UPDATE :They all say ' Don't Wait, Get it Diagnosed Early' - Ya, right. Sigh.

bluerose
bluerose Member Posts: 1,104
edited March 2014 in Ovarian Cancer #1
PREVIOUSLY WRITTEN:

Shoot me now. I am in Canada so this might just be a Canadian health crisis issue, don't know but I am at wits end trying to help myself. I have posted a couple of discussion topics and covered all my health info but suffice is to say that I am an 18 year survivor of non hodgkins lymphoma with complications from treatments and now after all this time I have developed new symptoms. They found a node in my right ovary and recently some tissue in my uterus they need to drag out. I need a second opinion and after dealing with delays getting to see the first Gyno and the GP too I just found out it won't be til the end of October til I get to see the new Gyno. This node has been there for at least 7 months, maybe longer as the radiologist who found it compared it to the last CT and they had 'missed it' on that one. Sigh. So how long has it been there? In passing they realized that yup, it had grown too. Sigh.

So this morning I tried to get an early appt to see this second Gyno and was met with more delays as they needed the paperwork first. grrrr. This was the office who gave my GP the Oct 21st appt. to begin with so why did they need the paper? In speaking with them though they said they couldn't get me in til that Oct date so even with the paper I am not going to be seen til then. More delays.

I haven't cancelled the surgery with the first Gyno, who doesn't seem very cautious about much, so I am not comfortable going under the knife with her but might have to so it will be out and biopsied sooner - but that won't even happen til September sometime, maybe early October.

"See your doctor and get diagnosed early" - anyone have any ideas on how you do that in actual fact? I am a resourceful person but no one seems to know how to get me in. I finally called a social worker at our Cancer Institute here and they are going to see what they can do but I know they will want a referral from my GP and she is on holidays for 3 weeks - more delays before I can even get started.

You would think that the worry about just the surgery, even the general anaesthesia in my case is dangerous due to my damaged heart(from the chemo drugs) and on top of it I have to worry about getting the biopsy done before another symptom shows up.

The ache in my back is getting worse with every passing day and I know it's my body trying to tell me 'hello, something is wrong here - get moving on it', but I can't.

This may be partially at least the result of our FREE health care system up here and our shortage of doctors. Maybe you really do get what you pay for. Sigh. Blessings, Bluerose

UPDATE:

Hard to type this but I am getting close to giving up trying to get myself biopsied earlier than the November date they are now giving me. Now I find out this surgeon only does 1 day of surgery in the hospital A MONTH. There's hope getting to get it done fast, NOT. Very disheartening, not to mention scarey.

This morning I called my oncologist that I had for NHL 18 years ago to see if he could help me be seen earlier somehow and waiting for his call back but I bet his nurses will intercept the message and give me the whole 'you have to be referred to him for him to see or discuss with you'. I hold out hope.

The last effort will be to take myself to the emergency room, the pain in my lower back is getting worse and I am using morphine quick acting for one back issue (not related) to deal with this new period-like ache from this problem now - within prescribd limites, don't worry. It helps but obviously is not the answer.

Today I feel pretty rotten so couldn't go to the ER if I wanted to so going to try and get in there this week but high humidexes forcasted for this week keep me indoors - heart and respiratory issues too. The fun never ends.

I took a few days off thinking about the cancer issues I have been dealing with, for a few days - but it worried me why I could take the days off - I realized I was giving up.

Today I called an Ovarian Cancer group and it seems as if this is a huge issue all over Canada right now, long waits for this and I so that gave me no reassurance at all.

Just thought you might have wanted an update so here it is. Probably go the ER and come back with swine flu from breathing in all the germies in the waiting room for 8 hours. But no fix on an earlier surgery for this 'node' and 'tissue' in the uterus. Tick tick tick time is going on and for cancers especially of this sort - getting it early is paramount. Sigh.

