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Triple negative; Please help!!!

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

My girl friend (I will call her Connie) (49 yrs) was diagnosed with breast cancer a couple of months ago. She just had a double mastectomy and 24 lymph nodes removed ubder her left arm. Her recovery from the surgery has been good considering it has only been 2 weeks. Her spirits have been good as well. She has understood she would need to go through chemo & radiation and ultimately reconstruction. She seemed to accept this. Today she met with the doctor that will be treating her for chemo. At that time she was told she had triple negative. I do not know how the doctor explained it or how Connie percieved the conversation, but now her spirit and hopes seem to have been dashed. She talks as if she was told she is dying. One of our mutual friends called me after talking to Connie and asked me how long she had to live.
When she called me today she would not tell me what triple negative was. She told me to look it up, she did not want to discuss it. Her phone has been off since. While doing research, I found this site with valuable information. The stories are hopeful. As Connie's strongest supporter and caregiver, how do I handle this? I am lost! My hope is to find survivors who have had the same experience to communicate with her. Thank you to anyone who can help me.
God Bless,
Ken

Jeanne D's picture
Jeanne D
Posts: 1867
Joined: Mar 2009

I am very sorry about your girlfriend's diagnosis. But, she can and will survive bc. You two probably need to schedule another appointment with her oncologist to go over her treatment plan and condition again. Good luck to you! I am not a doctor, and, won't attempt to offer a diagnosis. But, we will be here to support and encourage both of you.

♥Love, Jeanne♥

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

Thanks for your encouraging words and suggestions. I have gone to some of her appointments with her, but I was working today and her mother went with her instead. Unfortunately, her mother is very negative and does not help Connie's mood. I wish I could have been there for her today. I do have more knowledge today than I had yesterday. Every day I learn more. I need to give her time to sleep on this news and supply her with this web site. I hope she will be active here. It seems to be helping so many people. Thank you again. Ken

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Hi Ken. It is so sweet of you to post on here to help your girlfriend. I want to welcome you to the site. I am not triple negative, so, I really can't answer anything about it to help you. But, there are several on here, and, maybe they can help you out. Welcome again!

♥ Kylez ♥

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Hey Ken and Welcome. Sorry about your g/f's diagnosis, but, you have found a great site of fellow bc survivors. Wishing you good luck!

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Just want to say welcome Ken. I am not triple negative, but, I want to wish both you and your g/f good luck. Stay strong!

Hugs, Diane ♥

Aortus's picture
Aortus
Posts: 967
Joined: Jan 2009

Hi Ken!

My beloved Moopy was dxed with "triple negative" BC last November. Like you and Connie, we had a rough time once it sunk in what the term means. But knowing what the term does NOT mean. It does NOT mean a death sentence. Were I not typing this on my iPod, I'd find the link myself, but I advise you to search for the thread where Mimi (who is another "tri-negative") and I collaborated on am informal tri-negative tutorial.

Bottom line: there are plenty of tri-negative ladies out there dancing with NED (No Evidence of Disease) - some of them for years now. Moopy is going to be one of them. Mimi is going to be one too. There is no reason why Connie can't be one as well, and plenty of good reasons why she can, She already has a loving and supportive husband!

May God bless Connie and you, and please stay in touch!

Best,
Joe

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Hi! Welcome Ken and Connie! I wanted to let you know that besides posting here, there are a couple of other threads that you might take a look at on here. They are the Caregivers and the Emotional Support threads. Some post on several as they all have great info and support.

Lex

m_azingrace
Posts: 399
Joined: Jul 2009

Hello Ken, and welcome. First, I want to commend you for your caring and proactive response to Connie's diagnosis. Second, please encourage her to visit these boards as well. Here she will meet many women in varying stages of recovery from this terrible disease. And she will receive encoragement and support from everyone. My diagnosis is new, tomorrow I see the oncologist to plan my treatment. I know it's not going to be fun, but since I've been coming here, I'm not nearly as afraid or depressed as I was before. Fortunately, you are on her support team, and she will not be alone here. God Bless you.

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Ken, I think there is a thread on here about triple negative by Mimi. I can find it for you if you want. Just let me know. Joe mentioned it in his posting.

