Jun 07, 2009 - 4:06 pm
I found a small lump on my left arm over a month ago. My doctor said it was simply a lipoma but if I wanted to have an u/s conducted she would order it. Long story short the u/s turned into an MRI which is turning into having the tumor removed for further dx.
The tumor showed characteristics of a lipoma as well as characteristics of a liposarcoma. I received the MRI report via email from my doctor and I'm very frustrated with that as I will have waited a total of 5 days to meet with her. I was given a report that was quite impossible to understand. She is referring me to a specialist (I'm assuming a sarcoma specialist). All research I have read emphasizes seeing an oncologist specializing in sarcomas due to the rarity of this cancer and the importance of being treated by someone who is familiar with it.
I have been encouraged by a family member who is a radiologist to have the entire tumor removed w/ surrounding tissue for biopsy, not just a needle biopsy.
What is involved in this? I have Kaiser insurance and so far feel the system is extrememly challenging to navigate. One cannot simply get on the website and find out which providers specialize in sarcoma. I have many, many questions and feel that I need to get a jump start on getting answers.