May 28, 2009 - 6:04 pm
I mentioned a couple of weeks ago on one of the threads that my CEA count had gone up slightly above normal. CEA has been a good marker for me- the only other times it's ever gone up for me before was when something was going on (tumors growing). It's not terribly high as some people have had,but it is going up. When I was first diagnosed with stage IV cancer back on 8/07, it was at 79. After my Folfox chemo, radiation, and then healing from liver surgery, it was down to around 1 or even 0.9 once, but it was then up to 17 this past August, which is when my PET scan showed activity again in my lungs. I went on and just recently finished 7 months of chemo and then my PET showed no more activity, so I went on maintenance level treatment. Six weeks of this and then my CEA went from normal (1.2) up to 3.7. The oncologist didn't want to jump to conclusions from just one CEA test- thought maybe it was a fluke. Well, I had it tested again two weeks later and got results two days ago- it's now up to 4.2 (and this was taken after being on my "two weeks on" of Xeloda- the time before was taken after being on "two weeks off" of Xeloda). Not huge jump, but it is an upward trend. I have an appt. w/ my onc on Monday to discuss it. What do you all think- should I let it go another two weeks and test it one more time to see if it's still really going up, or should I ask the Dr. for a PET scan now to see if there's anything lighting up or showing up on it? My last PET scan, which was normal, was on April 6th- so it's just been 7-1/2 weeks since I had a scan. I started "maintenance", which is that I went off the Camptosar, cut my Xeloda dose in half, but am still doing the Avastin infusions every two weeks. The CEA started going up just 3 weeks after making that change in treatment.
Thanks so much,