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

Monday is her first chemo treatment. She asked if I will take her. I know it is different for everyone, but is there a ballpark figure when she will have her worst days? I need to prepare to take off work. After the first few times I am sure we will figure out how she will react. Thanks. Ken

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

I am overwhelmed by the responses I have recieved from so many people.
Joe, I am so glad you responded. Much of what I read last night was about you, your beloved Moopy and Mimi as well. Late last night after posting I did get a call from Connie. We talked and cried until wee hours of the morning. I emailed her the link of the posting you made explaining triple negative (I also read it to her) I think it helped her quite a bit. As a matter of fact, she was on this site this morning. We talked about the network of support she would need during this process; expanding it from the current friends, family and church to local support group and this web site for starters. Right now, especially yesterday, it has been overwhelming for us.
I placed Mimi and Joe on my friends list in hopes that if we need one-on-one, someone would be there. However, after these responses, it looks like there is much support. Lex suggestted I look at threads for caregivers and emotional support. Thank you, it is one of the things I have been looking for. I have been doing research and reading; finging out what to say and what to do. More importantly I have found out what not to say and what not to do. But I have much to learn, this is a great place!!
Connie and I have known each other for 8 years, when she glows, I smile. When she laughs (and snorts) I am happy. When she hurts,I am crushed. She is the love of my life! I have always been the "fix it guy", this I cannot fix so I need to think in a different mind set.
Than you and God Bless each and everyone of you.
My prayers are with all of you.
Ken

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Hi Ken. What chemo is she having? If you know, I am sure someone can help you out. I didn't have chemo, so, I really can't offer much help there. And, maybe everyone reacts differently. Good luck with her chemo. Take good care of her. Post often.

Hugs, Leeza

don't worry about the 3 postings, we do it all of the time. lol

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

You are welcome Ken! I just hope that both you and Connie can find support and encouragement here from us.

Please keep posting and keep us updated!

Hugs ♥Lex♥

survivorbc09
Posts: 4378
Joined: Jun 2009

Hi Ken and Connie and Welcome! I wish you good luck with your first chemo on Monday. Keep us updated on how you both are doing.

Hugs!

djteach's picture
djteach
Posts: 275
Joined: Apr 2009

Dear Ken,

I watched my father go through what you are going through about "fixing" it. Dad said, that's what men do, we fix things. He was able to talk about how helpless he felt. I told him that I could not get better without his love, support, and humor. His job, he decided was to keep me laughing and he did it well. You will still be her "fix-it" man, just in a different way now. Love is the most important thing and it sounds like you both have that for each other. You 2 can conquer this beast, I know it.

Love and gentle hugs,
Donna

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

Somehow my response was posted 3 times. I could not find out how to delete it, just revise it. Please ignore tis post. Thanks. Ken

whichwitch's picture
whichwitch
Posts: 42
Joined: Jul 2009

Best advice I can give - will she allow you to go to appointments with her? She will not feel so along. You become one with her, because you both do it together. I know it will be hard on you, work and family. A day doesn't go by that I don't thank God that I can do this with my sister. It really helps. Give her space to digest this and she will come around. you have all my prayers and thoughts and hugs. Sending angels to watch over both of you.

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Whichwitch, you are such a special sister. Sending angels to watch over you and your sister too!

Lakegirl
Posts: 15
Joined: Jul 2009

I was dx with TN breast cancer 2.5 months ago. I am also 49 years old. I have had surgery and had my first chemo treatment yesterday. I have to have four A/C & four Taxol. I was scared to death of the first chemo treatment but I have come through it so far. Last night was pretty rough but I feel better today.

I am not letting the "TN" discourage me. I have read of many survivers and intend to be one myself.

Let me know how you and Connie are doing.

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

I'm sorry I didn't see this post before. I'm glad, however, that Joe and others have given you such good support and resources. Triple negative breast cancer can be discouraging to hear about at first. Oncologists don't like it because it means they can't give you endocrine therapy like Tamoxifen after your other treatments. They want to take advantage of all avenues of cancer therapy and triple negative precludes hormonal medications, so some may see this as a negative. BUT, it's a fact that the odds are still very much on your side with early stage breast cancer, no matter the hormone-receptor status. It's an absolute myth that triple negative breast cancer has a poor prognosis. You will see this on the web, so don't go there and don't let Connie go there either. It just means that the tumor is not fueled by estrogen, progesterone, and does not over-express the HER/neu gene. It does usually mean that it's an aggressive tumor, but chemo works best on aggressive tumors. In fact, chemo is very effective for triple negative breast cancer.

