyndi2324

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