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Gallbladder Cancer Stage 4

gwc345
Posts: 2
Joined: Apr 2009

Hi,

A week ago my mom was diagnosed with gallbladder cancer stage 4. I am looking for survivors. Anyone who knows a survivor. I know the statistics, the doctor has already given us a time frame, and the oncologist has told us to go for "quality of life".

If there are any survivors or if you are having successful treatments I would like to hear from you. What have/are you doing right? Where did/are you getting treatment?

Any information you could give me would be greatly appreciated.

Thank you.

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi,
I too was diagnosed with gallbladder cancer stage 4 in the fall of 2005. My husband later told me that I was given a short time frame also. Well they were wrong!

I had aggressive chemotherpy for almost a year to shink my turmor so that they could operate on my gallbladder, liver, stomach and removal of lymph nodes. I have a great oncologist in Las Vegas, Nevada and had my surgery at UCLA in California. I completed my chemo in March 2007.

I never lost my HOPE or FAITH and no doctor should ever be allowed to take away your HOPE.

If I can help answer any questions just let me know. It is a hard road but it is worth it. Every day becomes a blessing.

dje17
Posts: 12
Joined: Jun 2009

my sister has stage iv gallbladder cancer I was so happy to see you did well.
please e-mail what you had to do and keep well

gwc345
Posts: 2
Joined: Apr 2009

Hi, I would love to speak with you. My mom is on her second round of chemotherapy and it would be great to hear your story.

grant4998
Posts: 1
Joined: Sep 2009

I live in LV too. My mother was recently diagnosed with this type of cancer as well. Reading what you wrote brought tears to my eyes. You gave me hope. Thank you.

loveourmom
Posts: 2
Joined: Sep 2009

Hi. My mom was diagnosed with stage IV gallbladder cancer about 6 hours ago. It is "attached" to the liver and she has extensive lymph node involvement from the neck through the groin. One month ago, we golfed and shopped together all the time. Now the doctors are hinting that chemo won't do much to help her. Searching the Internet didn't give me much hope ... until I found you. Could you please let me know what type of chemo you had and how you tolerated it. Also, did you have a lot of pre-treatment pain? My mom has had severe pelvic pain for the last few weeks, which is constant and debilitating. Her oncologists gave her oxycotin (sp??), which will probably only debilitate her more. I know she doesn't want to suffer through chemo if she's only got a month or two left (nor do we want her to suffer needlessly either), but you don't know about effectiveness until you try; right? Would you be able to give me more details about your incredible survivor story? These details will help us with this life-altering decision. Also, I would love to hear more from the other posters on this site about what worked for them and what didn't; what kind of chemo they're trying; any side effects; and basically anything else that could help with pain management, nutrition and overall survival. Thank you for your encouraging story and for (hopefully) getting back to me. Kathleen

isellabrate
Posts: 2
Joined: Oct 2009

Hi, Lily,

Thank you so much for offering your words of hope. I have stage IV metastatic gallbladder cancer. I am only 64, and lost my husband to cancer less than 8 months ago. After removing my gallbladder and discovering the cancer, I had an exploratory surgery where they tried to resent the liver and remove the tumors. They were not able to do so, since the cancer had metastitized.

My oncologist wants to use weekly Gemzar to try to shrink the tumors. May I ask what your chemo was?

Jan

DeeMatt
Posts: 1
Joined: Aug 2010

My brother has stage four Gall Bladder Cancer and the oncologist who just informed us of this last Friday July 30, 2010, we are still in shock over this. He has had one hard time of it with two lesions on the liver. He will be getting Gemzar as well with two weeks on and then one week off. His Doctor said that at the end of 90 days they will do a MRI or PET scan to see if the tumors have shrunk at which time the surgeon who did the laprascopy will operate to remove the gall bladder and re-section the liver, the othe possibility will be the new cyber knife radiation with only three to five treatments, he has been suffering with blood clots in the lungs as well as the right leg. He also had a stint put in the bile duct which was filled with stones, his jaundice is about gone, He is now in rehab trying to get stronger for the Chemo! He also had to have a filter put in his abdomen for the blood clots.
He started out with a dry hacking cough in March which probably was lung blood clots, nothing was found until July, he has lost 35 pounds and had no appetite. His Doctor gave him antibiotics and cough meds, not looking any further into his problems. He also is getting over a bad blood infection.
On the bright side, if there is one,he has come thru all of this, and regardless of the outlook I believe he is going to make it, where there is life there is Hope. He is one of the most wonderful people you could ever meet.
If anyone needs a great surgeon dealing with the liver her name is Dr. Ellen Hegopian and she is at Jersey Shore University Medical Center, she found my brothers problem in less then 48 hours after being admitted. I just wish we had had her in March or April when he may of been stage three ....
Good Luck with Genzar and keep in Touch.