Blessings, Bluerose

Comments

  • Cindy54
    Cindy54 Member Posts: 452
    News
    Hi Blue...Gosh, this has to be beyond frustrating for you. Can you go to the Emergency Room of your local hospital and complain about your back pain and see what they can help with? What about your primary care doctor...can they help? I am not familiar with the Canadian system at all. About the only thing I can say is keep calling whoever you can...the squeaky wheel gets the answers, you know. I had to wait from diagnosis point..it was June of last year...until October also. They were trying to schedule me for the laprascopic surgery. When I finally went in, the cyst had grown, so we did the old-fashioned cutting surgery. And because it was done by a gyno, I had to have staging surgery again in December with a gyno/onco. I can understand your frustration a lot. But other than bugging anyone you can, I don't have a way to help you with any suggestions or advice.Please keep us posted here, hugs to you today...Cindy
  • bluerose
    bluerose Member Posts: 1,104
    Cindy54 said:

    News
    Hi Blue...Gosh, this has to be beyond frustrating for you. Can you go to the Emergency Room of your local hospital and complain about your back pain and see what they can help with? What about your primary care doctor...can they help? I am not familiar with the Canadian system at all. About the only thing I can say is keep calling whoever you can...the squeaky wheel gets the answers, you know. I had to wait from diagnosis point..it was June of last year...until October also. They were trying to schedule me for the laprascopic surgery. When I finally went in, the cyst had grown, so we did the old-fashioned cutting surgery. And because it was done by a gyno, I had to have staging surgery again in December with a gyno/onco. I can understand your frustration a lot. But other than bugging anyone you can, I don't have a way to help you with any suggestions or advice.Please keep us posted here, hugs to you today...Cindy

    Sizing up balcony to see what would happen if I jump, lol
    Yup it's beyond frustrating alright Cindy. My primary caregiver had gone on holidays for 3 weeks starting today so she isn't any use. I called the Cancer Centre and apparently there is a new social worker program that helps advocate sounds like so they called and they are going to call my GP's office to see if someone will follow through there while my GP is on holidays. From what I know no one helps out when she is gone but I don't know for sure. All I know is that she has never offered me the name of anyone to help me if I have issues. Will be interesting to see what they tell someone with some power from the Cancer Centre.

    I am keeping the Emergency Room idea for the last straw attempt. If I go in and complain enough about my worsening back ache thing that I believe is attached to my issues I might get in to see a new Gyno sooner but who knows. I don't like sitting in the waiting area of the ER if I can help it - for 6 hours sometimes - sucking me germs and leaving more sick than when I came in so it's the last straw but I might have to do it.

    About who to get to help I know that the first Gyno said that when she went in to do the surgery she would take out the right ovary for biopsy (laproscopically) and do a D & C as well as there is some tissue problems too but they wouldn't remove anything else so she is clearly not trained to do anymore than that which means I could wake up (hope I wake up) and have to have more surgery from a gyno/oncologist. You can't get to oncology here until you have been diagnosed so that kind of sucks. With my cancer history though you would think that they would go with a gyno/oncologist first but hey what do I know, I'm just a stupid patient - lol.

    Anywho it will be interesting to see if this new social worker position has any real clout in the real world but hope she doesnt make it worse for me with my GP. During our conversation (with the social worker I mean) she asked for my doctors name then said 'oh she is a good doctor' which sort of ticked me off cause I didn't say she wasnt, I had her for 28 years and wouldnt have stayed if I didnt think she was good I was just saying she is a billion times busier now and its her front office that is hard to break through. I hope this worker doesn't give my GP the impression I was bitching about her though cause I wasn't. I am afraid that like in any field they stick together and the worker will call back and make it sound like I am to blame for this and that. When she spoke to me she totally validated my concern about my symptoms so that was good but I don't have alot of faith in actually getting any help, through experience with this kind of thing, but I will still hold out a good thought.

    Anywho, forget the jumping off the balcony thing, I would probably just break my leg and wind up with more health issues than I already have. lol. Blessings, Bluerose
  • jane65
    jane65 Member Posts: 277
    Bluerose
    Hi Bluerose,
    This really stinks and now our president wants this bring this wonderful universal health care to America.

