Sep 11, 2009 - 12:32 pm
I'm so shocked. As most know, my parents and I live in Maryland and I have my dad in a clinical study at the Hillman Center in Pittsburgh. So, my parents have travelled up there without me. I've had concerns regarding my dad's health, he has been so sick, not eating and hardly getting out of bed. The tumor is shrinking, but to us, it's very slow. Of course we are Drs. but it seems that it should be faster so I send a note to the Dr. about him being so sick and dropping so much weight. I also wanted to know his staging, as I was expecting something different. While he was being treated at Georgetown in DC we were told T3N1M0, the Dr. sent this to me. What is his current stage? T4N1M1b. This is heart wrenching news. I told me mother and it was just devasting to her. Now she's questioning why we should continue to put him through this. I told her not to give up hope. I do think we are going to have him moved back down here and go to Johns Hopkins so that I can be more involved. I really hate to do this, but I think that's what we need to do. This is just the most depressing news to receive. I was really hoping a new staging of T2 or something like that. Please say extra prayers for him. I don't think we should tell him about this. I think it will be to hard for him to hear. I'm just not sure how to proceed at this point. I'm not really in a panic mode, but I feel so alone and lost if that makes any sense. Anyway, Please say an extra prayer for him.