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hello and welcome to this forum. I'm so sorry to hear about your brother and this terrible diagnosis. I am a gall bladder stage IV cancer survivor. Ask me anything you want and I'll try to answer.
Quite a number of us also had lesions on the liver. Sounds like he is receiving the standard protocol for this disease. Gemzar is a very good chmo drug and has shrunk many turmors for others. He has already experienced many hills and valleys and is fighting a tough fight. I wish him well and with everyday that passes he will get stronger for his chemo battle.
It amazes me that many doctor's miss the signs of this disease. It takes a caring and compassionate doctor to find these issues and it is usually in a very short time frame. There are some bad doctor's, some good doctor's and then there are some great doctor's. If we are lucky enough to find them they can ultimately save our lives. Dr. Hegopian sounds like a great one!
Hope & Faith will carry you through on this journey.

Take Care
Lily

chunkymonkey99
Posts: 1
Joined: Mar 2012

my dad has just been diagnosed with gallbladder cancer and is 81 . He hasd the body of a 60 year old always very active and never sick a day in his life or on any medication. Things see dire as the doctors are telling us he has advanced cancer. We are going to an oncologist /hematologist now and he is going to do a ct guided biopsy on hios lymph node in his neck. He has other smalll spots in his body the largest being a 3cm by 2cm enhanncing mass on the left posterior pelvis between the posterior aspect of the urinary bladder and the left seminal vesicle. He has a fullness in the lower right and left quadrant and some dull fullness n the right lowe back. when he sits he has to do softly as he feels pressure near his tailbone. He lost 15 pounds but other than that so far those are all his symptons. I am in the nj area and was wondering what I should do from here. I want to find a gallbladder cancer specialist but that is rare to find. i am willing to travel to NYC. Any suggestions would help as I don't know where to turn right now.

jakesman
Posts: 33
Joined: Sep 2009

You go, Lily50. You kick that cancer right in the bleeping behind

KatieDeBakey
Posts: 2
Joined: Feb 2010

This is my first post. Or so I think. Not sure how to use this. My mother has been diagnosed with stage IV gall bladder cancer and just started undergoing chemo a few days ago. If she does do well, do you think we could have her gall bladder taken out? I could give her half of my liver and a kidney if she needs one, my sister could give her another kidney. And I saw a clinical trial about zapping spinal tumors with radiation and chemo to get rid of them. She could also have the affected lymph nodes removed and that would just leave her with a little bit of pancreatic cancer. Just a small spot. I know this sounds WAAAAY out there but, if you or anyone has heard of success with this, PLEASE let me know and direct us to the right people. If not, I will let you know what I find out so at least some progress can be made with this horrible cancer. It's great to meet you all. I wish it were under better circumstances.

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

You did just fine on your posting. I so sorry about your mother. This is a terrible disease. What type of Chemo is she receiving and how often? This can be a very aggressive cancer and treatment will need to be aggressive. She has many options in front of her and you need to be comfortable with the doctor's that are treating your mother. I do believe in second opinions. The liver is one of the organs in the body that can re-generate after surgery if the damage isn't too extensive. When the cancer has spread to other organs it is best to find the most qualified surgeon possible. It isn't really way out there it is just that there is so much information on the Internet and some of it is old and outdated. I am a survivor-4 years and I had a great Liver surgeon at UCLA. Read my profile and you will find that your thoughts are not WAAAAY out there. I have heard of many different stories accross the country about great places. Take the time to read all the posts you can, people are very forthcoming when they are being treated well for this disease. East Coast, West Coast, Midwest, Cancer Treatment Centers of America (CTCA) just let us know what side of the country you are in and we will try to help.
You and your Mother are in my prayers.
Lily

KatieDeBakey
Posts: 2
Joined: Feb 2010

Thank you for your quick response, Lily. We are actually in Austin, Texas. I have only found one clinical trial near us that has to do with gastrointestinal cancers (that my mother would qualify for) and it is in San Antonio. I'm not sure about the type of chemo she is receiving. I'll be taking her to her second appointment for it on Thursday and I will have PLENTY of questions for the doctor. I was going to ask him about what I mentioned above and I will also ask him about the type of chemo she is already receiving. I'm so glad that you made it and that you are now helping others! THANKS, LILY! = ) Off to check out your profile!