    Two years ago I saw my GYN who felt a lump on my ovary during an internal, I had a TVU and CA 2 days later, saw a GYN/ONC surgeon within a week, and surgery a week later. Port installed and started chemo a month later.

    What you are going through is criminal, considering the cancer is growing unchecked, is there any chance that you have friends or relatives in the States and could hop over the border for medical care?

    I wish someone in the White House could read your frustrated post.


    I don't know what to tell you, never having faced this situation, it's just horrible for you.
    Best of luck,
    Jane
  • mopar
    mopar Member Posts: 1,972 Member
    I FEEL YOUR FRUSTRATION!
    Dearest BlueRose:

    There are some in the US that think this type of health care will be a good thing. I have heard countless, countless horror stories such as yours. While nothing is perfect, I can assure you I fear for the day we might adopt a health-care plan such as this. Heaven forbid!

    All of what you are going through sounds so irrational and inhumane. I don't even know how health practioners can have a clear conscious knowing that many people with serious, immediate health needs are put on the back burner. And once you do get the care, how do you know you're getting good, realiable care? I know you're aware of all of this already - guess I just wanted to share space on your soap box!

    Anyway, I was also going to suggest that you see someone here in the states. I live in Michigan, so I'm right near the Canadian border and I'm fully aware of many people who come here for their doctor visits, tests, treatments. People go to other countries all the time for treatments and care that they believe is better than what they are receiving. I'm not familiar with how it works, if you need a referall, etc., etc. But it's worth looking into.

    I'll pray for the best for you that doors will be opened so that you can nip this in the bud right now. I hope you also can find some relief from all this axiety. I know your health and life are at stake, and it's all easier said than done. Come here and vent all you want. There are lots of shoulders here to lean on. Keep us informed.

    Hugs & Prayers,
    Monika
  • froggy1
    froggy1 Member Posts: 205
    bluerose said:

    Sizing up balcony to see what would happen if I jump, lol
    Yup it's beyond frustrating alright Cindy. My primary caregiver had gone on holidays for 3 weeks starting today so she isn't any use. I called the Cancer Centre and apparently there is a new social worker program that helps advocate sounds like so they called and they are going to call my GP's office to see if someone will follow through there while my GP is on holidays. From what I know no one helps out when she is gone but I don't know for sure. All I know is that she has never offered me the name of anyone to help me if I have issues. Will be interesting to see what they tell someone with some power from the Cancer Centre.

    I am keeping the Emergency Room idea for the last straw attempt. If I go in and complain enough about my worsening back ache thing that I believe is attached to my issues I might get in to see a new Gyno sooner but who knows. I don't like sitting in the waiting area of the ER if I can help it - for 6 hours sometimes - sucking me germs and leaving more sick than when I came in so it's the last straw but I might have to do it.

    About who to get to help I know that the first Gyno said that when she went in to do the surgery she would take out the right ovary for biopsy (laproscopically) and do a D & C as well as there is some tissue problems too but they wouldn't remove anything else so she is clearly not trained to do anymore than that which means I could wake up (hope I wake up) and have to have more surgery from a gyno/oncologist. You can't get to oncology here until you have been diagnosed so that kind of sucks. With my cancer history though you would think that they would go with a gyno/oncologist first but hey what do I know, I'm just a stupid patient - lol.

    Anywho it will be interesting to see if this new social worker position has any real clout in the real world but hope she doesnt make it worse for me with my GP. During our conversation (with the social worker I mean) she asked for my doctors name then said 'oh she is a good doctor' which sort of ticked me off cause I didn't say she wasnt, I had her for 28 years and wouldnt have stayed if I didnt think she was good I was just saying she is a billion times busier now and its her front office that is hard to break through. I hope this worker doesn't give my GP the impression I was bitching about her though cause I wasn't. I am afraid that like in any field they stick together and the worker will call back and make it sound like I am to blame for this and that. When she spoke to me she totally validated my concern about my symptoms so that was good but I don't have alot of faith in actually getting any help, through experience with this kind of thing, but I will still hold out a good thought.

