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prostate cancer

MIKEOSH
Posts: 16
Joined: Aug 2009

i have been diagnosed with prostate cancer. brief history : i'm 64 years old and living in a suburb of phila pa. after coming out of the servive in 1967 i have made it a point every yr to get a complete physical. 42 yrs of good health i am really upset that how this year in june i had my blood study done and told my family dr. while looking at the results that my prostate reading was 4.0 he told me that it was fine still within limits, well i told him to look at last yrs which was 2.9. well that started the ball rolling, first a ultrasound that showed an enlarged prostate, which led my dr to have me see a urologist which scheduled a biopsy for aug 7th. i had called his office on the 14th this past friday to find out the results. well it took me two calls and finally at 5pm the sect in his office calls me to tell the dr. is busy. and she proceeded to tell me that of the 12 cores takes 3 showed cancer on one side and that the other side was clean. i was told to come to the office yesterday and get a script to schedule a cat scan and mri full body bone scan. this will be done thursday. i am really ticked off that the medical profession and the drs within it are so out of tune with the word anxiety. why couldn't he take the time to call me on friday to explain all of two minutes. to top this off he's on vacation this week. how do you like that for communications from a highly paid physician.
i would appreciate any feed back from any of you guys out there who are going thru most of the same thing. i have to go off line for about 2 hrs but will be back to see your comments thanks in advance and god bless you all mike

NM
Posts: 214
Joined: Jul 2009

Hi Mike I live in NE pa. and have switched hospitals and doctors because an inexperienced doctor insisted on doing my surgery as I was his patient. I am 52 Psa 7 cancer throughout the prostate. I dont even qualify for nerve sparing radial prosectomy ,due to my cancer throughout the prostate. I finally landed in Danville (thank god) with an experienced doctor. Now in the next month or so surgery is to be scheduled. Scared yes,worried hell yes but I can only say it is what it is. By the way welcome to the crappiest club you get pushed into .....Nick

MIKEOSH
Posts: 16
Joined: Aug 2009

thanks for your reply, my wife was born in danville, beautiful area, great hosp geissner just outside of town. i have alot of questions for this dr hope i'll get some results. will get a 2nd opinion also. thanks mike

lewvino's picture
lewvino
Posts: 1006
Joined: May 2009

I would suggest finding a new doctor. At least though you were on top of things and got the Check up the Dr. Didn't want to do. Find out your Gleason score on the samples with Cancer. That will be a made up of two numbers which are important. These numbers for example will be something like 3+3(6) or 3+4 (7). If you can post those numbers it is helpful for others that have been done the road before you.

I'm 6 days post robotic surgery.

Larry

MIKEOSH
Posts: 16
Joined: Aug 2009

thanks for your reply, i've just started to pull up info on the gleason scores, kinda hard for me to know them i get to see the dr next week. i will be very well prepared when i meet with him. thanks and take care mike

novaguy
Posts: 76
Joined: Jul 2009

Hey Mike, sorry you got the news the way you did. When my PSA first got about 4, my doctor didn't even look at me, just handed me a printout of all my blood tests, and I was the one who read the PSA numbers and a little table that said I had a 33% chance of prostate cancer. I asked the doc if I was reading it right, they take a look and say, yes, that's right.

Long story short, that was probably my worst experience for anxiety. After I got over the shock, I settled in my mind that this was a possibility and was ready for the worst. The biopsy also caused me a lot of anxiety, but my uro sat down with me when he told me I had 8 of 12 cores positive and a gleason 7.

I'm on the other side now, having had robotic prostatectomy, looks like they got all the cancer out, my catherer is out, and I'm dry. I guess I had been so pessimistic that I never expected these good results. So the only thing I can tell you is, you're probably going through the max in anxiety right now, and it gets a lot better. Also, from just having 3 cores out of 12 positive and a pretty low PSA, you're probably at a very early stage where it's highly curable. As someone else said, you need to know your gleason score.

Good luck buddy.

MIKEOSH
Posts: 16
Joined: Aug 2009

thanks fore your reply. in all likely hood i'll elect to do the robotic thing. i have another long week to go before i see the dr. thanks mike

saoco
Posts: 43
Joined: Aug 2009

Hi MIKEOSH relax my friend everything will be ok.
1-you do not need the test that they say you need, the result of those test will come back
negative.but doctors want to be sure. so you do the test but do not be worrie.
2-you do not say what was the gleason score but I bet is it 3+3.
3-the statistic is showing that is it a litlle beter surgury than any other treament.
but theare many treament to chose from it depend howm you talk about it.
if you want you can call me and i will be glad to walk with you every step of the way.

