May 31, 2009 - 5:54 pm
I haven't been diagnosed with uterine cancer and hopefully wont but would like some advice.
Briefly, I had an ablation with D&C 5 yrs ago where they found adenomyosis deep in myometrial. The Doctor was surprised by this as she was just expecting to find a polyp which was what the ablation and D&C were for. Anyway, she explained to me that that might cause more problems as time went on until I reached menopause which given my FSH number 27 could tomorrow, months or years ahead.
Fair enough, 9 months passed and I was back to the Doctor for scant periods and very very painful cramps. She prescibed BC pills to control the periods and fingers crossed my FSH levels were still 27, so menopause was around the corner. I had a ultrasound than show that my endometrial lining was at 0.501cm which is thicker than it should have been after an ablation and mysterious is inhomogenous which was consistant with a diagnosis of Adenomyosis.
I never actually saw the report for this procedure until I changed doctors so was unaware of the fact she had also found that the left ovary was enlarged with multiple cortical cysts as well as a resolving corpus luteum cyst and a hemorrhagic corpus luteum cyst. All cyst were incised and drained (but not tested). I am still in the dark as to what a cortical cyst is.
Jump forward to 2007 and I have changed Doctors as the other one during what I can only describe as a hormonal trip managed to hurt me badly during a pap smear and I ended up with my one and only UTI infection in my life! I had also stopped the BC pills as my periods were pretty much finished.
As my bleeding was very irregular by now, my new doctor ordered another fsh level and vaginal ultrasound. My FSH level was 29 and my lining ( which should be only about 2-3 mm after an ablation) was 10.1. As this was my first visit, she wanted to monitor me and ordered another ultrasound in 6 months. At the same time I had my first endometrial biopsy (didn’t have one before ablation) which came back clear By the time of my next ultrasound , the lining had thinned to 7.9 but a thin line of fluid was seen in upper lining <1 cm. The decision was to watch and wait.
By the time of the next ultrasound ( Aug 08) my lining was again 10.1mm and this time a cystic structure was visualized within the myometrial , posterior and adjacent to the endometrial (10x 8x 11 mm). I also had another biopsy which show scant endometrial tissue. The advisement was that despite being negative for malignancy, these finding should be considered carefully in clinical context to determine whether this adequately representative of the endometrial cavity. As my lining was thickening again she put me on provera to thin the lining and maybe flush away the cystic structure that had been observed.
I had my next ultrasound in Oct 08 after a course of provera when my lining had thinned down to 5mm and the cystic structure was again observed but measuring smaller 3x2m I also had my fsh level tested again which showed that my ovaries had been kick started and were now positively juvenile at 7.9 plus my thyroid levels were too high (I have an underactive thyroid ) So the doctor felt that that might be cause for very sporadic periods ( every 6-9 months) She also gave me a presciption for HRT as my menopause symptoms were out of control and driving me bats
Forward to April 09 , I never did take the HRT as I was concerned that with the amount of medication I was taking for my thyroid, high blood pressure and cholesterol, I really didn’t need to be adding to them. I had consulted with my family Doctor re the thyroid and although he was skeptical about the level causing my menstrual problems, adjusted my medication according to the new guidelines introduced a few yrs ago. He was reluctance to do it as he found that his patients were becoming depressed and uncomfortable with the new suggested guidelines, however I was fine. In fact I had a brilliant few months, no periods since the end of Sept 08 and more importantly the hot flashes disappeared completely!
April 16 09, Aunt Flo made an unexpected appearance and by now experienced , I immediately booked a ultrasound for the beginning of May. Also since then my hot flashes have returned with vengeance which is really embarrassing as sometimes I am sweating so profusely that it is literally flowing down my face as I talk to someone. The night sweats are even worse!
It was decided that I have a D&C with hysteroscopy plus my FSH levels checked again. That came back as 49, so apparently in menopause.
I went for the D&C with hysteroscopy on Thursday of this week and the doctor despite trying for 40 mins could not open the cervix. She did do a biopsy though and as she has not called yet, is waiting for the results before talking to me. However she did talk to my Husband and apparently she is suggesting doing an x-ray with some fluid to determine the shape of the cystic structure in the myometrium and seems reluctant to do a hysterectomy.
So now, I am completely confused because this is the same doctor who when she suggested the D&C said she was very concerned that this was now cancerous. How will an x-ray, showing whether the cyst is circular, teardrop or undetermined, ( this is what she told my Husband apparently) help in the diagnosis ? Until this last test, I haven't been overly concerned to be honest, as I know that I have Adenomyosis which rarely progresses to uterine cancer from all the literature I have read on net. However, with my Doctor seeming to be running around like a headless chicken, now the doubts are beginning to overcome my logical brain.
Sorry this has been a bit long winded but I am really very confused and frustrated . Hopefully she will call tomorrow but I not confident that the biopsy will tell her anything different from before.