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DEANNA: get your last (LAST!) final (FINAL!) chemo today?!

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Please tell me that you were able to get your last chemo!!! I am so happy for you to be completing the final leg on your treatment protocol, with 3 long months stretching luxouriously ahead of NO DOCTORS APPOINTMENTS, no needles, and reclaiming your life!! :D

I had a much (MUCH!) smaller milestone today: MASCARA! I almost poked my eye out trying to paint the tiny transparent short stubs that are serving as eyelashes so far! My lashes are only out about 1/4 the pre-chemo length, and they were never that lush or long, so REALLY short. But I look SOOOOO much more like my old self with the tiny black fringe around each eye. Small triumph for vanity and a baby step to regaining my self-confidence again in my appearance, which has been at an all-time low with my bald eyes and head, extra chemo weight and huge belly scar.

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

It's funny. I remember those days of emerging from my cancer look to just looking like me again. I couldn't wait- at first slowly and then one day you look like a healthy person again and you're shaving your legs (the one thing I didn't miss) and considering dying your hair even though the grey is looking good. The weird thing was I was confused - sometimes I actually missed the physical remnants of the treatment because I didn't have to explain myself. The good news is - I've integrated cancer into my world and when I'm scared I take my deep breaths and visualize a healthy me and know the anxiety will soon pass and when I do think about it now it is more often a positive thought- because I am here today and I'm going for a walk. or work or sharing a laugh. I should also add that this blog helps me too- at first I didn't know if it would be good for me to hear everyones ordeals but I know that the support is genuine and our sharing can really make a difference. Thanks all, Barb

deanna14
Posts: 733
Joined: Oct 2008

You are just as beautiful as you always have been and a stronger person to boot! I am so happy to hear that you are growing eyelashes. Your average soul could not understand how exciting that really is! I laughed out loud when I read your post! I can feel little fringes with my fingers on my eyelash, so the other day I tried to find them with the mascara wand. I to ended up about poking my eye out. I really do understand the vanity!

How about your hair, are you combing it yet? My hair dresser told me to be sure to continue to use shampoo and conditioner and massage my scalp. She said that it increases the blood flow and might help it to grow faster! LOL. It's worth a try and will get us in the habit of shampooing and conditioning again.

I did not get to have my final chemo today. My blood counts tanked on me again. WBC's, platelet, HGB, RBC's and magnesium. I still had to go to the cancer center and get IV fluids and magnesium IV. I also had to get a shot to stimulate the production of platelets and another to stimulate the production of RBC. Then I have to go back each day this week for one of the shots. I haven't read through the teaching sheets yet, so I don't remember off had the names of them. They said they would probably make my bones, joints and muscles ache like the Neulasta shots do. So, I'm a little bummed and shed a few tears, but it's okay. I will get it next week, I go back next Wednesday for lab and if they are okay, then I will get my last treatment.

Staying positive! Love and hugs... Deanna

deanna14
Posts: 733
Joined: Oct 2008

Barb, I so agree that cancer stinks, but it soooo makes you appreciate even the little things more. Not to say that I won't color my hair if it comes in grey, but I really don't care what color it is as long as it comes in!! I don't miss shaving my legs, but I will certainly welcome it back as a sign of health and an end to the treatment phase of this whole ordeal. I am not going back to work full time, but I look forward to the time when I actually feel like going back to work at all. I've learned some valuable life lessons and I've put some things in order in my life that were out of whack. So, it helps to find the positive things and make the glass truely half full.

I don't know what I would do without all of you that participate in this board. Seems like when one is having a rough day, the other has some good news to bring you back up. Like Linda and her eyelashes... I got my laugh for the day, but it really is a milestone that most people don't understand. Or they really don't get why you are upset that your LAST treatment is postponed by a week. Wow... I really don't know what I would do without all of you.

Thanks to all of you for being here!

