Sep 19, 2009 - 10:50 am
My husband was diagnosed with his Astrocytoma Grade 2 on August 6, 2007, after his first major seizure. We have been going to Evanston Northwestern Hospital in Evanston, IL. He received 6 weeks worth of radiation, and for the most part life went back to a new normal.
A few months ago he started having much more forgetfulness, imbalance, fatigue and all sorts of issues. After a few major lapses in cognitive thinking, he broke down and called the oncologist. They had us drive up there and have an evaluation and an MRI. The MRI does not show any signs of change, and the doctor does not see any signs of weakness. The Dr. thinks that he may be having mini-seizures that he is not even aware of. He had his levels of Keppra and Depakote checked and his levels were a little low. To be exact it was supposed to be between 50 and 100 and his were at 40. His doctor increased his depakote levels and we have been at that level for 3 weeks. Things have not improved much at all. So now, the doctor has increased his Depakote again to 1000 mg daily. Just when I think there may be some, something happens that definitely is not normal.
He has not been able to work, which is inadvertently putting a financial strain on our bills. At this level of confusion (and it is great) I don't see how he will be able to. I am concerned that this tumor is changing. Can anyone out there relate to this and what should we do? I have approached the idea of SSI, and he pretty much refuses to discuss it. His personality is changing, I notice so much change, and I don't know how to handle it.