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi Katie,

I currently talk to two other caregivers that are in Dallas, Texas. They are gwc345 (her mother) and LisaR3159 (her friend). They might have some suggestions for you since they are kinda in your area. Send them a private message and let me know if you get no response. I don't know how often they come to this site as they now just Email me at LGregg6293@Aol.Com. We tend to have long conversations and it just is easier. If you would like to Email me just put ACS-CSN in the subject line so that if it ends up in Spam I can add you to my contact list. Hope Thursday went well and wasn't too overwhelming. Never stop asking questions. If you don't help your mother be her own health advocate then she won't feel that she is in control of this situation. Ask me anything and I will try to help the best I can.
Take Care
Lily

Scam
Posts: 2
Joined: Oct 2010

I am also in Austin, TX and my Mom, 70 yoa, was diagnosed with gallbladder cancer in June, after the gallbladder was removed. It has already compromised the liver, lymph nodes, lungs and abdomin (sp). She just finished a chemo treatment of 4 cycles over 21 days with cisplatin and gimzar. I was able to find a study in SA that we are traveling to hear about tomorrow.

Can you tell me how your Mom is doing and if you were able to find something that helped ? Due to very very very low blood counts, the chemo was reduced to 60 % and she was not able to handle the last cycle at that.

Has anyone here ever gone to Cancer Treatments of America in OK ?
Please, we have hope.
Susan

JanetMacK
Posts: 3
Joined: Jul 2010

I love your story. If I could figure out how to print it I'd paste it on my mirror.
I got diagnosed in February. Dreary. But the chemo is working now and we'll see if there's more to be done.

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi Janet,

Welcome to this discussion board! There are some really great people that you can talk to here. I am a survivor of this terrible disease, and you can be too. I was diagnosed in 2005,had chemo treatment 2005/2006, surgery 2006, chemo 2007 and I can proudly say I am in remission. This is a disease that is coming to the forefront. I know that when I was diagnosed I was told there were no other cases out there. There were but the doctor's didn't know about us. What chemo cocktail are you being given, and how many sessions? Have you had any surgery yet or radiation? Tell us what is going on and we can try to help you. Where are you located? It is wonderful when you can talk with someone who is in your area if possible. You are not in this alone, talk to us.

Take Care
Lily

kjgrieger
Posts: 6
Joined: Aug 2010

My mom went in to have her gallbladder removed and they found that an area of her gallbladder was "suspicious" , as well as a couple spots on her liver. It is cancer. Did your doctor tell you upfront that surgery was an option or not? What kind of chemotherapy regimen were you on? How large were your tumors to begin with and what did they want to shrink them to in order to surgically remove them? I understand that they need to do chemo first to shrink the areas. It seemed like the doctors that I spoke with thought surgery may not be an option? I sometimes feel like they are afraid to say anything and all I have is a million questions! My mom is in fantastic health otherwise!!! Any help you can offer would be so greatly appreciated!
~Kellie

kjgrieger
Posts: 6
Joined: Aug 2010

My mom went in to have her gallbladder removed and they found that an area of her gallbladder was "suspicious" , as well as a couple spots on her liver. It is cancer. Did your doctor tell you upfront that surgery was an option or not? What kind of chemotherapy regimen were you on? How large were your tumors to begin with and what did they want to shrink them to in order to surgically remove them? I understand that they need to do chemo first to shrink the areas. It seemed like the doctors that I spoke with thought surgery may not be an option? I sometimes feel like they are afraid to say anything and all I have is a million questions! My mom is in fantastic health otherwise!!! Any help you can offer would be so greatly appreciated!
~Kellie

