Aug 28, 2009 - 1:42 pm
Hi - I'm a 66 year-old woman who had a left kidney, left adrenal gland, left ureter, and a cuff of my bladder removed in July '08. Pathology report came back saying all margins were clear and no signs of metastases. Every three months I went to my urologist for a bladder scoping with all good results. Twice I had my bladder washed and all reports came back negative. However, at 1 year post surgery I had a ct scan which revealed nothing in my organs but two affected lymph nodes in the retrocrural space. A Pet scan followed and revealed 3 more affected lymph nodes - one in pulmonary area and two in the neck. None of these are able to be biopsied at this time - too small. I feel wonderful - no symptoms of anything adverse. Returning to oncologist in early September to see how I'm doing,, feeling, and talk about a plan of action and treatment. I suspect that my prognosis is not too good but does anyone have anything to comment on. My spirit is good. I am a fighter so say anything you think I might need to know..