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Got admitted to hospital today

Ro10's picture
Ro10
Posts: 1428
Joined: Jan 2009

This has been a bad week since Sunday. First the vision problems. Had some abdominal tenderness starting on Sunday, too. Thought it was from the constipation. I don't usually have problems with constipation. MOnday and Tuesday I was sooo tired, and cold. Wendesday I checked my temperature becuase my husband said I felt warm. I did have a fever and was able to get it down with drinking lots of fluids. It was down all day Thursday and went back up Thursday night. I still had a temp Friday morning, so I went to see the onocologist. I was afraid I would have to go to the hospital, and I did.

My WBC was 2.0. It really dropped since my chemo. The onocologist said that is not unusual after radiation. I was really surprised that it dropped that much. I am getting Neupogen every day to bring up the WBC count. I am also on 3 different antibiotics. That part is scary for me as I have so many allergies, and I have not had any of these drugs before. Hope I tolerate all of them.

My fever has not been above 100 today, so I am feeling much better tonight. I just hope the hospital stay is not too long. Had a CAT scan tonight, blood cultures, urine cultures, and a chest x-ray. Hope they come back negative.

After the next chemo they will give me Neulasta a day after chemo, to hopefully keep this from happening again.

Hope all is well with all of you.

Teresa 61's picture
Teresa 61
Posts: 84
Joined: Dec 2008

Oh Ro! so sorry to hear all this is happening to you. It all sounds pretty scary. Our bodies are so vulnerable to all this new stuff we are putting it through.Hope your hospital stay is very short and that you will be feeling better real soon.
Special prayers will be said for you tonight.... hugs, Teresa

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

Saying a special pray for you. Feel better soon!

Hugs...

deanna14
Posts: 734
Joined: Oct 2008

I am sorry to hear that you are in the hospital. Just rest and concentrate on letting you body heal. Hugs,
Deanna

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Ro,

I am so sorry to hear about your hospitalization. Am praying it will be short and that all of your tests turn out o.k. Our bodies can do amazing things to respond to the onslaught it suffers! Hang in there!

jjmb126
Posts: 15
Joined: Jul 2004

Seems like you have a very caring attentive husband there -kudos to him for watching out for you. Hope this is just a glitch and that you out by the time you read this.

cookie1948
Posts: 79
Joined: Feb 2009

Ro,
Hope your stay is short and everything turns out well. Sorry to hear you were feeling so sick. Get well soon and my prayers go out to you!! Hang in there, you are so strong.
Cookie

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

let them take good care of you. Rest and you are where you need to be. We are thinking of you. Rest and let the body heal. It's a little set back but you'll be back on track soon. prayers and hugs.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

It sounds as if you are getting excellent care, Ro, and they are on top of things, so please don't be too worried. The radiation can really compromise your bone marrow for awhile, and hopefully by the time you have your next treatment you'll be more recovered, especially with the extra meds. I hold you in my prayers. BIG BIG HUGS!

bonniesue
Posts: 126
Joined: Apr 2009

sorry you are not feeling well and I will say a special prayer for you tonight. God bless and feel better soon.

bella09
Posts: 37
Joined: Mar 2009

I am sorry to hear about your hospitalization. I am praying that you will be better and home soon. I am so glad that you have such a supporting husband.

Jean

Ro10's picture
Ro10
Posts: 1428
Joined: Jan 2009

I had 2 shots of Neupogen and my WBC went from 2.0 - 6.3. That is a wonder drug. So I got to get out of protective isolation today. Am still getting 3 different antibiotics with no apparent reaction to any of them. Yesterday I had terrible back spasm in the mid back. Tyelonal did not touch the spasms, so I got a stronger pain pill. It did take care of the back spasms. The doctor on call yesterday did not think it was from the Neupogen, but my regular onocologist said she thought it probably was from the Neupogen. I was glad to hear that so I don't have to worry about being allergic to one of the antibiotics. Everyone said people complain of "bone pain", This definitely was not bone pain.

MY CAT scan showed a "fluid accumulation" in the lower pelvis. So tomorrow I will have a CT guided biopsy for them to drain it, and see if it grows anything. I also asked about a PICC or port being inserted, as it is taking multiple sticks now for lab and IV starts. The doctor thought a PICC would be better, as I only have 2 more chemo left. I am looking toward the future with repeated CAT scans, lab draws and heaven forbid "high liklihood of reoccurence", so I am opting for the PORT. Don't know if that is the right decision, but it feels right to me today. Plus the idea of the port being under the skin, and the PICC being outside, I think I will like that better, too. Someday I hope to get back to gardening and don't want to worry about damaging the PICC line.

I will be here for a few more days to get the IV antibiotics. Thanks for all the thoughts and prayers, they are much appreciated. IN peace and caring. HUGS to you.

seably's picture
seably
Posts: 29
Joined: Jun 2009

Dear Ro,

I've read your many helpful and inspirational posts. You given me a lot of useful info - thanks.