MIKEOSH
Posts: 16
Joined: Aug 2009

thank you for your words of encouragement. i don't have a gleason score yet, probably get that after the cat and mri and i meet with him next week. anxiety at 64 is not my best trait, went thru alot in the late 70's and all of the 80's with a sick wife who died of ms at the age of 42 in 1990 and three teenage boys to raise. so this is not good to go thru at my age or any age. talking to guys on the internet like you is better therapy than i thought.
i will give you a shout in the am tomorrow and give you my tele number. i'll be on about 10am. thanks for the good words of encouragement. mike

tpelle
Posts: 150
Joined: Aug 2003

Mikeosh: If you want your Gleason score now, tell your doctor's secretary that you want to see your file NOW including the lab report on your biopsy. How dare they leave you in a state of anxiety until the doctor returns from vacation. Most likely Gleason is good; why keep you worrying. Either way, I'd want to know.

novaguy
Posts: 76
Joined: Jul 2009

tpelle, I agree with you, no need to wait for these other (unncecessary in my opinion) tests before they give Mike the gleason grade. That should be done at the same time as the biopsy results are given out. However, in my case, the gleason was not part of the biopsy report, my urologist went over the biopsy report, told me what my gleason score was, and wrote it on the biopsy report. So I think the gleason grade is left up to the urologist, at least in some cases. On the other hand, my post-surgery pathology report did include the gleason grade, so I guess it depends. One thing for sure, Mike's urologist sucks in the patient relations department.

MIKEOSH
Posts: 16
Joined: Aug 2009

one thing we surely agree on is the dr. sucks in patient relations. i have two tests tomorrow so i'll wait to see him tuesday, don't want to call the office and be told she can't give it to me because she needs his permission, i can somehow understand that but there are other dr's there in the office who are covering, you would think someone would pick up the ball.

on another note when i was reading comments yesterday someone was saying the va is giving disability to vietnam vets who get prostate cancer. i was in nam in 65 and 66, any comments or direction from any of you guys would be appreciated.
in the meantime i'll check the va web site thanks mike

MIKEOSH
Posts: 16
Joined: Aug 2009

i agree with you, but i have these two other tests to worry about so i'll wait till i see him tuesday and tell him how good of a F$@#%& job he's doing in the communications dept. these surgeons all they worry about is the bottom line money wise, they have to satisfy that emer room rent there plosh cars etc and don't give a rats a@* about us guys. thanks for your comments mike

gator880
Posts: 21
Joined: Aug 2009

You're definitely going though a lot. My husband bonded with and highly regards a doctor who has since moved to Philadelphia area. He spent time with both of us, and treated us both as real people with real concerns, not just someone in a waiting room. Dr. Akhil Das is a urologist who joined Thomas Jefferson University Hospital last November. (We had seen him in New Mexico, but he moved back to the big city.) Hope this helps. Can give you more detailed info if you need it.

MIKEOSH
Posts: 16
Joined: Aug 2009

thank you for the dr info. i will look him up, would you suggest he be my 2nd opinion, i'm new to this and don't know who should be looking at my results. thanks mike

hopeful and opt...
Posts: 1313
Joined: Apr 2009

The american urological association guideline does not recommend a bone scan for gleasons under 8. Also I there are more appropriate tests for prostate cancer than a catscan.
YOU NEED TO GET YOUR GLEASON SCORE NOW, AND ALSO THE INVOLVEMENT OF EACH CORE Get a copy of your biopsy test. Also , you want to have a second opinion of your biopsy to make sure that you are not over or under treated. DR. Epstein at Johns Hopkins is an expert in the field. The analysis of the biopsy is very complicated, and you really want to see an expert.

YOu may be a candidate for Active Surveillance however you need to know your gleason and involvement in each core.

Age 66, 3+3=6, 2 of 12 cores positive,less than 5 percent involvement in each; diagnosed march- active surveillance.

