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Cytoxan and Taxotere...who's had this?

MAJW
Posts: 2515
Joined: May 2009

Starting this chemo cocktail on June 15........Anyone had this combo? Cytoxan and Taxotere? Then injections the day after to boost WBC..... Side effects? I know everyone is different......I will have 4 treatments of this, 3 weeks apart..(no port, thankfully)......I am more afraid of this than I was the lumpectomy surgery and lymph node removal........which turned out to not be a big deal at all, for me, that is.....

Would appreciate and be grateful to hear from anyone who has had this combo....Do you eat first, during, after? Can I drink water during the treatment? What can I expect during the actual treatment itself......Are there sensations when the drug enters my body? Any nausea while having the treatment? ACHES,pains,etc.? Any info would be so helpful.....thank you in advance........God Bless you all!
Nancy

aurora2009's picture
aurora2009
Posts: 545
Joined: Jun 2009

Glad to hear today went well.

Here's to only one more treatment!

God Bless

Aurora

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Just one more treatment! You are almost done.

So happy for you!

Post and keep us updated on you!

Hugs,

Leeza

janeymay
Posts: 1
Joined: Mar 2011

Had the same coctail you had . tried zolof for nausea but had migrain head aches from that . Seemed like each time the symptoms got worse. Last treatment was 10 days in bed and away from work . Still after 3rd week awfully tired and week . Neulasta symptoms didnt last too long but all the rest seemed to accumulate and progressively get worse. Like I said last treatment was 3 weeks ago . Thank God I am thru with that . Now just waiting on surgery for double mastectomy.

Beaglegirl8
Posts: 1
Joined: Sep 2009

It was nice reading so of the different experiences that people had with cytotaxan and taxotere. My doctors assures me that I will not have nausea, but he did say fatigue and hair loss with come with it. I too will have to do 4 treatments. He didn't mention anything about coming back for the Neulasta shot so I will found out how they expect to maintain my WBC.

Do any of you tend to avoid people or shop or go out during quiet times to limit the amount of germs? I have 2 little kids (7yrs old and almost 5yr) so they are walking germs.

I was also looking forward to going to my 20 yr high school reunion at the end of the month, but not sure if it will be wise to attend since it will be 2 days after my 2nd treatment.

Wish I had a remote control to fast forward all of this and be done already. My poor beagles are hating this too because I haven't been able to walk/run with them the last few weeks after the surgery.

Shana

elm3544's picture
elm3544
Posts: 746
Joined: Jul 2009

hi Beaglegirl8
yes I tried to avoid being around people. I had gone back to work 7 days after my first treatment and got sick. The Dr told me that the white cells are at their lowest point on days 7-10, so I stayed away from people as much as possible on those days. I know its impossible when you have little ones! I guess the best thing to do is just do your best to stay healthy and keep wiping everything down with clorox wipes or something! Good luck to you!

Switte
Posts: 3
Joined: Nov 2012

Hi dorismac: That is wonderful that you didn't lose your hair. I begin treatment December 3, 2012 with the same drugs. I'm ready for it and have come to terms but the hair loss was a big hurdle. Just knowing that I MAY not lose it is something to hope for. Everyone else seems to lose it and I was ready to buy a wig to prepare. How did the doctor explain the fact that you had no hair loss?

elm3544's picture
elm3544
Posts: 746
Joined: Jul 2009

good luck and I hope you do great!

TCGgal's picture
TCGgal
Posts: 13
Joined: Jun 2009

so far, no bone pain from Neulasta, feeling pretty good!

BunnyJane's picture
BunnyJane
Posts: 212
Joined: Jul 2009

You go, girl!

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

I had a diagnosis on 12/8/09 of Invasive Ductal Carcinoma of my right breast. I had a radical mastectomy of my right breast on 1/19/10. The lump was 2.2cm. They also removed 3 lymph nodes and did not find cancer in the nodes. The treatment plan is 4 chemo treatments of taxotere and cytozan and then tamoxifen for 5 years. I have been horrified at the thought of losing my hair and all of the other side effects I have read about. This site has given me alot of great info on what to do or take and not to do before and after my treatments. I start my treatment on 3/15/10. Thank you all for sharing your stories and I agree with many of you who have put your trust in God to bring us all through this time and to allow Him to carry us through this.

