Cancer Survivors Network

I'm so sorry you're feeling so bad, my hugs to you, but keep it going girl, you're doing so well. I haven't had oxy yet, I'm doing Folfiri, can they maybe switch you to something else that is hurting you too much? I have only done 5 treatments so far, and each time I can feel it taking a toll on me as well, I'm getting kind of scared as well, that I can't do this sometimes, but I do go on for on the kids. I hope you get well, and maybe just mention to your onc about the dosage even.

Hugssss and hope you feel better!
~Donna

Mags, So sorry you are having such a rough time. I just recently joined because of my husbands DX stage4 (JR) is his post name. Your story gave me such great hope.
My husband is taking Folfox + avastin. He seems to be doing ok with it but is very tired the first week after the infusion.
Maybe they can change you to something else. My thoughts are with you and all you have been through. Hang in and keep us posted. Love to you Paula G.

I had the same issues in my round 2 last month. The onc also suggested I quit and I said no. They reduced the dose this month and I am doing much better. Maybe they could go down 1/3 or so?

Many hugs....Vicki

Mags, we are pretty much all toxic at this point! Don't you feel like you could operate a nuclear power plant without assistance?

My hat is off to you. I couldn't even make it through my entire Folfox regimen. I did 10/12 and had to call it quits. Oxi is nasty stuff! Did you get Benadryl? It sounds like an allergic reaction. I sure hope you get to feeling better soon. I'm sorry it is so rough right now.

You are NOT a chemo whimp! NO way No how. You are one tough cookie.

Hugs,

Kimby

Mags,
Sorry to hear that #6 isn't going so well for you. I had #6 of Folfox + Avastin yesterday. I will get my pump off tomorrow. Things are going okay, a little worst than last time and probably a little better than next time. Anyway, you keep up the good work. Things will get better soon. I don't know what I could do to help you but if you think of anything, let me know.

John

Mags:

My first round of chemo included this gem. It was during the winter months and I worked through most of it. Fortunately and unfortunately I was on Oxy during the Christmas Holiday and I traditionally have two weeks off during this time. I spent most of that time in a miserable haze. You are not alone is all I can offer. Oxaliplanin did seem to attack my colon tumor though and it shrunk to nothing before they surgically removed it.

I wish you luck and sorry too hear of your pain.

Mike

Oh Mags. I'm sorry it is kicking your butt like this. Can you get your dosage reduced? I had mine reduced after #5 or 6 and while that was better, it still was NOT pleasant. If your face is puffed up and red, perhaps you are having some sort of reaction to one of the drugs. Your onc knows about this reaction, right?

I'm sorry, but you are going to feel toxic, even if you get your oxi reduced; it's a matter of degree. Are you drinking a lot of water? I know you don't particularly feel like putting anything in your mouth or stomach, but it is REALLY IMPORTANT to stay hydrated or you can get in some serious trouble. Also, flushing your system will get some of those effects out; the medicine has done its work so it's ok to flush, flush, flush.

I think the most insidious effect of chemo is the tendency to dehydrate and the fatigue. Fatigue is the #1 reported problem for most chemo regimens in cancers across the spectrum. Fight the fatigue. Even if it is taking one turn around your garden, exercise as much as you can. This will also get stuff moving out with the water.

I feel your pain. Hang in there and imaging how many fewer you have to go.

Hugs!!!
Kirsten

Boy ,Oxi gave me vomiting and diarrhea that is memorable. It started with Rx#6 and #7. They gave me 2mg of Ativan IV to get me to the car. My husband says that he never saw my wonderful and compassionate nurses so eager to get me out of there.(some functions cannot be done discretely) After that, the dosage was decreased then ended. I finished the rest and have been NED since 2006. Told my husband I hoped he said the adult diapers were for his granny.

Youe swelling makes me think of allergy and there may be some steroid or something that they can give you.
You are not over reacting. This stuff knocks your socks off. I'm thinking it is doing the same for your cancer.
lol Hanna

Mags,
I'm so sorry to hear you're feeling so junk. I hope you can just curl up and take care of yourself. Better yet, have someone take care of you.
Also, thanks for sharing how you feel. As you know, it is my husband who is fighting cc. He prefers not to read about it much but it is really helpful to both of us to know how everyone else is feeling. It also helps me stayed tuned in when he is being stoic. It reminds me how very hard this fight is for him (and all of you).
Big hugs and lots of prayers to you.
Aloha,
Kathleen