We are with you

MIKEOSH
Posts: 16
Joined: Aug 2009

thank you for your info. i just had the cat and bone scan done so i'll just sit and wait till i see the dr on tuesday, he is on vacation till monday. i have a lot of written questions for him at this point. i will be getting a second opinion regardless of what he tells me. with 3 cores located in one section showing cancer and the other being fine and a psa of 4.0 before the tests maybe there is hope here. i do get checked every year so maybe that helped that i was on top of things. looking for a little hope and a whole lot of luck here. throw in a few prayers and we'll see. thanks again. mike

hopeful and opt...
Posts: 1313
Joined: Apr 2009

It's going to work out...........by the way get a copy of every thing that is done for your personal records........either you or your insurance company paid for this.........you will need this as you interview doctors at various specialties.............remember, generally one is in no rush to jump into anything........take your time to make the right decision that you are comfortable with.....wishing you the best

Ira

MIKEOSH
Posts: 16
Joined: Aug 2009

ira when and how did you go thru this experience mike

hopeful and opt...
Posts: 1313
Joined: Apr 2009

I was diagnosed in March, for my 66 birthday present.

Basically, like all of us, I was in shock for the first month or so, with various negative feelings, depression, etc.

My numbers were 2.2 psa, 3=3=6 gleason, 2 of 12 cores involved at less than 5 percent.

The urologist told me that I was a good candidate for everyone, my stage was t1, and that there was less than a 1 percent chance that my cancer spread outside the prostate.

So I went on my journey, first saw a radiation oncologist. This guy felt my prstate , told me that there was a 40 percent chance that my cancer spread, and he thought that my stage was between 2c and 3b. He also told me that I had 5 weeks to make a decision and recommended various tests.

I did not take any of the tests, saw aworld class surgeon at UCLA who basically told me that this guy was a shark, INstead of surgery, he recommended active surveilance.....as I left the hospital tears came to my eyes as I drove the freeway back home..........I've been studying this a lot, internet , support groups , etc. I've become a prostate cancer groupie
Ira

MIKEOSH
Posts: 16
Joined: Aug 2009

IRA, I'M KINDA PUZZLED LOOKING AT YOUR REPLY, WHAT PROMPTED YOU TO SEE A RAD ONCOL, WITH THE REPORT THAT YOU HAD. WERE YOU LOOKING FOR 2ND OPINIONS THERE. WHAT IS YOUR STAUS TODAY

hopeful and opt...
Posts: 1313
Joined: Apr 2009

Well basically, any decision that one makes can be a bad one. For example, I am on active surveillance. I take the risk of the cancer spreading before it can be operated on. I decided to do this, so I can have a better quality of life before I take action, probably robotic surgery.

When I was first diagnosed, I felt that I would like to explore and get various viewpoints from various speciaties,so I initially saw this radiation guy--basically, I forget to mention he wanted to do external and seeds and heat and "get that cancer"
Up ontil that point I felt that I had lots of time and was taking it easy, but then I started to move, and went to the surgeon, ready to get an operation.

This doctor only discussed active surveillance, not surgery, so who was I to second guess him. I am still on active surveillance, six months later. Lately, I have a minor concern since my PSA increased from 2.2 in Jan to 2.5 in July. I will have another test in 3 months.

Ira

MIKEOSH
Posts: 16
Joined: Aug 2009

OK I THINK I'M UP TO SPEED NOW. THANKS FOR SHARING. I PRESENTLY AM AS NERVOUS AS A GUY WAITING FOR THE SHOE TO DROP. I'LL HAVE A LONG WEEKEND TO WONDER WAHT THE DR WILL SAY, ITS BEEN OVER THREE WEEKS SINCE I SAW HIM, HAD ALL THESE TESTS BASED SOLEY ON THE FACT THAT I HAD 4.0 PSA AND ENLARGED PROSTATE. AFTER READING ALL THE REPORTS FROM THE GOOD GUYS ON THIS SITE I GET TO WONDER WHY HE (THE DR.) ORDERED THE CAT SCAN AND BONE STUDY WITHOUT TALKING TO ME FIRST I AM ONLY TO WONDER AND ASSUME HE SAW SOMETHING IN THE BIOPSY THAT I WASN'T TOLD ABOUT WHEN THE SECT CALLED ME WITH THE BAD NEWS. SO I'M ON A LONG WAIT AND SEE TILL TUESDAY AFTERNOON. WILL BE ON HERE OVER THE NEXT FEW DAYS AND WILL SHARE MY RESULTS AROUND 6PM TUESDAY TAKE CARE AND THANKS MIKE

hopeful and opt...
Posts: 1313
Joined: Apr 2009

hi mike, I not sure if I was clear about this..............You don't have to see the pathologist.......simply have the lab that did the pathology send the parraffin blocks to dr. Epstein at Johns Hopkins for a second opinion...........this is generally covered