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi Kellie,

Welcome to our small but strong group of Gallbladder Cancer patients, caregrivers, loved ones and survivors. In alot of cases when they remove the gallbladder it is then that they determine that cancer is present. Yes, I was told in the begining that surgery was not an option at this time, nor radiation. We would have to get shrinkage in the tumors which were quite large, my liver was comprimised therefore no radiation. I just kept after my oncologist because I needed him to refer me out of state to a surgeon. Where I live there was no one qualified to do this type of surgery. I ended up with a Liver Transplant Surgeon at UCLA in California. He also told me two times when I went to see him that no he wouldn't do the surgery. On the third time after 11 months of chemo for whatever reason he said yes. I still had cancer cells in some of the lymph nodes that they removed so I had to complete an additional 3 months of chemo.You have to fight and be an advocate for your own healthcare.
My chemo cocktail was Gemzar and Cisplatin. I went 4 days a week (5-8 hours) three weeks then I would have a week off. I had to have both white and red blood cell shots in between those times, when my counts we too low. I started my chemo December 28th, 2005, surgery October 13, 2006 (Friday the thirteenth), last chemo March 31, 2007. I still see my oncologist every month and have blood drawn. I was receiving Ct Scans every three months until this year. Yes, I do glow in the dark!
I think that doctors are very cautious when dealing with this disease as the statistics are outdated and this disease is coming to the forefront. I'm glad that your mother is beginning this journey without any other major medical problems. I too was in relative good health when I started and I was only 46 years old. My email address is LGregg6293@Aol.Com if you would prefer to speak via email. Just make sure you put ACS-CSN in the subject line so it won't end up in my spam folder. Ask me anything you would like.
Take Care and I will add your mom to my prayer list. Hope and Faith will carry you through.
Lily

maudsie
Posts: 54
Joined: May 2010

I am happy to report to my latest CT scan continued to show NO evidence of cancer. It's been more than 2 years now. My port is going to be removed next week. YAY!
Maudsie

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi Maudsie,

That is not good news but "Great News". Congratulations!! Finally to have that port removed deserves a special celebration. It is important for others that are in the midst of treatment to hear success stories. Again YAY!!!

Take Care
Lily

kgrandma
Posts: 1
Joined: Oct 2011

Hello Lily,

This is my first time on this site and I'm really not sure if I am posting properly. I am so happy that are now cancer free. Reading your story gives me hope for my grandma. We live in Toronto and have found out that she has recently been diagnosed with stage 4 Gall Bladder cancer. It all started with the doctors finding a tumor in her gall bladder that was all removed and doctors telling us everything was fine. She went back to the doctors 3 months later and they found cancer in her gall bladder area. Something about lymph nodes and the cancer spreading to her lungs. I don't understand how this can be stage 4 all of a sudden. The doctors told her she only has 8-10 months. My grandma is currently 69 and I am really hoping she goes to get chemo therapy and whether this will help rid of the cancer. I am staying positive and I am wishing for the best. Please help thank you..

Milo55
Posts: 1
Joined: Jul 2011

Hello Lily,

how is your grandma? My husband is excatly same case. His Gall Bladder was removed last year. He was diagnosed with stage 4 Gall Bladder cancer.After 4 section of chemotherapy he was just fine. His CT, MRI and PET test was negative. Just 2 month ago my husband's skiny and eyes turned yellow. They took him to the hospital and he had a surgery, they put stand in his bile duct. Doctor who operated on him is telling me he has max 8 month to live. His oncology doctor wants to give him more chemotherapy and radiation because there is another tumor in his bile duct and his omenta is full of positive cancer cells. He is only 57 years old. I am so angry and confused.
I am still looking for some alternative medicine, green juices. Please, help.
Thank you.

kjgrieger
Posts: 6
Joined: Aug 2010

I was reading your post and was so happy to see that you are cancer free! I am sure that is a wonderful feeling. My mom is undergoing chemo for gallbladder cancer and we will know the week of October 11th-ish how well her chemo treatments are working. I pray everyday that she will receive the same news as you soon! Thank you for your positive post - gives people hope! Take care of yourself!

Kellie

kjgrieger
Posts: 6
Joined: Aug 2010

I was reading your post and was so happy to see that you are cancer free! I am sure that is a wonderful feeling. My mom is undergoing chemo for gallbladder cancer and we will know the week of October 11th-ish how well her chemo treatments are working. I pray everyday that she will receive the same news as you soon! Thank you for your positive post - gives people hope! Take care of yourself!

