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Putting us on a map. And giving the stage you were diagnosed with as some are doing now.

california_artist
Posts: 850
Joined: Jan 2009

Could each of you write the area or the town, and state you live in so we can get a feel for how spread out or close we are to one another? Would be a real shame if some of us live in the same town and don't know it.

Some of you have added your stage. GREAT IDEA! The year and month you were first diagnosed, if this is a recurrence, can help give others a heads up as to the seriosness of the situation, and to really encourage them to do as much as they can, in addition to their doctors' treatments, to stave off a recurrence.

Me--Stage, ah, well could be Stage lA or lllC as the doctor didn't do complete staging. This is NOT a recurrence for me but, I was first diagnosed February 27, 2008. Only treatments have been in the form of alternative therapies, both nutritional and lifestyle. Will be adding others such as visualization and other mind/body approaches in the coming year. Will continue these for the rest of my life.

Currently, Menominee, Michigan. Just across the river from Marinette, Wisconsin. First 18 years, Long Island and NYC. Then nearly forty years in California both north and south of San Francisco at varying periods, with a short stint in Pascagoula, Miss, Leesburg and Reston, VA.

Mostly I miss NYC.

ADDED cHRISTMAS MORNING 2009:

A welcome to newer members to help us get to know each other better.

You can also review this thread to see a bit of what other people's experiences have been. For more thorough information regarding that, see the Roll Call thread.

Welcome and sorry this is how we are meeting.

May the coming year bring back joy to your minds and health to your bodies and the strength of heart to fight this diagnosis, to you in their fullest,

Claudia

california_artist
Posts: 850
Joined: Jan 2009

maryln3--Philadelphia area

Deblittleton's picture
Deblittleton
Posts: 56
Joined: Feb 2009

Deblittleton
Highlands Ranch, Colorado

Gunhild's picture
Gunhild
Posts: 37
Joined: Jul 2009

Gunhild
Finger Lakes Region - NYS

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

shortmarge
Charlotte, NC

Stage IIA
uterine papillary serous found in biopsy before surgery not afterwards
clear cell found after surgery

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Gunhild, I lived in Geneva for 22 years before moving to FL in 1994. Beautiful area.
Mary Ann

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

KKSTEF

Overland Park, KS

howdybooth
Posts: 44
Joined: Aug 2009

Howdybooth
Dallas, Texas and El Paso, Tx

cc1212
Posts: 3
Joined: Aug 2009

Cecile, Santa Cruz and Castro Valley, CA--UPSC4b.

california_artist
Posts: 850
Joined: Jan 2009

There seem to be an awful lot of Stage lV replys. I wish I knew why that was. Could you tell me where your initial thread is or have you not found it yet?

Thanks for the infor on the city. I was just there in June and July of this year. Used to live in San Jose and on a horse ranch near the freeway in Castro Valley. Is that 680.

I miss California more than I can ever say.
What hospital are you going to for treatment? Do you like it?
Love,

Claudia

Is this a recurrence for you or a first time diagnosis?

kansasgal's picture
kansasgal
Posts: 115
Joined: Aug 2009

Sally, kansasgal
Wichita, Kansas

kathybd
Posts: 126
Joined: Jul 2009

Kathy

San Jose, CA...but grew up in LaCrosse, WI. 3A endometroid

bella09
Posts: 37
Joined: Mar 2009

Colorado Springs, CO

Ro10's picture
Ro10
Posts: 1356
Joined: Jan 2009

I spend the summers in Quincy Illinois and the winters in Treasure Island Florida.

Have Stage III-C UPSC,
Had abnormal PAP test (no symptoms) in October 2008, followed by endometrial biopsy.
Had DaVinci Robotic total hysterectomy (tubes, ovaries, omentum biopsy, 25 lymph nodes) in January 2009
Started chemo January 2009, 3 weeks after surgery.
Had 3 chemo treatments (Jan, Feb, March), then has 28 external radiation treatments followed by one internal radiation treatment (28 hours long) (April thru May 2009)
Followed by 3 more chemo treatments June, July Aug. Last chemo in August 2009.

Will have lab every 2 months and Cat scan every 3 month for follow-up. CAT scan at completion of chemo showed NED. CA-125 normal.

npl8261
Posts: 33
Joined: Jun 2009

npl8261
age 43
Cambridge/Boston, MA

Kris Ann
Posts: 26
Joined: Jan 2009

My mom has uspc stage 4.. she goes to dana=farber for treatment.. are you familiar with that place?

california_artist
Posts: 850
Joined: Jan 2009

I don't know where Dana Farber is, would you be able to put in a city and state so our map will be fairly accurate.

thanks so much,

claudia

Kris Ann
Posts: 26
Joined: Jan 2009

My mom has stage 4 uspc/clear cell.

