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Firmagon (Degarelix) substitute for Lupron

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

After discovering this new gonadotropin drug I discussed taking this with my Oncologist and we decided to inject this in a week or two since my PSA doubled from 2.8 to 4.7 this past month.
If you have any experience with Firmagon from Ferring Pharma I would love to hear back on side effects etc. I'm a 58 yr. old two year survivor, 14.7 PSA, Gleason 7 with prominent metastactic disease.
Thanks in advance...

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi Olddukey,

Sorry to see your PSA rose and hopefully will dropdown again.

My last reading 12/14/09 came back at 0.4.6. Down from 0.5,October and 0.5, November. Last Firmagon injection received August 26th. Testosterone reading was down to (7) on 12/14/09.

Trying to keep warm here in the Sunshine State.

Talk again soon.
Glen

jpmpage
Posts: 13
Joined: Aug 2009

Hi Glen, on the 4th of January, my PSA was 0.9. I was given a hormonal injection and told that next month I will be put on a three month period for these injections. For the last month I have been feeling GREAT, in fact, I have been working very hard to remove a very large tree that a recent wind storm blew down. It landed against our house. The tree was my pet, it was a Crab Apple tree, and I love Crab Apple Pie especially the way my wife makes it. I planted that tree back in 1949. I wish you and all of our CSN group of Firmagonians a GREAT, and healthy NEW YEAR.
jpmpage (Carl)

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi Carl,

Thank you for the New Year wishes and glad to hear your PSA is under control. I assume you are taking one of the following: Lupron, Zoladex, Viadur, Trelstar or Eligard since you mentioned three month injections. As long as it works and agrees with you is the bottom line. Sorry to hear about your 60 year old crab apple tree. We had an old one growing up and the little apples made for great ammo playing war with the neighbor kids. Hopefully your Wife can make one last pie. Wishing you and yours a happy and healthy new year.

Glen

jogger
Posts: 47
Joined: Nov 2009

After my fourth shot my PSA report shows that I went from 800 (800) to 7! My doctor was as excited as I was.I hope I can keep it up. Sadly, I can't keep anything else up:-).

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Glad to read your new score and it seems as if when the PSA scores are down nothing else goes up. What an incredible decrease in your PSA score.

BTW I found a great YouTube video just now on degarelix (Firmagon).

http://www.youtube.com/watch?v=lYjaY_7Gkec

Best wishes and keep it up or should I say keep it down :-)

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Amazing results. 0.9.46 in other words no significant change. Going on six months since last Firmagon injection.

jogger
Posts: 47
Joined: Nov 2009

Hi Glen,

Unfortunately, I've had to take time off from my injections. I had a minor heart attack and I fell into the hands of cardiologists who wanted to take me 'all the way' with it, i.e., triple by-pass. This was a day after a stent was put in and the failed attempt at another stent, including two shocks to keep me from expiring! I've just finished 3 weeks of recovery. It feels like being struck by a big truck. I wonder where my PSA is at now.

Jogger (Jack)

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi Jack,

It was shocking to read your post. No pun intended. What happens now without the stents? Is your Cardiologist going to try again? I'm sure your PSA readings are low since Firmagon seems to knock the testosterone down. My Oncologist said I was officially in remission now. I asked if I was still a stage 4 and the answer was yes but I could be in remission for sometime...months and even years since my PSA readings have been so low for sometime since August.

Wishing you a speedy recovery.
Glen

CaptnJack1744
Posts: 2
Joined: Mar 2010

I an new to Firmagon (Degerelix), had my second injection on Mar 22. The stomach pain was no where near the level of the first double injection. I have experienced hip pain following both injections. Was almost back to "normal" until second shot, then it started again. Ever heard of this? My PSA was 40 in January, bone scan confirmed metastasis to sacrum and pelvis. Last Lupron was back in Sept 09, on it since 06. Went on Casodex in Jan, PSA dropped to 7.3 by Feb 11, then had first Firmagon. PSA now 7.7. Dr thinks it could be due to overdue on second shot by a week or so (schedule screw up on their part).
Radical in 2000, Radiation on 05, Lupron 06. Gleason 8.

Joining the string

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Anyone experience any hip pain while on hormone therapy?