Anyone have any advise on wigs? I bought one yesterday but it is not so comfortable. What type of cap do you wear under the wig? How hot does it get in the summer time since I will be going through chemo from March - June in Texas.

I wonder also how many women also decide on the breast reconstruction and which type of reconstruction is most popular.....implants or flap?

teresa41's picture
teresa41
Posts: 454
Joined: Jun 2009

hi balentine the wigs are hot i have one and i wore it a few times that was it. i started chemo in june 2009 ended in sep 2009 i wore bandannas and now winter is here fleece hats.synthetic wigs are easier to take care of but if you have one dont wear it when you open the oven door! its a personall choice some cancer centers offer wig banks where you can get a free wig also you can call the american cancer society for a free wig. i got mine through them. i want to wish you the best of luck i was on the same chemo as you . i was diagnosed april 2009 IDC 2.2cm stage 2. best of luck to you. i had a lumpectomy so i cant help with reconstruction.

teresa

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Teresa, I guess everyone likes something different. I am hoping it does not get too hot because I do have to do outside duty with the kids at the elementary school where I work. Have to start taking one day at a time. I may not do reconstruction either. They say that the tamoxifen may cause you to have to have a hysterectomy so I figure I may wait and do the reconstruction at that time...if I decide to do it. Did you have chemo or just radiation? Lorrie

teresa41's picture
teresa41
Posts: 454
Joined: Jun 2009

i had 4 rounds of chemo 33 radiation treatments and im now taking tamoxifen.

teresa

BethInAz's picture
BethInAz
Posts: 203
Joined: Jan 2010

Balentine,
Bless you! Your treatment sounds just like mine except I opted for bilateral mastectomy because my other breast, the doctors all thought, would likely fall prey to cancer at some time as well. My surgery was Oct 14 and I began my chemo on Dec 8. I just finished my last treatment (taxotere & cytoxan) this past Tuesday and will begin my Tamoxifen in about 3 weeks. On a scale of 1-10, I thought chemo would be an 8 and I found it to be about a 4 or 5 instead. I know everybody reacts differently with side affects; however, with the anti-nausea meds that they have now (they hung anti-nausea and steroid pre-meds on me prior to the taxotere and cytoxan infusions), I experienced no nausea at all. I have a whole bottle of Zofran that I've never used. I began losing my hair on day 14 of the first treatment. It was Christmas Eve and I had my daughters home for the holiday. I gave them a scissors and they cut my hair down to about 2 inches. A couple days later, they cut me to 1/2 inch. I've saved my hair to put out this spring for the birds to use for nest building. We made a real event out of the hair cutting, laughing, crying, hugging. When my son-in-law showed up in the room with my wig on, it made us all crack up! It all seems so overwhelming initially but as you walk the path, step by step, it becomes somewhat of a new normal. I've retained some wisps of hair - my husband calls me "Woodstock" after the Peanuts character... I did get a nice wig - didn't spare expense - got a monofilament wig that cost about $325. It's a Tony of Beverly wig - went to a shop in the Phoenix area that caters to those experiencing medical hair loss. I just wear the wig right on my head - no cap. It's been nice wearing it this winter - it helps keep my head warm.
I'm still giving thought to reconstruction. Am not going to do anything right away - but give myself time to recover from the chemo and get my life back to normal - a new normal!
Feel free to email me if you want to talk further.
Beth

Skeezie's picture
Skeezie
Posts: 584
Joined: Aug 2009

I had a single mastecomy and no reconstruction and wear a breast protesis. So no info on that. But when it comes to wigs...I have a hand tied wig (not real hair) that has a linen top so you can see my scalp thru it, it weighs 2 oz and is very lite weight on my head. I got it at a specialty shop that deals in all things mastecomy. My BCBS paid $300 of the cost and I paid $135 and it is worth every penny. My husband and friends think it's beautiful. It's wash and wear. I don't wear anything under it. When I got it (way before my chemo) I took it to my hairdresser who trimed it to my hairstyle and thinned it.

