Jun 30, 2009 - 7:43 pm
Had my loading dose of Erbitux yesterday. They gave me a small bag of Benedryl first, and it knocked me out for 2hrs. Nothing seemed to bother other than being tired.
Today was a full day. Had consult with PEG doc, then got head rest and mask made, and CAT scan for mapping. The PEG doc had set me up for tube on Mon. at 8am, so went and got blood work and EKG done for that. Unless someone comes up with something new I'm off 'till Mon.
Didn't have any problem with the mask. The tech. girl said it would feel like a warm facial (which I've never had) so I just kept my eyes closed and didn't have any problems. Of course I'm not claustrophobic. If it had been my wife they would have had to knock her out.
I was supposed to have 2nd dose of Erbitux Mon., but that's on hold right now, so don't know when I'll start radiation. They had started out saying that I'd start on Mon.,but now have to do mapping, then dry run. Hope they put it back a couple of days after the PEG tube.
Met a guy yesterday at infusion center that will be done next Tue. He went through 35 treatments and Erbitux. Pet scan showed there was still some in lymph nodes so getting more treatments, can't remember how many, but 2 times a day. He told me quite a lot and was sipping water steady, so that made me feel better too.
Well hang in there everyone!!!