Cancer Survivors Network

I am new to the forum, and have mostly just read others post about their treatments and how they cope with the various forms of cancer they have.

I am amazed at the courage, strength and hope shared here. I have found that the worst part of having cancer is not knowing if you will ever be completely free of it. Every little ache and pain you have afterwards worries you, and can actually make you sick from the stress. It's hard to be positive every day when filled with fear and exhaustion.

In 2005 I was diagnosed with endometrial cancer and had a complete hysterectomy. I didn't have to have any radiation or chemo afterwards, and my regular 3 month pap smears for the next 3 years always came back clear.

Then in January 2009 I started having intense abdominal pain, and thought it was the small hernia I had had for many years causing it. An ultrasound seemed to support this, and even a CT scan before surgery was inconclusive. I went into surgery thinking it was a hernia repair, and the doctor found a golf ball size tumor on the inside of the abdominal wall that turned out to be malignant. He said he had never seen a tumor in that area because it was closed off from the rest of my body and organs. Honestly he was baffled by it.

When he received the pathology report on it, and compared it to my endometrial cancer, they both had the same pathological makeup. To this day he cannot explain how cancer cells from the endometrial cancer got there. I was fortunate in that the follow up PET scans showed no further cancer cells anywhere else. I underwent 5 weeks of radiation therapy, which ended in early May, and awaiting a follow up PET scan in August.

I had some recent stomach pain and had an ultrasound which came back fine, but as I noted above, every little pain you have scares you to death.

I knew in my heart before surgery this time that it was something besides a hernia, so when they told me afterward it was cancer, I didn't freak out and wasn't really surprised. But I did feel in my heart that the doctor got it all out, and was at peace with it at that time. I have tried to hold on to that positive feeling I had then, but it gets difficult when I am exhausted, scared and frustrated that I cannot do the things I used to do.

I am blessed in so many ways, that I didn't have to do chemo, that all tests and blood work have been normal, and that I have a wonderful supportive family and friends.

But at times, in the dark late at night, it's like a giant weight on my chest and I feel like I can't breathe. I hate feeling sorry for myself, when so many are so much worse off than me. I am in awe at the bravery I saw every day from the men and women I have met battling this evil. I wish I could be stronger, and most of all, I wish I could live one moment without the C word intruding upon my thoughts.

I am sorry if I rambled on....it feels good to put it on paper (so to speak). Thank you for listening and God Bless each of you in your path to wellness.

Linda