I hated losing my hair, we all do but like everything else you will adjust. Mine started coming out on Day 13 of chemo. After a few days I had my hairdresser "buzz" it to 1/4 inch and some never did come out. I had my last chemo on 12-11 and my eyebrows and lashes came out 4 or 5 weeks after that. All is now growing back. Everytime I walk past a mirror I am still surprised to see I have no hair, just a five o'clock shadow.

I have a couple of head coverings I also wear. I am bare in the house except when someone comes over and then I put on a hat. I am hoping I wont' have to cover myhead in summer this year and that could be a problem for you too. For everyday, you mite want to use something cool and breezy. Wind blows thru my wig but I don't want to have to wear it in the summer unless I'm going someplace special etc. I think the selection at the TLC website is reasonable and cute. It's a Cancer Society site: www.tlcdirect.org I have ordered a couple of things from them and they come in sizes and are well made.

Good luck with your upcoming treatment. It seems we all have different reactions, just drink plenty of water, have soft things to eat like yogurt applesauce and pudding etc. Oh and Gatorade. Food tasted yucky to me except dill pickles and oranges & grapes...

Let us know what you decide about your wig etc. and how you are doing with your chemo.

Hugs, Judy :-)

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Hi Judy,
Thank for responding. I already bought a wig. It cost $89 and is made from real hair. It was not a big wig shop but was the only one I found near where I live. I guess my thing is....I have nothing to compare it to since I know nothing about wigs. I see other women on this site saying they spent hundreds of dollars on theirs. Some real and some with the monofilament. I guess I will have to wait and see next month when I actually start wearing it how it feels. In the meantime I suppose I can look online for some that are in some major cities around here that are a little further away. I work at an elementary school so I did want a wig that looked similar to my hair to keep the kids from asking questions, etc. I don't really want to wear a scarf or hat at work. I know I wore the wig the first night after the salon trimmed it for me and thinned it out and she recommended I wear a mesh cap under it which I did and after about 3 hours of wearing it, it started to feel a little uncomfortable and I found myself having to readjust it a bit because it was moving some. So I am wondering how it will feel to be wearing it 8 hours a day. Lorrie

BethInAz's picture
BethInAz
Posts: 203
Joined: Jan 2010

Lorrie,
Your comment about your working with el ed kids made me think of a couple of things: One of the 6th graders at our church, prior to my beginning chemo, came up to me and told me she thought that my having to lose my hair was "rude" - that she liked my hair and didn't want me to lose it! I thought it was sweet of this little gal to feel for me as she did. I told her my wig looked a lot like her hairstyle and my real hair would grow back. After I began wearing the wig, a 2nd grader at church came up to me and said that she really liked my new hairstyle! I guess what I'm saying is that kids are so honest and great - and accepting. I wouldn't worry too much about keeping what you're going through away from the kids. They could be your biggest supporters! And it's good for them to watch you and learn from your courage and example. Beth

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Yes....you are right. Kids are very innocent and honest and are a strength. I guess I did not want to put myself into a situation in front of a group of kids and have that one child who is a little too inquisitive and ask me something off the wall that I did not know how to answer on the sper-of-a-moment. I guess when you get cancer, you start thinking ahead...of every scenario...sometimes I think too far ahead instead of taking one day at a time like I know God wants me to. I just got a breast form finally today in the mail. I was tired of trying to find something to stuff my bra with everyday and nothing looked right. This feels so much more comfortable and looks so much better. Hopefully it will not irritate my scar. It is pretty much healed...the glue finally came off but still a bit tender and sore. Lorrie

