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ENDOMETRIAL CANCER

maryln3
Posts: 65
Joined: Jul 2009

4/28/09 WENT TO FOOT DOCTOR RECEIVED CORTIZONE SHOT
5/2/09 A SMALL BLOODY DISCHARGE
5/8/09 BIOSY -PAP SMEAR- RESULT...ATYPICAL ENDOMETRIAL CELLS
CONFLUENT COMPLEX HYPERPLASIA WITH FOCI OF COMFLUENT GLANDS
STRONGLY SUSPICUOUS FOR WELL DIFFERENTED ENDOMETRIOID ADEMOCARCINOMA
CA125 - OUT OF RANGE 30N REFERECE RANGE 21U/ML
5/12/09 TRANSVAGINAL PELVIC ULTRASOUND-SIGNIFICALLY THICKENED ENDETRIAL CANAL COULD
BE DUE TO HYPERPLASIA OR TUMOR (THIS PROVE TO BE 100 PERCENT TUMOR MENTIONED
ON PATHOLOGY AFTER SURGERY....
5/21/09 MET WITH DR STEVEN RUBIN OF UNIV OF PENN HOSP..HE WAS NAMED BEST IN
PHILA...I WANTED THE BEST OCO-GYN. HE GREETED ME WITH THIS WILL NOT
KILL YOU, IN FACT I THINK THAT ALL YOU WILL NEED IS HYSTERECTOMY..
HE SAID HE WAS GOING TO DO A BIOSY OF PELVIC LYMPH NODES REGARDLESS
OF WHAT HE THOUGHT BECAUSE YOU NEVER KNOW. HE PLANNED SURGERY FOR
6/24/09.
6/24/09 HYSTERECTOMY ROBOTIC WITH VAGINAL REMOVAL ....I THINK MY SURGERY
LASTED 5 HOURS..DOC SAID IT WAS LONGER THAN NORMAL CAUSE I WAS BIG
WOMAN. NO REACTION T0 ANSESTIA..YEAH
6/25/09 NO FOOD UNTIL I PASS GAS ..I WAS BELCHING AND FINALLY AT 7PM I FARTED
THEY HAD MERCY AND FED ME BROTH FOR LUNCH IT WAS GREAT... URINE WAS
DROP BY DROP BUT I WAS TOLD 2 DAYS AFTER SURGERY THAT MY BLADDER WAS
NUCKED BUT IT WOULD REPAIR ITSELF WITHIN 4 WEEKS (IT DID) THE PAIN
MEDICINE WAS GREAT AND IF YOU CHOSE TO USE IT , IT WORKED. I
LEFT HOSPITAL 9PM DAY AFTER SURGERY. MY DOCTOR DID VISIT ME FOR 2
MINUTES HE SAID SURGERY WENT WELL AND I LOOKED SO GOOD HE DID NOT DO
LYMPHNODE BISSY. HE ALSO TOLD THIS TO MY HUSBAND AFTER THE SURGERY
6/25/06-7/6/09 RECOVERY WAS NOT BAD...I USED THE PAIN MEDICINE FOR 3 DAYS AND THEN
STOPPED CAUSE I NEEDED TO FEEL MY BLADDER WHEN IT WAS FULL. A FEW DAYS
I TOOK A PILL OR 2 CAUSE I FELT PAIN ON RT SIDE -BELLYBUTTON LEVEL-THIS
PAIN IS STILL THERE A MONTH LATER. ON 7/6 I CALLED FOR THE PATHOLOGY
REPORT AND THE ROLLER COASTER STARTED UP AGAIN..
7/6/09 5:30 AFTER WAITING FOR 5 HOURS FOR DOCTORS OFFICE TO RETURN MY CALL THE
RESIDENT DOCTOR CALLED ME AND SAID HE WAS SORRY BUT I DID NOT HAVE HYPERPLASIA
I HAD CANCER..I HAD A TUMOR THAT PENITRATED THE UTERUS WALL..HE SAID I NEEDED
A PET SCAN AND TO SEE RADIOLOGIST..IT WAS HERE I SAID...O MY GOSH..PELVIC
LYMHN NODES ARE STILL INSIDE ME AND THEY WERE NOT TESTED..HE SAID HE WAS SORRY
THE DOCTOR DID NOT EXPECT THE PATHOLOGY REPORT, YOU LOOKED GOOD SO HE DID NOT
DO THE BIOSY..I TOLD HIM I WAS DISSAPOINTED IN THE DOCTOR...HE SCREWED ME UP

