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Soft Tissue Sarcoma in Leg, Starting Chemo



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ThuyDoan

				          
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        			    September 24, 2009 - 5:53pm			  			

			
			
I'm 23, female, diagnosed with large aggressive soft tissue sarcoma behind knee/upper calf with bony involvement in tibia. About to start chemo regime of Ifosfamide & Mesna and Adria. If anyone has had similar experience please contact.


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sonofsarcoma

				      
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October 2, 2009 - 5:47am

			
Stay Strong
			
I am 28 and my mother has soft tissue sacrcoma that originated in her thigh and then became bony.  They did not start her on Ifosfamide at first.  I can tell you that Ifosfamide is intense.  I will pray for you.  If you have any questions, let me know.  Diet plays a big part in helping treatment and fighting the cancer.


How did you detect it?  How big is the mass?



			
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ThuyDoan

				      
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October 4, 2009 - 9:32pm

			
I had an MRI report, then a
			
I had an MRI report, then a biopsy done after having felt a lump behind my knee for a couple months. It's quite large...about the size of a fist.


What can you suggest in terms of diet, day-to-day routine, etc. to get through this?


I've just finished week 1 of chemo and now have two weeks off. The slight nausea is always there but so far it's manageable with medicine. Sometimes just the smell of food is sickening.


If you have any idea I'd like to know what to expect for the upcoming months.



			
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dan06

				      
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	        Joined: Jan 2009

	      
	    				
		
			
October 5, 2009 - 7:04am

			
re: soft tissue sarcoma in leg
			
hi thuydon,

i am 25, female  and have also been diagnosed with a type of soft tissue sarcoma in my upper thigh, it's synovial sarcoma.  i have already been operated in March this year and had radiatio in summer but now it seems its back and this time there are 4 lumps.  I am awaiting surgey again preceded and folowed by chemo and radiation.   


how are you feeling/ how did you find out?

My leg is continuously hurting and i feel quite tired and sleepy all the time...how is it with you?

would be gld to hear from you



			
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ThuyDoan

				      
	        Posts: 3

	      
	      
	        Joined: Sep 2009

	      
	    				
		
			
October 5, 2009 - 8:07pm

			
Dan06,
Physically I have
			
Dan06,

Physically I have been feeling the same way for months. The pain and fatigue never goes away and since starting chemo the fatigue has increased along with nausea.


Emotionally...it's been a whirlwind. It feels bizarre going in for chemo when everyone around me is at least 65 years old. Sometimes it's isolating. A lot of strangers ask why I walk with a crutch. Explaining the whole thing to them is too complicated so I just say it's an injury. 


It's been tough coming to terms with things like putting my life on hold for now and not being able to walk normally for a long time. I moved back to my hometown for treatment and being around family and friends really helps. Day to day, I've been taking it easy. Lots of sleep, movies, tv, etc. 


I try not to be angry or feel bad for myself. It's life. Somewhere there's a 6-yr old girl going through the same thing or worse and if she can tough it out then we can too.



			
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Jennygirl84

				      
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October 19, 2009 - 9:20pm

			
I was 17 when diagnosed with
			
I was 17 when diagnosed with osteosarcoma( grade 3)and was also treated with ifosfamide(as well as doxyrubicin- which was absolutely AWFUL!) It was in my left thigh in the soft tissue and I also recieved 35 days of radiation treatment on top of my chemotherapies. I am 24 now and it's been 7 years since my last treatment and so far, I have a clean bill of health! Where are you being treated?



			
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Ma64

				      
	        Posts: 15

	      
	      
	        Joined: Oct 2008

	      
	    				
		
			
October 20, 2009 - 8:24am

			
Soft tissue sarcoma
			
First good luck with treatment.  The ACS has great information in the form of booklets that they can send you regarding chemo, radiation, diet etc.  I found it to be very helpful.