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Hi Beth, I hope I tolerate the chemo as well as you did. Reading posts like yours and others I read here give me alot of strength and hope that it will all go much better than I think. I guess it depends on the wig you get and how it is made whether to wear some type of cap under the wig or not. I also read somewhere today to just use cheesecloth under the wig. I will wait until next month and see how it goes. Maybe my hair won't fall out and I won't even need to wear it. You never know I guess. Someone told me their dad had to have chemo and everytime before he went to chemo, he wet his hair and never lost any of his hair. You hear all kinds of things and wonder what works and what doesn't. I guess it is different for everyone. I am not sure about reconstruction yet either. I figure if I need to get a hysterectomy from the tamoxifen then I may do it then. Lorrie

BethInAz's picture
BethInAz
Posts: 203
Joined: Jan 2010

Lorrie,
I hope you do as well as I did with the chemo, too. I was told by my oncologist that gals in their 50s tend to tolerate the cocktail well. Since I was taking my chemo 190 miles away from my home, we would leave right after treatment and head home (3 1/2 hour drive). I always felt fine that day and the day after. By by the evening of the day after treatment, I would begin having heartburn. My oncologist said to take Prilosec OTC (I ended up with a generic version). I learned that it helped me to begin taking it 2 days before treatment and I had no heartburn after that! I also became constipated so I used Benefiber and ate a lot of flax and bran muffins and veggies/fruits. I never got nauseated which was a blessing. I've been fortunate in that I'm a Realtor and have been able to work from home - and do only what I feel like doing. I've pretty much pampered myself - but when I feel more energetic (usually within 6 days after treatment), I get to work!
I'm still thinking about the whole reconstruction thing, too. I don't feel like another surgery in the near future... Maybe when I really get to missing boobs I'll get more serious about it.
Blessings!
Beth

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Hi Beth,

I hope I do well with the chemo also. I want to still be able to go to work everyday. I work at an elementary school in the computer lab. I am 49...so soon to be 50. Did you say you had the same cancer as me? Stage 1 IDC, 2.2cm lump? Did you have single or double mastectomy? When you lost your hair was it gradual or did you just shave it? Also, did you get a prosthesis or just buy one of those foam breast forms? I just recently purchased a foam breast form and it seems to work well under a camisole so I don't know if I really need to get the prosthesis. I was thinking of just getting a few more of these since you do need to wash them and let them dry. With the prosthesis you have to wear a special bra I guess...I have still not been able to wear a bra due to tenderness and soreness on my right side under my armpit. I had surgery 1/19. I am going to my first physical therapy appointment tomorrow and afterwards I am going to go see my surgeons nurse about whether my scar and everything is healing right and how long it will take for the tenderness and soreness to go away.
Lorrie Balentine

BethInAz's picture
BethInAz
Posts: 203
Joined: Jan 2010

Lorrie,
My oncologist said I would be able to work everyday and I suppose it I had to, I could have. I just had the luxury of being able to work from home. My cancer was stage 2 IDC - 2.5 cm tumor, node negative, ER/PR positive, Her2/Neu negative. I'll be beginning Tamoxifen in a couple of weeks. I opted for the double mastectomy because my other breast looked as bad as far as cystic disease as the cancerous breast. In addition, my tumor never showed on any mammo or ultrasound so my fear was I'd always be waiting for the other shoe to drop in the other breast. I began with soft forms - they were less irritating to wear over the scars. When I healed further, I went to a prosthetic fitter and got the 2 prosthetics and mastectomy bras. My surgery was Oct 14 and it was probably 4-5 weeks before I felt comfortable wearing the prosthetics. If you're comfortable with the soft forms, I'd say go for it. The soft forms seemed to ride up on me - I often felt like my boobs were becoming way too perky!!
My hair began falling out on day 14 after 1st treatment. I waited to see if it was really going to fall out but it became obvious on day 14 when I shampooed my hair. It was gradual - not all at once but it became more annoying - I was like a shedding dog. There was hair everywhere. It was Christmas Eve when I asked my daughters to go for it - they cut it short and then a couple days later cut it to 1/2 inch. I never lost it all - but it's extremely thin. My wig is my friend!
Do you want me to add you to a friend list so we can email directly to each other? I'm going to be there for you, Lorrie!
Beth