    Anywho, forget the jumping off the balcony thing, I would probably just break my leg and wind up with more health issues than I already have. lol. Blessings, Bluerose

    Sending Thoughts
    Bluerose,
    I feel so awful reading your posts. I wish I could adopt you and put you on my insurance policy. Our president needs to read these boards! I went to the ER with terrible pain, 'had a CAT scan, was transferred by ambulance to the local Cancer Institute and had surgery by a gyn/onc. within three days. I am thankful every day that we have good health insurance, although I know a lot don't right now.
    I have no suggestions, 'only hope that you can come up with some solution soon. You are in my thoughts... Love, Froggy
  • Cindy54
    Cindy54 Member Posts: 452
    mopar said:

    I FEEL YOUR FRUSTRATION!
    Dearest BlueRose:

    There are some in the US that think this type of health care will be a good thing. I have heard countless, countless horror stories such as yours. While nothing is perfect, I can assure you I fear for the day we might adopt a health-care plan such as this. Heaven forbid!

    All of what you are going through sounds so irrational and inhumane. I don't even know how health practioners can have a clear conscious knowing that many people with serious, immediate health needs are put on the back burner. And once you do get the care, how do you know you're getting good, realiable care? I know you're aware of all of this already - guess I just wanted to share space on your soap box!

    Anyway, I was also going to suggest that you see someone here in the states. I live in Michigan, so I'm right near the Canadian border and I'm fully aware of many people who come here for their doctor visits, tests, treatments. People go to other countries all the time for treatments and care that they believe is better than what they are receiving. I'm not familiar with how it works, if you need a referall, etc., etc. But it's worth looking into.

    I'll pray for the best for you that doors will be opened so that you can nip this in the bud right now. I hope you also can find some relief from all this axiety. I know your health and life are at stake, and it's all easier said than done. Come here and vent all you want. There are lots of shoulders here to lean on. Keep us informed.

    Hugs & Prayers,
    Monika

    Your History
    I had a second thought....with your history, why would they not just do a hysterectomy? Sorry if this sound really stupid, but if someone had the history you have and they develop new problems with equipment that is not vitally necessary, why would they not do this? Cindy
  • bluerose
    bluerose Member Posts: 1,104
    froggy1 said:

    Sending Thoughts
    Bluerose,
    I feel so awful reading your posts. I wish I could adopt you and put you on my insurance policy. Our president needs to read these boards! I went to the ER with terrible pain, 'had a CAT scan, was transferred by ambulance to the local Cancer Institute and had surgery by a gyn/onc. within three days. I am thankful every day that we have good health insurance, although I know a lot don't right now.
    I have no suggestions, 'only hope that you can come up with some solution soon. You are in my thoughts... Love, Froggy

    Hey, adoption? I hadn't thought of that, lol
    Too funny Froggy, adopt me - that's all you need. lol. Thanks for the offer anywho, I'm still keeping that offer in the back of my mind should all else fail. lol, good one.

    Well that's interesting about your ER experience. We are set up a bit differently here in Canada but very interesting. We have a 'free' medical system in that we don't pay directly for scans, appts, ER visits etc but they get us through our higher taxes I think. Anywho it takes major pressure off though if we get sick or hurt as we don't have to think about hospital costs right off the bat on top of our medical situation.

    My last idea, since no one I talked with yesterday had much to offer except a very nice girl at the Cancer Information Center, was to go to the ER too and I think I will have to do that. The pain in my back is worse and is lasting longer, started last night and is still there today, is wearing me out and I feel nauseas with it - just a dull pre period like pain but period days have been long since over due to the chemo drugs so this isn't kosher - something is definitely wrong.