I am a 46 year old female.  I was diagnosed with StageIII soft tissue sarcoma in September 2007.  My treatment was a bit different.  I had radiation to shrink the tumor before the doctor could operate.  Mine was located at my left knee, thigh and calf.  It erroded a hole 2/3 of the way thru my femor.  I had surgery November 2007.  Chemo started in April of 2009 when there was a recurrance.  My chemo was Gemzar/Taxotere/Neulasta then switched to Carboplatin/Taxotere/Neulasta.

Good luck with your chemo treatment.  Stay positive.  You may contact me via email if you like:  gsmeyers92@aol.com



			
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AshleyT

				      
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November 10, 2009 - 12:55pm

			
Soft Tissue Sarcoma on Back, Doing Radiation
			
I am 43. I am a registered nurse with some oncology experience. I have a soft tissue sarcoma on my back between my scapula and armpit. I am undergoing 5 weeks of radiation then I will have surgery. Chemo is still on the table but the specialists have not made a decision yet. I live in Mobile, Alabama. I am recieving treatment at MD Anderson. Their survival rate for sarcoma is 80%. Much better than average. I am fortunate to have the resources and insurance to be here. It is a financial strain though to support two households and to lose my income. My husband looks ten years older. It is also an emotional strain too being so far from home, family and friends. I also have a great workplace that is holding my position for me for as long as it takes. Radiation is NOT bad. I am slightly red and irritated and a little fatigued but otherwise ok. I will have Mesna, Adriamycin, Ifosfamide and Doxorubicin (MAID) if I have to have chemo. I have heard it is brutal and you have to be admitted for several days to have it infused. I wish you the best of luck. I would love to have someone to talk to that is going through something similar. I am on Facebook daily. Ashley Talbot, Mobile, Ala. How are you doing now. Would love to hear from you.



			
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lou_lou

				      
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November 10, 2009 - 5:13pm

			
sarcoma
			
Hi,  I hope all is going well for you.  I have a sarcoma in my left leg and I am having surgery tomorrow(Nov. 11).  Not really sure what to expect.  Will need radiation after surgery I have been told.

Sounds like you are in a wonderful place.  I wish you the best.  Respond if you would like to.  I will be interested how you are doing.  Good luck to you and take care.

Mary



			
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sdmama

				      
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November 16, 2009 - 4:25pm

			
Lou_lou,
Hope your surgery
			
Lou_lou,

Hope your surgery went well.  I had a tumor removed in my right leg last month.  Recovery was difficult because I didn't realize my mobility would be so affected.  But, now, I am able to walk without a walker or cane and am going to be starting outpatient physical therapy.  It is crazy how rare sarcomas are.  I hope that you are well.



			
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alison21

				      
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November 29, 2009 - 10:36pm

			
Hi All, I had a sarcoma
			
Hi All, I had a sarcoma removed from behind my left knee almost 4 years ago now.  I discovered the lump behind my left knee after it was aching from walking.  My doctor opted to removed it by a wide excision then ray treatment.  Ray treatment lasted about 6 weeks leaving the site very sore,burnt and myself very tired, they told me chemo was not an option as it does not work well on sarcomas.  Four years on and my checkups are not getting any easier, I still get very worried and irritated days before the visit, thank god I am surrounded by a wonderful family.  To all fighting this inconvenience please stay positive, know your body and surround yourself with great doctors. Goodluck to all



			
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alison21

				      
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	        Joined: Dec 2007

	      
	    				
		
			
November 29, 2009 - 10:37pm

			
Hi All, I had a sarcoma
			
Hi All, I had a sarcoma removed from behind my left knee almost 4 years ago now.  I discovered the lump behind my left knee after it was aching from walking.  My doctor opted to removed it by a wide excision then ray treatment.  Ray treatment lasted about 6 weeks leaving the site very sore,burnt and myself very tired, they told me chemo was not an option as it does not work well on sarcomas.  Four years on and my checkups are not getting any easier, I still get very worried and irritated days before the visit, thank god I am surrounded by a wonderful family.  To all fighting this inconvenience please stay positive, know your body and surround yourself with great doctors. Goodluck to all



			
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