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Hi Beth,

Thank you for your insight. Yes...you may add me to your friends list. How do you do that? Do you need my email? let me know. I got some info from my hairdresser today that I can go to the local cosmotology school here in my town and there is a woman there who has a foundation for cancer patients where she buys wigs and gives it to them. I went to see her today and after looking at several wigs and pictures of wigs and asking what I liked and seeing my own hair, she said she will got buy 2-3 wigs and call me to come in and try them on and style them to my liking and give to me. I could not believe it. So that was fun today and the wigs are very nice wigs. Nicer than the one I already bought.

I guess the hardest part of all of this is the waiting period. You know it is coming and you just want to stop thinking about it and get it over with...that goes for the hair loss and the chemo treatments. I went today also to a medical supply store to set up my appt for my prosthesis and bras. That will be 3/2/10. They would not fit me until 6 weeks after surgery.

Saw my surgeon's nurse today so she could look at my incision and also this pocket under my arm that is sore...I was worried that it might be fluid but she checked it and said it was not. she said it could take several months for the tenderness and soreness to go away. I miss sleeping on my right side and I am just in constant pain all the time whether I wear a bra or camisole...by the end of the day, I am ready to take a shower and just wear a night shirt and lay down.

I know I will probably do the same thing you did when my hair begins to fall out. the lady at the cosmo school said to just call her and she will have me come in after everyone is gone and shave my head for me. That will be a difficult evening but I am ready to get there and get it over with.

Lorrie

BethInAz's picture
BethInAz
Posts: 203
Joined: Jan 2010

Lorrie,
I invited you to be a friend and got a reply from the site that you would be notified. Today I sent you a private message. I clicked on the link on the CSN menu on the left of the page (CSN Email) and sent you a message. Let's see if it works. It's the first time I've tried to do this, too! I didn't need your email - I just added you as a friend under your profile. So, your profile page at the bottom - perhaps there will be an invitation there - and then check for any email and perhaps you'll find me!

I've learned a lot of very practical helps during the process that I'm happy to share with you to make your life better!

Glad you were able to get a good wig and get some plans made in advance. It's good to remain in control of the situation - be proactive - and forge ahead. The biggest challenge is maintaining patience - I understand your wanting to get it over with! I felt the same way but the time does go more quickly once you're under way and before you know it, you're through!

Talk with you soon,
Beth

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Hi Beth,
I received your message on the email and emailed you back. Yes...this surivivor network has so much information on it that you can spend hours on it. I want to sit down one day and do some research on what to do and not to do before and after my chemo treatments to try and ward off some of the harsh side effects. I have written some of them down already. I am just praying everyday that I don't get sick and cannot work or get those awful pains I keep hearing about from the shots you get to boost your WBC.

My son will be home from college for spring break the week I start my treatments so I am hoping I will still be able to have some quality time with him and not be sick while he is here. He is already not dealing with it too well as it is.

So how are you feeling now and what was your percentages after chemo?

Lorrie

3boysmomchris
Posts: 1
Joined: Feb 2010

Hello,
Short history: triple negative breast cancer 2002 w/left mastectomy: right mastectomy 12/09, complete hysterectomy 2/10/10- this last breast cancer on right side was 7mm, er+/pr+, her2neg, brca2+ for gene mutation, oncotype DX test score 32.

Starting cytoxan/taxotere 3/30/10 at our new cancer center (very nice). I'll be thinking of you.

Also need to have implants bilaterally but that will have to wait until after chemo.