    Thanks for your support Froggy, can I call you Mommy now? lol. I'm such a wuss. lol Hope you have a good day Frogs.
  • bluerose
    bluerose Member Posts: 1,104
    jane65 said:

    Bluerose
    Hi Bluerose,
    This really stinks and now our president wants this bring this wonderful universal health care to America.

    Two years ago I saw my GYN who felt a lump on my ovary during an internal, I had a TVU and CA 2 days later, saw a GYN/ONC surgeon within a week, and surgery a week later. Port installed and started chemo a month later.

    What you are going through is criminal, considering the cancer is growing unchecked, is there any chance that you have friends or relatives in the States and could hop over the border for medical care?

    I wish someone in the White House could read your frustrated post.


    I don't know what to tell you, never having faced this situation, it's just horrible for you.
    Best of luck,
    Jane

    Hey Jane
    President Obama met with our Prime Minister Harper not long ago and I'm sure they compared notes pertaining to health care and I see that Obama is supporting our kind of plan but there could be differences he implements which make it easier and more efficient - no idea. How long can a free health system really last though? Like I said before with baby boomers starting to creak at the joints this is just getting worse and we sure see a difference in our health care from even 6 years ago. Over crowding everywhere and longer waits. It is frightening especially for those with serious life threatening conditions.

    The way you were treated after finding a lump should be the way everyone is treated if cancer is even a possibility but that's not happening here at all and frankly I am shocked. I just can't believe that the old 'get it seen quick and diagnosed quick' attitude is just a faint memory now here it seems.

    The thing that is so hard to put out of my mind is that yup I was told it's growing (whatever it is) and in no uncertain terms - but can't see you for 3 months - 2 at the earliest if I have to go with a surgeon I am not too sure of. I really still can't believe this is the situation.

    Today and tomorrow I will call back to the Gyno's office for the late Oct appt to see if I can get an earlier appt but if the paperwork isn't in I will just have to keep calling. Because of the ever increasing pain though I know I will wind up going to the ER, if not today then tomorrow for sure. Don't want to wind up in the ER on the weekend with only residents on duty for the most part. There is a covering doc to supervise of course but still I don't want the hastle so I may go today.

    Thanks for your words of support Jane, I truly appreciate them. Blessings, Bluerose.
  • bluerose
    bluerose Member Posts: 1,104
    mopar said:

    I FEEL YOUR FRUSTRATION!
    Dearest BlueRose:

    There are some in the US that think this type of health care will be a good thing. I have heard countless, countless horror stories such as yours. While nothing is perfect, I can assure you I fear for the day we might adopt a health-care plan such as this. Heaven forbid!

    All of what you are going through sounds so irrational and inhumane. I don't even know how health practioners can have a clear conscious knowing that many people with serious, immediate health needs are put on the back burner. And once you do get the care, how do you know you're getting good, realiable care? I know you're aware of all of this already - guess I just wanted to share space on your soap box!

    Anyway, I was also going to suggest that you see someone here in the states. I live in Michigan, so I'm right near the Canadian border and I'm fully aware of many people who come here for their doctor visits, tests, treatments. People go to other countries all the time for treatments and care that they believe is better than what they are receiving. I'm not familiar with how it works, if you need a referall, etc., etc. But it's worth looking into.

    I'll pray for the best for you that doors will be opened so that you can nip this in the bud right now. I hope you also can find some relief from all this axiety. I know your health and life are at stake, and it's all easier said than done. Come here and vent all you want. There are lots of shoulders here to lean on. Keep us informed.

    Hugs & Prayers,
    Monika

    Hey Mopar - get out of my head will you? lol
    Sheeesh Monika you are saying what is in my head exactly with the way the health care system is up here. Now first, after saying that, let me qualify that by the fact that I am so happy that we do have FREE medical care in many ways because without it I certainly would not be sitting typing to you here right now. I would have been 20 feet under long time ago after having a bone marrow transplant and many many many other procedures and diagnosis and specialist appointments - all free up front. I know that in the states people die all the time because they can't afford to see a doctor and here we pick up the phone and make an appointment and go in and that's that - no worry of putting out a buckereeno or 2. However, after years and years of footing the bill we now find ourselves here - where we pick up the phone to get the care we need and we have to wait a month for the appt, regardless it seems of why we need to see our docs. What's the right way to handle health care? who knows, I wouldn't want the job of trying to figure that out either.

