Aug 24, 2009 - 4:02 pm
Hi, new here. Just found out on 8/6 that I have Papillary thyroid cancer. Several nodules were found 3 1/2 years ago, but the biopsies were inconclusive. I was given I referral to endocronology, but gave up after 3 attempts to get an appointment (2 where the person who schedules was at lunch, and once on vacation. I left a message that was never returned).
Now I get a physical and the doctor tells me it looks like it's grown and sends me off for another biopsy, but just on the one nodule. It came back positive and they told me 8/6.
Well, I quickly recieved a bunch of phone calls scheduling me for a surgical consult, and endocrinology appt, and another ultrasound to check if the lymph nodes were abnormal, and if they are, get a biopsy. They'll biopsy the rest of the nodules post surgery.
Scheduling that ultrasound/biopsy is turning into a nightmare. First she calls and tells me the endocrinologist wants me to get the biopsy right away, but the person that does them is on vacation this week, so the earliest is 8/31. I said OK and scheduled my other appts around that.
They they call this morning and say "oops", he's still on vacation until 9/1. Earliest we can get you in is 9/4. So I say OK, please get my other appointments rescheduled then. She calls back and of course the surgeon is going on vacation starting 9/5 and won't be back for two weeks. He's the guy that specializes in thyroid surgery.
I still don't know how bad the cancer is and if it's spread at all, I won't be having surgery until sometime after 9/15 at the earliest.
I'm going crazy over all this and I don't have any idea what to do about it. It's just adding to what was already a pretty stressful event. The endocrinologist wanted a ultrasound and biopsy of the lymph nodes stat, yet it will be almost 4 weeks before that happens.
Anyway, just blowing off steam...