Treated at Dana-Farber in Boston.

From Sturbridge MA.

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

Fuzzytrouble- Hillsboro Oregon Right outside the Portland area grew up in Cambridge Ma.

Teresa 61's picture
Teresa 61
Posts: 84
Joined: Dec 2008

Teresa
Fontana, California
Stage 2A endometrial serous/high grade
Diagnosed Dec.22,2008

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

Grew up in Minnesota. Yorktown, Virginia

PS I love your Art Work.

jnmchenry
Posts: 9
Joined: May 2009

Nancy, jnmchenry
Columbia, PA

Love your art, too!

california_artist
Posts: 850
Joined: Jan 2009

If you don't mind, would you be able to put your current stage and the stage you were diagnosed with first.

And thank you so much for the kind words of the art work.

Love,

claudia

jnmchenry
Posts: 9
Joined: May 2009

Sorry, my stage is 1B, grade 1 (not USPC). Diagnosed March, 2009.

Nancy, jnmchenry
Columbia, PA

Fran60's picture
Fran60
Posts: 24
Joined: May 2009

Fran60 Folsom, CA

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

PJBA11 Peggy; Center of Minnesota. Originally from South Dakota.

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Sorry....I forgot to include diagnosis... SO...here is the info

Currently reside in Overland Park, KS
Grew up in North Dakota

Diagnosed May 2008 with Grade ii/iii, Stage 3A Endometroid Adenocarcinoma.
Had radiation (30 treatments) and then 5 rounds of Carbo/Taxol.

Finished treatment Dec. 31, 2008.

kansasgal's picture
kansasgal
Posts: 115
Joined: Aug 2009

kansasgal
Sally
Wichita, Kansas - originally from SE Pennsylvania outside of Philadelphia

Feb 2009 - annual PAP - suspicious for endometrioid adenocarcinoma
March 2009 - D&C - endometroid adenocarcinoma grade 2
April 2009 - open incision hysterectomy - removal of cervix, uterus, fallopian tubes, ovaries, 9 lymph nodes - no cancer cells detected in pelvic cavity wash

Dx April 2009 (post-surgery staging) - stage 1b grade 2 endometrioid carcinoma.
(Tx - no further treatment needed)

Dx May 2009 (quality review staging) - ADDITIONALLY with stage 1a grade 3 UPSC.
(Tx - 6 rounds carbo/taxol plus 3 rounds brachytherapy - so far chemo is 4 down, 2 to go; brachy is 2 down, 1 to go)

cathyK's picture
cathyK
Posts: 88
Joined: Jul 2009

houghton lake mi

got stage 4 grade 3 endometrial cancer
May pap
June biopsy was told I had cervical cancer need a d and c
july second opinion was diagnosed with uterin cancer
july historectomy was told I had endometrial cancer
treatment cislplatin, adriamycin, taxol . every 21 days 6 treatments, just past #3

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

stage 3a UPSC diagnosed 9/08 at age 61. Treatment - surgery, 6 rounds carboplatin/taxol, in surveillance since Feb 09.

Lived in upstate NY -Rochester & Finger Lakes until 1994. Now in SW Florida.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

July 2008: 'highly suspicious' PAP test results
Aug 2008: numerous inconclusive biopsies, & inconclusive D&C. referred to gyn-onc.
Sept. 2008: gyn-onc does more biopsies and diagnosis UPSC from last month's D&C slides
Oct. 10, 2008: optimal de-bulking hysterectomy & staging surgery: pathology: UPSC Stage 3-c (microscopic UPSC cells found in 1 of 25 lymph nodes sampled & in 'wash', and had travelled into 1 fallopian tube prior to surgery.)
Nov. 10, 2008 to March 26, 2009: 6 rounds of carbo taxol chemo (complications included 3 blood transfusions and 3 delays in getting chemo due to low platelets & anemia.)
May & June 2009, treatment ending 7/01/09: 28 rounds external pelvic IMRT & 3 vaginal brachys (no complications other than diahrea during the external rads.)

Currently in remission with a NED CT-scan and CA-125 of 26 as of August 2009. Only on-going treatment: vaginal dilator daily plus calcium and multi-vitamin daily.)

I live in central Pennsylvania in a rural area outside Shamokin.