    About you wondering how health care providers can go on with a clear conscious about leaving those in need waiting I hear you there. Actually I have had this GP for going on 28 years and the difference in her office from just say 7 years ago and today is night and day. Just overcrowded and the appts are limited in time to 15 minutes tops whether you have a zit or cancer. Hmmm, if you can rationalize that let me know. When you go over the time limit you are made to feel rushed and the doc stands up to go even if you aren't finished and it isn't about yapping about the weather, for heavans sake, its point by point medical issues, prescription refills etc. - some are just more complicated than others. Now my GP doesn't stand up and start to leave, she is much more empathetic but I feel a change in her too because she is just swamped, she has no choice. I get that but I have to take care of myself too. This is a whole situation in itself - the complicated patient vs straightforward one health issue patients and how they are treated and supported today. Don't get me going on that too. lol.

    Oh there are lots of Canadians going to the states for care. Unbelievable. I sure can see why. However like many of them I just can't afford it also I would be nervous about travelling with my heart condition being what it is, getting sick in the states scares the heck out of me because of the service for pay system. Not possible but thanks for the suggestion.

    Thanks for the support and suggestions, I appreciate them. Blessings, Bluerose
  • jane65
    jane65 Member Posts: 277
    bluerose said:

    Hey Jane
    President Obama met with our Prime Minister Harper not long ago and I'm sure they compared notes pertaining to health care and I see that Obama is supporting our kind of plan but there could be differences he implements which make it easier and more efficient - no idea. How long can a free health system really last though? Like I said before with baby boomers starting to creak at the joints this is just getting worse and we sure see a difference in our health care from even 6 years ago. Over crowding everywhere and longer waits. It is frightening especially for those with serious life threatening conditions.

    The way you were treated after finding a lump should be the way everyone is treated if cancer is even a possibility but that's not happening here at all and frankly I am shocked. I just can't believe that the old 'get it seen quick and diagnosed quick' attitude is just a faint memory now here it seems.

    The thing that is so hard to put out of my mind is that yup I was told it's growing (whatever it is) and in no uncertain terms - but can't see you for 3 months - 2 at the earliest if I have to go with a surgeon I am not too sure of. I really still can't believe this is the situation.

    Today and tomorrow I will call back to the Gyno's office for the late Oct appt to see if I can get an earlier appt but if the paperwork isn't in I will just have to keep calling. Because of the ever increasing pain though I know I will wind up going to the ER, if not today then tomorrow for sure. Don't want to wind up in the ER on the weekend with only residents on duty for the most part. There is a covering doc to supervise of course but still I don't want the hastle so I may go today.

    Thanks for your words of support Jane, I truly appreciate them. Blessings, Bluerose.

    Bluerose
    Hi Bluerose,
    I find your situation so frustrating, and the whole universal healthcare system frightening.

    I understand a petition is being circulated in Congress, asking each senator and congressperson, to agree that if this passes in the U.S. that they will agree to drop their excellent medical coverage, and take what they're wishing on us.
    Guess what? None of them have signed the petition!

    I just don't know what to tell you regarding your condition, the damn cancer may be growing in you while the medical profession sits by.

    I can only hope things get started for you soon.
    Jane
  • jane65
    jane65 Member Posts: 277
    mopar said:

    I FEEL YOUR FRUSTRATION!
    Dearest BlueRose:

    There are some in the US that think this type of health care will be a good thing. I have heard countless, countless horror stories such as yours. While nothing is perfect, I can assure you I fear for the day we might adopt a health-care plan such as this. Heaven forbid!

