CSN Login
Members Online: 10

Post chemo PET/CT scan

deanna14
Posts: 738
Joined: Oct 2008

Well, I had my end of treatment PET/CT scan last Wednesday and a follow up appt. with my gyn/onc today. There are 2 suspicious periaortic lymph nodes found. They were not there on the CT scan that I had less than 3 months ago. I am scheduled to have a CT guided biopsy on Thursay. I am sad, mad and scared out of my mind!! It has been less then 1 month since my last chemo.... how can this be happening??!! Doc says it might be something else, but more than likely it is the cancer. I just can't believe that this is happening.... I HATE CANCER!!!!!!!!!!!!!!!

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Oh, Deanna, this just has to turn out to be nothing! You just came out of chemo; it's waaaaaaay too soon for anything to be making mischief! I'd be more afraid for you if 6 months had come and gone, but surely nothing could be happening this soon after chemo. This just has to be one of those things where you look back and say "I was sooooo scared and then it turned out to be nothing." ((((((((Deanna))))))))) I'm sooooooo sorry you are going through this

I'm not sure what or even where 'suspicious periaortic lymph nodes' are. Where will the biopsy be, and how invasive a procedure is that?

I've never had a PET-scan, and now I am not so sure I want one. Ignorance is truly bliss apparently. I was just popping in to post (primarily to YOU) that I broke the rules and COLORED my chemo crewcut with a 'rinse' that washes out in about 3 weeks. Still a crewcut, but now an AUBURN crewcut. Kinda seems lame now that I was so excited. BIG HUGS, Deanna, big big hugs.

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Deanna....I can't even imagine the anguish you must be experiencing. I am praying that is will turn out to be "false alarm" but know the thoughts that must be going through you head. Will be thinking of you and sending very positive vibrations..... You have been through ENOUGH.

thank you
Posts: 77
Joined: Jun 2009

Please, don't forget my mom's story. She had an MRI and PET scan showing suspicious mass, had surgery and turned out to be just inflammation. These false alarms DO HAPPEN very frequently.
You will be posting wonderful news in a few days, I KNOW IT!!!

We are all with you.
Chrysoula

Ro10's picture
Ro10
Posts: 1481
Joined: Jan 2009

I can understand your feelings. It must be scary to get that news. I pray that it is just inflammation. I had the CT guided aspiration of the fluid in my abdomen. I was hoping for conscious sedation for the procedure. But all they used was local anesthetic. It did burn when he put the lidocaine in deeper, but just briefly. NOthing else bothered me. There was a nurse I knew with me which helped. She said she could give me something IV if I was uncomfortable. I worried about the procedure, but it was not so bad. Think positive. You will definitely get some extra prayers. In peace and caring. HUGS to you.

Auntie Shelly
Posts: 10
Joined: May 2009

I'm with you.... I HATE CANCER TOO! Sending good thoughts and prayers your way!

Teresa 61's picture
Teresa 61
Posts: 84
Joined: Dec 2008

I must of read and reread your post 5 times to make sure I was comprehending what you wrote. My heart feels so heavy, will say special prayers for you. Hugs, Teresa

deanna14
Posts: 738
Joined: Oct 2008

I hope I didn't upset or bring anyone down, but I knew I could come here and vent my feelings. Thanks for always being here and being supportive.

The peri aortic lymph nodes surround the aorta, above the belly button. If I know Linda, you have already done your research and can probably teach me more than my doctor could yesterday! LOL. I didn't hear much of what he said after he told me the 2 lymph nodes lit up on the scans.
I am sure the biopsy on Thursday will be like the procedure Ro described. Sounds kind of painful, maybe I can talk them into some Valium or something. I'm surprised my doctor didn't tranquilize me in the office yesterday. I sort of had a meltdown! My whole body went numb, like the blood rushed out of my arms and legs. I nearly passed out! I never imagined that it could/would come back so quickly. I just hope and pray that it is not the cancer and just inflammation!
Thank you all for the thoughts and prayers.

