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Has anyone ever had swollen feet?

Lisak
Posts: 59
Joined: Mar 2009

I am a little scared because my right foot and ankle is very swollen.. and I am gaining weight after being done with chemo for 2 months now.. has anyone had this problem??

shortmarge
Posts: 296
Joined: Nov 2008

My hands keep swelling. It's been three months since my last chemo and my blood pressure is very low, my hands are swollen most of the time and my weight, doc wants me five pounds lighter next visit. I've been walking, eating salads and fruits and really watching what I eat and I cannot lose a pound. I just seem to stay where I am. Very frustrating. But with the foot and ankle I would call my regular doctor and get in to see them!

Has anyone had problems with their blood pressure being low - 91/57...

MIND, BODY AND SOUL!

Hugs.

Lisak
Posts: 59
Joined: Mar 2009

I will call my doctor tomorrow.. I am planning on leaving for Tucson, AZ this Friday. so, I'm a little nervous about leaving with being so swollen. hmm and I have never had any swelling in my hands I'm not sure about my blood pressure maybe I should have it checked.
isn't it better to have it low than high?

Thank You so much Marge for answering and telling me what you are going through.. it really helps .. ((((HUG)))

CancerNinja
Posts: 3
Joined: Jun 2014

Hey there, I myself am delaing with swelling in feet and ankles also. Most the time on left side. Have had an ultra sound done on legs and no clots. Onc not for sure and general doc not for sure. I am so frustrated with this and I am not getting answer. I to have gained weight and I eat good and I walk at least 3 times a week and really don't eat allot.

My blood pressure has been ok. My gen doc did a major blood work ck and said my kidneys, liver and everything looked ok. Just my immune still a little low. Also cked my heart by blood work and it looked ok. I finished rad about 6 months ago. Had 6 months of chemo started in Jan 2013. Had 3 nodes removed and a lumpectomy.

So, if you find out anything please, please let me know and I will do the same. So frustrating when they just keep blowing it off and all you want is an answer.

Thanks everyone, Pam

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

LISA: I had 1 foot and ankle swell during chemo, and when I called it in they made me come in to look at it. What they told me is that if it is a blood clot, it will be painful and won't go down when elevated ans won't usually affect both feet. Since my chemo has ended (last round March 26), I had 3 or 4 days where BOTH feet and ankles swelleed up. I didn't call it in, but if it continues to happen I will have it looked at. I notice that my chemo and radiation oncologists both always squeezed up my ankles and legs as a part of my examination, so I know that swelling is something they keep an eye on. Besides blood clots which are common with chemo, your heart can be weakened by chemo and fluid retention can be related to that. I read that if you gain more than 5 pounds in any week that you cannot attribute to overeating, you should call it in. I would call your chemo nurse just in case. It's probably nothing but you need to put your mind at ease. I lost 3 pounds since chemo ended, and have 12 more that I piled on during my chemo that I know will be hard to lose, but I'm not worrying about it until my radiation is over.

MARGE: My blood pressure has always been low, and I saw numbers like you cited throughout my chemo rounds. "Better low than high" was the typical comment. But if it is making you feel weak or is unnatural for you, then I understand your worry. The only complication I have from low blood pressure is that they have a hard time bringing me out of anethesea, and even mild sedatives knock me out cold.

deanna14
Posts: 738
Joined: Oct 2008

Last week when I had to go to the ER with that high fever, my blood pressure was very low like that. It usually runs pretty low like 100ish/60ish, but in the ER it was 80ish/50ish and my heart was about 110. The fast heart rate is related to the fever.
I too am noticing a lot of swelling in my hands, feet and ankles. My feet and toes have always been skinny and bony and now they are just as chubby. I have gained almost 40 pounds since surgery in September. I sure hope it comes off when I finish treatment. I am gradually increasing my activity and I am trying to eat smaller, healthier meals. Something has to give... none of my clothes fit. I don't have one pair of shorts from last summer that I can wear. Don't have the money to buy all new clothes! LOL.

Lisak
Posts: 59
Joined: Mar 2009

Deanna, I've gained about 43 lbs. I am done with chemo and I am still gaining. I am hoping my wii fit that I just brought will help.. I will let you know.. :)

It's fun to work out with the wii fit and I don't feel like I'm working out I really feel like I'm playing a game.

Lisak
Posts: 59
Joined: Mar 2009

Thank you for sharing what you went through with me also.. when my oncologist would see me she would also check my ankles too. but, now that my chemo is over (since march 6th) I feel like I'm on my own. I went to the doctor (reg. doctor) because I was gaining to much weight and she took a bunch a blood test and said I was fine and looked at my foot squeezed it and said I was retaining water. I never retain water like that. Now I wish I would have called my oncologist. I will call them tomorrow.. it's just they are so far away and I'm not sure I can just go there before Friday.