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Welcome CaptnJack,

Sorry to hear you are going through a painful experience with your therapy. I never experienced hip pain nor heard of hip pain complaints from hormone therapy but then again I'm only going on my own experience and what members state on these boards. I imagine since you already had metastasis to the hip that possibly the Firmagon injection created a reaction of some sort. From what I have read, Firmagon lowers testosterone immediately which seems to feed those nasty prostate cancer cells. What were your testosterone levels before and after your injections?

Best regards,
Glen

PA_grandma
Posts: 48
Joined: Oct 2010

This is my first post as caregiver to my husband, John.
Didn't plan on participating until final test results of lymph node biopsy... but in reading about Firmagon, I couldn't wait.

Some information
79 years old
Gleason score (5+4) 9
Stage 3 or 4 depending on lymph results
Bone scan, no involvement

My question is...I've been reading about pain after injections of Firmagon, which he had late yesterday afternoon. At the moment, he's still asleep, but if he's in pain may I give him one of my pills 'Hydrocodone' (which I got after my dental implant.. but didn't need)

He's supposed to avoid blood thinners because of his pending biopsy... and don't know if this would fall in that category. Hope someone can respond before he wakes...
Thanks,
Joyce

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi John,

Are you taking any Hormone therapy? If not you're doing really well after fifteen years. Keep up the good work. Mine's still staying down below 0.1 with no shots since August.
I'll let you know my next reading in May.

Take care,
Glen

eaunat2010
Posts: 1
Joined: Mar 2010

Hallo!
My father has got prostate cancer in 4 phase.
Our doctor told us about the medicine called "FIRMAGON" or the same name "DEGARELIX" and another drug called "ESTRADIOL".
Now we are in Russia, in Moscow.
For us these drugs "FIRMAGON" and "ESTRADIOL" are great necessities, we are ready to pay for these medicines and their delivery (or home delivery)immediately.
We can also pay for DHL or any other methods of delivery. We are very interested in any fast method of delivery.
We ask you to help us to order these drugs called :"FIRMAGON" or "DEGARELIX" and "ESTRADIOL".
We need 2 courses of (medical) treatment.
We are in Moscow.
We are ready to pay for it immediatly. We are ready to go for it to any place. My tel in Moscow (495) 762-08-94 Alexandr

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi Alexandr,

I'm sorry to hear your Father has this dreaded disease and he's lucky to have you as his support member. I searched Ferring Pharmaceutical company's website and discovered an office in Moscow for you to contact.

Ferring Pharmaceuticals B.V.
Representative Office
Kosmodamianskaya nab., 52, bld. 4
115054 Moscow
Russia
Tel.: +7 495 287 0343
Fax: +7 495 287 0342

I was prescribed Estradoil Transdermal patches when I was first diagnosed from a company named Mylan. Here's their link. http://www.mylan.com/

Good luck and hopefully these drugs will be available for your Father in Russia. Keep me informed of his progress.

Best wishes,
Glen

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hi Glen,

I've been reading about your success with firmagon. I had my first two shots three weeks ago and get my next shot in 5 days. I've had radiation therepy four years ago. My psa went down to o.5 to 0.6 fo about 9 months and then started back up; the last reading inApril was 3.8.

I'm excited to read about the successes, and especially yours. I get another psa check in July. I guess that'll give me a good checkpoint. I'm prayerfully hopeful that it'll be down .

thx for "listening"

wayne2

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi Wayne,

Welcome! Glad you found these boards so we can compare our journey fighting Pca. Firmagon seems to be working for you. Unfortunately my PSA results rose to to 2.8 last week. Previous PSA was 0.9. three months ago. Time for another injection.

Best wishes,
Glen

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hi Glen....Thx for the note. I unexpectedly had my psa checked when I went in for my second injection on May 14th............It was 0.4.Down from 3.8 and the lowest I can remember !! I hope this hormone keeps on working. My doc says 2 to 3 years, but I'm praying for more and from what I've read here and elsewhere. I hope your next injection knocks yours down again !!

prayers.....Les

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Wayne,

That's great news...looks as though Firmagon is working for you and I bet your PSA will stay down for sometime. Was your Doctor referring to the "2-3 years" as the time frame before becoming Hormone refractory?