Ira

MIKEOSH
Posts: 16
Joined: Aug 2009

i wihll ask that question also on tuesday. when were you first diagnosed with prostate cancer. how old etc mike

hwgoodman
Posts: 4
Joined: Aug 2009

Hello Men,

My name is Hank I live in Kansas and I joined about 10 min ago. I am 57 and was diagnosed with T1 cancer, a Gleason score of 3+4 two of the 12 test were positive 10 were precancer. That was in Feb 09 Not like Mike I was called by my Dr. personaly to inform me of the bad news. I was still terified so I surely can understand what Mike feels, and would suguest a new Dr. right away. I chose the surgery, and in late March had it done. The Dr. told me that it was confined to the prostate and had not effected any nodes. My psa test have all been .01 which is very good I think. My problem now is depression, and trying to deal with the fact that it can return, and I'm not the man or husband I use to be. I have been wanting to join a group to help cope but don't know where to look. Any ideas fellas.

lewvino's picture
lewvino
Posts: 1006
Joined: May 2009

Hank,
This is a good place to start by talking on here about what you are going through etc. I'm 54 and had my Davinci surgery 9 days ago. Look and see if there is a local prostate cancer support group in your area. I was surprised that the small town I live in has one that meets 1 time a month. Another good website that is very active is healingwell.org then click on prostate cancer. Be carefull though because a few websites/forums I looked at would actually make me more depressed! I like this forum and healingwell. If you even want to chat offline shoot me an email at lewvino@yahoo.com I'm just setting around the house waiting for the cath to come out on Monday!

saoco
Posts: 43
Joined: Aug 2009

The right place,hwgoodman this is the right place to be we are a family eventhoug we are all in diferent places.I gest in the back of our maind is the thought of recurence,but if it comes back is nothing we can do to stoped it.Have faith in God and enjoy the many years in front of you.you are better that the man you once was becouse you see life in a very diferent
way.be positive and have fun.

hwgoodman
Posts: 4
Joined: Aug 2009

I am a man of God, and call on him constantly. I will try and find something local, but untill I do I hope you guys don't mind if I but in on ya sometimes. Only men like you can understand what we are going through reguardless if we are cancer free or where we are with our own cancer.I hope Mike dosen't make himself sick with worry as you guys know if your going to get cancer this is the one cancer that can be beat more than once, and it's not a death sentence. God Bless You All.

Hank

novaguy
Posts: 76
Joined: Jul 2009

hwgoodman, one thing you said caught my eye. You said you are not the man or husband you used to be. You're right. The man and husband you used to be had cancer, and if you hadn't taken care of it, you don't know how long you'd have to give your wife. You gave yourself and your wife the best gift you could have, you got treated and, given your numbers, you have an excellent chance of this thing never coming back. So pat yourself in the back, I'm sure your wife does :-) And welcome aboard.

hopeful and opt...
Posts: 1313
Joined: Apr 2009

Where do you live? Some of us may be in your area.

Try giving the american cancer society a call to find out about local groups. Also the American Cancer Society sponsors a " I can cope " series of support telephone conferences held on the first Wednesday of each month. Each month there is a different support group topic. The contact number is 1800-acs-2345

You say that you are a man of G-d. Good idea to attend services, and listen to someone who will give an uplifting sermon.

Try Tai Chi or Yoga

Buy some soap bubbles, the kind that you blow. Hve fun with it.

Consider playing a musical instrument. I play ukulele, and it cuts down on stress for me.

Live each day in the present. Make the most of the day.

Volunteer to help others.