Kellie

newnewkb
Posts: 2
Joined: Sep 2010

Hi Lily,
Thank goodness I found you and to hear that you are GBC survivor! Internet and the information shared by the oncologist did not give us the best future for this cancer.
My mom who is 66 years young has been diagnosed on Sept.3, 2010 with stage 4 GBC that has metastasized to liver. The oncologist said no surgery due to the type of cancer. She’ll start her chemo combo of Gemcitabine and Oxaliplatin next week. Is this the standard protocol of treatment for this cancer? Is there anything else that can be considered “more aggressive” to treat this cancer? What else can we do for my mom? I want to make sure that we are looking into all options so that my mom has a greater chance to fight this thing. She lives on the north side of Chicago and if anyone knows of a great oncologist, that would be great start to get her a second opinion.
Also, can anyone tell me about the experienced side effects from this chemo combo and how you coped so that I can prepare to help my mom after her treatments? Thanks, Tina.

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hello Tina,

What a great daughter you are to your mother for taking the step towards finding information to help your mother with this terrible disease. Thank goodness with all the negativity out there that you found this site. This thread has been going on for over a year and there are others that have also survived this terrible disease or are in the midst of the fight. We are all here for each other. Hope, faith, support, whatever one needs to fight the fight for their life. This is a terrible disease and there hasn't been alot of attention paid to it because statistically most people when they are diagnosed with it may be too late for curative purposes according to doctors. But I say there is only one who can make such a decision and he/she doesn't live in this world. If you have read other postings you will see that your mom's diagnosis is pretty much the same as others. Each individual is different but the general consensus is the same. Some of us have heard the dreaded "No Surgery" for this type of cancer. I too fell into that catagory but it wasn't acceptable to me and some others. We all had different situations but in the end a few of us did receive the surgery after we originally we told "No". It is very important to receive second opinions and to have the attitude that we could beat this.
You mom is around the age of most of the patients that I speak to with a few exceptions.
The chemo cocktail she will be receiving is the standard protocol at this point. Gemzar and one of the platin series seems to be what everyone is receiving. I started with Gemzar and Cryboplatin and then was switched to Gemzar and Cisiplatin. I now know that there is a Cisiplatin shortage currently. I had what was classified as very aggresive treatment. I had treatment daily for two weeks and then a week off for 11 months. It was tiresome. Hydration is a key, along with healthy eating, phyical exercise as tolerated. I will review my list and see if anyone has a suggestion for you regarding an oncologist that they have faith in. Everyone tolerates chemo differently and yes there are side effects. Fatigue is a big one, hair loss (can be a really big one - was for me), loss of appetite, and the list goes on. You can't approach the chemo with waiting for the side effects to kick in. You just need to address them as they happen. Mediation helps alot and yoga. Talk to us with your questions as you experience them with your mother and we will try and give you advice based on our own experiences.

Take Care of mom and yourself.
Lily

newnewkb
Posts: 2
Joined: Sep 2010

Hi Lily,
My mom (and family) received great news that her chemo treatment is working after her first CT scan since her diagnosis! Before this news, she was ready to die but now she has turned a new leaf and ready to live again! Her determination to fight this disease can be seen as she’s eating and drinking and trying to gain the weight back! It’s amazing to see this change!
I want to share this news with you because you have been a great support system for me since my mom’s diagnosis when I thought there was no light at the end. You provided me the strength to be able to tell my mom that she has to have faith and hope! Thank you for starting this blog or all of us!!!
I’ll keep you posted as she continues with her treatments!!! Best Regards, Tina.

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi Tina,

That is wonderful news! I'm so happy for your Mom, you and your entire family. This disease needs to be treated with a positive mindset. It is such an uphill battle sometimes but you can't let it drag you down. Taking it day by day and hoping for no setbacks is all you can ask for.

Thanks for sharing as others read these posts and even though they may not comment on them it is a ray of hope for others too.

Keep us posted and tell her I wish her well.

Take Care
Lily

maudsie
Posts: 54
Joined: May 2010

Excellent news Tina! I am so happy that this has given your mother renewed strength for the fight! It's so important to hang in and not give in.
Best to you both,

Maudsie

NatPat
Posts: 1
Joined: Sep 2010

Hi Lily 50,

I live in Australia and my mum was diagnosed with gallbladder cancer in February 2010 since then she has had four major surgeries to remove her gallbladder half of her liver, reconstruction of the bile ducts and also had a very large tumor removed from her abdomen.Mum has also had 3 months of chemo ranging from iv once a week to having a pump the delivers chemo everyday and well as 6 weeks of radiation therapy 5 days a week.
Her cancer spread to her liver, stomach lining, abdomen and some lymph nodes. I feel that maybe she doesn't have much time left. I have researched and there is just hardley any information about this cancer.