I spoke to my Onco today and he decided to check my PSA again next month before I receive another injection of Firmagon so I get to beat my chest a little longer :-)

Best,
Glen

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

I think the 2 to 3 years is the timeframe the hormones will keep the cancer contained....ie; good quality of life...................maybe even longer ?surprised that you're are stopping the hormone shots when your psa level drops. Is that normal procedure? I thought I'd be on them continuously (once a month shots).Thx for the response, and have a good memorial day.

Les (wayne2)

jogger
Posts: 47
Joined: Nov 2009

The pain I got after my first 5 injections was tolerable enough, but after this last shot it was tough to take, what with the hard 'knot' under the skin and the inflammation, both of which lasted a week. Another annoyance is seeing myself in the mirror. I've gone from a waist size of 36 to 40 in about two year's time, in spite of doing light but consistent exercise every day. I have to buy new pants, preferably with a stretch waist.

jogger
Posts: 47
Joined: Nov 2009

The pain I got after my first 5 injections was tolerable enough, but after this last shot it was tough to take, what with the hard 'knot' under the skin and the inflammation, both of which lasted a week. Another annoyance is seeing myself in the mirror. I've gone from a waist size of 36 to 40 in about two year's time, in spite of doing light but consistent exercise every day. I have to buy new pants, preferably with a stretch waist.

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Jogger,

I don't like to be shirtless around people anymore although I'm told I look fine but I see a big change compared to two years ago. Yes, exercising seems to be an up hill battle. Regarding the Firrmagon injection pain, I'll lean over against a car fender or something and a spot on my stomach suddenly hurts like hell. Seems like a previous injection site where it caused a knot. Not looking forward to another injection but I guess it's better then the alternative. Talk again soon and tighten that waist.

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hi again Glen............once again, is stopping Firmagon a normal approach when psa goes down or is this a case by case decision ? I'm under the impression that I'll be getting monthly shots continuously.

Thx..............Les

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi Les,

There doesn't seem to be any "normal" approach in dealing with Prostate Cancer since we are all snow flakes. I was told to have DaVinci RP surgery, radiation and hormone therapy by my Urologist but turned out I was a stage 4 after seeking a second opinion.??? My current Oncologist suggested Hormone therapy injections straight for two years but I opted for intermittent hormone therapy after reading Dr. Myers book and after experiencing terrible side effects from triple hormone therapy. I had extreme hot flashes, memory loss, muscle mass reduction, mood swings, exhaustion etc. After switching to Firmagon it seemed that I had lesser hot flashes and more energy but I still opted for a better quality of life. Some seem to believe that IHT can trick the body and can be reprogrammed to not produce the higher levels of testosterone which fuel PC growth for periods of time. Firmagon did keep my testosterone and PSA down for close to eight months. During my "off periods" IHT side effects slowly ceased and I was feeling like a 'Man" again. Apparently overtime Hormone therapy will cease to work at all so the idea is to prolong it's power but IHT has not been proven to have any advantage of prolonging life when compared to continuous Hormone therapy. I believe a study is under way so we'll know in a couple of years if IHT has any advantages. In other words it's quality of life versus longevity at this point. It's a hard decision to make and IHT may not be right for your circumstance.
Best to you and Prayers.
Glen

jfe
Posts: 1
Joined: Jun 2010

Tomorrow I have to make a decision about hormone therapy for advanced prostate cancer. I have read your posts for the past year. Given all that you experienced, would you make the same decision? My PSA has risen from 0.87 last June to 30.0 yesterday. I had seed implants in 2006 followed by 7 weeks of radiation to treat a stage 3, gleason score 7 disease. I am 62 and a stay-at-home dad for a 13 month old.

retired1
Posts: 11
Joined: Oct 2009

Let me jump in here to ask what concerns do you have about hormone therapy???, it would seem to be the best choice given your PSA jump, at your age I don't think any sides would affect your ability to care for your little one, and certainly you want to knock the PSA back down.
Bob

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi jfe,

Thanks for your post and sorry I'm late getting back in time for your decision. Please explain why you were given an exact deadline to decide on Hormone therapy injections? A few day's or a couple of weeks for that matter isn't going to make all that much difference from what I've read.

To answer your question though... I wasn't a candidate for seeding, radiation or RP since my cancer spread beyond the seminal vesicles into three lymph nodes, mesenteric artery and showed peritoneal involvement based on results from a ProstaScint scan. My only option was Hormone therapy to reduce the tumors and lower my testosterone thus reducing further cancer spread. Yes, I would go with IHT again.

