Hello Cancer fighters and caregivers,
I was supposed to start treatments last week. I was scheduled to get a g-tube on Monday, Erbitux on tuesday, and rads on wednesday. The schedule was ruined because the g-tube surgeon was on vacation till this week. The cancer center wanted me to get the tube before chemo/rads, so my treatments got pushed back till week of 9/15. In the process, there were many adjustments and cancelations because of general disorganization/vacations. Too much time was wasted and only got me agravated. I now know what JK meant by "Be Your Own Advocate". At the end of the day, I am responsible for my own care. As nice and carring as the health care workers are, it is only a job. The vacations and last week of summer are no excuses for providing sub-par care. From my perspective, a scheduling conflict between "the team" should be noticed with a simple program that tracks the patient through all the appointments and automatically notifies the staff of the schedule conflict. Assume nothing, know whats going on with your care, even if it is a world renown cancer care provider.
On the bright side. I was able to get a few more projects lined up at work and enjoy some quality time with my wife, kids,and friends this past weekend. It was a million dollar beach weekend. I am really starting to come to terms with the magnitude of my upcomming struggle. I'm scarred and depressed at the same time. Fortunately, I have a big support group and a loving family. Whats the best food for the G-tube? Alex. Pain meds and when to start using them? Skin lotion? Where do I get the Magic Mouth wash? Alex.