Ro10's picture
Ro10
Posts: 1361
Joined: Jan 2009

So sorry that your blood work was not good enough today to get your last chemo. Your last statement "Staying positive!" is tyhe thing to do, but not always easy. You will have one more week to get built up and then maybe the last chemo will not be so hard on your body.
Hope you have a good week.

I did get to go out and have a celebratory lunch today, as I had my last external radiation treatment today. My nausea has been gone for several days, and my salivary gland is not tender anymore, and I had no diarrhea over the weekend. That is a lot to celebrate.

I will go into the hospital on Tuesday for my internal radiation. I will be ready to celebrate when that is over, too. So Deanna maybe we can do a long distance celebration when you get to have your last chemo next Wednesday. Remember to stay postive. HUGS to you.

deanna14
Posts: 733
Joined: Oct 2008

I am so happy for you that you finished your external rad txs today and are feeling better! We will plan on that long distance celebration next week.
I had a few minutes of tears today and then pulled myself up by my boot straps. We can't win this battle with a defeated attitude! I plan on being stronger and ready to take treatment #6 next Wednesday.
I will be praying for you that your internal radiation goes smoothly with minimal side effects. Then on to finishing your chemo... I will be here to celebrate with you when you finish all of your treatments.
Hugs to you too!

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

Deanna, I am sorry that you couldn't get your last chemo today you must be down in the dumps about it, but your counts sound like they are really low. I hope you get them to come back up soon. I had the same problems but you seem to be getting them worse than most of us.
I did not have radiation with chemo it was 1 year apart.

My hair is coming in much faster now and my eyebrows and eyelashes are in along with a lot of unwanted hair. lol

Take care of yourself and here's a big wish for your last chemo real soon.

Sharon

deanna14
Posts: 733
Joined: Oct 2008

My counts tanked on treatment 4 and I had a 2 week postponement. Then when I got the 4th treatment, I also had to had IV magnesium.
Now on the 6th treatment, the counts have tanked again. They tell me it is quite common when you have radiation and chemo one right after the other.
Glad to hear that your hair is coming inand the eyebrows and eyelashes. I am looking forward to having hair back.
Thanks for the positive thoughts. Hugs!
Deanna

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I'm so sorry that you were unable to get your last chemo today. I remember how BUMMED and horribly let down that I was when I went in for my last chemo and had the same thing happen to me. And then, a blood transfusion and a week later I was denied chemo AGAIN due to my low platelets. And then finally, after another 3 days, they let me have it. The wait was endless, but your body has been through so much already that you can understand how it can happen. It's still frustrating. Is it Procrit shots you're getting?

Try to be patient with the process. It's so prolonged; patience is one of the lessons of having cancer I guess.

I still just have peach fuzz on my head, still very thin and far from being comb-able. The little hairs are either very dark or pure white, so I may have a salt-and-pepper end result, even though my hair was never dark before. It's still too early to tell; light still reflects off my shiny head; my hair is still that sparse. I did notice a couple of little hair on my CHIN, though! HA!

deanna14
Posts: 733
Joined: Oct 2008

I am planning on being strong and ready for treatment next week! I had my tears and once the initial feelings of discouragement I won't let this get me down. My body needs more time to recover... that is what it's going to get! LOL. The doctor said it is very common for the 6th treatment to be postponed, especially when radiation is done prior to chemo. He said the body barely has time to recover from the radiation and then we hit it with the chemo.
I got a Procrit shot today for the red blood cells. I also got a shot called Neumega to stimulate platelet production and I will get this one Tuesday through Friday this week.

I also have some peach fuzz on my head. I fing myself rubbing it a lot, it's so soft like baby hair. I'm looking forward to seeing the color of mine also. There is fuzzy blond looking hair and stiffer dark colored hair. I also have the fuzzy white peach fuzz on my face and ears like babies have when they are born. And a few crazy looking dark colored eyebrow hairs. LOL. Think of all the hairstyles we can try in the growing out process! Could be fun.

