Cancer Survivors Network

i have no knowledge of your childs tumor but, i would suggest that you him to a teaching hospital in your area it will be your best chance.

I'm sorry to hear about your sons diagnosis. My son was diagnosed with AT/RT when he was 13 months old. He is a happy and healthy four and a half year old. We are almost three years off treatment. If there is anything I can do, feel free to contact me. There are a few websites I can suggest and I have a long list of families who have been through the same diagnosis. We have a caringbridge site if you want to check to see how Owen's treatment went. www.caringbridge.org.visit/owenlyons

Hi, My name is Amanda Allen, My son Aiden was diagnosed with ATRT in November of last year. Visit this website www.cbtrf.org they have a forum section to ask questions and it is a website for rare children's brain cancer and was started by the parents of a child with ATRT. It has info on clinical trials, treatment info etc. If you feel like there is no info out there you are not crazy or a bad parent, there really is no information out there about ATRT. As far as treatment goes my personal picks would be Children's Hospital of Philadelphia, Dr Beigel works there and she discovered ATRT, Texas Children's Hospital and St Jude Children's Hospital. My opinion:CHOP has produced the most survivors on a treatment but they have had the most treatment related deaths, St Jude has a very supportive enviornment but they are conservative in their treatments of ATRT,they are very concerned with a child's quality of life, Texas Children's seems to be a mix between the two. I wish I could help more... Again check out www.CBTRF.org my son's angel site is www.aidenstory.com. Keep faith and keep hoping. My son Aiden is in heaven and the prognosis is 10% but there are children who have survived and there is no reason why your child cannot be the one.

yes we do have a lot info .our 5 month old whose diagnosed whit atrt in april 2008 wee will try to help the must possible