In your case it sounds as if Hormone therapy is a salvage therapy since you already had Brachytherapy and Radiation. Let me know your decision and best wishes.

nymets1
Posts: 26
Joined: Sep 2009

jfe,

This is a very difficult decision to make, trust me, as I am going through the same.

The thing with hormone ablation is that it is as much a crapshoot as the primary treatments, except that hormone ablation will never cure the cancer. The crapshoot is whether it will keep your cancer at bay for an extended period (not 2-3 years), which would make the quality of life impact much more bearable. For those who go on hormone ablation and find it failing in ,say, two years, not only did it not work but the side-affects had to be endured at the same time---a terrible double whammy.

I will not go into my "story" at this time. However, safe to say we both should do something. Certainly if one elects not to go on hormone ablation, than significant life-style changes should be made (diet, exercise, stress). Even with that, chances are still greatly in the favor of the PCa still growing (but maybe at a slower pace) but at least one can feel that he is in control. Of course, the doctors are not always right and it is OUR right to demand to go on intermittant hormone ablation or ask for other forms of therapy (ie ketaconazole, estrogen), that will not be covered by insurance (who cares...they are cheap)and would have less quality of life issues (estrogen actually BUILDS bone strength).

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hi Glen......And thx so much for your input. Right now, after two injections of Firmagon (the first was the double).....I seem to be having maybe ? mild side effects so far. A little pain at the injection point for a few days, some hot flashes......sort of, maybe some forgetfulness, but at age 76 some of that is normal?.......also low sex drive :-(( and some fatigue.......but yesterday I got up at 3:30 am to take a friend fishing on Norfork lake here in Arkansas. Started fishing at 5am......caught a bunch of bass, white bass, and a nice striped bas. We quit at 8am,cleaned fish for dinner, and was napping by 10:30am:-))Hope I can keep this up a couple of times a week.

I aim to discuss the Firmagon aspects with my Urologist next time I see him in July..I get my third shot on June 16th . I'll keep you posted.....right now with my cancer back(and possibly/probably contained in the prostate according to ctscan and bone scan)i,m mainly shooting for longevity if my quality of life doesn't get much worse.

thx again ........"snowflake" Les

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hey "Snowflake",

I'm sure you can count on a high quality of life for years to come. I'd say enjoying an early morning nap with a good fishing buddy after catching all those fish at your age, you have one fantastic quality of life! Now about your sex life...:-)

That's great news about your PCa being contained. Looking forward to hearing what your Doc say's about side effects and continuing with the Firmagon homone therapy. Sounds like you got a good Urologist.

Keep fishing,
Glen

"People are like fish hooks, some are just sharper than others..."

Katman
Posts: 6
Joined: Jun 2010

11/2000: First visit to Urologist, age 68, PSA = 4.0
12/2005: First biopsy, nothing found, PSA = 9.0
03/2006: Second biopsy, Results: Stage 1, Gleason 3+3
04/2006: CT and bone scan negative
06/2006: Seed implant
10/2006: PSA = .05
03/2007: PSA = 1.5
03/2008: PSA = 3.0
03/2009: PSA = 6.0 CT and bone scan negative
03/2010: PSA = 9.5 CT and bone scan negative
05/2010: ADT treatment started - Double dose of Degarelix
06/2010: Second dose (single) of Degarelix

Comments on ADT (Degarelix) treatment.

First treatment started in May 2010. I was concerned about injection pain but there was practically none (similar to a flu shot). I have an "38 waist so the Doctor had plenty of fat to work with. After the injection, I was some what exhausted after my daily 30 minutes on the treadmill. This improved to normal after about 3 days. There was a minor irritation at the injection site but that was that was easily handled with 200mg aspirin (ibuprofen) 3-4 times a day for about a week.

I have increased my workout time on the treadmill to counter the side affects of possible weight gain. The urologist suggested a nutritional supplement (Prosteon by Theralogic) containing high amounts of Vitamin D and Calcium to counter potential bone loss. No hot flashes occured but erectile function is now 0. Next PSA will be done in October.

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Katman,

Glad you didn't experience any injection pain. I don't look forward to another injection but... I had a good run since August '09 with Firmagon so I guess I can't complain.