Believe me, Ken, I understand the terror associated with this. But Connie will get used to the diagnosis and soon the dreaded words, "triple negative" will not give her nightmares. I've had surgery, chemo, radiation, and am now doing an preventative infusion called Zometa. Make sure to ask the oncologist what other forms of protection he/she would recommend after the core therapies are over. There are other things you can do (including exercise and diet) that have a significant impact. Connie is going to be OK. Tell her we would welcome her with open arms if she decides to join our board. Good luck, Ken. You're a good boyfriend.

Mimi

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Just want to welcome you and to wish you good luck.

Keep posting and let us know how Connie is doing.

♠♣ Susie ♠♣

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

How is it going Ken with Connie now? Anything new?

Lex♥

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

We thank everyone for the unbelievable support here. When I first found this website I was not sure how my sweeteie would react by using her name. She has been thrilled at the proactive support I have been taking. So now I can tell you "Connie" is really Corrine. She has been visiting here often and reading but has not yet joined.
Just to keep things in perspective, she has no tumors at this point. She had a double mastectomy and 24 lymph nodes removed under her left arm. At the first diagnosis the lump was 2.3 cm with no lymph node involvement. After 2 weeks of "delays" before surgury, the tumor had grown to 3.1 cm and involved the lymph nodes. Because of family history, she opted for the bilateral. She was then told she was stage 2b.
In an earlier post I asked about what side effects to expect. Since I was not sure of the treatment, answers were not available. Treatment: Taxotere & Cytoxan. once every three weeks 8 times. If she cannot handle that, less of a dosage once a week.
We met with her onc today and she answered all of our questions. Dr wanted to treat with the newer Taxotere instead of Adriamycin because it seems to be easier on the heart. The cancer center her onc is at would not start treatment today because the insurance company changed policies and said she need to be treated at the hospital. Shortley after we got Corrine home, the hospital called and said they had a bed. We drove all the way back in town. What we thought was an out patient procedure, turns out to be an overnight stay. The treatment was suppose to be late this afternoon. The fax sent by the onc was not clear so the will keep her until tomorrow and treat her in the am. I think this all turned out for the best. She has a huge private corner room with two walls of window views in one of the best hospitals in town (Banner). She feels comfortable she will be monitored very closley for her first treatment. Than you Lord!!
Mimi, thank you for the post chemo question. It surprised Corrine because she was not aware of further treatment. It also surprised the onc that I knew there were new procedures out there. She was very informative. As for "diet", as an acomplished competitive chef, we have already research proper nutrition and sippliments. I am putting together recipes and food combos. Corrine does not cook, but I am teaching her. She is exited about it!
Thanks again and any advise will be welcome. Tomorrow I see how Corrine faierd her first time.
Ken

Aortus's picture
Aortus
Posts: 967
Joined: Jan 2009

Moopy and I have both been keeping an eye out for info on how Corrine is doing, and how you are doing too. Sorry to hear about the insurance confusion and all the driving - oh, Lord, the driving - but it sounds like things have really turned out for the best. Corrine getting excited about cooking is a good sign - you are teaching her a craft which will stand her in good stead for years to come. We both hope and pray that all goes well for her at her first infusion tomorrow.

Joe

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

Thank you Moopy & Joe.
I am only beginning to understand the rollercoaster ride so many have been thru. I need one of those jobs that pays a lot of money and I do not need to be there. Seen any of those lately (lol)?
Corrine lives close (10 miles) relative to the metro area we live. However, we live in the rural area north of Phoenix and driving to town is quite a ways. Round trip for work is over 100 miles per day.
I thought this would be a cake walk since I have been part-time caretaker for my roommate for the last couple of years. She is a friend of 32 years, so when she was without job, home and disabled I took her in. The good thing is her and Corrine have become good friends and help each other emotionally. They help me in so many ways as well. We just remember that we are all in life this together and we are our brother's keeper.
My love and prayers,
Ken

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Good to hear from you Ken. And, good to know that Corrine is being taken care of so well.

