Triple Negative

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Lakegirl
Lakegirl Member Posts: 15
edited March 2014 in Breast Cancer #1
I was just diagnosed as Stage 11, Grade 3, Triple negative. One lymph node out of 17. Is there anyone else out there that is a triple negative fighter or suvivor?

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  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    #2
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    Hello
    Hello, Lakegirl, the cancer I had was also triple negative. Mine was stage 3A, 6 out of 15 lymph nodes. I had a mastectomy in November 2008, then chemo, and now I am halfway through radiation. Others here have also had triple negative cancers.

    A lot of information can be found in past threads, which you can access using the search feature on the top right of the home Discussion page. Just enter "triple negative." Do ignore the older posts, though. The last year's worth should be useful. I strongly advise not googling triple negative.

    My husband, Aortus, wrote a mini-lecture almost (!) on the subject a while back. Mimivac has written many wonderful, informative posts. And I as well as others will be glad to respond to any questions you have. You have come to the right place for support and understanding. I am very sorry to hear of your diagnosis--no type of cancer is easy or harmless--but I welcome you.
  • Aortus
    Aortus Member Posts: 967
    #3
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    Moopy23 said:

    Hello
    Hello, Lakegirl, the cancer I had was also triple negative. Mine was stage 3A, 6 out of 15 lymph nodes. I had a mastectomy in November 2008, then chemo, and now I am halfway through radiation. Others here have also had triple negative cancers.

    A lot of information can be found in past threads, which you can access using the search feature on the top right of the home Discussion page. Just enter "triple negative." Do ignore the older posts, though. The last year's worth should be useful. I strongly advise not googling triple negative.

    My husband, Aortus, wrote a mini-lecture almost (!) on the subject a while back. Mimivac has written many wonderful, informative posts. And I as well as others will be glad to respond to any questions you have. You have come to the right place for support and understanding. I am very sorry to hear of your diagnosis--no type of cancer is easy or harmless--but I welcome you.

    Hi Lakegirl
    As my beloved wife points out, I did post a little beginner's guide about "triple negative" breast cancer this spring.

    The important thing is that there are plenty of "triple negative" (what a lousy term) ladies out there who are alive and well and dancing with NED (No Evidence of Disease). I happen to be happily married to one of them.

    And in the meantime, follow Moopy's excellent advice and DO NOT GOOGLE. There is so much misleading cr@p out there, and it is so easy to stumble upon, that you are really much better off asking your oncologist, or asking questions here, or visiting http://www.tnbcfoundation.org (or all of the above) instead.

    Best,
    Joe
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #4
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    Welcome, Lakegirl
    My diagnosis was different, so can't specifically address yours - as Moopy and Aortus already have.

    Again, welcome. We're all here to support and encourage each other. Glad you found us, glad to have you - though sorry for the reason. You are now surrounded by many survivors, some who can count back decades. Visit often, whenever you'd like or need to.
  • Kylez
    Kylez Member Posts: 3,761 Member
    #5
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    Christmas Girl said:

    Welcome, Lakegirl
    My diagnosis was different, so can't specifically address yours - as Moopy and Aortus already have.

    Again, welcome. We're all here to support and encourage each other. Glad you found us, glad to have you - though sorry for the reason. You are now surrounded by many survivors, some who can count back decades. Visit often, whenever you'd like or need to.

    Hi Lakegirl and welcome to
    Hi Lakegirl and welcome to the site! You will find everyone very positive and encouraging as you take this journey. Good luck and let us know how you are doing!
  • LRM216
    LRM216 Member Posts: 26
    #6
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    Kylez said:

    Hi Lakegirl and welcome to
    Hi Lakegirl and welcome to the site! You will find everyone very positive and encouraging as you take this journey. Good luck and let us know how you are doing!

    Hello from another triple neg
    I am also triple neg - diagnosed on 2/23/09 - with 1.2 cm IDC, no node involvement, stage 1, grade III - triple neg. Had lumpectomy on 3/25 and re-excision for clean margins on 4/8 - started Chemo on 4/30 with 4 DD AC x 4 every two weeks and then DD Taxol 4x - every two weeks. First taxol knocked me on my butt with bone/aches and on day three developed neuropathy in all fingertips and feet were like walking on hot coals. Went for my second today and they are making me wait another week and will be switching me to Taxotere which they feel may not cause me as much trouble with the neuropathy. We shall see. Just wanted to wish you all the best. Breastcancer.org has a lot of triple negs and specific threads for just them, and TNBCfoundation.org is also great. Check them out.

