Sep 23, 2009 - 8:15 pm
Ok...so here's the latest in my saga.....
I come home today and my husband tells me he has written up all instructions as to how he wants his funeral, where he wants to be laid out and where he wants to be buried!!!!
I asked him if he feels like something has changed - does he feel a difference in his nose or mouth, etc? He said no but he also feels that because this is so rare and the doctors never saw it before that they were grasping at straws hoping the radiation/chemo will work but he knows that he is not lucky enough to beat something that stumps the doctors.
I told him I think he needs to talk to someone and maybe a group session would be better rather than one on one....he told me he does not need to talk or get counseling because there is nothing to say and nothing to hear and it doesn't matter if there are cancer survivors since no one has had HIS cancer and there are no survivors of his cancer -- so I told him "Then Be the FIRST one"
I'm so afraid he is giving up -- I said to him that I plan on fighting this and not giving up and he said "so am I" but it sure doesnt' sound that way to me!!