Aug 02, 2009 - 12:55 pm
Hi, I am 35 years old, mom of 4 kids and I was diagnosed with CML 10 months ago. I think I have taken it pretty well but my husband seems terrified but frustrated. Since I look fine when I am having night sweats or small amounts of joint pain, or even fatigue, my husband looks upset because I am not doing things around the house. Do I need to look sick in order to get some help from him and the kids? He keeps saying I need to join a support group to deal with this. I will have my 12 month biopsy in October 2009 to see if I am in remission. I take Gleevec. I am still having nausea at night after I take my gleevec at night and still having night sweats and pain in my bones or joints. It is a bit frustrating cuz some days I am really energetic and then I go back to laying in a bed with fatigue or pain. My last appointment was confusing. Some tests showed my cancer cells have multiplied but my white cell count was still in normal range (even though they keep climbing). For now the signals are mixed (some good news and some bad). How do we deal mith mixed test results?