Jun 07, 2009 - 4:47 pm
I couldn't resist posting this. After a very long wait, I got the follow-up PET scan - 7 months after the first showed me lit up from pillar to post!! In retrospect I believe this was a false positive which someone mentioned on this board is common with PET scans particularly soon after surgery. I wish my doc would have told me this - though maybe he did not know how freaked out I was about this.
Anyway fast forward to present: Results are negative in all the previous lit up areas with some activity in my jugular lymph node which apparently has "brown fat" - so they will watch this.
I guess with all my talk, I am still dancing with NED!!! and I'm choosing to be very happy :)
Stay strong ladies!!
Mary Ann aka Daisy