Received my new test results today and my PSA doubled in two months.

5/12/10 PSA: 2.8
7/9/10 PSA: 5.79

Katman
Posts: 6
Joined: Jun 2010

Just had my first blood work since starting Firmagon in May and the PSA is down to 0.0. Can't get better then that. The urologist originally said that I would go for a year on the injections. Don't know if he'll want to continue injections but I assume he will.

cjw749
Posts: 4
Joined: Jul 2010

My urologist in SC gave me the initial double injection of degarelix in my lower abdomen in January, immediately after being diagnosed with PC (Gleason 4+5=9; PSA 1.4 and steady). It hurt like hell for about 8-10 days, then much better. After starting radiation at Hopkins in March, my onlocogist there told me I would be on the hormone treatment for 2 1/2 years. After I returned to SC, my urologist switched me to a Vantas (histrelin) implant good for one year, thus avoiding the degarelix injections every 28 days. I have no problem (other than the stated side effects) with the implant and glad I made the switch.

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi cjw749,

Sounds like you found a caring Urologist and thank you for sharing this new Hormone treatment recommendation. I read the clinical trials and Vantas has a great track record.
It kept testosterone down to castrate levels for the whole year with minimal side effects.

Timing is everything...I happen to have an appointment tomorrow to discuss my next plan of attack aince my PSA doubled recently and I was not looking forward to the Mack Truck to the abdomen scenario so I appreciate this tip and will post any updates.

In the meantime, I wish you the best of health and no "stated side effects".

cjw749
Posts: 4
Joined: Jul 2010

medcomglen, let me know what your urologist thinks about the vantas implant. i got mine in my upper, inside arm at bicep level. it has not caused me one minute of inconvenience even during weight lifting and golf. i would gladly repeat this painless implant process next year at the 12 month juncture.

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi CJW,

My Oncologist pointed out that since I didn't fair well previously with the Luprolides (Trelstar and Eliguard) side effects that I would be better off continuing intermittent therapy with Firmagon. Not looking forward to the abdomen injection this Friday but I guess a few days of potential stomach pain out weigh three months of exhaustion. For some reason the Lupron type drugs knocked me for a loop. Glad to hear you are doing well and still able to play golf etc.

Let's stay in touch and in the meantime, stay healthy,

Glen

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hi Glen...I always enjoy reading your comments to all on this board. I've posted some prior comments, but not sure all of them were recorded correctly.I had my fourth MACK TRUCK 10 days ago and my psa level is now down to 0.1....from 0.4 after my first two trucks. This was my fourth in the series. I mentioned intermittant shots to my Urologist and his eyes glazed over so I told him I would do more research. Could you remind me why you decided to have the shots spaced out until the psa goes up again ?? My side effects are mostly ok. I stay busy with my fishing " ministry" (my boat is named "retreat"), church stuff, computer stuff, gym ,socializing, and ice cream. The future is still uunknown, but today is what I have:-))

UR FREND..........LES

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

repeat

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Great to see your name again Les. Your PSA results are doing great and since you're not experiencing any severe side efects other than what we all get being chemically castrated you're still on your game.

I'm on intrmittent HT for the following reasons.

·to minimize adverse events and there by improve quality of life (QoL);I was exhausted too often but not as bad umder Firmagon. I seem to be able to enjoy some libdo in between my off times which helped my MANLY depression... recently Augugst '09- June'10 experieinced low PSA and minimum castrate levels.

·to delay the progression to hormone-resistant prostate cancer; A new study came out by two Doctors attesting the results from Firmagon extended castaste levels longer thus not needing as many injections, and last but not least,,,·to reduce the costs of care.

I have stage four PCA with no bone or organ involvement so we are trying to prolong the time LHRH works into the future by dosing when PSA rises everytime.
I'm somewhat unique since I'm beyound radation, I have lymph gland involvement and was not a candidate for seeding. RP was suggested but would result in permanent loss of libdo, no nerve sapring surgery for me is available, it's too far into the seminal vesicles, RT and RP would mean potential reduced immune system, possible pads, new plastic syfincter replacement etc. so my only hope is intermittent hormone therapy hopefully with lesser side effects, free existance..seems to work so far and my quaity of life increases with time. I'll let you know after next Friday (I prolonged my Mack Truck injection one week to go fishing/camping with my daughter) Pray for me please and I'll post you my new results
Glen

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hey Glen.........HAVE A GREAT TIME WITH YOUR DAUGHTER; THOSE ARE PRECIOUS TIMES. I so enjoy your writing; it always gives me an uplift :-)) Fishing is a real peace-giving time for me , and early this month I caught a 9 + pound largemouth bass.......my biggest ever. Also been catching some walleye and striped bass(stripers). I'll see if I can post a photo in my profile.