Surgery at Hershey Medical Center, Hershey, PA
Chemo & radiation & all monitoring at Geisinger Medical Center, Danville, PA

Reddie's picture
Reddie
Posts: 72
Joined: May 2009

Reddie
March 09' diagnosis endometrical cancer
May 4th total hysterectomy and removed 32 lymph nodes
June 26th first round of chemo then stopped

I have stage IIIc grade 2

Now I'm on antibiotics for stomach infection but no tx

born and raised in central coast Calif. but live near Philadelphia, PA.

Fran60's picture
Fran60
Posts: 24
Joined: May 2009

I forgot to add that I was treated in 2006 for UPSC stage 1a and now I am going through it again. Metastisized to my lungs. If anyone is going through for a 2nd time would love to hear from you.

Fran60's picture
Fran60
Posts: 24
Joined: May 2009

I forgot to add that I was treated in 2006 for UPSC stage 1a and now I am going through it again. Metastisized to my lungs. If anyone is going through for a 2nd time would love to hear from you.

nursey420's picture
nursey420
Posts: 53
Joined: Mar 2009

Oakdale MN grow up in small town south of Pgh PA.
Stage 2b endometral dignosis 1/09 DeVinic robot surgery 2/09
25 IMRT treatment 4 HDR treaments
just had 6 month check up waiting for results
Lisa

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

I live in Pawtucket, Rhode Island
Stage 3C Uterine Papillary serous carcinoma
Treated (surgery, chemo, radiation) at Beth Israel Hospital, Boston
2 years NED!
Barbara

california_artist
Posts: 850
Joined: Jan 2009

Don't we just LOVE TO HEAR FROM WOMEN LIKE YOU. GIVE US ALL HOPE. THANK YOU VERY MUCH FOR SHARING, AND LOOKING TO WONDERFULLY HEALTHY.

LOVE, HOPE, HEALTH, SUCCESS AND FANTASTIC JOY TO US ALL

susie1143's picture
susie1143
Posts: 109
Joined: Aug 2009

I live in Holiday, FL (near Tampa Bay). I grew up in New Jersey.

First pathology report was Grade 3 cell in July 09.

After surgery (Robotics on Aug 26th), Stage 1C, Grade 2 Cell. At this time no further treatment. (I am in process of getting 2nd opinion)

Susie

california_artist
Posts: 850
Joined: Jan 2009

Regarding your stage and grade. While I understand Stage lC, could you say if its uterine papillary serous, clear cell or the usual aden something or another. I think you mean clear cell grade 2, but am not sure.

Where in New Jersey? and do you have the wonderful accent that just brings tears to my eyes whenever I hear it. I lived in Leonia and then on the Island as well as a peach farm in New Jersey.

Second opinion sounds like an absolute necessity.

Good Luck and love,

claudia

susie1143's picture
susie1143
Posts: 109
Joined: Aug 2009

Hi Claudia:
I grew up in Pequannock, NJ which is northern NJ about 45 minutes from New York City. During college I went to Springfield, MA and got married and came back to NJ. We lived in Sussex County for a long time. For those who don't know much about NJ, it not just cities but has a lot of farming areas. Once the kids graduated, we came down to Florida for the sunshine. I still have my NJ accent with a touche of southern. A few words will always be NJ such as water.

As far as Grade 2, I'm being told that it's not mixed or clear cell but Endometrial Endometrioid Adenocarcinoma. My first path report was Grade 3, Endometrial Adenocarcinoma, mixed serous and endometriod type. The gyn/onc said prior to the surgery that sometimes the first pathology report (during the D&C) is not always correct. He did think mine was a Grade 3 and was surprised that it came back a Grade 2. Has anyone else had this happen?

I'm in the process of going to a cancer center in Orlando, FL.

Susie

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

I too grew up in NJ. Robbinsville (central Jersey) just outside of Trenton. Exit 7A hahahaha! I know Pequannock, I have family in Pompton Plains.

cleo
Posts: 121
Joined: Sep 2009

Ngunguru, Whangarei, NZ. Most appreciative of this informative site.

Stage 3/4 carcino/sarcoma of endrometrium with pelvic and para-aortic lymph nodes and left VUJ bladder metastates. Just received unchanged scan...two years and dancing!
Celia

bonnyboop's picture
bonnyboop
Posts: 9
Joined: Sep 2009

So happy for you....good health and happiness to you!! Boop

california_artist
Posts: 850
Joined: Jan 2009

People are always looking for good news. I am going to post is as a thread so everyone can be happier with the hope this brings to all of us out here.