Thanks for the moral support. I don't know what I would do without all of you.

Teresa 61's picture
Teresa 61
Posts: 84
Joined: Dec 2008

Deanna ,sorry to hear you didn't get your last chemo today. I do know how bad we all want these treatments to end. Next week will surely be your week for final treatment. I will also be happy for you Ro when your enternal radiation is a thing of the past and you can get on to your last 3 chemos.I had my 4th chemo today , time went fast ,I'm reading the Twilight Saga.
Oh Linda, got the biggest laugh about the facial hair LOL...

deanna14
Posts: 733
Joined: Oct 2008

I have read the first 2 in the Twilight Saga and loved them. I am waiting to find the 3rd in paperback. Have you watched the movie?

Thank you for the kind words of encouragement. How are you handling your chemo treatments? I hope you are feeling well.

Hugs!

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

Deanna,

Sorry to hear about the delay but I love your positive attitude. You will soon be blossoming with the summer foliage, what a great feeling that will be!

Linda, so glad to hear about the eye lashes, ahhhhhh the little things. Before you know it you will be like I was and won't be able to stop running you hands through your hair. I can finally look into the mirror and see a healthy me. No more yellow under my eyes, beautiful hair on my head, life is good! I also got my results from my PAP yesterday, NORMAL.

To all here, my heart and prayers are with all of you. This spring has been the most beautiful spring I have ever notice, just because I will now take that time to notice!

God Bless.

MIND, BODY AND SOUL!!!!

Hugs.

deanna14
Posts: 733
Joined: Oct 2008

Congratulations on the NORMAL pap! That is such good news. Looking forward to running my hads through my hair. LOL.
Hugs!

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I just started the 1st of the Twilight series, as my daughter-in-law in totally hooked on them and has the 1st 3 books to lend me. It's so funny how our lives parallel in so many ways! For women I have never met, I can't even tell you the rush of love I feel for you all when I read your posts. I will try and remember to email Peggy because she will be thrilled that we have a 7-year UPSC survivor here, and I'm not sure how often she stops in anymore. I don't want her to miss something sooooo encouraging. We sure have all been through a lot together!

DEANNA: I asked my radiation oncologist about the 'shrinking bladder' as I have been getting up in the night to urinate, something I never had to do before. He confirmed what your oncologist said; your bladder can get smaller from the radiation. He said that AFTER TREATMENT (not now!) you can restrict fluids several hours before bed and that there is prescription medication you can try if it interrupts your sleep too much. But he wants me to stay super-hydrated while in radiation. Today is my half-way point, when I'll have 14 done / 14 to go.

I went to Applebee's yesterday with a girlfriend and there was nothing on the menu that I could / should really have on my 'radiation diet/. I could have scraped the chopped fresh tomato off my chicken, but it was in such a great bruschetta sauce and delicious. So the diahrea returned for the evening, but seems okay this morning. I am finding it VERY hard to "be good" with the low-fiber diet. I guess I better knock it off and stop eating things on the "NO" list. (sigh.) We even stopped at Rita's and I had a frozen custard and that probably had more fat content than my digestion can handle during treatment. I'm no good at this dieting.

deanna14
Posts: 733
Joined: Oct 2008

That is too funny. I really enjoyed the first two books in the series and looking forward to the next two.

We have been through a lot together and I'm so glad that you all are here.

It's good to hear that your rad onc agrees, as you probably have noticed, I'm not too thrilled with my gyn/onc. So it's nice to have a "second opinion." He too wants to wait until I finish treatment to try any other meds or treatments for my bladder. So, for now I put up with it. I did find out yesterday that the high fever and trip to the ER was a urinary tract infection. This explains the couple of nights that I was up every hour to go to the bathroom.