Many prayers for your swift recovery.

Take care,
Stacey

pjba
Posts: 3
Joined: Jan 2008

Ro, So sorry to hear what you are going through. It is hard to be where you are now. We are all so vulnerable. I had just read a post about another gal who was dx with recurrence at the cuff and after all she went through to 'fix' it ... 'all' she had was scar tissue. You have a lot of prayers being said for you our sister. Hang tough and remember the unknown is many times the worst enemy. Please let me know if you can think of anything to help. I pray again that you will heal in Jesus name.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Just a bump in the road, Ro, but I still hate for you to be going through this. Glad the white count climbed so nicely!

I keep forgetting to compliment you on your astillbe in the background of your photo: LOVELY! Mine are also blooming here, but the plumes aren't as long and lush as last year so I know they need divided this fall for sure. You'll be out in your garden before you know it.

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

Take care Ro. You must be exhausted. You will be back soon in your lovely garden. Sending you warm wishes and strength.
Barb

nursey420's picture
nursey420
Posts: 53
Joined: Mar 2009

Ro
Hope you are doing better. Just rest and let the drugs work. PICC and Ports are a big thing but will make the blood draws and medication go better. Good Luck my prayer are with you
Lisa

Teresa 61's picture
Teresa 61
Posts: 84
Joined: Dec 2008

You are in my prayers... Teresa

deanna14
Posts: 734
Joined: Oct 2008

Good luck with the CT biopsy today. You just rest and let them take care of you and let your body heal. I think you will like the port. I am glad I got one, my veins were horrible before chemo. I can't imagine them trying to find a vein for chemo.
I am praying you will be on the mend soon.
Sending you love and hugs...

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

In my thoughts and prayers, Ro. Good luck with the CT-scan. Nag them endlessly for the results!! And then let us know.

; )

Ro10's picture
Ro10
Posts: 1428
Joined: Jan 2009

I had the CT guided aspiration of the "fluid accumulation" today. There was not much fluid there. Only about 1/2 teaspoon, but it was a light green color. The radiologist did not think this was the source of my fevers. But my onocologist came in this evening and said it was showing bacteria already. But it will be 48 hours for the final results.

I had a fever of 101 again last night. So I had 2 more blood cultures drawn. So far today the temperature has been down. My white blood cell count today was 13.5 (that high usually means an infection). So here I have gone from one extreme to the other. I am still on the 3 antibiotics. If I am not on the right ones when the culture from the fluid comes back, I will need different antibiotics. That will mean a longer stay here in the hospital.

Because of the fever last night I can not get a port inserted yet. Don't know when that will happen. It will be up to the infection control doctor to make that decision. So I am making small progress, but still have a ways to go.

Thanks again for all of your concerns. In peace and caring. HUGS to you.

Teresa 61's picture
Teresa 61
Posts: 84
Joined: Dec 2008

Was so hoping to hear you were out of the hospital when I got on line tonight. Sure hope it won't be to much longer till they find what works for you and you start feeling better and you get the heck out of that hospital. Stay positive you have alot of us praying for you.
Hugs.... Teresa

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

I am so sorry you are having to go through all of this. You are a strong women and I have you in my prayers.

MIND, BODY AND SOUL!

Hugs....

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Thanks for your update!! Hope the antibiotics are kicking in by now and that you are feeling MUCH better today and soon will be home!

Prayers and hugs!

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Hi Ro,

I've not been in the discussion for awhile. Sorry to hear of your hospitalization.

For what it's worth, I'm very happy with my port. At this point I am going to keep it in - not to be a pessimist, but to be prepared if I need it again.

I wish you a speedy recovery from this "bump in the road". Do you think the vision thing is related to this?

Hugs and prayers. Mary Ann

Deblittleton's picture
Deblittleton
Posts: 56
Joined: Feb 2009

Ro, I hope you are feeling better today and the antibiotics are working well. It is hard having to get stuck all the time for blood cultures and IV sites. I found that a PICC line worked just great for me. Just had it D/C's last week. It was in for 6 months without a problem. My husband helped me flush it every night to keep it patent. I was able to do everything with the PICC except bathing my arm under the water. When I showered I would wrap saran wrap around it. (Glad Press and Seal works the best!) If one has a PICC line, the dressing needs to be changed once a week by a nurse. She would put a piece of stockinet over the dressing so it would not catch on anything. The PICC line felt less invasive to me so that is why I chose it.
Hope you are home soon and feeling better.

Deb

Ro10's picture
Ro10
Posts: 1428
Joined: Jan 2009

Still in the hospital for a few more days (I hope). The fluid they took out of me is growing something. The preliminary report shows a bacteria that two of my antibiotics are recommended for. So hopefully they can just add a couple of pills and stop the IV meds. If I do not have a fever then I can go home after being on the pills for 24 hours. My last fever was Monday night at 101. Tomorrow they will have the final results and know which antibiotics the bacteria is sensitive to.

