Sep 26, 2009 - 9:11 pm
Well, I've a really grueling week this past week. It was the completion (almost) of 3 weeks of radiation as I differed 2 days due to being out of town and in another hospital, and the start of the third week of chemo. I continue to get constant 5FU and daily radiation. Surprise surgical consults, and a procedure in Kansas City to put in a feeding tube. That couldn't be done as the GI doctor couldn't get the scope past my cancer in my almost totally occluded esophagus. I got a nickel and titanium wire stent instead. Makes drinking water sooo much easier! Had my recheck yesterday morning. Dr. Rostogi gave me a list of prohibited foods; breads and leafy greens, that I cannot eat then on the shuttle back to Topeka to oncology to replace my 5FU constant pump. Got home last evening and went to sleep.
Tonight was a red letter supper. I ate 1/2 of a baked potato with sour cream and a fried fish fillet. First solid food I've been able to eat and not have it back up in my esophagus and then blow out since early May. Tomorrow evening will be grilled burgers and baked potato! Damn, I almost feel normal. I still have a slight pain in my chest from the placement of the stent, but was told that it would go away in a few days.
This Tuesday I'll get my bi-weekly dose of Oxaliplatin chemo for about 3 1/2 hours in the hospital. That stuff is tough and knocks me down to parade rest with lots of nasty little side effects. I'm operating in something close to slow motion, am overly conscious of where I walk and intermittently use a cane to steady me up. If I'm not at the hospital early in the morning, Lori has to flush my 'blood draw' line on my PICC line. She also has to do it every evening. I work the syringe, as she refuses to do so. I've only lost 42 pounds since the start of being sick. Now down to my high school graduation weight. I hope to stack on some weight now that I can eat small amounts of real food again.
My neighbor and a 'one armed man" (me) installed the over-the-range microwave this past week in one of my free hours. Fits perfectly in the new cabinet space. I have 3 doctor appointments this Monday morning and 2 the next day. No wonder I'm tired out!
All my best from the Wilds of the Kansas Tallgrass Prairie