Tomorrow you will be on the downhill side of treatment! How cool is that?! I found the low fiber diet difficult as well. By the time I was finished, I was craving fuits and vegetables. They told me it would be a while before my digestive system recovered, but I started adding back in the fiber pretty quickly. I didn't have any problems, but I carried Imodium with me for quite a while to ward off the diarrhea!LOL!!

So far no side effects from the Nuemega and Procrit.

Hugs to all!

bonniesue
Posts: 126
Joined: Apr 2009

It worked good for my mom when she had just some rumblings to take an immodium or 1/2 of it before bedtime. she carried in it in her purse. lots of fluid also helped 1/2 your body weight in fluid ounces. lots of apple sauce and bananas. Easier to stop it before it starts. Hope you are feeling better. Even some organic baby food on hand soothes while keeping you strong.

Teresa 61's picture
Teresa 61
Posts: 84
Joined: Dec 2008

Deanna, after I read the first book I went and bought the movie at Target. My daughter is in love with Edward and wants to watch the movie over and over again LOL....
I'm doing okay with the treatments so far, just want it all over with. this all just seems to go on and on and on......
My 4th treatment was yesterday so if this one is like the other chemos I should be miserable tomorrow, hope not.
Hope you get your last chemo next week........
I have 2 grandchildren that live in Purdy Missouri, their stepdad works in Springfield. Small world.
Marge, so happy to hear the good news on your pap !!!!!

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

My daughter read all the books and seen the movie. I had to make fun of her, she couldn't put the books down. She made fun of me when I got involved with a series of books written by Janet Evanovich (the Stephanie Plum series) laughing at me because when I finished one book I had to go get the next. I guess maybe I should try reading this series...

Teresa, pray you are doing well after this treatment.

MIND, BODY AND SOUL!

Hugs.

deanna14
Posts: 733
Joined: Oct 2008

I hope that you tolerate this treatment much better. I hate to hear that they make you feel miserable. With the exception of the 3rd treatment and the 5th treatment, I haven't had too much difficulty. I pray for you that this one is better.
I haven't seen the Twilight movie yet, I guess I should go get it.
I'm not sure where Purdy, Missouri is, but it must not be too far from here if their stepdad works in Springfield. It truly is a small world.
I hope you are feeling okay.
Hugs!

nursey420's picture
nursey420
Posts: 53
Joined: Mar 2009

sorry about the chemo where you able to get it this week? Hope you can soon I am so glad to be done with treatment and will be back to work next week.
As for telling people about cancer battle I found a site with great t-shirt Cafepress.com I googled cancer t-shirts and found the site. I did not have chemo so people are not sure why i am tired or my stomach is upset. I got 2 shirts on says Uterine cancer sucks and the other is cancer survivor. I ordered them thursday and got them today.
Good Luck
Lisa

Ro10's picture
Ro10
Posts: 1361
Joined: Jan 2009

Glad you were able to get chemo treatment number 4.......only two more to go. I hope this treatment did not make you so miserable. I wonder how these last chemo treatments will compare to the first three after having radiation. I can certainly understand how you want to get all of the treatments over with. Those are my sentiments also. The end of treatment is coming closer.

I have not read the Twilight series. I was not really interested in seeing the Movie, but since all of you are so into it, it has changed my mind. The star of Twilight was from Florida, close to where we winter. They had a big article about him in the St. Petersburg Times newspaper. That sparked a little interest also in seeing the movie.
Hope you are going to have a good weekend. HUGS to you.

Deblittleton's picture
Deblittleton
Posts: 56
Joined: Feb 2009

Congrats Ro on your last external radiation tx. Good luck on the internal rad tx. Deanna, I hope you get your last chemo this week and it goes well. It will be so good to have that behind you.

I had chemo #5 today and it went well. Tomorrow is Neulasta day. Despite my labs, they were good, my onc prescibes the Neulasta injections 24 hrs post chemo every time. It seems to have worked. Last chemo is in mid June and my radiation starts in mid July. It is so crazy how everyone's tx is different.

Feel well everyone,
Deb

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