Regarding PCA.......I had 43 radiation treatments ending in sept.,2006. psa went down tp 0.6 from 4.6 over an 24 month period then started climbing back up. I started the hormone treatment mid april this year. I had a checkup with the radiation oncologist this am. The sustitute doc was there.......real pleasant guy, but has STUBBY fingers :-))As I said last time, my psa is down to 0.1.........How long will it last ?? Nurse this am mentioned 5+ years......doc also, but they always caution with words like "who knows?",etc..........so.............who knows, but today is ok. My side effects are bothersome for a few days, especially if I think about them but overall life is good !! I'm 76 yrs young and still catching fish and having good times with wife and family.Hope you have/had a good week........

peace and prayers for you............Les

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi Les,

Congratulations on catching your nine pounder. That must have been a gas pulling that one in. My daughter bets me when we go fishing and usually empties my wallet I hate to admit. They are special times for sure. Great photo and you look great by the way. Handsome fish too.

Got my Firmagon injection Friday and it feels like a Peterbilt hit me. More refined this time … a perfectly raised itchy red patch about 2”W and 3”L. It’s better today but still warm and tender. No other side effects yet.

Keep fishing…
Glen

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hi Glen......Sorry you got the 'ol PETERBILT symptom again :-((.........I try to just keep on truckin' when I get my shot..........my wife lets me whine for a day or two unless I go fishing. Then she thinks I'm well again..........but hey, it beats the alternative. Goin' fishin' again tomorrow. I try to get out twice a week......early; about 5am and quit before the high heat. We live in North Central arkansas and it's been warm lately......but the fishin' has been good. Have a great day/week.

keep on livin' it up :-))............Les

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi Les,

The stomach pain subsided after five days and I only have a 2" red and round tender node now. The hot flashes started but not as severe as in the past. Overall I feel pretty good and fishing with my daughter is good therapy. We live in west central florida on the gulf and fish the intracoastal waters. We use to freshwater fish but the gators kept stealing my bass off my stringer :-)

Live Healthy,
Glen

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

A friend and I caught over forty fish this am on topwater.....very unusual for this time of the year. The surface temp is 90 degrees.What a great time we had; never once thought about cancer :-)).........until I started reading the blogs here again, but the words here give me great hope..........kind of like prayers :-))Thanks again for all your encouraging words and info. I get my next firmagon shot next Tuesday. It'll be my fifth month of the shots.......and the side effects seem ok, considering the alternative :-))Get my next psa test in a couple of months. Sounds like your fishing is different than mine; we don't have gators,etc.

wishing you more happy "daughter therepy",

Les

wayne2's picture
wayne2
Posts: 31
Joined: Apr 2010

Hi Glen...I haven't written for a while and also haven't seen anything from you for a while....I hope all is going well for you.

I had another firmagon shot last thursday............a real Mack Truck as you say.
I'm now taking Plavix for some moderate arteriosclerosis(sp?)......and it SURE enlarges the red area around the 'ol tummy shot..........and I REALLY try not to touch it for a few days.
But, hey, I went fishing the next morning at 6am.......didn't catch much tho.......one of those "humbling" experiences, but it was beautiful out on the water.

hope you're having some fun.

Les

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

repeat

gkoper's picture
gkoper
Posts: 174
Joined: Apr 2009

My Uncle got an hormone implant for his pca that lasts much longer then the painful shots. Is that not an option for you?

Medcomglen's picture
Medcomglen
Posts: 95
Joined: Jun 2009

Hi Gkoper,
Are you referring to Vantas? There's been some discussion on these boards but unfortunatly I don't do well with the Lupron type therapy drugs and it's a twelve month dosing sequence. I'm preferring intermittent therapy to reduce hormonal side effects and prolong the hormone refractory situation.

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