CSN Login
Members Online: 12

Anyone have reaction to Aloxi?

Ro10's picture
Ro10
Posts: 1424
Joined: Jan 2009

For my fourth pre-chemo I got Aloxi for nausea instead of Zofran. The doctor says it lasts for 3 days, so it would have longer effect on the nausea. I had the pre-chemo on Wednesday morning. On Sunday when I was working outside I began to huge white spots in front of my eyes. My husband was with me, so he drove me home. I could only see white in front of my eyes on the way home. I laid down in the airconditioning. Everytime I tried to get up I would get these white circles in my eyes. This lasted until the evening. I drank fluids, and had no headache, so I don't know if it was the Aloxi, or the heat from that day. I thought if it was the heat, it would have improved in the air conditioning. I went to the eyedoctor today and he did not think it was anything to be concerned about. I have multiple allergies, so it would not surprise me if it an allergic reaction to something. No spots on Monday, but still did not feel good. I still have some nausea and aching in my joints today. Been taking tyelonal for the aching. This is the first time I have not felt good after my chemo. Only 2 more to go. Will see what the medical onocologist says about the Aloxi. Any comments would be appreciated.

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

I have a reaction to aloxi and Taxol. Aloxi ususally causes constipation; I have to take 1/2 dose and reglan and mirlax to have normal bowel function. Taxol can cause vision changes; especially with color vision. My kitchen is blue and when I came home after #4 it was purple. This lasted a few hours and went away and I attributed it to taxol. I would call my oncologist and run it by him/her. I get #5 tomorrow so I'll see what color the kitchen is!

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

I believe it was after my third chemo round I had what I'd call the kaleidoscope sight. It didn't last long, it also happened after my fourth too. If I recall I'm not the only one this site that it happened to. I don't have any problems anymore with my sight.

Hang in there, you're in my prayers.

MIND, BODY AND SOUL!

Hugs.

Ro10's picture
Ro10
Posts: 1424
Joined: Jan 2009

Marge I too had kaleidocope sight when they increased the dose of Taxol on my first treatment. It lasted for several hours, even though the remedicated me and slowed the rate to run over 4- 5 hours.

I had vision changes with HCTZ a blood pressure medication, too. So they determined I was allergic to HCTZ. I don't know if my BP got low and that caused the visual changes. I tried to have my husband check the BP, but he could not hear it. I could not see to take the BP. I guess I'll just monitor my BP for the next few days and see what happens.

We too have been having upper 90 -100 degree temperatures here in Illinois. Don't know what we would do without airconditioning.

Saw the radiation onocologist today. He won't need to see me for 3 months. Still does not have an answer for my nausea I am still having.

Thanks for your comments.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I really think this had more to do with my low hemoglobin & platelets during chemo, but when I was at my most 'wifty', deep into my chemo, I remember sometimes having floating small black spots affecting my vision. This went away completely when my counts came back up.

deanna14
Posts: 734
Joined: Oct 2008

I never had any problem with the Aloxi. I have however had vision changes, from what I am not sure. I am having focusing problems, for example changing back and forth from distance to close vision makes my vision blurry. More so in the left eye than the right. I don't know if it is from chemo or just a side effect of aging???
I did have similar symptoms after mowing the grass one day. I felt okay while on the riding mower, but when I got off and went in the house I felt bad and had spots in my vision. I attributed it to the heat. I felt bad all evening with chilling, nausea, dizziness and blurry vision. I just rested and felt back to usual the next day. I can't get my husband to let me mow the grass anymore, especially with temps in the low to mid 90's here in Missouri.
Anyway, maybe it was a combination of heat and the meds. Some medication warnings discourage being in the sun. My mother took tamoxifen after her mastectomy and her oncologist always told her to stay out of the sun. Maybe that was something specific to that drug, but perhaps carbo or taxol or the pre cocktail have the same warnings and no one told us????

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

how is our vision now Ro? I keep thinking about you. Let me know how it came out. %5 chemo I had no vision changes. excuse typos on chemo brain. Just your mother hen checking in on you.