Chris

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

To 3boysmomchris,
just curious...how old are you? What does triple negative bc mean that you had in 2002? What type of percentages did they give you at that time that it might show up in your other breast later? I am concerned about that since I was just diag 12/09 with invasive ductal carcinoma 2.2cm lump, mastectomy and now getting ready to do chemo starting 3/15 for 4 treatments. I asked them what the liklihood was of me getting bc in my other breast and they said only about 7%. They said it was more likely that the cancer would come back in my brain or bones but I am just wondering if that is really true. I find myself always checking my other breast for lumps. I had a few fluid lumps in the other breast that they told me not to worry about...that they were just fibroids most likely and did not biopsy them. Well, they are still there....don't fibroids come and go within a few months? I will be asking the doctor these questions too when I see him on 3/12 but I am just wondering. I am still unsure of whether I will have reconstruction or not. I don't want to go through all the surgery but I also don't know if I want to live the rest of my life with one breast instead of 2. I will wait for the chemo to be over to decide though.

Lorrie Balentine

MSLLEN60's picture
MSLLEN60
Posts: 1
Joined: Aug 2011

I was told I had breat cancer in april 2011I was so scared my faith was shaked. Now I have had surgery and is preparing for chemo that is also scarry but I find now that worship a praise really helps

heidijez's picture
heidijez
Posts: 441
Joined: Mar 2010

I was diagnosed with inflammatory breast cancer (rare and aggressive) in mid-December. Don't have any family around here, so I pretty much deal with everything on my own. Has the pet scan and met my oncologist on Wednesday, December 16 and had my first chemo on the next day!! I really didn't have any time to prepare myself for what was happening to me. I did okay with the first chemo - the Neulasta shot is what did me in. I also have rheumatoid arthritis and six soft tissue and muscle diseases, so I am already the queen of joint and muscle pain.

Surprisingly, the chemo is not as bad as I thought it would be (although I would not wish it on anyone!), I have pretty much been able to work through this. I do have some really bad days, and the fatigue is incredible, and it looks like I am going to lose several of my fingernails.

I will probably lose my left breast - have one more chemo treatment. I have to admit i am freaking out about it, but as with every other step along this journey, I deal with it fine once I get there.

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Hi Heidi,
I am so sorry to hear that you have no one there to help you get through this. You said you have no family members.....are there any friends there who you can depend on? How old are you and where do you live at? Are you working? So you have only been through one chemo treatment? I will be praying for you Heidi and hope that all goes well for you. My cousin also has inflamatory BC and she has been going through chemo since December and will be having a mastectomy next month. I know it is very aggresive and scary but you have to trust God that He will be there with you to carry you through this and heal your body. I pray that God will give you strength and hope and encourage your heart.

Hugs,

Lorrie

Sporty10
Posts: 2
Joined: Jul 2010

Hi - just had my first chemo treatment last Thursday and I guess I wasn't really prepared. I was diagnosed late March, IDC, lumpectomy, no margin or node involvement. Did a week of Brachytherapy with no real side effects. I was a 28 on the OncD test, so oncologist decided I should do 4 treatments of chemo, with a shot of Neulasta day after. Worse part was how it messed my system up, constipation, then diarrhea, then constipation again. Last night had terrible low back spasms, finally took Advil and got better, but still with me today. Doc's office thought it might be from Neulasta shot and I've read that could happen. Luckily no nausea, just tired. Have any of you experienced similar side affects you could share with me and things you did to make the next time easier? Thanks & God Bless

jsth201
Posts: 1
Joined: Jun 2011

I am starting my treatment with taxotere and cytoxan a week from 2moro and I have been very anxious about it all. I am so glad to find this sight so that I feel a little more empowered going into this whole thing. I work in the public my family owns a 3 funeral homes and I am the funeral director, embalmer and manager. I am from a small southern town and they are a hugging bunch and It scares me to death because of the decrease in white blood cell count. Any tips on tactful ways to avoid hand shakes and hugs?... I have learned so much already from the little bit of time I have been on this sight. Thank you all you strong strong women.

