May 06, 2009 - 7:51 pm
Dont really know what to say so I will get straight to the point....Karen has Liposarcoma. She was diagnosed in 1998, they supposedly got it all (was in her upper thigh), she became disabled in 1999, it either came back or she attained another primary tumor in her sacrum in 2007. She underwent 30 radiation treatments in '07 then begam\n chemo in Jan. 2008 and is still receiving treatments. This is MASSIVE chemo, she goes 4 days a month for 6 hours a day (24 hours of chemo monthly because the cancer is so rare anf the Dr's do not know much about it let alone how to treat it. In Oct. 2008 her scans showed that were the cancer had migrated up her spine to her neck was receeding, thanks be to God. She still is going because the Dr's want her to go until its gone. Her next scans are in 3 weeks so we continue to pray.
I am her partner of over 20 years and her caregiver of over 11 years; not to say that she is incapable of taking care of herself. I do what she needs and take care of our raising our grandson (her son's son), taking care of our 5 dogs, and all the housekeeping/yard work. Pre-cancer, she always took care of the house and I took care of the yard; not hard to tell whose role is what huh? Anyway, it all worked out up until her cancer recurred 2 years ago. I then became THE house, yard, kid and dog keeper as well as her caregiver. Don't get me wrong, I don't mind it I just can't handle it. I was working 50-60 hours weekly up until I lost my job of 8 years in December and have major lower back problems. I am at my wits end and just needed to vent I guess. I do see that it is taking a toll on me though. Any advice????