I hope that you are still doing well, and if there is any advice you could give me on the name of the chemo you had I would really appreciate it.

Thanks so much

Nat

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi Nat,

I'm so sorry to hear about your mum. You are a very caring to try and help your mum in any way that you can. It is good that your mum has already had these surgeries. That means to me that her turmors were small enough to do those types of surgeries. Chemo and radiation at the same time has to be taking its toll on her.
This type of cancer seems to involve the gallbladder, liver, stomach and lymph nodes. Those are all the same places that my cancer had traveled to. If you read the other posts those organs are almost always involved, depending on the stage of the cancer.

This is a disease that you have to have positive thoughts about and have hope and faith.
When I was diagnosed I was told 2 weeks, 2 months was the timeframe and 5 years later I am still here. Doctors can be wrong and you have to remember that you mum sounds like a very strong lady and I'm sure that she doesn't want this disease to beat her.

Most of the information on the Internet is quite outdated. I know several people who were given a short time frame also and they are still with us.

I am doing very well and hope to continue to do so.
The chemo cocktail that I received was Gemzar and Cisplatin. I didn't have radiation as my liver couldn't handle it.

Hope and Faith will carry you through this journey.

Take Care
Lily

inam
Posts: 2
Joined: Sep 2010

hi lily...
my father diagnosed a gall bladder cancer a month ago..since that day we all are vary upset find no way.
but the source of hope is Shifa international hospital Islamabad,Pakistan
his oncologist start his chemo therapy,,until now 1 cycle have been completed and other will be tomorrow.
first is consist of Gemzar, decadon, zafan.
i personally want to contact you through phone or skype etc.i shall be vary thankful to you

remember my father in your prayers and may Allah give you a happy,properous life
regards
inam
+9203214068659

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi Inam,

So sorry to hear about your father. It is understandable that you are all upset by this terrible news.
I'm so glad for you that you have found hope for your father at this facility.
Have they told you what Stage he is in? How many chemo treatment cycles will he be receiving? How old is he?
I received Gemzar and Cisplatin.
Since this is a public forum it isn't a good idea to list your phone number. I don't take personal calls as things such as this are very private and I will support you however I can via this forum or email. You can email me at LGregg6293@Aol.Com.

Of course I will pray for your father, along with you and your family.
Take Care
Lily

smart_dashing
Posts: 1
Joined: May 2011

Hiii! howz u....?? m glad to found you here and n also know that you are GBC survivor... Well, my uncle is 70 yrs of age and he is from India... my uncle is diagnosed with gallbladder cancer stage 4 since December 2010.... He took a chemo in January 2011 but couldn't tolerate it... So, he didn't prefer any chemo after that.... Moreover, he lost half of his body weight n also not fit for chemo now. Currently, he is suffering from severe stomach pain... Now Doctor over here says that he has no way as the cancer spread to his Liver n other organs nearby...Doctor over here has discharged my Uncle from the Hospital last 6 days ago and advice to take pain killers like Morphine n contrammol Injection 2 get relief from pain... No other treatment is given by the Doctor other then 2 get relief from pain so far.. My uncle is now at home counting his days ahead... Is there any way to give him a good treatment in India yet to add few years more to his life...??? Plzz help me out for his best results... I feel like crying for him... Lastly, hope for your quick response.... My email id is (nasimsmartguy@gmail.com) thanx...
Yours faithfully
Nasim Sazzad Rahman

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi Nassim,

Welcome to our forum. I'm so sorry to hear about your uncle. I can tell that you love him a lot as you have come to this board seeking answers. I'm a five year survivor of this terrible disease. I was only 46 when I was diagnosed. When you say that your uncle couldn't tolerate the chemo was there any consideration to either lowering the dosage or changing it all together? My original cocktail (Gemzar and Carboplatin) didn't work for me in the beginning so they switched it (Gemzar aand Cisplatin). Or was he just too weak to be able to handle the treatments? This disease can be very painful. You need to find another doctor that maybe will have some suggestions on how your uncle can have a longer life. Maybe another doctor will have another treatment plan that will sit better with your Uncle. Give it a try, what do you have to lose. In order to beat this disease you have to have positive thoughts to get you through. In order for your uncle to have any quality of life the pain has to be minimized. It isn't unusual for nearby organs and lymph nodes to become involved. Your Uncle probably isn't counting his days ahead but is trying to make the most out of the days he feels he has left. Without chemo, radiation and surgery, palliative care is the only option left. He needs to be supported by family and friends and try to enjoy each day the best that he can. There are no alternative methods that I am aware of for this type of cancer. He needs to try and eat healthy and take supplements to help him through this terrible disease. Let us know what is happening with him and ask us any questions you want, we will try to help.

