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ess low grade

margew
Posts: 2
Joined: Jun 2009

Anyone with ess low grade taking megace. I was diagnosed with ess 18 months ago and after surgery have been taking high dose megace. Wondering beside the constant hunger what symptoms are you having?

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I see no one has answered your post. For me, it is because I am not sure what "ess" is. Can you please post again. Cancer has it's own lingo, doesn't it?

I know there has been past discussion on Megace. If you use the 'SEARCH' box on this page, and type that in, the earlier discussions on Megace should pop up. Best wishes & BIG HUGS!

jjmb126
Posts: 15
Joined: Jul 2004

endometrial stromal sarcoma which infiltrates the muscle layer of the uterus and makes the endometrium thick and "boggy," and builds polyp-type tumors.

linjay
Posts: 3
Joined: Feb 2012

Hi jjmb126

I have only just recently found this site and read your discussion. I was diagnosed in 2002 with low grade Endometrial Stromal Sarcoma and was treated with Megestrol. I had to have 264mg per day for the first year and was gradually reduced to 320mg daily and yes it does increase your appetite, so was grateful the dose was lowered. I still have annual check ups but that is all and fortunately the cells that were left on my bowel have stayed dormant up to now. It is nice to be able to contact somebody else with this as the cancer is so rare and not many people have heard of it. I have had 2 deep vein thrombosis since so am also taking Warfarin the blood thinners to keep them at bay. I started with a small red patch on both sides of my neck, which over time have now joined up and did get a lot of aches and pains in my joints, but these have subsided over time.

julia12756
Posts: 22
Joined: Jan 2012

Hi Linjay,

I joined this site first after also being diagnosed in Jan 2012 with High grade ESS which was changed to indeterminate grade. This site is great but I'd like to suggest another site to join also. The site is dedicated to all grades Endometrial Stromal Sarcoma (ESS) and Undifferentiated Endometrial Sarcoma (UES). While this message board has been wonderful in support, the yahoo group also has lots of information about treatments that you may find informative.

http://health.groups.yahoo.com/group/Endometrialstromalsarcoma/

Good healing to you,

Julia

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