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TCC in renal pelvis

karenska
Posts: 1
Joined: Aug 2009

Hi - I'm a 66 year-old woman who had a left kidney, left adrenal gland, left ureter, and a cuff of my bladder removed in July '08. Pathology report came back saying all margins were clear and no signs of metastases. Every three months I went to my urologist for a bladder scoping with all good results. Twice I had my bladder washed and all reports came back negative. However, at 1 year post surgery I had a ct scan which revealed nothing in my organs but two affected lymph nodes in the retrocrural space. A Pet scan followed and revealed 3 more affected lymph nodes - one in pulmonary area and two in the neck. None of these are able to be biopsied at this time - too small. I feel wonderful - no symptoms of anything adverse. Returning to oncologist in early September to see how I'm doing,, feeling, and talk about a plan of action and treatment. I suspect that my prognosis is not too good but does anyone have anything to comment on. My spirit is good. I am a fighter so say anything you think I might need to know..

donna_lee's picture
donna_lee
Posts: 238
Joined: Feb 2009

Hi-I couldn't resist, since I'm 66 and have been in the RCC club for just over 3 years. I can really only offer lots of encouragement to keep fighting and keep a good attitude. Mine had already mets to the liver and nodes when it was found, and recurred in a node each of 07 & 08.
This is the first summer in 3 years without surgery and all that entails, so I have been trying to enjoy myself.
Next CT is in less than 3 weeks, and I'm keeping my fingers crossed. I guess I'm truly lucky because I've never had any of the pain, swelling, and a lot of the other symptoms associated with RCC-Clear Cell. My symptoms were more related to the affect on the liver and a congenitally defective gall bladder that was removed during the initial surgery.
Good Luck. Keep on keeping on. At our age, we deserve it!!
donna_lee

lyyams
Posts: 9
Joined: Mar 2010

How are you doing? My husband had the same thing with similar diagnosis. Were you ever on chemo after surgery? How about now...are you on