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When is my "1 Year Survivor' date? When do we count back from?

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

When people say they are a '1 year survivor', or '5 years cancer-free', what date do you use to figure out your 'anniversary date'? The day they first used the word 'cancer'? The day of your diagnosis? The day you started treatment? The day you finished treatment?

I don't want to miss an anniversary celebration! HA! Anyone know for sure from what date they start counting towards your 5 year survival day?

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Linda,

They typically say that you are a survivor the day you get your diagnosis...so I am counting that as my anniversary date! We have survived since that date... Now, I am all for celebrations (my family knows my birthday celebration has always been a whole week!), so I guess one could celebrate the anniversary of the diagnosis, and the anniversary of the end of treatment.

Of course, we celebrate every day that we are NED, but save the BIG events for the anniversary!

Karen

california_artist's picture
california_artist
Posts: 862
Joined: Jan 2009

So how hard has this been?
what if we congratulate ourselves for being alive and kicking one year after:

Diagnosis
surgery
first appt w doctor after surgery, cause that can be one of the toughest days
date of first chemo
date of last chemo
....

I think you can see where I'm going with this. May as well congratulate the heck out of ourselves any time we can

Personally, I tend to count from diagnosis. that day that doctor calls and instead of saying everything is fine, says you have cancer. Poop

Hey, Linda, how's it going?? Mary Ann says she would like to be a Fringette. silly girl.

Love,

Claudia

For me personally, because I didn't get any treatment and UPSC tends towards recurrence most often during the first two years, the two year anniversary will be the big one for me. I know that we have to be vigilant for four years before we can really take a deep sigh of relief. But two years will cheer me up immensely.

That date is February 27, 2010,six more months. Hummmmmh
Oddly 27 used to be my favorite number. Not so much any more though.

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

I celebrate everyday- honestly! Interesting question though because my oncologist said to start counting when treatment ends. That makes me one year and three months. It's a lot more when I start from the diagnosis.

deanna14
Posts: 738
Joined: Oct 2008

I would like to think that it is from the day of diagnosis. That makes me over 1 year as my original cancer diagnosis was on July 28, my mother's birthday. If you count from the last day of treatment, I would just be slightly over 1 month.
My opinion is that you have been fighting the cancer since the day of diagnosis, so you have survived it since then?!
Let us know if you find out for sure. I like barb55's attitude, let's celebrate EVERY day!Thanking God for each day...

Katrinka123
Posts: 54
Joined: Jul 2009

Thanks for asking this - I have wondered as well. If I get to the five year mark will my record be expunged? :::tongue in cheek::::::

-Kat

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

'Great' minds think alike ..... Right Linda? Anyway, I just asked my Dr that exact question when I was there on Aug 5. I was dx on my 54th birthday in 2006. So.... I wanted to know if that was 'the date'. She seemed to think that most of the profession used the date of diagnosis as the starting date. For what ever that is worth... that was her opinion.

culka's picture
culka
Posts: 159
Joined: Oct 2009

I was dx in april 2008, but my patology report after hysterectomy is dated june 6 which is my birthday and I forgot to mentioned that my uterus was already clear of cancer with small peace in cervix like 1x1 cm.
That day I was born again.

california_artist's picture
california_artist
Posts: 862
Joined: Jan 2009

The recurrence rate drops dramatically after a year and then there's an appreciable drop within the first 18 months, then it goes down less dramatically during the next six month period, bringing you to the two year mark. After that it just appears randomly until as long as five years out. My opinion is that for those of us who continue to use dietary means to slow the cancer the recurrence rate would be more toward the end of the spectrum, so I for one intend to be relatively diligent for five full years.

Love ya,

Claudia

I'll see if I can find that graph.

I did find the graph, but it won't copy here. It was in relation to the incidence of recurrence with minimal and macro evidence of disease left after surgery in Stage lllc and lV upsc cases.

california_artist's picture
california_artist
Posts: 862
Joined: Jan 2009

This particular graph was using the date of surgery as a reference. They were trying to tell how effective more or less cytoreductive surgery worked. The conclusion was that the least amount of residual disease resulted in the longest time to recurrence.

On another note, do you still live in NYC. I used to live at 150 Norfok Street, between Houston and Delancy, back when that area was crazy with artists and some pretty odd people. Lived a few flights up in a walkup only building. Had a very large baby carriage. Yikes? Lived across the hall from some fellows who were associated with the symboise liberation army. . Can't even remember how to spell that or what they stood for. Good thing, because I bet big brother would shut me down. I was just a young mother with a child trying to make it in the city. Was there for the black out. They had candles. We played cards til the lights came on and my husband came home. He was on the subway when the lights went out. I remember there were lots of babies 9 months later. At least all I was doing was playing cards.

As always, love, hope, health, success ( success in our battle) and joy for us all,

Claudia

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