Apr 15, 2009 - 11:47 pm
You know I really thought I was over the kind of doctor's report I got today but nope guess that isn't the case - not over it. I had seen this rheumatologist about a month ago and when I was at my GP's today for my monthly appointment I asked if she had got his consult letter yet and oh ya she sure did. I asked for a copy of it but didn't read it til I was on my way home. I just about fell over when I read it.
On top of the contradictions in it and a diagnosis of 'fibromyalgia like condition', whatever the heck that means - I mean is it fibro or not? - he ended with the conclusion that because I had been through a stem cell transplant and all the harsh treatments that involved that I was overly concerned or preoccupied by medical symptoms. WHAT? In other words I was what 'making them up'? OMG if that isn't invalidation big time, not to mention just plain nuts I don't know what is. I have been in constant pain ever since the transplant and diagnosed with a ton of things and this guy who meets me once, doesnt do any xrays or ct's at all decides it's all in my head? He constantly misquoted me in the letter to my doctor or left out key points to my answers. Luckily my family doctor has been with me through the whole treatment for 24 years but to have a new specialist be as blunt and judgemental with no real input as this nut was just bothers me to no end. I wake up in pain each day and my day isn't started til my morphine kicks in and by the way who prescribed the morphine? The ER doctors who I saw regarding my horrendous back pain which showed arthritis in the lower back that this guy was also questioning. Sigh.
I was numb on the way back from the appointment today after reading his consult letter and for the first time I thought 'scwew it maybe I should just give up on trying to find answers'. This letter was nothing short of personal slander and invalidation and I'm not sure what to do with this. Should I write a letter to him or to my GP, or both, letting it slide seems wrong. I sure hope I don't lose the support of my GP with this kind of negativity coming back. Some of us survivors don't present to docs like normal folks but this guy had no idea about it all. He even said in his letter that he had no knowledge of any syndrome or symptoms like I have with pain from head to toe after having a bone marrow transplant or in fact being a long term survivor. GARBAGE. We have all seen, over and over the results of harsh treatments on our system and by the looks of it this guy hasn't picked up any reports on after effects ever, let alone long term survivorship issues.
Sorry for ranting but I just truly feel numb from this. I have suffered for 18 years in pain and this is the result from a so called specialist. I have already asked for a second opinion, maybe I'm just letting myself in for more abuse. I don't know.