Thank you so much Linda for your reply. I really wish I only had your 12 lbs to lose.. hehehe :)

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

I finished my last chemo on March 11 and my left ankle and foot are still numb and swollen, if there is any pain in the calf of your leg, my doc says a ultra sound to see if it's a blood clot. I am working now and some days it's not so bad but it's still there. I was told it was just going to take some time to go away. I guess it's a wait and see.

Sharon

Lisak
Posts: 59
Joined: Mar 2009

Thanks Sharon for telling me about your foot and ankle. mine is the same way and i don't have any pain from my foot. I do have body aching and take a pain pill every night before bed. I'm not sure if I should be feeling body (whole body ache) or not.. I just thought it was part of the recovery. do you still have body aching?

thanks again Sharon for your reply! (((Hugs)))

shortmarge
Posts: 296
Joined: Nov 2008

I still do. Wish I had a big vat of Ben Gay! It's not constent and I'm beginning to feel that the chemo stays in the muscles for awhile. It's strange, somedays I will feel on top of the world and the next day, ooooooooooh I'm afraid to stand up. When I went for my 3 month check up I told the oncol about the swelling in my hands, she said I need to go see my regular doc and get check for rheumatoid arthritis. Hmmmmm, do they know something that they don't like to tell us, like some side effects of chemo!

I will say that a deep tissue body message does help. Had one a month ago and am going back on the 22nd. I was going to have them monthly but I'm thinking I might step it up and have them every two weeks.

Hang in there, this is a whole new world but we are survivors and we will adjust!

MIND, BODY AND SOUL!

Hugs.

Lisak
Posts: 59
Joined: Mar 2009

That is exactly how I feel too.. some days I'm on top of the world and probably go over board with working in the yard or doing things I used to do with ease now they hurt. I work in the yard last weekend mowed and then pushed mowed all the t******** and around the trees then the riding lawn mower for the rest and pulled some weeds and picked up sticks and then wow.. the next morning I couldn't hardly get out of bed i was soo sore. Thank you for letting me know you are going through this too.. I wish you weren't but, thank you for sharing your aches and pains with me.
(((HUGS)))

deanna14
Posts: 738
Joined: Oct 2008

Marge,
I'm glad you brought this up b/c I too get the feeling sometimes that they know things they don't want to share. I also noticed when going through radiation, I would bring up a symptom I was having and they would say "it isn't anything we are causing with the radiation." So I would ask the gyn/onc "it isn't anything we caused with the surgery, it's probably the radiation."
Anyway, I too have a lot of swelling feet, legs and hands. It seems to be worse with the weather getting warmer. Hopefully, eventually when all of this poison is out of our systems, some of these annoyances will gradually go away.
I'm happy to be alive, happy to be able to play with my granddaughter! I think a massage sounds like a fabulous idea. That may be my gift to myself after my last chemo.
We are survivors!!

MoeKay
Posts: 63
Joined: Feb 2004

Lisa,

I would suggest that you ask your treatment team whether you might be experiencing lymphedema. Lower extremity lymphedema (or swelling) can sometimes be a side effect of gynecologic cancer treatment, including surgery and lymph node removal, radiation and/or chemotherapy. If it turns out that this is your problem, early treatment is very important.

See: http://www.oncolink.com/coping/article.cfm?c=5&s=23&ss=104&id=980&p=1

Best of luck and health,

MoeKay

Lisak
Posts: 59
Joined: Mar 2009

Thank you so much MoeKay and Barb and everyone for your replies.. I called my chemo nurse today and she was very concerned until she asked if I was feeling sharp pain with the swelling feet and I said no I didn't then she asked if it was warm to the touched and I said no it's just a fat foot. She seen to think it was nothing to be alarmed with right now but she told me she would talk to my doctor and if they think it was something wrong they will call me back.

I was very happy with her tone in her voice.. she didn't act like it was a big deal. :)

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

It was a good year after surgery, chemo and radiation till I could recognize my body again. Fatigue and aches were frequent- I do remember that my doctors frequently asked about swelling (It wasn't a problem for me) but I think it important that they hear about it ASAP. Slowly and surely I began to feel stronger. Regular exercise which I gradually increased helps so much! One after effect I am dealing with now is severe osteoporosis - my bone density definitely decreased during treatment. I am taking Pilates and love it. My body is stronger and more balanced. I also think the beginning of arthritis in several joints is taking hold- though I'm almost 60 so it may have happened anyway. Barb

Lisak
Posts: 59
Joined: Mar 2009

It's great news to hear there will be a time that I will feel good again and be able to recognize my body. I do need to get into a exercise program .. I heard pilates is very difficult... and with my body aches I'm not sure I can do it.