Keep us updated and take care of yourself too.

♠♣ Susie ♠♣

Jeanne D's picture
Jeanne D
Posts: 1867
Joined: Mar 2009

It was good to see you posting and updating us on Corrine. It seems her treatment is moving right along, which is good. I wish you all the best and please keep posting as to what is going on with both of you. Keeping you in my prayers.

Love, Jeanne ♥

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

Ken, thanks for updating us. I'm glad that Corrine is comforable in her hospital bed and that you can be at her side. I just wanted to offer a word of advice on supplements. It's fantastic that you'll use your talents to cook for Corrine and teach her healthy recipes. Please ask the oncologist before you introduce any supplements, however. Some supplements (including anti-oxidants) have been shown to interefere with chemo and, especially, with radiation. You may want to err on the safe side and avoid them during treatment. Not all doctors agree, however, so please check first. Good luck with everything and keep posting!

Mimi

padee6339's picture
padee6339
Posts: 765
Joined: Jun 2009

First of all, welcome. I was not diagnosed with Triple Negative, I was double negative. I had a lumpectomy (still stage 1), and it had not spread to the lymph nodes. I received 6 chemo treatments (Taxotere and Carboplaten) and 36 radiation treatments. I was petrified when the oncologist told me I could not take the hormonal medication, in fact I take nothing now and I've been out of rads almost 2 and a half months. The oncologist might give her a little bag of anti-nausea medication before the chemo, and anti nausea pills for afterwards. That's what mine did. I'd have my chemo on Friday and the pills would be good until Monday. I only threw up once, after the last chemo. I think it was just the stress though. Please Corinne, if you are reading this, know that we are here to help each other get through the battle with the beast. I know this is not what will kill me, I'll probably be hit with a meteorite first. At least that's how I am getting through this. Take advantage of all that the ACS offers, especially the "Look Good, Feel Better" program. If you can find a nearby support group, take advantage of that too. And remember, we are always here to talk to. God Bless both of you and stay strong, you can and will get through this.
Pat

VickiSam's picture
VickiSam
Posts: 8255
Joined: Aug 2009

Ken,

No question about it, YOU ARE the BEST boyfriend.

My husband Pete and I found out about my diagnosis on Friday, 8/14/09. My sister drove me to Newport Beach (Sat. 8/15) where our mother is recoverying of a total hip replacement. I wanted to tell my mother in person, and show her my path reports, etc from my general surgeon. We all cried and cried. I felt strong and ready to fight.

Returing home several hours later (still recovering from my left breast lumpectomy), I found my husband of 24 years on the phone telling a non-immediate family member about my breast cancer. I was livid to say the least. Yes, I went ballistic .. yelling and cussing, etc .. Not a pretty site. I have asked my husband not to say anything to anyone else, until I am ready to talk.

Yes, I talk everyday on ACS website. I find comfort from fellow bc patients, women who have been there, seen it all and fighting. I am not finding comfort from my immediate family, sounds terrible. But I am being honest with you.

Our 2 children (young adults, but still children - 18 yrs - Alexandra, and 22 yrs Andrew) are still bumping into the walls, and looking at me like I will not be here by Christmas.

Sounds to me that Connie is scared .. and wants you with her. Filtering information, so she can process any and all information in own way and on her own terms. The term BREAST CANCER, is SCARY to anyone. KUDOS to you KEN.

Vicki

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

Chemo was not administered until early this afternoon. They opted for an IV. I forget what they started with, but they did give her an analgesic and tagamet thru the iv and then came the Taxotere and then the Cytoxan. It was a long process. When I left at 6pm, she was feeling normal except for some hot flashes. I asked an aide for a fan and she delivered it in about 2 minutes. A social worker also made a visit today. I left, but from What Corrine said they are making sure she is dealing with this emotionally positive. I love this hospital. It looks like she should be receiving all of her treatments here. Although there were a couple of glitches this time, the normal stay would be 24 hours. This experience has made all the difference in Corrine’s attitude. She feels very comfortable, safe and in very professional hands. She will be released tomorrow. I called her a few minutes ago to see how she was doing. Just fine so far! I read her this discussion stream from beginning to end. She already loves all of you as much as I do. She asked me to show her how to use this format so you should be hearing from her soon when she starts her own discussion.
Oh yeah, Mimi,
Thank you for the input on supplements. We had already given the onc a list of meds and supplements. The onc said there was no problem with any of them including the anti-oxidants. We will ask again when it comee radiation time. Thank you for the advice.
God bless all of you.
Prayers and thoughts your way,
Ken & Corrine