Take Care
Lily

parthgovil
Posts: 5
Joined: Jul 2011

Hi,

I am from Bangalore, India. My father's been diagnosed with gallbladder cancer stage 4 which has spread slightly to liver as well.

Yours seem to be a very motivating case, anything specific you did + can you give me the contact details of the oncologist who treated you.

Regards

Parth

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi,

Welcome to our board. This thread is a little older than the Gallbladder Cancer 2011 thread. Many people have moved over to the smaller thread as it takes forever for this one to load and finding new posts can be difficult.

I'm so sorry that this terrible disease has entered into your lives. It is a terrible disease and the statistics are out-dated and give little hope. I am a 5 year survivor of this disease. I was diagnosed in 2005, received chemo from 12/2005 thru 09/2006. I had surgery 10/2006 and then more chemo in 01/2007 thru 03/2007. I was Stage 4 and inoperable. My chemo cocktail was Gemzar and Cisiplatin. It took 3 visits to the surgeon in another state before I was given the opportunity to have an extended (or radical) cholecystectomy performed at UCLA in California.
My oncologist was:
Cancer and Blood Specialists of Nevada
Russell Gollard, MD
58 N. Pecos Road
Henderson, Nevada 89074
702-822-2000
Green Valley Location
He is the best and saved my life.
My surgeon was:
Howard Reber, MD
Specialty Surgery
Hospital Affiliation Ronald Reagan UCLA Medical Center
Contact (310) 825-4976
Email Address hreber@surgery.medsch.ucla.edu
He is associated with The Jonsson Comprehensive Cancer Center.
http://www.cancer.ucla.edu
Check out this website, it has lots of good information

The journey with this disease is long and hard. It is important to treat the whole body along with the mind and spirit. Nutrition is very important along with exercise and I found meditation helps. Don't lose your Hope and Faith when dealing with this disease.

Take Care
Lily

girishpd
Posts: 1
Joined: Jan 2012

Hi Parth,
I hope your father is doing well.
My Father-in-law has been diagnosed of a stage 3 Gall bladder cancer, I am in Bangalore too and would like to know where you got your father treated, It would really help me to know your experience.

Thanks,
Girish

parthgovil
Posts: 5
Joined: Jul 2011

Hi,

Ya, happy to state that father is doing quite well. Hope this continues. We got ourselves treated at Columbia Asia, yashvantpur, refer to Dr. Neelesh reddy, they take great care. You could write to me at parthgovil@yahoo.com.

Regards

Parth

bmcsatmss
Posts: 2
Joined: Jul 2011

hi,I am a 3rd year medical student from Srilanka. My mother was recently diagnosed for galbladder cancer which spread into liver and lympy nodes.Due to para aortic lymph node involment surgery not done.Today she has inserted a stent to releave symptoms.One of ouroncologist have desided to start chemotherapy.But he told that it was not sure.If any one can help me please reply me.I want to know about chemotherapy and how from where we can take it.thank you(twmsandamalee@gmail.com)

cuddlebeardee
Posts: 1
Joined: Jul 2011

Just a few months ago my mom was diagnosed with gall bladder cancer. She had said that she was having some back pains and noticed she had a rash on her side and lower back. It turned out that she had shingles, so they put her on gabapentin, she has healed from that. Then the doctors did a biopsy and found a tumor in her stomach, did the Pet Scan and that's when they found it was cancer.

Right now she has stage 4 cancer, just started chemo last month. The doctor put her on Gemzar. Last week when they the blood work they were going to check her markers, well yesterday, they told us that her markers have come down quite a bit.

I've noticed that when she comes out of chemo, she is loopy, a bit disoriented, her behavior is off. I don't know if this is typical or I can just blame it on her age. It frustrates me to see her act like this. She is fine when my daughter and her great-granddaughter come over. My granddaughter is 21 months, she is wonderful.

I have concerns that she is loosing weight each week, she is small in frame to begin with. About 15 years ago I lost my dad, he went in for a quad by-pass and didn't make it, then loss my aunt and uncle the following year, so my mom's support team is no longer. Her support team is my brother, my daughter, some family members and my boyfriend. I've talked to my uncle, he is a retired microbiologist in cancer research and he tells me to hang in there. I take her to her appointments and I use up a lot of leave, thankfully where I work I accumulate leave but it does take a tole on me.

