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Linda did you go visit your sister?

Ro10's picture
Ro10
Posts: 1361
Joined: Jan 2009

Linda how is the swelling to your feet and legs. Were you able to travel to see your sister, or did you go to the doctor instead? I hope you were able to visit you sister. I hope the swelling got better. Good luck with your appointment on Thursday with the radiation onocologist.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

The feet and ankle swelling seemed to be down when I woke up Tuesday morning, so I didn't call oncology & went to see my sister instead. It's about a 2-hour drive each way, but my husband drove, so I was able to wiggle around and put my feet up on the dashboard now and then, and the swelling was there but not as bad. It was fun to sit on my sister's porch and drink beer and eat too much good food and talk and talk. We stayed overnight and then drove home in the morning.

I had my first external pelvic IMRT radiation treatment today. It was very interesting. They have valet parking for radiation, so we could just pull up at the door and someone parked our car. The technicians showed me where they can watch me on the TVs and hear me, and explained how every day they'd take 2 X-rays and line me up according to the special positioning CT-scan they did a couple weeks ago & the X-rays. (The X-ray camera was built right into the radiation table.) There's no formal check-in; you just sit in the waiting room and wait to be called. On the table I lay still, knees supported with a triangular support, hands gripping a little padded ring to help me stay still, all my clothes on with pants pulled down over my hips to expose my tatoos. They spent some time moving me a tad with the sheet under me, raising the table a hair, etc., based on the specs they had from my oncologist. They made additional marks around the tatoos they had already given me, with a marker, and suggested that it would save time tomorrow if I didn't scrub their marker off tonight. With the Doobie Brothers and Moody Blues playing in the darkened room, the radiation machine moved around me and even under me, stopping 9 times to radiate me in various spots. It was over in 5 or 10 minutes, hard to guess time in such a surreal environment. I felt nothing during the treatment and still feel nothing from the treatment. I never saw a doctor, and was told that I would meet with the oncologist or his P.A. on Mondays, but to call if I needed to talk with him about anything between Mondays. I mentioned the leg swelling to the technician, but she didn't record it or anything. So I'll have to call if it gets worse before Monday. But the swelling is not bad today anyway. So this will be my daily routine (except weekends) through June 9th. My first impression: not too bad!

deanna14
Posts: 733
Joined: Oct 2008

Linda, I am happy that you got to have a nice visit with your sister. Sounds like you are feeling well... fantastic! I do hope that your swelling subsides so you don't have to worry with it.
I'm glad you have gotten your first radiation treatment out of the way. That should ease your anxiety, I always worry about the "unknown." Then it never seems to be as bad as I imagined it.
I woke up Tuesday chilling with a temp of 102.6. I took tylenol and waited an hour and rechecked my temp 101.0. So I called the doctor's office and was sent to the ER. I spent about 3 hours there and was sent home with an antibiotic prescription. My temp. got up to 103.7 when I got home. I just pushed fluids and took tylenol like they told me and the temp finally broke. I have had a bad headache, so we are thinking sinus infection, but really don't know. I guess the antiobiotic is working as I am fever free now. I really thought they would admit me, but I guess they knew what they were doing. LOL!
Take care.
Hugs to all.

Ro10's picture
Ro10
Posts: 1361
Joined: Jan 2009

I am so glad you got to go see your family. Glad it was a good visit. Glad to hear your radiation treamtents are going well. I had treatment number 17 today. so far everything is going okay. I am more tired than I was before, so I rest more than I did. Had diarrhea after treatment 14, but I have not had anymore. I took some Imodium that day. I was afraid I was going to have to start the low fiber diet. I love fresh fruits and vegetables, so I would really miss them. If it meant stopping the diarrhea, I would skip the fresh fruits and vegetables. My friend just brought me a big bag of spinach. You talked about a darkened room for your treatments, I have a beautiful picture on the ceiling to look at. It is a tree with leaves and red flowers all lit up. It is really pretty. Hope you have a good weekend. HUGS to you.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I hope you're feeling better, Deanna. You really have to stay on top of fevers when your immunity is down, as they can really shoot up quickly when you have an infection of any kind. I'm glad that you went right over and hope your temp stays down. Please check it periodically each day for the next few days in case it is creeping back up.

2 IMRTs done; 26 to go, and I feel fine. I was never afraid of the treatments themselves (well, I admit that the INTERNAL rad treatments are scary to me!), but more afraid of the long-term side effects. But I am very reassured by what I've read on IMRT and I tell myself "You have to be ALIVE to have 'long-term' side affects, and being ALIVE has to be the primary goal, right?" HA!

Stay strong!

deanna14
Posts: 733
Joined: Oct 2008

I am feeling well today, but am certainly keeping an eye on the temps. I am pretty sure they broke last night during the night. I woke up drenched (more than normal) during the night. I will check it before going to bed tonight. It seems to creep up a little in the evening. I am taking the antibiotics faithfully.
I am happy that you are doing well with radiation. And yes... ALIVE with side effects is certainly better than the alternative! I pray that you continue to feel well and radiation just breezes by for you. I think you will do well.
Take care, hugs...

Ro10's picture
Ro10
Posts: 1361
Joined: Jan 2009

Sorry to hear about your fever. I too am surprised that they did not admit you to the hospital. Maybe there are too many bugs at the hospital and they thought you would be safer at home. I am glad you are taking your antibiotics faithfully and checking you temperature regularly. Take care. HUGS to you.

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

Been praying for you and glad to hear you are feeling better....

deanna14
Posts: 733
Joined: Oct 2008

Thank you ladies for all of thoughts, prayers and hugs. I truly do feel better. I even went out the last couple of days and rode my 4 wheeler. Usually at this stage in a chemo treatment, I don't do much more than walk to the end of the driveway and get the mail. LOL. Thanks again!

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