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

Can't find the words to try to calm and help you. I remember how hard it was to sit and wait in the Dr office for the results of the first few scans. I felt like my heart was hammering right out of my body... now you have had to experience bad news so soon.... the anxiety of tests and more waiting for results. It is so hard to focus on anything lighter, but know that you are in HIS care. Remember when it was the worst for me? I asked if only I could be here for my little girl... then I HEARD the three words that will always be first in my mind when in doubt.... "AND YOU SHALL." Deanna this is probably the hardest part of your journey please know you do have HIM and us to hold you and carry you. I pray this is part of the false postitives these PET scans are so famous for. You are ready to beat this. Love, hugs, and HOPE.

bonniesue
Posts: 126
Joined: Apr 2009

Deanna, my prayers are with you. There can be scar tissue from radiation and surgery so just thinking how much you have been through and letting you know you are in my thoughts and looking at this as a be safe type of deal.

shortmarge
Posts: 296
Joined: Nov 2008

I will be praying that this is nothing. I HATE CANCER TOO!!!!!!

Many, many, many cyber hugs.

MIND, BODY AND SOUL!

Hugs.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

You're right; you know me so well; I researched all I could find on computer-guided CT biopsies and about the lymph node system. And I thought of you all evening, and the points made in the other posts from the community here have comforted ME, and so I hope they have also re-ignited that little flicker of hope I know never goes out in your heart into something warming and sustaining for the days ahead of waiting.

My oncologist said that he strongly discourages the use of PET-scans for uterine cancer monitoring because of the high number of false-positives, higher than he finds acceptable for reliable diagnosis. I have always wanted one anyway, but not so much now that I see and relate to the agony that your PET results are putting you through. (I read on the Ovarian Cancer Board about the size of the grid used even for the CT-scans, and there is actually some rationale in using the .5cm (CM) grid for that same type of reasoning, since the tiny "mm" nodules like the one that showed up in my lung with that super-fine CT-scan grid are so often NOT cancer and cause unproductive worry and even unnecessary treatments.)

False positives are as terrifying as a real diagnosis. ((((Deanna))))). I really do believe that this is a false positive for you, Deanna. It's just too soon after chemo for anything to be happening, and you had all that pelvic radiation that surely zapped the heck out of anything lingering in those lymph nodes. It's probably imflamation or scar tissue from the radiation that's flared up because your immunity was beaten down in chemo, something like that. I know that you will reach down deep and find that calm place. You are a strong woman.

deanna14
Posts: 738
Joined: Oct 2008

Yesterday was such a shot and my mind and body were numb with fear. I will get through this no matter what the results. I too am praying for the false positive result for both of us. I know you have several more weeks before your scan, but I hope and pray that the "nodules" on your lungs are nothing as they keep telling you.
We can never give up that glimmer of hope. I believe that we are going to beat this. I believe that the Lord is walking with us on this journey and carrying us through during the times that we need him to. I know that he has a plan for our lives and I choose to believe that our work here on earth is not complete.
Thank you again for being there and the encouragement you all give.
Hugs and prayers,
Deanna

bonniesue
Posts: 126
Joined: Apr 2009

Deanna, As an aside a radiologist friend of mine says that the most sensitive is a PET/CT overlay is more sensitive than just a pet and also the risk of scar tissue showing up as a false positive done close to radx and or chemo and or surgery. Prayers for you.

deanna14
Posts: 738
Joined: Oct 2008

I think they did a PET/CT overlay. My last chemo was on June 10th, but my last radiation was in December 2008 and my surgery was in September, 2008.
Thank you for sharing what your friend told you... I am praying so hard that it is just something like that! It is too scary to think it is a reoccurance already! I will fight it if I have to, but I'm trying not to get too hyped up until we find out the biopsy results.
Thank you for the prayers.
Prayers and Hugs to you too!

