Is there anyone out there that is dealing with squamous cell maxillary sinus cancer? I have been searching this site and others trying to find someone to exchange information and/or encouragement with...to no avail.
I was diagnosed in Feb or this year (2009), and in March, had surgery where about half of the roof of my mouth was removed, the upper right jaw, part of the right cheek bone, alot of tissue and muscle from the right cheek and the lymph nodes in the right side of the neck.
I had 32 radiation treatments and 7 chemo (cisplatin).
My Doctors have all told me it is a rare type of cancer, but I find it hard to believe I can't find someone out there who has shared the experience.
Thanks for reading and hope to hear something...