Because of the infection and the fever I cannot get my port inserted. I hope to come in Monday as an outpatient and have it inserted. They only insert Power Ports here. I did not know the difference between that and a regular port. The Power Ports can be used for CT scan injections where as regular ports cannnot. That will mean less sticks for the follow up CT scans every 3 months.

I am feeling so much better today. I have so much energy. They did not do a blood count today, which I do not understand, but maybe one tomorrow. They did draw a blood level for one of the antibiotis I am on, so I still got stuck today. I had to have a new IV last night, so there were two more sticks. They are running out of places.

My hair has not started falling out yet, but my head is hurting, so I know if will start soon and I will lose my "waves".

Thank you for all your thoughts and prayers. I do appreciate them. In peace and caring. HUGS to all of you.

deanna14
Posts: 734
Joined: Oct 2008

Ro, I am so glad that you are feeling better. Thank goodness they found the source of infection and are treating it appropriately. You are on the mend! I too had the telltale sign of losing my hair last Wednesday. Just that short delay in chemo, my hair had grown quite a bit and it is gradually getting thinner and thinner, the eyelashes are gone and the eyebrows are going. Soon you will be finished with treatment and your waves will grow back. I think you will like the port over being stuck so many times.
I had my 3 week post chemo follow up PET/CT scan today. Glad to have it over and hope to hear some results soon... praying for good news of course!

Linda, is that your new hair? It is beautiful! It doesn't seem like it took all that long to grow out. We have a high school class reunion this month and I am trying to work up the courage to go to it.

Hugs to all!

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Sounds like you are on the mend. I'm so glad! Rest as much as you can and keep us posted. You are in all of our thoughts and prayers, Ro.

Teresa 61's picture
Teresa 61
Posts: 84
Joined: Dec 2008

Will be happy when I hear you are resting comfortably at home.... Special prayers for you, Teresa

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Deanna: you asked about the hair in my photo. That's a wig. That photo was taken at the wedding I went to Saturday. The bride is the one person who cried the first time she saw my bald head because she felt so sorry for me. Although I never wear my wig anymore, it was a nice cool day, and I wanted to look my best, so I popped on the wig for the wedding. My real hair is finally thick enough to cover most of my scalp, but is still about 1/2" long all over, and still a strange mix of very fine curly white hairs and thicker straight dark brown hairs. I am at the "is-she-a-lesbian-or-does-she-have-cancer" hair stage. I just liked this photo so much, and I NEVER like myself in a photo. I look as happy as I honestly feel lately. But as soon as I get a good one that shows my new hair, I'll post it. WARNING: It's not NEAR as nice as my wig.

Ro: You're probably thinking, "enough about your HAIR already!!" HA! Sorry! Please post and tell us that they've let you go home and that you are much much better! In my prayers and thoughts, Ro.

Ro10's picture
Ro10
Posts: 1428
Joined: Jan 2009

I finally got to come home today on antibiotic pills. I take 2 different ones. One of them is in the same family of an antibiotic I got a rash from. The infection doctor said he has never seen anyone allergic to as many antibiotics as I am. Like he thought I was making it up. I don't know how I can make myself break out in a rash. If I did not try this antibiotic pill at home, he wanted me to come to the hospital everyday for IV antibiotics. I told him I would rather try the pill. So I am taking it with Benadryl. I hope it works, as I do not care to go back in the hospital.

I have to finish the 7 days of antibiotics before I can have my port put in. I am due for chemo next Wednesday, so I don't know what that means. My regular onocologist did not see me the last two days. From all my fevers and sweating I developed a heat rash, so I hope to have that cleared up by the time I get my port. It's just one thing after the other, but this too shall pass.

I feel good and it was so good to be outside today. I have lots of daylilies and they blooming now. It was therapy to go around and take off all the blooms that bloomed since Friday. The daylilies only bloom for one day, but have lots of buds so they bloom for a while.

About the hair........mine has started falling out today. My head has been tender to even lay on the pillow the last two nights, so I knew it was coming. I've enjoyed my waves while I had them. Now it will be back to hats again.

Thanks again for all the thoughts and prayers. They are much appreciated. In peace and caring. HUGS to all.

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

So glad to hear that you are back home....am sure you will rest much better and be much happier in your familiar and beautiful surroundings...Enjoy the flowers! And about the hair...those waves will be back. Hang in there!

Positive thoughts to you!

deanna14
Posts: 734
Joined: Oct 2008

Glad you got to go home and I hope you don't have any problems with your antibiotics. Being able to relax in your own home and the comfort of your flowers should go a long way toward healing. Sorry about the hair... soon it will be coming back in for good!
Love and hugs,
Deanna

Teresa 61's picture
Teresa 61
Posts: 84
Joined: Dec 2008

Ro, so happy to hear your home from the hospital.Hope the antibiotics work for you and you don't have any bad reactions from them. Hope you have smooth sailing for the rest of your treatments. Hugs.... Teresa

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Glad that you are back in your comfy surroundings. Rest and be well.

Mary Ann

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