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DIAGNOSIS FOR MARYELLEN'S CANCER...NO CANCER IN LYMPH NODES...I AM CANCER FREE

maryln3
Posts: 65
Joined: Jul 2009

HAD MY SECOND SURGERY LAST THURSDAY...PELVI LYMPH NODES REMOVAL ---27 NODES FROM PEVIC , ABDOMEN AND PARAAORTA..I DO NOT HAVE REPORT GUESSING IN LAST WORD...

ALL CANCER FREE...PLAY THAT NUMBER 27

I CALLED THE PATHOLOGY DEPARTMENT AND ASKED IF REPORT WAS IN....DO YOU KNOW IT WAS TYPED FRIDAY AND SEND TO DOCTOR VIA FAX ....NO ONE CALLED ME..I CALLED MONDAY THE SECRETARY SAID NO...WE DO NOT HAVE IT...YOU HAVE APPT ON THE 19TH HE WILL GO OVER IT THEN...I SAID...ARE U KIDDING ME..U THINK I WANT TO WAIT TILL 19TH ..THEN SHE SAID CALL FRIDAY HE WILL BE IN OFFICE .............THESE WOMEN MAKE ME INSANE BUT I AM BEGINNING TO UNDERSTAND THE WORLD OF CANCER TREATMENT....HOW ABOUT A REALITY SHOW ON CANCER TREATMENT...

THE WOMAN AT PATHOLOGY WAS SO KIND SHE OFFERED TO FAX IT TO ME....I COULD NOT GET THE FAX MACHINE TO WORK SO OFF I WENT..WHEN I ARRIVED I REALIZED THE LADY IS THE ONE I MET 2 WEEKS AGO..WHEN I REGISTERED FOR THE OPERATION....ANYWAY I WALK IN...AND SHE GOES TO HUG ME...

SHE CLEARLY REMEMBERS ME I ASK HER HOW....SHE SAID IN 30 YEARS ONLY 2 PEOPLE HAD A STAND ALONE PELVIC LYMPH NODE REMOVAL.....SHE CALLED BY NICKNAME UNIV OF PENN...CAUSE THAT IS WHERE I HAD FIRST SURGERY...SHE TELLS ME I HAVE GOOD NEWS SO OPERATION WAS WORTH IT..WE BOTH STAND THERE CRYING...SHE TELLS ME TO CALL HER ANYTIME..WOW WHAT A NICE LADY..SHE SAID I SOUNDED SICK ON PHONE WHEN I CALLED AND THOUGHT THE REPORT WOULD MAKE ME HAPPIER..IT DID...

BY THE WAY THE CANCER CENTER SAID THEY WOUKD CALL ME MONDAY EVENING....I AM STILL WAITING...
I COULD HAVE A COMEDY SHOW

SO AT THE MOMENT..I HAVE A HORRIFIC BLADDER INFECTION...YEAST INFECTION..UTI...WAITING FOR THE URINE TEST RESULT THAT WILL BE BACK WED. I AM ON CIPRO TWICE A DAY...BUT NOW WHEN I WIPE
I SEE BLOOD..I GUESS IT GONNA GET WORST BEFORE IT GETS BETTER...

WHEN I CALLED THE OCO-GYN THE GIRL SAID USED THE CREAM AND DRINK WATER...THANK GOODNESS A LADY FROM A LOCAL SUPPORT GRP CALLED AND SAID TAKE MY SELF TO THE FAMILY DOCTOR.STAT...
THESE INFECTIONS GET WORSE NOT BETTER....SO OFF I RAN...

I AM LOOKING FORWARD TO THE DAY NOTHING HURTS, NOTHING BURNS, NOTHING ICTHES...

I THINK IT IS A FEW DAYS FROM NOW....

THANKS FOR ALL YOUR HELP...

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Congratulations! That's so GREAT!! Get past these current temporary side effects, and you're HOME FREE!!!

WOO WOO!! Happy for you!

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

You should feel better soon on cipro. Good news. How are you going to celebrate?
Diane

maryln3
Posts: 65
Joined: Jul 2009

my friends want to take me out but i must heal first..2 surgeries that close leaves alot of healing to do

i am celebrating in my brain every day

howdybooth
Posts: 44
Joined: Aug 2009

My sister and I have just started the process of calling one doctor to another for our big sis whose cancer just returned. She spent an entire day just talking to nurses and trying to get them to overnight pathology slides to MD Anderson. My goodness some of these people make it hard not to yell. Our close family friend in his 70s has came up with a good word for these people: ignoranus - one who is both ignorant and an a-hole (excuse the lang.).

So, we've decided that there really should be a self-help book for beginners fighting cancer....and doctor's offices.

Good news is that my sister starts radiation on Friday and after that chemo. Her gyn/onc finally got all her different doctors talking to him (including a specialist from MD Anderson) and radiation is the way to go.

We know we are in for a long battle, but it gives us great joy that the fight has begun!

deanna14
Posts: 733
Joined: Oct 2008

I think a beginners book for fighting cancer is an excellent idea!

May God Bless you, your family and especially your sister. Sending good thoughts and strength her way for the battle she is beginning.

Is she going to receive her treatment at MD Anderson? I have heard that they have an excellent cancer treatment program there.

Your sister has plenty of soldiers standing behind her.

In my thoughts and prayers,
Deanna

howdybooth
Posts: 44
Joined: Aug 2009

She is not going to MD Anderson at this time; they are looking at her pathology slides as to why this low grade uterine cancer (stage 1b, grade 2) is acting so strangely. But her doctor did consult with Dr. Pedro Ramirez (uterine cancer specialist at Anderson) on a treatment plan for her and they all agreed that radiation is the first step and needs to start now! She is candidate for one of their clinical trails, but that will come later.

After her radiation treatment (25! Yikes) she will come to Dallas for her chemo. She can stay with our parents, but my two other sisters and I can help take care of her (our parents are 80). My sister that lives with her in El Paso has a handicapped son that requires lots of her time and right now she is juggling both his appointments and my sister’s.

We are all staying very up beat for ourselves and for our parents, but I really find mornings hard.....

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