    Linda
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #7
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    LRM216 said:

    Hello from another triple neg
    I am also triple neg - diagnosed on 2/23/09 - with 1.2 cm IDC, no node involvement, stage 1, grade III - triple neg. Had lumpectomy on 3/25 and re-excision for clean margins on 4/8 - started Chemo on 4/30 with 4 DD AC x 4 every two weeks and then DD Taxol 4x - every two weeks. First taxol knocked me on my butt with bone/aches and on day three developed neuropathy in all fingertips and feet were like walking on hot coals. Went for my second today and they are making me wait another week and will be switching me to Taxotere which they feel may not cause me as much trouble with the neuropathy. We shall see. Just wanted to wish you all the best. Breastcancer.org has a lot of triple negs and specific threads for just them, and TNBCfoundation.org is also great. Check them out.

    Linda

    Welcome Lakegirl, Glad you
    Welcome Lakegirl, Glad you have found this site. It much better that any google you can do. You will get honest answers, that you can understand.Best of luck and keep us posted.
  • Akiss4me
    Akiss4me Member Posts: 2,188
    #8
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    Welcome Lakegirl....
    Hi Lakegirl, wanted to welcome you to our world. I am not a triple negative but I can assure you that you will get response from all wonderful people. Looks like you have already! This is the best place to be in a bad situation! Visit us anytime and we will do our best to help you along your journey. :) Pammy
  • jnl
    jnl Member Posts: 3,869 Member
    #9
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    Akiss4me said:

    Welcome Lakegirl....
    Hi Lakegirl, wanted to welcome you to our world. I am not a triple negative but I can assure you that you will get response from all wonderful people. Looks like you have already! This is the best place to be in a bad situation! Visit us anytime and we will do our best to help you along your journey. :) Pammy

    Hi Lakegirl and welcome! I
    Hi Lakegirl and welcome! I am only negative on my HER2. Otherwise I am a positive on ER and PR. Hope you find some answers and comfort here!

    Hugs, Leeza :)
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #10
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    jnl said:

    Hi Lakegirl and welcome! I
    Hi Lakegirl and welcome! I am only negative on my HER2. Otherwise I am a positive on ER and PR. Hope you find some answers and comfort here!

    Hugs, Leeza :)

    Welcome Lakgirl! I am not
    Welcome Lakgirl! I am not triple negative, but, I am sure that some on here will help you.

    Good luck!
  • Kristin N
    Kristin N Member Posts: 1,968 Member
    #11
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    DianeBC said:

    Welcome Lakgirl! I am not
    Welcome Lakgirl! I am not triple negative, but, I am sure that some on here will help you.

    Good luck!

    Just welcoming you Lakegirl
    Just welcoming you Lakegirl to the site. I'm not triple negative, so, I can't be of much help to you except to say hi! Post often so we can learn about you!

    Hugs, Kristin
  • tommaseena
    tommaseena Member Posts: 1,769
    #12
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    Kristin N said:

    Just welcoming you Lakegirl
    Just welcoming you Lakegirl to the site. I'm not triple negative, so, I can't be of much help to you except to say hi! Post often so we can learn about you!

    Hugs, Kristin

    Lakegirl Welcome
    Welcome to the most wonderful board on earth--well that is what I think.
    I am negative on the ER and PR but positive on the HER2.

    Margo
  • rjjj
    rjjj Member Posts: 1,822 Member
    #13
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    tommaseena said:

    Lakegirl Welcome
    Welcome to the most wonderful board on earth--well that is what I think.
    I am negative on the ER and PR but positive on the HER2.

    Margo

    I want to welcome you also
    and i agree with Margo, this is the most wonderful board on earth, and the most beautiful kindred sisters you will ever find. I am so glad that I found it, and i am sure you will be also.
    I am neg, on the ER andPR also but pos. on HER2. I wish you all the luck in the world. Keep us posted.
    hugs, jackie
  • faithandprayer
    faithandprayer Member Posts: 177
    #14
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    New Drug
    Hi Lakegirl,
    Saw your post and, although I'm not a triple neg, I did just read several articles and announcements in June about a new drug that shows great promise...specifically for triple negs - - - whoo hoo.

    The class of drugs are called PARP inhibitors. They are designed for triple negs and BRCA1 and BRCA2 genes.

    I am with others. I STRONGLY suggest you don't google. Talk with your onco - - - with the hype these babies have had, your onco should definitely know about them.

    Also, a warm welcome to you!
    KC
  • gillyv
    gillyv Member Posts: 4 Member
    #15
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    Hi my name is Gilda I diagonoised with triple negative in left breast and lymph nodes I am doing chemo ask should I do double mascetomy they want to do left breast and 8 lymph nodes chance of coming back is high can some one talk to me about experience I want to do double but my doctor says just wants do left breast and lymph nodes thank you

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