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

One side effect of this whole thing puzzles me. The human aspect. I am not sure if we are alone in this. If we are not, maybe someone could help explain it.
When Corrine was first diagnosed, everyone we know responded with support, empathy, etc. In a short time many friends and even some family have distanced themselves. Most of our support has been from church and our Christian friends who do not waiver. My analysis of this and what I told Corrine I thought was the fact that people are afraid of thier own mortality. I am not sure but for most people the scariest words they may hear is "cancer". I am off base? Have others experienced this? It is hard for me to comprehend. There is no question where I should be and what I should be doing. I thought it would be the same with everyone we have known so long. Ken

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Hi Ken:

Unfortunately, the scenario you describe is not uncommon. Some people are great at giving support to cancer survivors and some people just can't handle it. lt freaks some people out. It's OK. Try not to hold it against them...everyone has different strengths and weaknesses.

Best of everything to you and Corrine.

Deb

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Hi Ken:

Unfortunately, the scenario you describe is not uncommon. Some people are great at giving support to cancer survivors and some people just can't handle it. lt freaks some people out. It's OK. Try not to hold it against them...everyone has different strengths and weaknesses.

Best of everything to you and Corrine.

Deb

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

Deb,
I do the best I can not to hold anything agaainst anyone (although I am far from perfect). One cannot change people's nature or perspectives. Only they can change if they choose. What bothers me is the fact it hurts the one I love. She is starting to understand what you said. "everyone has different strengths and weaknesses", it is not thier fault. This leaves the ones that can and will support her. This also means the support team she has is extremely strong!! Who else would you want on your team? Thanks Deb. Ken

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Ken:

I think you and Corrine will give each other what you need. You seem like a wonderful couple and it sounds like you have a good team.

Keep us up to date, please.

hugs to you both,
Deb

meena1's picture
meena1
Posts: 1005
Joined: Oct 2008

When I was diagnosed last July, i thought that my family and friends would rally around me. Not so, they all stayed away, too busy. That hurt more than the cancer. I went through 3 mos of chemo, a masectomy, and rad that really brought me to my knees and they still stayed away. I thought that i was the only one that happened to, that no one likes me. I had my hubby, but his cooking and housework abilities were limited, he tried!! good luck to you, will keep corrine in my prayers

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

Hi, Ken, I found that everyone I knew from all areas of my life was supportive when I was first diagnosed. In retrospect, I think they expected my treatment to be surgery w/ no further treatment needed. Very early stage DCIS, I suppose, is what they could handle. (Frankly, it's what I could have handled, as well!)

When they learned chemo and lymph nodes, a lot of people disappeared. Lymph node involvement really diminishes your social circle. At least, it did mine. I was even dis-invited from a child's 2nd birthday party the week of my surgery, when the extent of the bc was found.

I wish none of us had to go through any of this. But, I've learned who my true friends and family are, and who the really caring human beings are in Joe's life and mine. Think of it as weeding out the chaff.

My best to Corinne and to you. I am sorry you both are experiencing this pain, but you are not alone. It sounds as if you are blessed with a core group of true friends. And, you found us.

TraciInLA's picture
TraciInLA
Posts: 1839
Joined: Jul 2009

My experience so far has been a lot like Moopy's. My friends rallied around me after my diagnosis, through the initial tests and surgery -- 6 people from my church came to hang out with my girlfriend in the waiting room during my surgery. After the surgery, friends brought food, offered to help out, called and emailed to check on me....

Then I think they started to realize that it wasn't over. I'm just starting 3 months of chemo + 2 months of rads. I imagine them thinking, "What, you mean there's MORE? Five more months of this?" Little do they understand that my treatment is far shorter than what a lot of women have to go through.