ConnieBonita
Posts: 1
Joined: Jun 2011

I, too, really am glad to have found this site. Sometimes I feel like I'm just whining but I need to know if others have had similar effects. I've had 2 of 4 scheduled treatments. I lost my hair day 14 of first treatment. I am continually nauseous, periodically light headed and tired most of the time. I'm also very emotional and I'm not normally a person who cries easily. I'm unable to work for about 7 days after each treatment. The neulasta is keeping my white cell count up but it gives me excruciating bone pain from day 3 to day 8. I've also developed moutn sores. My oncologist gave me a good mouthwash for that. My job is great. I take about a week off and work reduced hours and/or at home. Can someone tell me if I'm just nuts. Is it my age--58? Or should I just calm down and accept that I'm just not going to be myself for a little while. My husband is good but sometimes I just feel like a need different kind of hug and empathy.

renee616's picture
renee616
Posts: 181
Joined: Apr 2011

Hi
I had 4 rounds of each, total 8. 1 every 3 weeks. First 4 were a/c. no major problems, you can eat, read, nap talk, laugh during treatment. Next 4 were taxotere followed in 24 hrs by a neulasta shot for keeping cell count up. I lost my head hair about 10 days after first chemo treatment, followed by ALL the rest. Taxotere, brought diarrhea, eye tearing, rash, minor blisters and peeling on inner hands. Dr warns of nail loss & blisters. i used hard as nails in advance, never lost any nails. Dr warns to notify him immediately if any blistering or mouth sores, says most people dont tell him in time. I used aquaphor with equal parts malox for sore butt from diareah rash. At night I jokingly said I needed my butt, eye, nose, lip & hand cream! referring to eye drops for tearing from lashes falling out, saline for dry nose, water for dry throat, lip balm for lips. auquaphor for butt, feet & hands! i was usually good to go 3-4 days after treatment. could've worked. I personally felt that the time flew. It was more of an inconvenience than anything and while I wouldn't want to repeat the steps, I would in a heart beat to prolong or save my life! You'll do great! Now I'm gearing up to start rads on monday....
Hugs & Mega prayers to you!
Renee

CAchick's picture
CAchick
Posts: 277
Joined: May 2011

Hi, I had Cytoxan and Taxotere...and I also had the Neulasta injection.
The neulasta caused a little aching. Not too bad. I did not have a port, was stuck each time. I also had the infusions three weeks apart (four of them in all).
I had some nausea, but the Zofran helped a lot! Was tired, and lost my hair by the second treatment. I did not have any problems with my finger or toe nails.
I had some peripheral neuropathy (tingling in my feet) mostly at night. I had a bad taste in my mouth for a few days after each treatment.

I am no superwoman, and I made it through...so I know you can too!
Prayers and best wishes to you,
Sybil

tcat
Posts: 4
Joined: Nov 2011

Thank you wonderful gals for sharing your stories and experiences with Taxotere & Cytoxan. It really helps to take away some of the anxiety and fear, having some idea what to expect. I'm still kind of nervous, but reading about how strong you all were through your treatments is inspiring.
I'm most worried about work as I teach Monday-Friday and I'm wondering if it will be fair on the kids to have a teacher who is feeling lousy for days at a time. On the other hand I can't really afford to take off the entire 12 weeks (4 rounds of Taxotere & Cytoxan to come, each 3 weeks apart).
I'm not sure if anyone is still posting on this thread, but thought I'd give it a try anyway!

Cdvilla
Posts: 1
Joined: Dec 2011

I too will start the same treatment in a few weeks. I have also worried about being able to work during treatment. When you get your first treatment tcat I would love to hear how it went for you.