    All of what you are going through sounds so irrational and inhumane. I don't even know how health practioners can have a clear conscious knowing that many people with serious, immediate health needs are put on the back burner. And once you do get the care, how do you know you're getting good, realiable care? I know you're aware of all of this already - guess I just wanted to share space on your soap box!

    Anyway, I was also going to suggest that you see someone here in the states. I live in Michigan, so I'm right near the Canadian border and I'm fully aware of many people who come here for their doctor visits, tests, treatments. People go to other countries all the time for treatments and care that they believe is better than what they are receiving. I'm not familiar with how it works, if you need a referall, etc., etc. But it's worth looking into.

    I'll pray for the best for you that doors will be opened so that you can nip this in the bud right now. I hope you also can find some relief from all this axiety. I know your health and life are at stake, and it's all easier said than done. Come here and vent all you want. There are lots of shoulders here to lean on. Keep us informed.

    Hugs & Prayers,
    Monika

    Monika
    Hi Monika,
    You expressed everything I'm feeling so perfectly.
    This poor kid, just wants someone to help her.
    Jane
  • bluerose
    bluerose Member Posts: 1,104
    Cindy54 said:

    Your History
    I had a second thought....with your history, why would they not just do a hysterectomy? Sorry if this sound really stupid, but if someone had the history you have and they develop new problems with equipment that is not vitally necessary, why would they not do this? Cindy

    Don't know
    From what I understand they are still hoping this thing in my ovary turns out to be a cyst and it isn't til they biopsy it by removing the ovary that they will find that out. The Gyno said that they won't do big removals in this surgery, maybe she doesn't do that, so I think that if it turns out to be cancer God forbid then I will have another surgery possibly for a full hysterectomy, not sure. Step at a time I guess. I guess also it's a pretty intensive surgery to do the full surgery so if I don't have to have it then I guess they feel it's better this way in investigation first.

    I'm just guessing though. Thanks for the comments though. Blessings, Bluerose.
  • bluerose
    bluerose Member Posts: 1,104
    jane65 said:

    Monika
    Hi Monika,
    You expressed everything I'm feeling so perfectly.
    This poor kid, just wants someone to help her.
    Jane

    What a wonderful site this is because .....
    Jane just called me 'a kid'. lol. Ahhhh feels so good too. lol.

    All I want is for someone to help is right but this board is doing that in emotional support and suggestions that are very useful and for that I am very greatfull.

    Today I had deadends again in getting further ahead but like I said before now I have a plan D. lol. I am going to stay home tomorrow rather than going to the ER for the ongoing pain as we are having high humidex readings here and I can't leave my cats alone with no air conditioning for 9 hours while I am in the ER, could be that long. I'm not going to any ER on a weekend either when residents run amuck, lol, and Monday is a high humidex too so I am going to wait til Tuesday or Wednesday to go. However, first thing tomorrow morning I am going to call the 2 Gynos I have on the burners, the first one who is still moving ahead with a September surgery date and the second opinion Gyno who supposedly can't see me til Oct 21st and now I can tell them of the more severe pain I am in and the next step will be the ER so maybe that will help.

    I take slow acting morphine for another back issue I have, degenerating disc disease, and it dawned on me that maybe I could take some fast acting morphine that I have for breakthrough pain (all within prescription limits of course) for this new back pain that's different and it worked. Whew. I know that's no answer but in the short term until I can get to the ER at least I will be able to function cause so far I have been doing nothing much but write on these pages for a bit each day and lie down and watch the tube the rest because of the pain, oh ya and sleep when the pain eases for a minute or two. At least there is some temporary relief.

    Anywho I had better get myself into bed. House will be on soon, just what I need, more medical speak. lol. Oh well let's face it, if we are hooked on House it's because of Hugh Laurie anywho, that should take my mind off things. lol.

    Thanks again for all your support, it means so much. AND I was called 'kid' as a bonus. Yay. lol. Blessings, Bluerose