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

Had chemo #5 yesterday and chemo brain is causing typos and poor sentence structure. Have been worried about your vision. Is it better? Just you mother hen checking in on you.

deanna14
Posts: 734
Joined: Oct 2008

Ro, I hope your vision problems are better. I am just wondering how long after the last chemo treatment one should wait to have an eye exam. I am 2 weeks out from the last treatment, so far I am still having issues. Also, I'm really bummed today as what little hair I had grown back is falling out... AGAIN! I know I should have expected it, but I was hoping that it wouldn't come out! Shed a few tears this morning. Sorry to be a downer, but sometimes it just feels like I will never wake from this horrible nightmare. I think I am a little anxious too b/c next week I go for my post treatment PET/CT. I guess I am grappling with figuring out how to cope with the anxiety over the possibility of reoccurance.

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

BIG, BIG, BIG CYBER HUGS!!!!

Teresa 61's picture
Teresa 61
Posts: 84
Joined: Dec 2008

Can relate to losing hair again Deanna. My hair was just starting to look almost presentable after my 3rd Chemo, Feb 17th, I then had radiation, May 18th I had my 4th chemo, my hair looks worse now then the first time it came out. It's thin and I have a receding hair line which I didn't have before, I look like something from a scarry movie. Like you , I feel the nightmare will never end. Will be glad when your post treatment PET/CT is over next week. I feel sure it will be fine, but know it is nerve racking to have these tests looming in our future. Seems it will never end. We just have to be happy that we have all this stuff to help us. 30 years ago we all would have been doomed...
Had my 5th chemo yesterday, 1 more to go! Ro, happy to hear you have your 4th chemo out of the way. Hope your not feeling to bad with your achy bones. For me that last about 6 days.
Hugs to All! Teresa

PSS ... My daughter Julie who is in the middle of me and my husband Buck in my picture will be 35 Monday . So hard to believe as she is my baby. So sad because more then likely I will not be feeling well Monday.

deanna14
Posts: 734
Joined: Oct 2008

Thanks for the hugs and encouragement. I know I am just having a rough day and that tomorrow will once again be brighter. My husband took me out to some yard sales and to run errands for a bit which helped. He took the day off today, funny how he almost knows before I do when I'm might have a rough day. I'm so lucky to have him and all of you! I really am grateful for each day and this too will pass. I will be very glad when the scan is finished and the results are in. As always, waiting is the hardest part.
Teresa, hopefully you will feel well enough to have at least a bit of a birthday celebration on Monday. I know how exciting it is to have just one more chemo to go. That is wonderful news.
Ro, I hope you are felling well... you are not far behind with finishing up your treatment!

Love and Hugs to all!

Ro10's picture
Ro10
Posts: 1424
Joined: Jan 2009

Hope you do well after you chemo. Maybe you can celebrate Julie's birthday on another day. I am sure you would like any day to celebrate.

My hair is coming in so good, I hate the thought of it falling out again, but that's all part of it isn't it.

Glad you only have one more treatment to go. I hope you can finish your treatment on schedule so you can move on with your life. It will be different not seeing a doctor so frequently, won't it. Good luck to you. HUGS to you.

Ro10's picture
Ro10
Posts: 1424
Joined: Jan 2009

My vision is back to normal. My blood pressure is running a little higher now, so I think it was extremely low that day.

Glad you got chemo number 5 out of the way. Hope you do well afterwards. I can certainly relate to chemo brain. Someday it will get better. Thank God for husbands who can still think and keep me on the right track. My husband has been so good this week. He just keeps telling me "it's a little bump in the road" I tell him I am not handling bumps very well. I have been extra emotional this week, I feel sorry for him. He is my ROCK/ HUGS to you

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

((((Deanna)))) I have talked to people newly out of treatment that say how strange it feels and how much harder it is in many ways to be done with the battle and out of treatment. That focus on 'the fight' that treatment requires gets blurry, and without the forward-into-battle action, you have to re-adjust your head all over again and find your new place. On Wednesday, I 'graduate' and will join those of you out-of-treatment. I think that then I will understand better what you are feeling these days. A new chapter. I know you'll get your head around the 'in recovery' / 'after the battle' new life and can be more consistently happy. You're on the other side!! You just have to believe it! And if GOD FORBIB anything pulls you back, well let's not go there unless it happens. Live in the NOW, kiddo. And if you figure out how to do that, please tell ME!! BIG HUGS.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network