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

I can't believe sometimes what we go through! when I had breast cancer they thought I had metastasis in the back. It turned out to be arthritis. That was ten years ago. Tests are very imperfect. You are in my heart.

cookie1948
Posts: 79
Joined: Feb 2009

Deanna,
I wish you well and hope everything goes smoothly. I am with the others. I just can't believe this is cancer. I don't believe it is. I was so sick to hear what you are going thru. God Bless You, keep the faith like you are, and i want you to know how much i admire you. I hadn't been online for a few days and was shocked to see your post!! You are surely in my thoughts and prayers.
Cookie

thank you
Posts: 77
Joined: Jun 2009

oncologist in Boston who is specialized in uterine cancer is AGAINST any imaging after treatment, unless there are symtpoms. This is what he recommended for my mom. I did not listen, and she had MRI, then PET scan, then surgery... only to find that she had scar tissue. I still don't know if I did right or wrong. This finding really hit her hard as she thought she had recurrence. Now it will take time for her to find again psychological balance... On the other hand, IF she had local recurrence detected without symtpoms she would have a good chance for cure....
So, I have no idea what to say. I think its worth the anxiety if you have the oportunity to fight. But then can you do that every 3 months? What if each time something is found?
I don't know.... I would like to hear your thoughts

deanna14
Posts: 738
Joined: Oct 2008

I thing I would rather risk the anxiety and the biopsy to find it is false positive. Because if it is positive, I know that it was not there when I had my last CT 7 or 8 weeks ago. The sooner it is found, the better chance I have of successfully fighting it... right?

thank you
Posts: 77
Joined: Jun 2009

Right!!
This is what I would do.
In our case, I have to make decisions for my mom, she is very scared and always against any evaluation (imaging or laboratory). That's why I wanted to find out what you think.

bella09
Posts: 37
Joined: Mar 2009

I am sorry for your news. I am also praying that it is a false/positive result. Linda had stated that it is too soon for anything to show up this early after treatment, and I pray that is the case with you. Think positive that you will have good news on Thursday. You are in my prayers. I also hate CANCER.

Jean

Katrinka123
Posts: 54
Joined: Jul 2009

I am going to just believe that this is a false positive of some sort. Prayers for lots of strength for you while you wait!

-Kat

nursey420's picture
nursey420
Posts: 53
Joined: Mar 2009

but there are lots of false positive so we will just say our prayer that is what you have Keep us updated
Take care Lisa

deanna14
Posts: 738
Joined: Oct 2008

Thank you to all of you who have responded to my post. I truly does help to have you here and hear you words of encouragement. I know that you understand, truly understand my anxieties.
Thank you so much!

Ro10's picture
Ro10
Posts: 1481
Joined: Jan 2009

Extra prayers are coming your way to help you get through this day. I am praying that it turns out to be scar tissue or inflammation or something non cancerous. We will be waiting to hear your results......whenever that is. Don't know if they will do a frozen section or if you will have to wait days for results. Whatever the waiting will be terrible for you. You know God has a plan for you. You have been so brave and courageous. I pray for extra strength and courage for you to make it through this bump in the road. In peace and caring. HUGS to you.

deanna14
Posts: 738
Joined: Oct 2008

You are a very special lady! Here you are going through everything you have gone through lately and still able to provide encouragement to me. Again, thank you so so much.
I hope they do a frozen section, but the doctor didn't say. The interventional radiologist is the one performing the procedure, so I guess we will know more in the morning. I actually feel pretty positive about all of it, now that the shock has worn off. Just 7 weeks ago, there was nothing on CT... And only 4 weeks since my last chemo! How could it be cancer already? Unless it's not sensitive to carbo and taxol? Too many questions. I know the Lord has a plan for us all.
Love and hugs,
Deanna

Pat from MN
Posts: 9
Joined: Jun 2009

I pray that this will turn out to be a false positive and you can get on with your life. Cancer does have a way of throwing curveballs at you. With my first cancer ten years ago, I had a scan that showed something but it turned out to be scar tissue so lots of worry for nothing. This will be the same, I am sure. Just keep the faith and I will continue to pray for you.