6/24/06 PATHOLOGY REPORT PREARED 12:50 IMMEDIATELY AFTER MY SURGERY
RESULTS- ENDOMETTIOID ENDOMETRIAL ADENPCARCINOMA, FICO GRADE 1 IF 111
WITH MYOMETRIAL INVASION OF 75% (1.5 CM OUT OF 2CM OF
MYOMETRIUM, LYMPHVASCULAR INVASION SEEN..TUMOR IS TIC,NX,MX

7/6/09 I THOUGHT I NEEDED TO GET AWAY FROM THIS DOCTOR,
HE NICKED MY BLADDER DURING SURGERY BIT NEVER TOLD ME ,,THE RESIDENT
TOLD ME WHEN I CALLED 2 DAYS LATER RE: BLADDER PAIN.
HE TOLD ME HE WAS DOING THE BIOSY BUT HE DID NOT DO IT AND I
THINK HE CAUSED ME UNDO ANXIETY,...I DECIDED TO GET PETSCAN AND FIND
A NEW DOCTOR
7/12/09 PET SCAN SATURDAY AT NOON RESULTS AVAIABLE MONDAY 3PM...NO CANCER
ANYWHERE IN MY BODY .............EXCEPT PET SCAN DOES NOT PICK UP
LYMPH NODES....NOW WHAT
7/15/09 TOOK ME AND MY REPORTS TO DR CHURA.OCO.GYN...HE SAID I HAD CHOICES

PELVIC LYMPH NODES LEFT IN-HEAVY DUTY RADIATION NEED AND CHEMO
PELVIC LYMPH NODES OUT-
LESS DOSAGE OF RADIATION AND IF NO CNACER IN LYMPH NODES
ONLY RADIATION TO MTOP OF VAGINA

DECISION...........8/6/09 REMOVAL OF PELVIC LYMPH NODES

7/21/09 MEETING WITH FOX CHASE RADIATION DOCTOR TO DISCUSS NEXT STEPS
7/23/09 POST OP APPT WITH ORIGINAL SURGEON..I WONDER WHAt he will have to say

to be continued

nursey420's picture
nursey420
Posts: 53
Joined: Mar 2009

Maryln
sound like a rough road you have traveled. Sound like your first doctor was good at surgery but not at much else. Looks like you made a decision on the lymph nodes, good luck and hope there is no cancer found there. Will they use DeVinic again I has DeVinic surgery 2/09 ended up wth stage 2B had 25 sessions of external IMRT radaition and 4 internal (HDR) radaition. Noe dancing with NED ( no evidence of disease). We are here to help you and suport you please keep us updated
Lisa in MN

