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Has Anybody Had Cytoxan - Methotrexate - 5FU (CMF) Chemo?

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Hi.

Searching for others who've had/are having this chemo regimen. Thanks.

Deb

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Sorry Debra, I didn't have to have chemo. Surely someone here has and will respond.

I know everyone has a different combo of drugs.

Good luck!

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Thanks for your response!

Christmas Girl's picture
Christmas Girl
Posts: 3644
Joined: Apr 2009

Honestly, for your sake... I'm really hoping a member will respond. (I had the "C"; but, not the other two.)

Actually, and just F.Y.I. - yours is the first time I've read of this particular regimen here, on the board.

Best wishes to you. And the pic of you and your adorable pup is really sweet! :-)

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Thanks, Christmas Girl. Yes, I've been surprised that there don't seem to be others on this regimen because it is pretty common, but that's the way cookie crumbles. Thanks again for responding.

janmill99
Posts: 7
Joined: Apr 2009

I had 5FU,Epirubicin and Cytoxan (CEF)6 treatments followed by 4 Taxotere treatments....so not the same but some on the same mix. Everyone is effected so differently by these drugs it's difficult to share experiences. CEF wasn't so difficult for me, Taxotere very tough. Some of my friends in my support group had the opposite experience. If I can help I would be happy to share my experience.

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Thanks so much.

diana42071
Posts: 2
Joined: Aug 2009

I had this combination of drugs nearly 20 years ago. if you want to know more just let me know. good luck!

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Just wishing you good luck!

♥ Kylez ♥

Christmas Girl's picture
Christmas Girl
Posts: 3644
Joined: Apr 2009

We're glad to have you here - a 20 year breast cancer survivor? Wow! Best wishes to you, for continued cancer-free good health.

Please tell us more about your experiences. Longer term survivors inspire such meaningful hope for all of us. There are several amongst this group. Your story would be greatly appreciated, I'm sure.

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Hi Diana:

Thanks so much for responding. I was just wondering how other folks did on this regimen. My Onc mentioned it is "chemo-lite" but I am not feeling it's so lite. I've had many side-effects. Was it rough on you or did you go about your life as usual?

By the way, how wonderful that you're a long-term survivor! That gives me a warm, fuzzy feeling.

Deb

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Hi Diana:

Thanks so much for responding. I was just wondering how other folks did on this regimen. My Onc mentioned it is "chemo-lite" but I am not feeling it's so lite. I've had many side-effects. Was it rough on you or did you go about your life as usual?

By the way, how wonderful that you're a long-term survivor! That gives me a warm, fuzzy feeling.

Deb

survivorbc09
Posts: 4378
Joined: Jun 2009

Hi and welcome Diana42071!

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Just want to say good luck to you Deb. I didn't have chemo, so, I am lucky in that way.

diana42071
Posts: 2
Joined: Aug 2009

I had just turned 36 in 1989 when i found a lump in my breast. Actually the year before i had a lump removed that was benign. Every night when I went to bed I would run my hand over the incision and always felt like there was still a lump there. Every time I would call my surgeons office and try to make an appointment, this idiot receptionist would ask me what my problem was. When I explained to her I still felt like I was feeling a lump she told me it was just scar tissue.This went on for several months. Finally I went to see an ob gyn. When he was examining me I told him I thought I had some scar tissue from a previous biopsy. He said he didnt think it was, and sent me for a mammagram. The mammagram showed it to be a fluid filled cyst.
When I called my surgeon the next day, guess who answered the phone,? you got it, the receptionist that thinks she's a doctor. When I explained to her I needed to see the doctor that I still felt a lump she tried to tell me it was scar tissue again.I told her it was not and to give me an appointment that day! When the doctor said the mammagram said it was fluid filled he tried to aspirate with a needle. Nothing came out.So he sat me up and told me he didnt think it was anything. The lump the year before was benign, i was only 36, with no history in my family.So I said ok.
Then I said "but you wont know 100% untill you take it out right"? He said "right". So I said lets do it!
It was stage 1 with 19 lymph nodes removed, all was clear. Mastectomy followed wth 6 month cmf therapy.I had reconstruction and a subcutaneous mastectomy on the other side.
Thats my story. It will be 20 years Dec.7,2009.I would tell myself every day." I may die today, but I will not die of breast cancer today".

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Thank you so much for sharing your story Diana. Congrats on being a long-term survivor. Be well and enjoy!

Deb

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Thank you so much for sharing your story Diana. Congrats on being a long-term survivor. Be well and enjoy!

Deb

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Thank you so much for sharing your story Diana. Congrats on being a long-term survivor. Be well and enjoy!

Deb

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Thank you so much for sharing your story Diana. Congrats on being a long-term survivor. Be well and enjoy!

Deb

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Thank you so much for sharing your story Diana. Congrats on being a long-term survivor. Be well and enjoy!

Deb

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

Thank you so much for sharing your story Diana. Congrats on being a long-term survivor. Be well and enjoy!

Deb

jnl's picture
jnl
Posts: 3873
Joined: May 2009

I didn't have chemo, but, wanted to wish you good luck with your treatment!

Hugs, Leeza

debragood1's picture
debragood1
Posts: 48
Joined: Jul 2009

:)

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Thanks for your story Diana and welcome. And, congrats on the 20 years anniversary!

Hugs Lex♥

carkris's picture
carkris
Posts: 4523
Joined: Aug 2009

I had CMF 15 years ago. have done well until recently and diagnosed with a new primary. Interesting same story or close about the scar tissue previous biopsy thing on this one. Anyway just had scans and nothing showed so I would say I did well on the CMF. I had nausea and tiredness, hair thinning. but tolerated it pretty well. We will see about the next regime.

dog_lover's picture
dog_lover
Posts: 8
Joined: Sep 2009

Hi, I think that is the same combination that I had 13 years ago. I just had a new primary also. I had my mastectomy one week ago today. I guess that I don't need to worry about any more breast cancer diagnosises any more!