I'm curious if others out there are experiencing the same thing with their loved ones going through this. I really don't have anyone to talk to about this. Right now we are hoping for remission. I try to educated myself on this type of cancer as much as possible.

I look forward to reading any comments from others out there, take care everyone and my prayers are with you each and every day.

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi,

Welcome to our board. This thread is a little older than the Gallbladder Cancer 2011 thread. Many people have moved over to the smaller thread as it takes forever for this one to load and finding new posts can be difficult.

I'm so sorry that this disease has touched your mother and your lives. This is a very sneaky disease and can sometimes appear with little or no symptoms. It is good that she started chemo and is already receiving results. That means that the Gemzar is doing its job to kill those nasty little critters.

In the beginning of chemo sometimes they will add some type of medication to help you relax. You need to ask the chemo nurses exactly what she is being given in her cocktail. Sometimes doctors will add that component if they feel it is necessary. When you ask the nurses what she is being given, write it down and if you don't understand keep asking. You need to be an advocate for your mother.

I was so happy to hear the joy in your voice when talking about your granddaughter. It is important for you not to let your mother’s illness become all consuming. You have to take care of yourself also.

It is pretty common to lose weight when undergoing treatment. You can lose your appetite or you can become hungry all the time. I found that small meals worked the best every couple of hours. Also Ensure and/or Boost will make sure that she gets the nutrition that she needs. Fruits, vegetables, lean protein, and smoothies are all very good choices.
It sounds to me like your mother has a strong support team. As people get older their support system can change from people that are their age to their children.

At any time you can talk to us. There are people who have completed treatment, people who are in active treatment, and people who are the caregivers for their loved ones. We all have different perspectives on this disease. Becoming educated on this disease is a good thing. Knowledge is power and the more that you know the more comfortable you can become with this disease.
Ask us any questions and we will try to help you and your mother during this journey.

I'll add you mother to my prayer list.
Take Care
Lily

robynlaurie80
Posts: 3
Joined: Sep 2011

Hi ,I am in the middle of having chemo ( gemzo an cisplaten) each week ,for gallbladder cancer and I am becoming very empty-headed and forgetful and I start to say something and it all comes out wrong. My Oncology Nurse says it happens to lots of people having chemo. I try not to worry about it now and just get on with life.
Just forgive your Mum and give her a big hug and wish her well for me .
It's a hard journey and she needs you there . You sound a loving and caring Daughter.
Rob

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi Rob,

Welcome to this forum. I'm so sorry that this disease is now a part of your life. It isn't any fun at all! I'm Lily and I'm a GBC Stage 4 survivor (6 years). I too had Gemzar and Cisplatin as my choice of chemo cocktail. Tough stuff! What you are experiencing(empty headed and forgetfulness)are quite common. Add pain medications on top of it all and it is no wonder that we can function at all. But this too does pass. What stage are you in? How old are you? Where are you located at? I'm glad that you found our little group and if we can help you in any way let us know. There is a more current thread that doesn't take as long to load or to find postings - Gallbladder Cancer 2011. Check that one out to if you have the time or inclination to do so. Hope & Faith will carry you through.

Take Care
Lily

Lily50's picture
Lily50
Posts: 209
Joined: Aug 2009

Hi!

Welcome to our board. This thread is a little older than the Gallbladder Cancer 2011 thread. Many people have moved over to the smaller thread as it takes forever for this one to load and finding new posts can be difficult.

I'm so sorry that this disease has come into your mother's and your life. It is a terrible disease without much research. The information that is out there is very outdated. Your mother is fairly young. I was 46 at time of diagnosis Stage 4. You are such a good son to try and help to support her. Even though she hasn't had surgery does not mean that she can't have it later. I had to complete 11 months of chemo (Gemzar and Cisiplatin-IV) before I could have an extended (or radical) cholecystectomy. I had to have an additional 3 months of chemo after that as there were still cancer cells in the lymph nodes that they removed. I didn't have radiation as my liver was compromised. Many others have had to have stents to get relief until they were able to have surgery.
I have listed in the post before yours my oncologist and surgeon names.

Hope and Faith can carry you through this long and hard journey.
Take Care
Lily

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