Sep 10, 2009 - 3:52 pm
I went to my doctor because I had a lump in my left breast, that grew very large, very rapidly. Of course my doctor sent me for a mammy and ultrasound. I was referred to a general surgeon who said that because of the size of the tumor (it was the size of an egg) and was freely movable that he was almost positive that it was a phyllodes tumor. I was scheduled for a biopsy the following week, but unfortunately that was inconclusive. Next came the partial mastectomy, but the results from that came back that it was a malignant phyllodes tumor, and while all of the tumor was removed (it was the size of a lemon by then), the thing had alot of (roots) that was left in the breast. So I had a complete mastectomy of my left breast. This has been horrible. I feel lucky that I did not have to go through chemo, or radiation treatments, but on the other hand, to be told that you have a tumor that was treatable only by surgery is very scary. What if the thing has spread? My lymph nodes were all clear, but after reading about this type of tumor, it appears that usually there is no lymp node involvement, the chest wall and lungs are usually affected first. This is apparently so rare, that there is not much info on it (not useful anyway), and it seems that there is no standard treatment for it. Has anyone else been treated for this type of cancer?