Apr 16, 2009 - 2:45 pm
Hello to all
Around Easter 2008 my girl (7yrs) had a slight cough...(how many kids visit there doc with a cough?!)
By the monday morning we were in BRISTOL Childrens(UK) for diagnosis.
In the last week of July we had a call that a cancellation had arisen, would we take it?
Her surgeon had been very open & honest with both her and me in explaining everything...the nurses were fantastic (and very busy).
So on the wednesday she had a 3 hr proceedure to remove a 10 by 8cm 'lump' from her spine at T8 & T9 which was more attatched than the MRI showed and pathology showed it to be GANGLIONEUROBLASTOMA.
By saturday they stopped her morphine and by monday we were home!
MIBG (radioactive girl!) approx 1 mth later was clear as was her bone marrow...
BY THE GRACE OF GOD, NO CHEMO OR RAD therapy...just MRI monitering every 3mths for the forseable future...
She had no outward sign of illness, but thanks to our GP she is back to school and blaming me for making her have more needles at each doctors visit
I WOULD JUST LIKE TO SAY WE HAVE BEEN LUCKY BEYOND BELIEF...