We are with you

Ira

hwgoodman
Posts: 4
Joined: Aug 2009

I live in Louisburg Kansas thats on the Missouri, Kansas line just south of Kansas City. I had never thought about me being a better man since the Cancer is gone. Thank You so much for that it just made my day, and made me feel better about myself. I have a Harley Davidson that I like to ride, and mess with when I start to feel myself getting a little down, and my wife is a Music Teacher, and a wonderful pianist, and singer she plays and sings to me when I get down. She has been a rock for me. I hope you guys had a great weekend. Thanks for the phone number I'll give them a call.

God Bless
Hank

Starkloph
Posts: 2
Joined: Aug 2009

I Live in upstate New York, am 67, had a PSA of 5 and a biopsy that came back with two cores out of 12 with cancer and a Gleason of 6 (3+3). My urologist recommended surgery, waiting, and or radiation and perhaps cryology. I orginally was 90% set for robotic surgery until I learned about proton radiation. I would advise all men considering surgery or x-ray radiation to check out the information on proton radiation!! Please we owe it to ourselves. Check out the website by googling "proton bob". "BOB" stands for "Brothers of the Balloon" - the balloon is placed in the colon during each proton radiation treatment to help shield it from damage - hence the concept of "Brothers of the Balloon" - something that is not done during "x-ray treatment". I can't go into all the details here - but please please check out this treatment for yourself before making your final decision. Nearly all "golden" treatments end up with the same cureative rates - however proton radiation exceeds in the areas of quality of life issues.

lewvino's picture
lewvino
Posts: 1006
Joined: May 2009

The only problem with Proton therapy is there are currently only 5 centers in the USA that offer it. A man has to travel to one of these centers and has additional living expenses of a place to stay at for the 35 plus treatments. Also Many insurance companies deny coverage for Protons. It was going to be my first choice since My dad had Proton therapy back in 1997. But insurance denied mine since it cost's considerably more then other treatments.

If a man can afford it or has insurance that covers it then it is a Good Choice.

They will only treat Gleason 7 and Under with Proton. Some side effects from Proton are painful/frequent urination and blood/mucus discharge in the bowel.

channelsurferdude
Posts: 12
Joined: Jul 2009

Actually there are now 6 centers offering Proton Beam Therapy. Oklahoma just came online this summer. I have Aetna and they are covering the treatment 100%.

The additional expense of living away from home is a small price to pay for fewer and less severe side effects and a non-invasive procedure for me. I wish someone had told me about Protons when I was first diagnosed. I only found out about it after much research. If we are to make the decision about which modality, they could at least tell us about ALL the options.

Only together through this type of forum can we educate ourselves and find the right treatment for ourselves. I am grateful that I can read and learn so much from all of your experiences and research.

hopeful and opt...
Posts: 1313
Joined: Apr 2009

My numbers are almost the same as you; 66, psa 2.2, gleason 3+3+6, 2 of 12 cores with less than 5 percent involvement.T1. Diagnosed in the beginning of March, 2009. My doctor who is a robotic surgeon at UCLA recommended active surveillance instead of surgery, saying that there is a very good chance that my cancer is indolent, not likely to spread. I had a endorectol MRI with Spectroscopy which confirmed TI with no focal nodules identified.

I plan to stay with active surveillance as long as possible(better quality of life), then I am leaning toward robotic surgery, if necessary.