Carla

roseduke's picture
roseduke
Posts: 1
Joined: Jun 2012

I am starting this same treatment at the end of the month. Reading all the comments has helped me know what to expect and eased my nerves. I am retired so at least I don't have to worry about going to work, but sometimes it is probably better to have something you have to do to keep your mind off cancer! I do have three grandkids who live about five minutes from me and whom I watch before and after school a few days a week - so that is definitely what will keep me going!! I haven't even begun yet and I wish it were done -- but I know this to shall pass!

sea60's picture
sea60
Posts: 2601
Joined: May 2010

Yes, I had that combo. My Onc was so great in that during her chemo class (yes, I actually had a class to prepare), she gave me these tips:

Tea Tree oil (swab over your finger/toe nails before bed)
Glutamine - I took this to lessen nerve damage
Biotene - I took this mouthwash to ward off mouth sores
Emend - I took this the morning of Chemo in addition to the anti-nausea meds in the IV

These really helped.

Also, Taxotere DID cause my eyes to tear so just know if that happens, that drug is the culprit.

The injection to boost the WBC (Nuelasta, I also took Procrit) also made me quite sore. Deep bone pain which was tolerable for me but I was pretty much couch bound, taking it easy. You feel better with each passing day.

Praying for you Nancy! You'll get through this.

Hugs,

Sylvia

MAJW
Posts: 2515
Joined: May 2009

I asked this 3 years ago.!!! ....I did fine on that chemo....fast forward to June 2011 ...was cancer free for 19 months.......cancer came back in my lymph nodes.... Which were clean in 09...go figure !!! I .found one right above my clavicle ...I swear it literally appeared over night...I entered a clinical trial in conjunction with Sloan Kettering hospital...on oral chemo, Tasetexl...took two cycles...second one put me down for 10 days..and didn't work...so I started Zeloda another oral chemo and once again had radiation to the clavicle area...25 treatments...they had to over lap one area of my breast which had rads the first go round...developed nerve damage in my breast..I take Gabapentin..works for me...Had scans in Feb...Zeloda stopped working but gave me 7 months of a "normal" life..scans showed 3 small spots on my brain and a small spot on my liver...my rads onc ordered 10 brain rads....now brain rads are freaky!!! ..he is 99.9% the rads took care of the spots on the brain.......Last day of rads went directly to have a port installed...am now on Avastin and Carboplatin every 2 weeks..of course with the recurrence in 2011 it put me Stage IV....I've had some really crappy days, lost 26 pounds which I didn't need and really great days..!!! I simply take one day at a time...and pray we can keep the beast stable...I've accepted it for what it is....I can't change it so I just do what I have to do....

So isn't it amazing what a difference 3 years make? Never in my wildest dreams, did I EVER imagine that when I posted "Who's had Taxotere/Cytoxan" when I was stage II that I'd be fighting this again...but " crap" happens! I'm allowed to drive again after 4 months, so I have that freedom back...I just go about my business...and enjoy my husband of almost 43 years, high school sweethearts...my grown son and daughter and my 4 grands...We have reservation, our plane tickets, etc. for a trip to the Domnican Republic in Feb...with my brother in law and sister in law ...and I'm determined to go!!!! Although we did buy travel insurance....lol.

Hugs, Nancy

cctiz
Posts: 47
Joined: May 2011

Hi Nancy, My name is Cecilia and I have the same combo last summer, 4 rounds, every 3 weeks, it was doable, not a picnic but turned out OK, yes, you can eat before, during and after treatments, in fact, i took them@the hospital and all the wonderful people from the cancer society comes every day with breakfasts, drinks, treats,lunch, gifts and so on, it was amazing! i was so distracted chatting and being pampered that i was done in no time! 1st time you will feel a strange sensation when the fluids enter, no big deal, yes, you can go to the bathroom during infusion and will be able to do things after it, i took the treatments on thursdays and by friday night i started to feel real sick until monday in which the body rebounds on its own, you feel hunger, can go to the bathroom easily, the burning sensation goes away, etc., drink tons of water please, so the poison gets out quickly, every body is different, my sick days were rough others tolerate it better but in the end i made it and you will do it too, get prepared with the list of things your onco gave you because you will need them, neulasta and naupogen injections have their side effects as well, rest and drink, drink and drink, water and gatorade G5 for all the minerals and salts your body is going to loose, good luck and lots of love!

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