What I'm doing right now is being up front and in people's faces about what I need. That way, if they just can't stick it out, at least I know I've been clear, and no one can say, I didn't know that you needed help/support/whatever. But it's a tough, lonely process to accept that some friends would just rather move on than walk with me through this. I don't know what I would do without my girlfriend by my side, so I know firsthand, Ken, how very blessed Corinne is to have you.

Traci

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Ken, some people just don't know what to say or do around a cancer patient. And, I think some are even afraid they might "catch it". Seriously, I heard someone say that. Amazing isn't it? Just look at it as a way to find out who really cares for you.

Hugs, Leeza

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

Corrine was released from the hospital late today. Chemo was completed about 2pm yesterday. At this point she only has a little discomfort from a slight fever. She has an appointment to see her omc in a week for tests. At that point her next chemo will be scheduled. We thank all of you for checking in on her as well as your comments, suggestions, thoughts and prayers. Ken & Corrine

VickiSam's picture
VickiSam
Posts: 8255
Joined: Aug 2009

I am crying from deep down in my heart. What's that saying ?? you can cound your true friends on 1 hand ?? Or as some call it ' fair weather friends'. We live in a society where things are based on instant gradification. If your hungry & tired, call up the local pizza hut, and have your dinner delivered in less than 30 mintues. Need to pay a speeding ticket, wait .. don't go down to the courts, pay on line .. Our lives are fast paced, Cancer treatment is not.

I too have a wonderful circle of family and friends, and have kept my diagnosis from "non-immediate" family. Self preservation, I guess. My girlfriend, Jackie who was 1 of 2 people at Dr. H's appointment today, called a few hours ago and told me that she was in for the long run ... 1 year, 2 years etc. We laughed and cried .. but I made her promise me that if she grew tried, she could remove herself at anytime ... no questions asked. I gave her this option as I don't really know the extent of my chemo, or treatment. Again, I say .. 'self preservation'.

Ken .. You are a Saint.. and Kudos to Corrine for nabbing you!!

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

Vicki,
Thank you for the kind words. Trust me, I am no saint. Just a regular guy in love with a wonderful woman. Corrine has also given me several "outs", saying this was going to be rough on me. Hey, all of you ladies are the heroes. It is your strength, perserverance, positive outlook and faith that give others hope. Not just those afflicted, but caregivers as well. I do not know how to thank all of you for the knowledge and support.
My prayers to all of you,
Ken

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Glad she got that one chemo behind her. Good luck with the doctor next week. Hope her tests turn out good! Praying for both of you!

Hugs Lex♥

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

I cannot believe you were disinvited from a 2 year-olds birthday party! That makes me incredibly angry for you. People can be cruel, whether intentionally or not. I, too, lost some friends through this. It's sad, but you're right, weeding out the chaff...

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

I was shocked at that too Mimi. Very hard to believe that people are like that. But, it does show you who your true friends are. :)

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Just wishing Corrine good luck with her chemo.

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

Corrine's reactions to this point have been fairly mild. Chemo was on Tuesday. She was starting to get fatigued and a little sore by Friday. Saturday and Sunday included increased fatigue, slight fever (under 100 degrees), headaches and soreness. The major side effect this weekend was the fatigue. We were able to go to lunch, a little shopping and church. The rest of the time she rested while I just wanted to pamper her. Her perseverance to battle was like a rollercoaster, but she ended this weekend very positive. Tests on Monday or Tuesday (not sure) will tell us how her body is reacting. I believe it is white and red blood cell counts, maybe more, I am not quite sure.
God bless all!!
Ken

Akiss4me's picture
Akiss4me
Posts: 2192
Joined: May 2009

So glad to hear that Corrine is hanging in there. Thanks for keeping us posted. Sounds like she will do okay with you by her side. Staying positive is half the battle! Tell her I said kudos for making it through round one! Pammy

chilibbq's picture
chilibbq
Posts: 30
Joined: Aug 2009

Corrine had severe pain in her hips last night (5th day after 1st chemo). It kept her awake most of the night. She had an appointment with her onc today. Corrine was told she would need to take chemo once a week for 24 weeks instead of the original plan of once every three weeks for 24 weeks. The onc said it would be easier on her. Is this weekly treatment any more or less effective than the 3 week treatment? Has anyone else gone through a similar experience? Thanks. Ken

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