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

I didn't start out doing Pilates after my cancer treatments ended. In the beginning I took gentle walks- that was enough. I work one-on -one with a PIlates teacher once a week. It costs a lot of money but I really get so much out of it and I knew I couldn't keep up with a group and was afraid to hurt myself. I took on an extra job on the weekend selling artisan cheese at the farmers market just to pay for my lessons. Of course now I've gained weight from all that yummy cheese :) We started very slowly. What I love about it is it focuses on the core- stomach and back muscles for strength and I really felt that was important for me especially after the surgery. It's not hard- but like any excercise a good teacher is crucial. I'm an extremely uncoordinated person- I fall all the time. It's not for everyone but it gives me confidence along with strength and balance. We just need to keep putting one foot in front of the other and keep on moving- physically and mentally. Of course, I found the best advice was to just listen to my body. If it needs to rest it gets rest.
Barb

MaryAnnOnTheBay's picture
MaryAnnOnTheBay
Posts: 20
Joined: May 2009

My leg swelled up before I started chemo, probably due to some kidney issues. Doctor sent me for an emergency sonogram within the hour, to be sure it wasn't a clot. It wasn't. Got lasik, which kidney doctor told me was mainly for comfort. Leg is still swollen 6 months later. Wearing elastic stockings seems to help. Only the oncologist seems interested in it now. Mary Ann on San Francisco Bay

california_artist's picture
california_artist
Posts: 860
Joined: Jan 2009

Hi, MaryAnn,
I put a copy and paste link above as a thread? about swelling under Lymphedema. It's a link to very useful sites.
Also, I was reading one of your posts about your experiences through your cancer treatment, where you mentioned writing a book.I think writing a book of your experiences would be a fantastic idea as you are a very interesting writer.
As always
Love and hope to us all,

claudia

I see you are in San Francisco, were you there during Loma Prieta Quake? Where is you boat, San Francisco or Sausalito? I miss Golden Gate Park and the ocean so much.

MaryAnnOnTheBay's picture
MaryAnnOnTheBay
Posts: 20
Joined: May 2009

Thanks, Claudia. I checked out the site and seem to be doing some of that stuff, medication, elastic stockings. It did remind me to make an appointment with the podiatrist, which I just did. I am trying to write my memoirs and going to a workshop with some professional writers, who are very encourging and keep telling me to put in more detail, more emotion and some more dialog. Unfortunatly I haven't gotten past 10 years of age. I think we all have lived in interesting times and have something to write down or dictate to leave to our families, even if just a few paragraphs. My stuff is just growing because these guys keep telling me to add more detail. I was on an airplane, returning to San Francisco during Loma Prieta, diverted to Los Angeles. My partner had cleaned up the mixture of broken glass, vinegar and corn startch and other stuff by the time I got home. My boat is between Candlestick and the airport, in the San Bruno wind gap. Last night the gusts were so bad, I almost took a leftover nausea pill. Mary Ann on San Francisco Bay

california_artist's picture
california_artist
Posts: 860
Joined: Jan 2009

I lived in the Bay Area for forty years, just moving to the Upper Peninsula of Michigan about five years ago. I miss California so much, I very rarely go out in the winter here because it gets below zero lots of the time.. Plus with all the ice and me not having ice legs, I spent a great deal of time lying on the sidewalk after falls. I think that the change in the level of my exercise could have had a bit to do with me getting cancer. I should be going back to the Bay Area for a visit over the summer. My brother and sister live in Marin County, my son in San Jose. Well, this has nothing to do with anything. Just your mentioning those place brought back wistful thoughts.
All my love to you MaryAnn.
I hope you will thrive and be well.

Claudia

Ladyebc
Posts: 9
Joined: Nov 2003

Lisa,

Swelling of foot/leg sounds like lymphedema. Treatment is important to reduce risk of skin infections and cellulitis. Ask your gyn/onc for a referral to a certified lymphedema therapist immediately!! Treatment is covered by most insurance and Medicare. Got to website lymphnotes.com for lots of good info.