Ira

MIKEOSH
Posts: 16
Joined: Aug 2009

GUYS SORRY FOR NOT GETTING BACK TO YOU. I HAD A LOT OF THINKING AND READING TO DO SINCE I SAW THE DR LAST TUESDAY
SO HERE ARE THE RESULTS GLEASON SCORES TWO AT 3+4=7 ONE AT 3+3=6 INTERMEDIATE CANCER HE SAYS. WE TALKED AND TALKED AND I WROTE THINGS DOWN AS WELL AS MY WIFE DID. I DECIDED TO GO WITH ROBOTIC WHILE AT HIS OFFICE AND HE DID A BLADDER TEST WHILE THERE THAT WASN'T CONFROMTABLE AT ALL, BUT THE RESULTS WERE GOOD ON THE BLADDER AND ALSO GOOD AT WHAT HE SAW GOING THRU THE PROSTATE. HE APOLOGIZED FOR PUTTING ME THRU THE ANXIETY BUT HE HAD SURGERY THAT I SAID I UNDERSTAND THAT BUT AT SOME POINT A PHONE CALL SHOULD HAVE BEEN MADE, TOLD HIM I WASN'T AWARE THAT THE BONE AND CAT SCANS WERE PROTOCOL AND THAT SHOULD HAVE BEEN MENTIONED. AFTER LEAVING HIS OFFICE I DECIDED TO GET A 2ND OPINION THE NEXT DAY, THIS DR
SAYS I HAVE HIGH GRADE PROSTATE CANCER BASED ON THE FACT THAT HE TAKES THE GLEASON SCORE OF 7 AND PUTS THAT IN THE HIGH AREA WITH 8 AND 9'S. SO CONFUSED I GO. I MENTIONED TO HIM ABOUT MY TIME IN VIETNAM AND IT RAISED HIS EYEBROWS, HE TOLD ME OF THE STORY THAT THE VA AND MEDICAL RECORDS OF ALL VIETNAM VETS WERE DESTROYED IN A FIRE SOME TIME BACK IN THE 80'S AND THAT CONGRESS WITHIN THE PAST 5 OR SO YRS SAID THEY COULDN'T DEAL WITH THE ONSLAUGHT OF CASES AND DECLAIRED THAT ALL VETS OF THE VIETNAM CONFLICT ARE ELIGABLE FOR COMPENSATION FROM THE VA. FOR PROSTATE CANCER AS WELL AS OTHER CANCERS DUE TO AGENT ORANGE. IF ANY OF YOU GUYS SERVED IN VIETNAM BELIEVE ME YOU WERE EXPOSED REGARDLESS OF WHERE YOU WERE STATIONED. I CHECKED INTO THAT AND WENT TO THE VA AND FILLED OUT THE PAPERWORK. ACCORDING TO THE WEB SITE VETS WHO REGISTER BEFORE TREATMENT LIKE ME ARE ENTITLED TO FULL 100% WITH A SMALL AMOUNT TO MY SPOUSE. THIS IS FOR SIX MONTHS ONLY TILL THE VA EXAMINES ME. AFTER THAT I BELIEVE IT DROPS TO A MINIMUM OF 30%. THE PROCESS WON'T REALLY START TILL AFTER SURGERY WHEN THE DR SENDS THE PATHOLOGY REPORT TO THEM.
SO THE 2ND OPINION DR SEEMS THE BEST WAY FOR ME AT THIS POINT, HE ALSO SAYS THAT HE WANTS TO WAIT AT LEAST 8 WEEKS AFTER THE BIOPSY SO IT CAN HEAL. HE ALSO SAYS HE WILL TAKE THE PROSTATE OUT, THE TWO LYMPH NODES AND NERVES ON THE AFFECTED SIDE. ALSO SAID I WILL BE DRY BUT THAT OPEN SURGERY TAKES TWO WEEKS LONGER THAT ROBOTIC TO HEAL. I AM TO SEE MY FAMILY DR TOMORROW TO DISCUSS ALL OF THE ABOVE AND THE TWO DR'S. AND GET PRE TESTS SCHEDULED FOR LATER IN SEPT.
I HAVE AN APPOINTMENT SCHEDULED AGAIN FOR THE 2ND OPINION DR ON WED TO FINALIZE EVERYTHING.
SO IF YOU ANY OF YOU GUYS OUT THERE HAVE ANYTHING TO ADD ABOUT THE TWO SURGERIES OPEN OR ROBOTIC I WILL WELCOME YOUR THOUGHTS.

SO ITS BEEN A LONG WEEK TO SETTLE THINGS IN MY MIND, I DIDN'T MENTION ABOVE THAT THE BONE AND BLOOD AND CAT SCANS CAME BACK OK. NEITHER DR HAS MENTIONED A SURVIVAL TIME FRAME BUT BOTH SAID THEY THINK I GOT IT AT A GOOD TIME.