maryln3
Posts: 65
Joined: Jul 2009

yes the new oco-gyn will be using davinci again...did you read my story

4/28/09 WENT TO FOOT DOCTOR RECEIVED CORTIZONE SHOT
5/2/09 A SMALL BLOODY DISCHARGE
5/8/09 BIOSY -PAP SMEAR- RESULT...ATYPICAL ENDOMETRIAL CELLS
CONFLUENT COMPLEX HYPERPLASIA WITH FOCI OF COMFLUENT GLANDS
STRONGLY SUSPICUOUS FOR WELL DIFFERENTED ENDOMETRIOID ADEMOCARCINOMA
CA125 - OUT OF RANGE 30N REFERECE RANGE 21U/ML
5/12/09 TRANSVAGINAL PELVIC ULTRASOUND-SIGNIFICALLY THICKENED ENDETRIAL CANAL COULD
BE DUE TO HYPERPLASIA OR TUMOR (THIS PROVE TO BE 100 PERCENT TUMOR MENTIONED
ON PATHOLOGY AFTER SURGERY....
5/21/09 MET WITH DR STEVEN RUBIN OF UNIV OF PENN HOSP..HE WAS NAMED BEST IN
PHILA...I WANTED THE BEST OCO-GYN. HE GREETED ME WITH THIS WILL NOT
KILL YOU, IN FACT I THINK THAT ALL YOU WILL NEED IS HYSTERECTOMY..
HE SAID HE WAS GOING TO DO A BIOSY OF PELVIC LYMPH NODES REGARDLESS
OF WHAT HE THOUGHT BECAUSE YOU NEVER KNOW. HE PLANNED SURGERY FOR
6/24/09.
6/24/09 HYSTERECTOMY ROBOTIC WITH VAGINAL REMOVAL ....I THINK MY SURGERY
LASTED 5 HOURS..DOC SAID IT WAS LONGER THAN NORMAL CAUSE I WAS BIG
WOMAN. NO REACTION T0 ANSESTIA..YEAH
6/25/09 NO FOOD UNTIL I PASS GAS ..I WAS BELCHING AND FINALLY AT 7PM I FARTED
THEY HAD MERCY AND FED ME BROTH FOR LUNCH IT WAS GREAT... URINE WAS
DROP BY DROP BUT I WAS TOLD 2 DAYS AFTER SURGERY THAT MY BLADDER WAS
NUCKED BUT IT WOULD REPAIR ITSELF WITHIN 4 WEEKS (IT DID) THE PAIN
MEDICINE WAS GREAT AND IF YOU CHOSE TO USE IT , IT WORKED. I
LEFT HOSPITAL 9PM DAY AFTER SURGERY. MY DOCTOR DID VISIT ME FOR 2
MINUTES HE SAID SURGERY WENT WELL AND I LOOKED SO GOOD HE DID NOT DO
LYMPHNODE BISSY. HE ALSO TOLD THIS TO MY HUSBAND AFTER THE SURGERY
6/25/06-7/6/09 RECOVERY WAS NOT BAD...I USED THE PAIN MEDICINE FOR 3 DAYS AND THEN
STOPPED CAUSE I NEEDED TO FEEL MY BLADDER WHEN IT WAS FULL. A FEW DAYS
I TOOK A PILL OR 2 CAUSE I FELT PAIN ON RT SIDE -BELLYBUTTON LEVEL-THIS
PAIN IS STILL THERE A MONTH LATER. ON 7/6 I CALLED FOR THE PATHOLOGY
REPORT AND THE ROLLER COASTER STARTED UP AGAIN..
7/6/09 5:30 AFTER WAITING FOR 5 HOURS FOR DOCTORS OFFICE TO RETURN MY CALL THE
RESIDENT DOCTOR CALLED ME AND SAID HE WAS SORRY BUT I DID NOT HAVE HYPERPLASIA
I HAD CANCER..I HAD A TUMOR THAT PENITRATED THE UTERUS WALL..HE SAID I NEEDED
A PET SCAN AND TO SEE RADIOLOGIST..IT WAS HERE I SAID...O MY GOSH..PELVIC
LYMHN NODES ARE STILL INSIDE ME AND THEY WERE NOT TESTED..HE SAID HE WAS SORRY
THE DOCTOR DID NOT EXPECT THE PATHOLOGY REPORT, YOU LOOKED GOOD SO HE DID NOT
DO THE BIOSY..I TOLD HIM I WAS DISSAPOINTED IN THE DOCTOR...HE SCREWED ME UP

6/24/06 PATHOLOGY REPORT PREARED 12:50 IMMEDIATELY AFTER MY SURGERY
RESULTS- ENDOMETTIOID ENDOMETRIAL ADENPCARCINOMA, FICO GRADE 1 IF 111
WITH MYOMETRIAL INVASION OF 75% (1.5 CM OUT OF 2CM OF
MYOMETRIUM, LYMPHVASCULAR INVASION SEEN..TUMOR IS TIC,NX,MX

7/6/09 I THOUGHT I NEEDED TO GET AWAY FROM THIS DOCTOR,
HE NICKED MY BLADDER DURING SURGERY BIT NEVER TOLD ME ,,THE RESIDENT
TOLD ME WHEN I CALLED 2 DAYS LATER RE: BLADDER PAIN.
HE TOLD ME HE WAS DOING THE BIOSY BUT HE DID NOT DO IT AND I
THINK HE CAUSED ME UNDO ANXIETY,...I DECIDED TO GET PETSCAN AND FIND
A NEW DOCTOR
7/12/09 PET SCAN SATURDAY AT NOON RESULTS AVAIABLE MONDAY 3PM...NO CANCER
ANYWHERE IN MY BODY .............EXCEPT PET SCAN DOES NOT PICK UP
LYMPH NODES....NOW WHAT
7/15/09 TOOK ME AND MY REPORTS TO DR CHURA.OCO.GYN...HE SAID I HAD CHOICES

PELVIC LYMPH NODES LEFT IN-HEAVY DUTY RADIATION NEED AND CHEMO
PELVIC LYMPH NODES OUT-
LESS DOSAGE OF RADIATION AND IF NO CNACER IN LYMPH NODES
ONLY RADIATION TO MTOP OF VAGINA

DECISION...........8/6/09 REMOVAL OF PELVIC LYMPH NODES

7/21/09 MEETING WITH FOX CHASE RADIATION DOCTOR TO DISCUSS

kathybd
Posts: 126
Joined: Jul 2009

Sending good thoughts and prayers for a good outcome for you. How sad to think this Dr was rated so highly. Take good care and keep us posted. kathy

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