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For Daisy366 and serous research (and anyone else interested)

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

I found this interesting article on researching serous ovarian cancer which my Gyn Onc says is extremely similar to uterine serous cancer. They are treated the same. These guys are doing some great research. I am trying to find out who is doing research on our cancer; my dream would be to fund raise and help them. But we need to find a legitimate group to help us fight through research. I know Fran Dresher had uterine cancer but I don't believe it was serous; she never had chemo. I'm batting around ideas to anyone that is interested.

http://www.associatedcontent.com/article/1994664/new_study_shows_fouryear_window_for.html?cat=5

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

I wonder if the ACS can answer that one. I will call them.

california_artist
Posts: 850
Joined: Jan 2009

Diane, that was absolutely fascinating. Thank you so much. I'm going to go back to follow some of the info links on the side.

Makes me wonder more about my situation. My poly was 3cm x 2cm x 1cm. Approximately 30% pap serous. Wish someone would look at my lymph nodes. How are you with a scalpel??? Or if I go the biopsy route, a very,very, very long needle. Have you seen how they get to those enlarged nodes. Lovely images on line of needles going right through the bowel.

It's early in my day, got up at 1 a.m., stayed up for a bit and then slept til recently.

Do you think we will make a difference finally if we keep on asking enough people to look into what's going on with women who are actually fighting this right now.

I did hear from Dr. Boik, of the cancer therapies book I keep on recommending. He very kindly suggested we look to a clinician type for our offer of research subjects. I will be looking into that, would love it if you might consider seeing what you can find out as well.

I am aware of a Dr. Rebecca Liu, University of Michigan who is currently doing research on the use of ginger extracts in the fight against cancer. I'll contact her this week. I'm currently sort of out of steam and am in the process of recovering for another round of resarch days and nights.

Thanks again for the reference,

Love,

Claudia

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I wonder how similar UPSC is to ovarian serous papillary, and if these findings mean we have a 4-year window between a Stage 1 and Stage 3 diagnosis. It is amazing to think that the cancer may have been in my body 8 or 9 years before I knew about it. wow.

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

According to my Gyn Onc serous uterine and serous ovarian are very similar and treated the same. She also says that the trend is not to call it papillary serous but just serous. She says they are treated the same and the main treatment is chemotherapy. I still want more research on the uterine side.

Claudia I am trying to figure out what your new picture is. It is the shape of a jelly fish but not in coloring or details. I enjoy your blogs, emails or whatever you call these things. You got personality girl.

I visited the Fran Dresher web site on uterine cancer. I need to go back but just haven't had time. I am struggling with pain in my hands and feet since chemo. And post treatment fatigue. As you all well know.

Daisy I can tell from your writing you are a smart gal and compassionate. And Linda, you are amazing. I will work on this when I am not so tired. Good night ladies!

california_artist
Posts: 850
Joined: Jan 2009

Diane, I know it's really hard to figure out what the paintings are when this small. Since you seem to like them, here's a link to my gallery where you can click on the thumbnails and see them larger. The painting you are talking about is called Parallel Worlds. The top part is a tree, but the lower part rather than being the expected earth, shows the roots floating in a sky. Hence, parallel worlds. One never knows for certain what exists where you cannot see.

http://yessy.com/madisonraygaller/gallery.html

The story of the large white swan is relative to our unexpected battles with cancer and those things life throws our way. I painted her six to eight years ago, eons before all this, altough, even then the cancer was probably growing.

Hope you get a chance to look. I am there with my daughter. She and I are exceedingly different in our art. For the most part, the paintings are mine and the drawings, sketches are hers. Most have names of artist on them.

Again, thanks for your interest. Today is a dismal day for me for some reason.

Love,

Claudia

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

aha! I now see the tree! My mind wouldn't let go of some type of jelly fish! I will check out your art work on line.

I know the dismal day feeling. Sometimes it just hits you. You can't be a perfect fighter everyday.

Diane

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