I am an almost 7 year survivor of UPSC, stage 3, clear cell, high grade --beat all those awful odds! but was left with lymphedema as a result of lymph node disssection and radiation tx. My left foot and ankle began swelling post chemo and radiation tx. Everyone was so focused on treatment that it wasn't until I couldn't get my foot into a shoe that dx of lymphedema was made, but by this time, the swelling had progressed from toes to groin so don't waste time....the sooner you have treatment the better the results from therapy.

deanna14
Posts: 738
Joined: Oct 2008

Ladyebc, I am so happy to see you post here. It is great to hear of a 7 year survivor of UPSC! That really gives me hope that this horrid cancer can be beaten. Thanks for the info and the website on lymphedema. I have some swelling in my feet and ankles, but I think mine is just fluid retention. I'm going to check out the website you recommended so I know what to watch for.

Linda, are you still having the swelling in your leg?

Ro10's picture
Ro10
Posts: 1485
Joined: Jan 2009

How encouraging that is for all of us who have Stage 3. Thank you so much for posting. It is great news to read. Sorry to hear about your lymphedema though. Thank you for giving us another web site to check out. I did not realize there were certified lymohedema therapist. I bet they mostly see people following mastectomies, though. Thanks again for the info.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I am also thrilled to hear from a Stage 3 UPSC sister that is a 7 year survivor! You must have really had 'cutting edge' treatment 7 years ago, when even less was known about UPSC than the little they know today. THANK YOU SO MUCH FOR POSTING! Have you ever had to deal with recurrance?

DEANNA: I haven't had any more swollen legs, but I am careful now to elevate my legs whenever I can. My legs do feel super HEAVY at the end of any day where I am unusally physically active (like when my grandkids spend the weekend), but no swelling. I have 12 of my 28 radiation treatments behind me now, and am controlling the diahrea better by watching my diet. I miss broccoli and cashews and granola, but I'm learning that I have to pass on them for awhile! Is tomorrow your FINAL CHEMO??? I'm soooo excited for you to be closing in on the end of your complete treatment protocol!!!

deanna14
Posts: 738
Joined: Oct 2008

Tomorrow is my final chemo! I am very excited about finishing treatment, but also a little nervous in a way.
I'm glad you have not had any more swelling. My feet and ankles get a little puffy if I am on them a lot, but don't stay swollen. It makes me feel better to hear you say that your legs have a heavy feeling when you are active. Lets me know that it must be normal because mine feel the same way. And you are almost halfway finished with your external radiation... hurray! It was difficult for me to give up fruits and veggies while having radiation, but it helped so much when I stuck with the low fiber diet. Won't be long and you can get back to a normal diet and exercise like you are used to.
I am so excited about growing hair!LOL

Ladyebc
Posts: 9
Joined: Nov 2003

Believe me, I'm more than thrilled to be able to be here to post a message of support so that other sisters can see that there is life after UPSC stage 3c. So far, I have been cancer-free since surgery in July '02.

I was treated at Memorial Sloan Kettering in NYC by a great team of doctors. I opted for agressive treatment and utilized accupunture as a complementary therapy to boost immune system and minimize nausea and other intestinal side effects. Treatment included surgery, external beam radiation, high dose brachytherapy and 6 rounds of carbo/taxol chemo ---the works!! Came through most of it ok...the radiation damaged my intestines so another surgery in June '03 was necessary to remove damaged areas of small intestine and do some major repairs and removal of adhesions. I now take vitamin b12 injections monthly because I don't absorb enough on my own and I have to watch diet somewhat to prevent gastric problems. Otherwise, aside from the lymphedema, I enjoy a pretty full life. I was still working when dx, but have since retired and I'm looking forward to greeting my 3rd grandchild this summer....life is good!!!

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I told my oncologist about you yesterday when I went in for radiation. He said "There are lots of others; you'll be one of them." I can't tell you how exciting it has been for all of us with UPSC. We had another woman post once that was a 5-year UPSC survivor, but she didn't post again. And Peggy is a 2 1/2 year survivor. But you are the best representative of a long-time survivor that has ever been kind enough to stop in and offer this hope to us. Vague stories of "others" who have finished their initial treatment protocol and never recurred are not NEARLY as comforting as someone that has 'been there / done that' and tells us DIRECTLY. I can't thank you enough for reaching back to offer that comforting hand filled with hope.

You make reconstructive surgery not seem so grim either. Did they have IMRT radiation when you were in treatment? It would have been in its earliest experimental days then and I'm not sure it was even developed back then, but you were at a state-of-the-art cancer center who could have been experimenting with it. From what I've read, taxol was a pretty new option in the chemo cocktail at that time. How fortunate that you were given such a cutting edge aggressive treatment! The treatment protocol you had is the same that most of us are getting today. It's just all so encouraging, and something I will hug to me in my darkest moments that sometimes sneak in and chill me with fear. Luckily, those nights when the fear takes a grip on my sense of well-being are rare.

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