Claudia

bonnyboop's picture
bonnyboop
Posts: 9
Joined: Sep 2009

Frankford, Ontario, Canada

Great site!!!!! I've read so many stories and cried along with all of them!! My heart goes out to so many!! I live in Frankford,Ontario,Canada. Was diagnosed with uterine cancer in October of '08. Stage 2B..moving from uterus to cervix and some cells found on my bladder. Complete hysterectomy in Nov 08, 33 radiation treatments Jan-Feb 09, 4 chemo treatments Mar/Apr/May/June. Hysterectomy was a no-brainer....GET IT OUT, radiation to concentrate on cells found around bladder. My choice was to have chemo...they weren't sure if any cells were "washed" away at time of operation, although they said chance was small....I didn't want to take any chances. I guess, fingers crossed, I am one of the lucky ones. Time will tell. Operation wasn't a piece of cake, but I healed well and quickly thanks to the support of my family. Radiation was just fine other than the 2 hour return trip to Kingston. Chemo was another story altogether...SICK for 10 days afterwards, but it's over....but now side-effects? Achy muscles and bones, stiffness and I feel like I have allergies or like I'm coming down with the flu all the time, but I don't get sick...also, still a ringing in my ears and never mind the weight gain!! So glad I found all of you!!! Boop

Unprepared4this
Posts: 1
Joined: Sep 2009

I am in San Francisco, CA and was diagnosed with endomentrial adenocarcinoma Stage 1C. A vaginal hysterectomy was performed, no nodes taken, no radiation/chemo. 2 years later, an excruciating pain in my groin turned out to be a recurrence in a lymph node.

Scheduled for surgery to remove node on 10/12, but am totally blown away by what I have read about the prognosis for recurrent uterine cancer. My doctor didn't give me a prognosis when asked, which I thought was a little suspicious. Guess he doesn't want me to focus on anything other than the surgery. He obviously doesn't know me well yet!

I am devastated and looking for anyone who can provide some hope, as I am a single Mom with a 6 year old son that I want to be able to raise to adulthood.

california_artist
Posts: 850
Joined: Jan 2009

You said you had endometrial adenocarcinoma, the prognosis for that particular form of uterine cancer is VERY GOOD! Most of the girls, ladies women, whatever we are here, have uterine papillary serous carcinoma a close relative to ovarian cancer with a similar bleak prognosis in some cases. I didn't see anywhere that you have this particular form of uterine cancer so don't be freaked out by what we're talking about. This is a cancer that only occurs in less than 10% of uterine cancers.

Ask for you lab report on the operation to see exactly what type of cancer you have if you haven't already.

I imagine you'll see your grandchildren with that particular form of uterine cancer.

It's very possible that your doctor dropped the ball so to speak in not offering any further treatment with stage lC.

Others will be responding soon and I would guess they will say something similar to this.
Have some tea, play with your son, cry, watch a movie.

You can reach me at 947-517-9417 or

claudiaallen27@yahoo.com in the subject line write UPSC or uterine so i know it's not spam.

As always, love, hope, health, success and joy to us all,

Claudia

Deblittleton's picture
Deblittleton
Posts: 56
Joined: Feb 2009

I had uterine endometrial cancer Stage 3C. When I had my hyst the surgeon also removed 25 lymph nodes that thankfully were negative. After 6 chemo tx, 25 external radiation tx and 3 brachy therapies I am cancer free. I hope you are going to a surgeon that is a Gyn oncologist. You should have had a scan, either a Pet scan or Ct scan to evaluate if there are any other nodes or areas ie. bladder, colon that need to be looked at more closely.

When the surgeon is doing surgery to remove this node, he should also remove other nodes near and far from this one to get a more definitive diagnosis. You should not have to go through surgery with general anesthesia for the removal of one node.

Your Dr may not be able to give you a true diagnosis now, but he should be able to discuss any concerns that you have. If he can not or will not, it is time for a second opinion. It might be time to change to a dr that is more open and can answer any questions or concerns you may have. Bring paper and pen with you with all your questions. Do not leave the office until you have asked them all and understand the answers. Personally, I brought a digital tape recorder ($30.) to every appointment and reviewed and wrote things down when I got home. I was surprised at how much I did not retain of the conversation. Stress!

You say you are from the San Francisco area. We may have other sisters out there that can recommend Drs to you. Ladies do you know anyone?

Debbie

susie1143's picture
susie1143
Posts: 109
Joined: Aug 2009

Hi:
I was also diagnosed as stage 1C Endometrial Cancer with not further treatment on Aug 26th. Fortunately, I had Robotic surgery and ten nodes were removed during surgery (all negative). However, I am in the process of getting a second opinion. On Oct 1st, I have an appointment at the Moffitt Center in Tampa, FL. They are also going to review my slides from my D&C and surgery. My D&C showed Grade 3 and my surgery showed Grade 2 cells.

Susie

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