Pat

islgirl
Posts: 4
Joined: Jun 2009

I hope that when the biopsy is done tomorrow the results will be great. I will be praying for you. Trust God and he will deliver.

Deblittleton's picture
Deblittleton
Posts: 56
Joined: Feb 2009

I am praying and thinking positive that your biopsy with come back negative.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

It's going to end up as nothing; I just know it. But I want you to know that you are in my prayers and thoughts and heart and that I will be 'on vigil' with you as you await the results. You and I have held hands since the beginning of our cancer journeys. You started out one month ahead of me, and have been such a resource for me, always just having experienced what I was next facing. Then you did radiation first and I did chemo first, and so we each had experiences to share to prepare the other. With Marge and Peggy, the 4 of us got through all the newness of our shared diagnosis. Then one by one, we all came out on the other side of treatment. And again, you are just one month ahead of me, entering the scary world of post-treatment monitoring testing. I'm right behind you, kiddo. Just reach back for my hand if you need me.

I read something nice in an email today (Poet unknown) :

As children bring their broken toys
with tears for us to mend,
I brought my broken dreams to God
because He was my friend.
But then, instead of leaving Him
in peace to work alone,
I hung around and tried to help
with ways that were my own.
At last, I snatched them back and cried,
"How can You be so slow?"
"My child," He said. "What could I do?
You never did let go."

Give it up to God tonight, Deanna. You're tight in His grip.

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

It's Wednesday night - I am thinking how I hate that you are going through this tonight. You have been so strong Deanna. I am so hopeful for you. My docs don't recommend the PET scan and I wonder if it because of all these false positives? Sending prayers.

deanna14
Posts: 738
Joined: Oct 2008

Thanks for all of your thoughts and prayers. Getting ready to head to bed for an early morning. I will let you know the results as soon as I know. Praying for the false positive!!!
Love and Hugs,
Deanna

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

It's the evening after your procedure and I hope everything went well - prayers have been headed your way since your announcement.

Re: PET/CT. My oncologists use it alot but I learned that others prefer CT. I do think that my original PET was a false positive - I was lit up from head to toe!! This created great anxiety throughout my treatment. When I finally got the follow-up it was all negative. Getting these tests too soon after a procedure leads to the false reading due to likelihood of inflammation or healing. It's hard to know what is best and hopefully our doctors are doing the best.

Deanna, I'm anxious to hear how things went for you. Keep your fighting spirit and imagine your white cells continuing to win the fight against those cancer cells.

God Bless,

Mary Ann

deanna14
Posts: 738
Joined: Oct 2008

Well, the procedure is over and it really wasn't too bad. I remember it hurting for just a second. When I said ouch, the nurse gave me more sedation. So I have been napping on and off since we got home. Now we wait.... until next week to find out the results of the biopsy.
Thank you so much for the prayers and positive thoughts! It means a lot to me.
Talk to you soon. ;)

bonniesue
Posts: 126
Joined: Apr 2009

I am glad the procedure went well and am praying that the biopsy is negative. Waiting is the worse of it but I am sending positive thoughts to you and your family.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Deanna,

Hope you do something fun this weekend to distract yourself!! I have figured out that the Good Lord decided I needed to learn patience. What a tough thing!!

Blessings to you all,

Mary Ann

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I'm so glad the test procedure is done. Now the wait. (((((Deanna))))). You'll be singing that Tom Petty song in your head all week until you get the good news that all is well.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I'm so glad the test procedure is done. Now the wait. (((((Deanna))))). You'll be singing that Tom Petty song in your head all week until you get the good news that all is well.

deanna14
Posts: 738
Joined: Oct 2008

I have been too busy to worry about things like cancer this weekend! LOL. Tomorrow is my dad's 68th birthday, so we have been celebrating all weekend. Actually, my husband called the doctor's office on Friday and they are supposed to call us on Wednesday afternoon. He was concerned the doctor would call me while he was at work. If the news is not good, he did not want them to tell me while I was alone. I think this is a good idea.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network