I WILL UPDATE AFTER WEDNESDAYS MEETING, TAKE CARE GUYS AND THANK YOU, THANK YOU FOR ALL YOUR GREAT SUPPORT

STILL WORRIED YOUR FRIEND MIKE

shubbysr's picture
shubbysr
Posts: 87
Joined: Jun 2009

Wow, I wish I was on line last week. I am 55 and almost 4 months post robotic. It took me 18 days to get results from the urologist. I was to call the office, they do not call me! Finally after many calls, my wife stepped in and demanded an expalnation. She was told that I have to call the doctor for the results.
My PSA went from 3.6 range to 4.8. . Well, this urologist did not make me very comfortable. He was very skillful in answering my questions as if why should I ask, he has everything under control. After a few words he wisely left us to make our own choice. The urologist was a "jerk".
The rest of my story is history and I am recovering slowly. 2nd opinion at John Hopkins, urologist does many Robotics per year 115 as I remember. My Gleasonn was 4+3 and 2 0f 12 cores were cancer.
I was worried as hell! My wife and I are both RN's, so we realized thta we may be treated as if we knew what to expect. Well, my experience at John Hopkins was excellent, high quality, and I would do it again., Ha Ha.
Mike you are in my prayers and welcome to the club!

jim (shubbysr)

tpelle
Posts: 150
Joined: Aug 2003

Friend Mike: Second Opinion doctor tells you that Gleason 7 puts you in the HIGH GRADE PROSTATE CANCER category in his mind and HE WILL TAKE THE PROSTATE OUT, THE TWO LYMPH NODES AND NERVES ON THE AFFECTED SIDE. I'd check this out even getting third and fourth opinions. He's even telling you that you WILL BE DRY. He's very good if he can make this prediction. You've lots of time to check this out.

MIKEOSH
Posts: 16
Joined: Aug 2009

thanks guys, have an appointment with the 2nd opinion dr on wed am. will update then, still up in the air, leaning 75% to robotic. thanks mike,

hopeful and opt...
Posts: 1313
Joined: Apr 2009

so that you are not under or over treated. Dr. Epstein , Johns Hopkins is an excellent choice.

Also , its hard to read Kaps, so please use small letters.///thanks

ira

saoco
Posts: 43
Joined: Aug 2009

Two years ago,I adviced my friend no to do open surgury,I spoke to him yesterday and the incontinece is so bad and I feel so bad that hi did not take my advice.I will give it to you
do noooooot do open.

ismetals's picture
ismetals
Posts: 70
Joined: Feb 2009

Get the book 'saving your sex life" You'll find it at amazon.com. Everyone on this site should have a copy. There is hope for all of us post surgery. The important thing is that we are all still around to help each other on our journey.

wxman
Posts: 19
Joined: Jun 2009

I have been told that there is a surgeon at the VA hospital in Atlanta Georgia that has a very
good reputation for treating prostate cancer. His name is Dr. Mutta Isa. He was recommended to
us by someone at John's Hopkins. He was at Emory Hospital but is now at the VA. Therefore we were not able to see him. It may be worth researching since you are a veteran to see if you could get his opinion on your case.

My husband is scheduled for robotic surgery this Thurs. 9/3 at Vanderbilt with Dr. Smith. We leave for Nashville on Wednesday. This forum has been a huge resource for us.

finbar
Posts: 26
Joined: Aug 2009

When my biopsy was taken, results were NOT given oveer the phone, but were given
by my doctor personally. That's as it should be.
During my daVinci surgery, 34 nodules were removed for testing with results expected
in a week. Afew days later, my surgeon phoned me from his vacation in the Caribbean
to let me know the good news -all clear! What a doctor!

muttsrule
Posts: 52
Joined: Sep 2009

First, my sympathies for all you've had to deal with. Hope you've lost that first doctor. Second, I'm way late on your story, but I'll nevertheless recommend a couple of resources: 100 Questions & Answers about Prostate Cancer, by Pamela Ellsworth, 2nd ed
Dr. Patrick Walsh's Guide to surviving prostate cancer, 2nd. ed.
My urologist gave me 100 Questions after diagnosing me (Gleason 3+3, stage T2A, PSA 4.2). Where are you as of today? My best wishes and prayers, Mike. John

bbjr
Posts: 2
Joined: Sep 2009

Mike,
Please go to the website for the Lance Armstrong Foundation. They have a wealth of free information available for all types of cancer. Plus, they will send you a large book for free that gives tons of good information about how to manage your care. I would have gladly paid $100 for this book. It tells you how to take charge. Right now your head is still spinning from all that has dropped in your lap suddenly. Remember, knowledge is power. Good luck, brother. You are now a member of a large fraternity. We are all pulling for you.

MIKEOSH
Posts: 16
Joined: Aug 2009

THANK YOU FOR THE INFO. MIKE

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