I also did OK on that combination. I didn't have much nausea but lots of tiredness. I only lost about 1/4 of my hair.

I see my oncologist in a week to see what she has planned for this time.

You will do fine. Time goes by and it will soon be in the past. Easy and trite to say....but is is true. My concern/problem right now is that I can't do any indoor rock climbing for a while. ggrrrrrrr!

MAJW
Posts: 2515
Joined: May 2009

What an inspiration you are!!!!!! You give us all hope! God bless you and here's to a HEALTHY LIFE!
Nancy

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

Thank you for sharing your story. Very inspiring. I am 34 and hope to be on a board 20 years from now sharing my own survivor story.

Mimi

edited to add: oh my, I'm 35. Guess I conveniently forgot about my birthday last month.

Akiss4me's picture
Akiss4me
Posts: 2192
Joined: May 2009

Remember it this way....Your 34.99 plus shipping and handling!! (couldn't resist!) Pammy

ntswood
Posts: 1
Joined: Sep 2009

I had your combination of drugs. It was in 1990.

corina
Posts: 2
Joined: Sep 2009

I have stage 4 invasive aggressive metastatic breast cancer that was HER2Positive I took adriomicyn adriomicyn cytoxin it is a rough chemo but the,taxol was worse ,28 days radiation and 18 mo of herceptin they gave me 8 mo.in Sept 2005 I just celebrated 4years out and cancer free any questions feel free to email me at dobnine11@gmail.com recently I have had this terrable pain in my ear, neck, temple and teeth went to primary Dr. 2 rounds antibiotic alergy meds didn't work went to dentist ruled out any abcess or infection the pain has got worse went to ER they took CT of ear and side of head nothing found called My Oncologist they said if it isnt cancer related there is nothing they can do (how am i suposed to know if it is cancer related im not a doctor the pain is unbarable I now have an appointment with a ear nose and throat dr. on tues sept 22 hopefully I can get an answer if anyone has any suggestions please help i am running out of options

Akiss4me's picture
Akiss4me
Posts: 2192
Joined: May 2009

Hi. I'm not a Doctor either but it sounds as if you may have pain that is nerve related. They usually have a hard time diagnosing these types. If ear,nose,throat Doc can not help, I would consider a nerologist. My PCP gets pain in the side of his face, that he has to take meds for, that are nerve related. I would maybe consider this. Good luck. Pammy

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

A question: are you in Canada? I know they do that regimen regularly there. Just a thought. Hope you get answers and good luck!

Mimi

Mesa2009
Posts: 10
Joined: Nov 2009

I was searching for someone who took the CMF because I was recommended this cocktail the other day. I had a bad reaction to taxotere and so my onco. decided to take me off and recommended this option.

I read your entries and I can feel your urgency to find about CMF. So did you end up taking this cocktail?

If you are still on this discussion board, I hope to hear from you! I really don't want to take AC being there is heart disease on my mother's side of the family.

If you could help I would appreciate it! Thanks!

CypressCynthia's picture
CypressCynthia
Posts: 3953
Joined: Oct 2009

I had CMF 23 yrs ago. Can you believe? I was 33 at the time. My oncologist had planned a different regimen, but my tumor caught him by surprise and he changed to CMF. I had a mastectomy, CMF chemo, radiation and tamoxifen. I lost my hair, though many on that regimen don't. I had a bone recurrence last year, but am doing well on arimidex and zometa (finished another short course of radiation last year). My tumor was ER+

Lighthouse_7's picture
Lighthouse_7
Posts: 1566
Joined: Jan 2010

Hi debra,
I had ACT for 16 weeks. First 8 were Adriamyacin and Cytoxin. Then went to Taxol.

donna volkswagen
Posts: 3
Joined: Jan 2010

i started on cmf the end of sept 2009 i"ll be done with it the end of feb this year. then i start radiation. the chemo itself has not been that bad. i feel different after every treatment sometimes i throw up for two or three day sometimes i don't at all. the worst part for me is the muscle and joint pain it's really bad a week after my treatment also i get very tired but i try and fight that. the good thing is i never lost any of my hair so im very happy about that. are you still getting treated if so how are you feeling from the cmf? I hope you well

ConnieRB
Posts: 3
Joined: Jan 2010

I had Cytoxan as part of my Chemo regement.

boppel
Posts: 26
Joined: Dec 2009

Hi I had this chemo nearly 8 yrs ago, I tolerated it well, better than the first chemo in 1998. yes I was sick, nausea, had to take Neulasta shots , but I did not loose all my hair. All went well, had radiation after that. I am still here doing well.
Best wishes emmi

desibuff
Posts: 1
Joined: Dec 2010

I have also been referred for this kind of treatment and was wondering how did it go with you? Take care, lots of hugss!!

Grandma Kath
Posts: 1
Joined: Feb 2013

I had this cocktail 25 years ago for breast cancer.  I thought if the cancer didn't kill me then surely the drugs would.  I am now 25 years cancer free so apparently the drugs did what they were supposed to do.  I did the "speed" plan and had MASSIVE doses for 4 months.  I'm so glad I was able to see high school graduations, and weddings and grandchildren ... stay with the plan ... you won't regret it.

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

This is an older post Grandma Kath, but, when I started reading it and saw your post, it really brightened my day.  Congratulations on 25 years cancer free!  That is fantastic! 

Posts like yours encourage all of us and gives us hope.

Hugs, Megan

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